Blogs

Essays by a diverse group of writers, in the United States and abroad, engaged in rethinking psychiatry. (The directory of personal stories can be found here, and initiatives here).

Chapter Thirteen: In the Muck and The Mire

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There I was on my first night of Outward Bound, lying under the big Texas sky in a little town called Redford, amidst waxy...

A Recovery Movement Deterred?

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I had the good fortune to be working at a dynamic Recovery program for adults beginning in 1990. I passionately believed that not only does recovery happen – but that we would be able to demonstrate it by reporting significant improvements in quality of life outcomes such as employment, housing and social supports. The program's commitment to Supported Employment, for instance, was emphatic and we took pride in doing “whatever it takes” to support our members’ integration into the community. The Recovery movement was just taking root in California and throughout the U.S. When I look back on the following 19 years, I can’t help but feel some sense of disappointment about the overall outcomes.

What Is Biological Psychiatry? Pt. 3: Thoughts on Hastening Its Demise

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In Part 1 of this blog I attempted to summarize and define the evolution of psychiatry into its present day incarnation of Biological Psychiatry. In Part 2, I focused on analyzing the anatomy of its enormous power and control within our present day society. Given the difficult circumstances we now face in confronting such powerful institutions, I still believe there are many opportunities to expand our struggle and grow our movement. History has taught us that “where there is oppression there will always be resistance.” With each person and family abused by this system, combined with every lie the system tells us, there is a constant regeneration of favorable conditions to expose them and gather allies.

Public Comment to the National Council on Disability on its Engagement with CRPD

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The National Council on Disability is holding an in-person public comment session on April 23 regarding its engagement with the Convention on the Rights of Persons with Disabilities. I have submitted the following comments on behalf of the Center for the Human Rights of Users and Survivors of Psychiatry (CHRUSP).

Guidelines for a Thoughtful Discussion

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Back in December,  when I decided to turn madinamerica.com into a webzine, I envisioned it as serving several purposes. I wanted to create a...

Lullaby

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On Monday a new study was published with the finding that there is a three- to four-fold increase in the rates of Autistic Spectrum Disorder and Developmental Delay in children, especially boys, born to mothers who have been on antidepressants through pregnancy. There are further studies with comparable findings in the offing. Not only this but it looks as though the SSRIs may redefine what it means to be a teratogen. Other teratogens produce their effects in the first trimester of pregnancy when organs are first being formed. But it looks like antidepressants used in the third trimester can lead to autistic spectrum disorder and developmental delay.

Please Defend the Right to Bear Arms

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I remember the first time I read the Bill of Rights. I was a child suffering with extreme states and didn’t have any idea what I was experiencing. I believed and I was told that I was different. At the same time, I watched my mother get fired from a job she worked so hard for and went to school for, because of a diagnosis. I then watched all her rights stripped away in psychiatric hospitals. Through it all I felt hope because of those rights contained in the Constitution.

Blogging Your Survival Story: 11 Tips

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If you're on psychiatric drugs or you're a psychiatric survivor, chances are others told your story for you in their words. Like it or not (I hope you like it), you're going to have to retell your story in your own words, in your own way. If you choose to do this through blogging, social media, video or any other digital approaches, having your story read, seen and/or viewed by many could be very satisfying. You may not be ready to share it so publicly yet, but once you are, there are some tools to get your story out there to the masses.

RCTs: Really Concerning Trends in Research and Marketing

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An RCT is simply a research tool and, as a tool, it can be used in a variety of ways. Unfortunately, the idea of a hierarchy of evidence seems to be hypnotically seductive for many people and powerfully useful for the drug companies. In order to get a drug to market, regulators in the US such as the Food and Drug Administration (FDA) and also in Europe, only require the drug companies to produce two RCTs with statistically significant positive results. Perhaps this very low standard has contributed to the fact that RCTs can be much more useful as marketing tools for drug companies than for discovering new and useful ways for people to live healthy and meaningful lives.

SELF: Sharing Experience Lived Firsthand

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Service users and survivors who work in a behavioral health settings are faced with important questions about whether or not to share their lived experience and when. We may ask ourselves: Am I ready? What about the risks and politics of disclosure? How do I address an associated expectation or barrier, or deal with the possibility of discrimination? What kind of support is available to me in the process? I’m pleased to announce Sharing Experience Lived Firsthand (SELF).

Human Beings Are More Than a Combination of Letters, or; Why We Needed a...

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We are among an increasing number of people around the world who know the importance of holding on to a humanistic idea, and of keeping in mind that people need—first and foremost—other people. People who are willing to take part, to share with us the horror and confusion, to invite the telling of a narrative, and to keep the hope alive.

Advice to the Newbies: Give Your Heart, & Hold Your Theories Lightly

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I was recently asked to give the commencement address for Goddard College's masters program in psychology and counseling. This is what I said.

Too Much Pies

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On March 18th, Ronald Pies, a psychiatrist based in Lexington, Massachusetts, wrote a letter to the New York Times. He argued in favor of the usefulness and harmlessness (when well used) of psychiatric diagnosis and wondered as to the misgivings so many seem to have. The Times invited its readership to participate in a dialogue by submitting responses to Pies’s piece. Laura Delano, Paula Caplan and I were among the relative few who managed to get our voices heard. Pies had the last word, though: He gave just two short sentences to my dispatchment, and summarily disregarded so many years of pain and loss and abuse of power.

Support for SB 614 with Amendment to Supervision Qualifications

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Throughout California, the nation, and the world, peer specialists provide services to individuals with mental health challenges. In California, over 6,000 peer specialists are employed. In 2007, the Centers for Medicare & Medicaid Services guided states to create peer certifications. Since then, more than 30 states have created statewide peer certifications, and if Senator Leno’s Senate Bill 614 goes through, so will California

“Why Wunderink Matters”

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Sandra Steingard writes in Community Psychiatrist about Lex Wunderink's study, published in the August JAMA Psychiatry, which found that people who discontinued medication have...

Thoughts on the Global and U.S. Movements

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I've just returned from a meeting of 17 activists self-identified as users or survivors of psychiatry, or people with psychosocial disabilities, from all over the world. Literally all over the world. An international gathering of human rights defenders that makes me proud to be among them. It was a meeting where I felt heard and acknowledged and able to fully give what I had to give - to offer it up along with everyone else's contributions for the common deliberation. I gave all and received all in return.

A Recovery Story, in Dollars and Cents

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In these days of sequestrations, budget cliffs, and congressional gridlock, everyone is feeling pressured to cut back, cut corners and find the most inexpensive way to accomplish anything and everything. For those of us who have been working so hard over the past decades, this leads to the obvious question, "can we afford recovery?" I mean, after all, it is usually cheaper to just give someone a drug than to invest in the time and effort needed to bring human spirits back alive to strive and thrive. So I decided to look at this question, from the vantage point of my own singular life.

Sheller’s Appeal Demonstrates FDA’s Indifference to Drug Harm

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As I wrote in Let’s All Support Stephen Sheller’s FDA Petition to Revoke the Pediatric Approval of Risperdal, Stephen Sheller's law firm, which represents hundreds of boys who were prescribed Risperdal and then grew breasts (gynecomastia) as a result, filed a petition with the Food and Drug Administration (FDA) to change the label and revoke its approval for use on children. During the course of discovery for litigation in its Risperdal cases, Sheller became privy to documents not provided to the FDA that showed Johnson & Johnson hid the problem. This is a very important case. If it is successful, it will give hope of forcing the FDA to follow its mandate to protect the public from harmful drugs.

The Power of Words: What the Wall Street Journal Didn’t Tell You

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Two weeks ago there was an editorial in the Wall Street Journal that basically eviscerated the Substance Abuse and Mental Health Services Agency (SAMHSA) while at the same time calling for support of HR 3717 – The Helping Families in Mental Health Crisis Act. HR 3717 has elements that we agree with as well as elements we don’t. In addition, there are elements that are just plain confusing to us. In this post I want to address three of the most popular sound bites (two of which found their way into the WSJ editorial) that continue to come up again and again.

I’m Going, Are You? How to Get Involved in the Annual Protest of...

On May 4, 2014, I will be speaking out with many others at the Annual Protest of the American Psychiatric Association, which is organized this year by MindFreedom International and the Law Project for Psychiatric Rights. It is just a few days away and I am so inspired by the outpouring of support people have given to this effort!  There are literally people coming to the protest from all over the country - including Alaska, Florida, Massachusetts, and Detroit (that I know of).

Personal Steps toward a Revolution in Mental Health Care

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My friend David Oaks, director of MindFreedom , likes to say that what is currently needed is a non-violent revolution in mental health care.  Mental...

Wake Up and Smell the Coffee!

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"I want to change the way we think about mental health care so that any child, whether they have a mental illness or simply need support through a difficult time, can get the right help at the right time." This was said by Care Minister Norman Lamb and quoted by the BBC on March 17th 2015. Mr. Lamb is known to have a son who has suffered mental health difficulties and it may well have come from the heart as much as it did from the election fever which is beginning to infect British politicians. However it says something worth picking up upon. I want to change the way we think about mental health care… and … simply need support through a difficult time. These are important shifts of language, and doubly important when they come from a government health minister.

Anatomy of an Epidemic wins investigative journalism award

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Investigative Reporters and Editors recently named Anatomy of an Epidemic as the winner of its 2010 best “investigative journalism” award in the books category. Here...

Fighting for the RLCs Continued: Where’s the Evidence?

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The Western Mass Recovery Learning Community (along with the five other RLCs across the state of Massachusetts) remains in jeopardy of a 50% slash to our budget that would go into effect July 1, 2015 should it come to pass. As noted in my previous post (Peer Supports Under Siege), the proposed reduction was introduced by Governor Charlie Baker in early March. However, there are many hoops to jump through and so we’ll remain in budget limbo for some time to come while the House and Senate draw up their own recommendations and then everyone comes together to make a final call.

”Broken Brains” and “Beautiful Minds”

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When I first interviewed Brandon Banks, in the spring of 2008, while researching Anatomy of an Epidemic, he had recently entered Elizabethtown Community College...