Recovery/Empowerment

Can withdrawal from psychiatric drugging be so terrible as to leave you with Post-Traumatic Stress Disorder (PTSD) — to somehow rearrange your psyche for the worse even once time and hard work have undone the damage caused by the chemicals? To so profoundly alter your core self that you acquire a new diagnosis meriting special considerations or further treatment in order to resume a normal life again? If the real definition of insanity is “repeating the same mistake over and over and expecting a different result,” then embracing a psychiatric diagnosis of PTSD as a result of psychiatric damage would surely make you “insane”.

In these days with limited access to mental health facilities, and when in-patient or out patient treatment might be focused on invasive treatments and not on recovery, you may be tempted to "provide sanctuary" for a friend or family member who is experiencing serious mental health challenges. Many of you have probably already done this.

If you’ve been paying attention the last two years, you’ve seen the new DSM-5, as well as its predecessors, taking a beating from a variety of critics pre- and post-publication. Most have begun by noting the lack of construct validity of DSM’s diagnoses, dating from the landmark DSM-IIIR in 1987. Given the absence of scientific evidence to support their existence, these diagnoses were less likely to represent the neurobiological phenomena claimed by the DSMs’ several authors than to be products of their collective imaginations.

When we share our stories publicly, whether in speaking, writing, or another art form, we acknowledge we are part of something bigger. We are aware we aren't the only ones who have been abused or witnessed abuse, or who are scared to let go of our ancestral shame and fear. We are, rather, part of an entire generation, an entire society that is moving away from silence, blame and abuse. In sharing our stories, we instantly recover from a big hunk of loneliness, loneliness that might not be so easily resolved sitting in a room across from a professional, with a few non-offensive art pieces on the walls. We acknowledge that every single one of us who experiences physical or emotional symptoms is holding onto things for others, in our bodies, and together, word by word, we can break free.

If we believe that emotional problems are primarily disorders of the brain, then perhaps taking a “fill-in-the-blank” medical history is sufficient. However, if we believe that emotional crises and dis-ease are problems that exist between people, in our sticky or not-so-sticky web of relationships, then whether families, survivors and those in crisis can heal together is a much more relevant, if still complicated, question. Perhaps the most honest answer to this question is: “It depends..."

It’s hard not to be enraged when your life is in shambles, you want nothing more than to get it back (and it’s happening barely, slowly, if at all), and you feel betrayed by the very people who you thought, at least at one point, meant to help you.

I live a slow paced life. I meditate every morning, refuse to get a smart phone (yet), and it takes me generous amounts of time to do things. This isn't because I am “stupid” or slow to get things. Sometimes I wonder how others get so much done each day - yet the quality and vibration of what I do is unique. It needs time. How does this relate with psychiatric drugs? Psych drugs are rooted in impatience, urgency, emergency.

While a 2-year outcome study by Wunderink, et al. has been cited as evidence that guided discontinuation of antipsychotics for people whose psychosis has remitted results in twice as much “relapse,” a not-yet-published followup of that study, extending it to 7 years using a naturalistic followup, finds that the guided discontinuation group had twice the recovery rates, and no greater overall relapse rate (with a trend toward the medication group having more relapse.)

In the film Avatar, scientists are keen to exploit the moon planet Pandora which is inhabited by 10-foot-tall blue humanoids called Na'vi.  To do so they create Na'vi human hybrids called “Avatars” which are controlled from afar by genetically matched humans. When the scientists decide to destroy the eco-system of the planet to gain access to valuable minerals, war breaks out between the humans and the Na'vi. At this point the main character, Jake, who operates an Avatar, has to choose whose side he is on.  Eventually Jake's life is saved and transformed by the Tree of Souls, which the humans are trying to destroy. Why are Avatars in the news again? The latest innovation from psychiatric research is using computer-generated avatars to help people who hear aggressive voices.

The Association for Psychological Science (APS) was founded twenty years ago by psychologists and neuroscientists who were dismayed by trends in the American Psychological Association (APA). The APA had lost its old single-minded focus on the search for empirically based answers to psychological questions. This may have followed from the fact that the APA’s membership encompassed an ever-larger percentage of practicing psychologists with many immediate, practical concerns. Yet it is these very clinicians who are in such dire need of empirically validated procedures. It might be time to summarize newer empirical literature that challenges the assumption that the mere expression of emotion is helpful.

When children do things like recoil in fear from monsters and ghosts in their darkened bedroom at night, it’s easy to see the “out of touch with reality” aspect of their experience as being closely related to the faculty that gives them their ability to play – their imagination. We help children through such challenging experiences by being with them, and by playing together, doing things like creating scary images together and then figuring out how to cope with them or laugh at them. In the process we help them explore how to create a world view that works to at least some extent and has room for joy and originality - when their imagination helps them (and maybe others) see the world in new ways.

David Oaks, whose 1998 challenge to "check out the research for yourself" led Robert Whitaker to write Mad in America and create this website,...

I've just returned from a meeting of 17 activists self-identified as users or survivors of psychiatry, or people with psychosocial disabilities, from all over the world. Literally all over the world. An international gathering of human rights defenders that makes me proud to be among them. It was a meeting where I felt heard and acknowledged and able to fully give what I had to give - to offer it up along with everyone else's contributions for the common deliberation. I gave all and received all in return.

Less than six months ago I had the great fortune to start working with a small group of fellow producers who had spent a chunk of time traveling and shooting at various conferences. Interviews with notable figures in the movement. Survivor stories. A mixed bag of “Mad Media”. Immersing myself in the now 200+ hours of raw footage was like swimming in a sea of the subconscious. So I was swallowed whole by the white whale, consumed with the energy to put my still-developing abilities to the best use I could think of.

Open the Paradigm.

If you haven't been labeled mentally ill by the American Psychiatric Association, you have to ask yourself what's wrong. Perhaps you were ahead of the game: you knew not to reveal yourself to them, you knew how to avoid them, you found other social support, and if so, a big congratulations. If not, what's wrong? Why have you conformed?

People in roles of power in the mental health system often don’t realize how much complicity they have in actually creating the symptoms they claim are biologically-based in individuals with psychiatric labels.

Imagine being able to live harmoniously amongst others without fear. I cannot. Cannot imagine it even a little bit. What can be created for people in my camp? People who are sensitive and had so much trauma in childhood that life among others is highly stressful, scary and worrisome? I'm allowing myself sanctuary-time alone, quiet time, time to write… yet… will things ever be different? Will I ever find my niche in this world, where I feel safe and able, valued and worthwhile, loved, adored and comfortable? I have no idea.

Psych meds can not only put weight on regardless of how you otherwise care for yourself, they also tend to make people feel gravely lethargic and vaguely sick all the time. I could not exercise as I had before. Could not. It doesn't matter how much mental health professionals try to tell us that if we just exercised we'd be okay in the face of neurotoxic drugs that cause weight gain, because the fact is the drugs impede that capacity. This is not widely appreciated or understood and people on psych meds are again traumatized and made to feel guilty for something that is truly outside of their control as long as they are taking these medications.

Suicidal torment is magnified by the loss of hope. People in life-or-death survival conditions, such as being lost in the wilderness or being held prisoner of war, will dream and plan for the future in order to make their present conditions tolerable. The critically ill heart patient expresses his faith in his upcoming surgery by making a date to play golf six weeks after the operation. But the depressed person sees no viable future. There is nothing to look forward to, no dreams to fulfill, only the never-ending hell of the eternal present.

For everyone who goes on psychiatric drugs, the reason comes back to power imbalances in their personal life. Women who's husbands “make all of the money” and have an unequal share of the power, kids who's parents have power over them—frequently people who have less money and security, therefore less platform for authority than those around them. Mental illness is not in fact an illness but an unequal division of power and sense of security in a social group.

Anyone who has used benzodiazepines and sleeping pills knows how difficult it is to get off them (worse than heroin!) and how much time it takes to recover. Although there is a lot more helpful information on the web these days, a lot of it is based on anecdotal accounts, personal stories and theories rather than “real” evidence.

I hope this will be of help to people who hear voices and their friends and supporters. I also hope it will be helpful to the voices which are parts of many people's lives. Many voices I have come across and the people that hear them are convinced that their voices are spiritual in nature. I take an agnostic position on this, and therefore endeavour to respect different spiritual understandings. My intention is not to explain all voices psychologically but to help people make peace with their voices so they can get on with their lives.

It’s been the kind of contemplative, hibernating winter that’s left us ready for an action-packed spring. Jacks and I spent two months living in a little house in the woods finishing our first solo books and revising the classic Icarus text Navigating the Space Between Brilliance and Madness...

A few months ago I had the great honor of speaking with Kofi Annan, former secretary general of the United Nations, after a talk he had given locally here in Washington, DC. We spoke about eCPR and there was a moment that I will remember for the rest of my life. He looked deep into my eyes and said, “We are in the same line of work. We are peacemakers.” It was a profound statement that inspired me to think more about eCPR as a tool of peacemaking.

The label of schizophrenia has a chilling ring. It carries with it the suggestion of a wrecked and wretched life. It is also a diagnosis that is notoriously difficult to shed. For this reason, the diagnosis of schizophrenia should not be applied lightly and not without a thorough understanding of the patient’s family and wider circumstances.