In searching for answers as to what went wrong with my treatment, my family and I discovered that there is already much scientific evidence demonstrating the dangers of antipsychotic medications and why they should not be used to treat illnesses such as Tourette Syndrome.
As a Jewish person, the story of Purim has always resonated with me, and it gained new meaning for me as a psychiatric survivor. Although I knew that I had experienced injustice, I struggled with the decision of whether or not to speak out about it after I was released from the institution.
Once your body enters a police car or an ambulance, it doesn’t matter what labels you carry or what the apparent “symptoms” are. It doesn’t matter if you even have any label at all. The moment you acquire a mental illness is when someone who doesn’t like you decides that you have one.
When the nurses tried to give him other medications, my father refused. They accused him of being “combative” and “uncooperative,” and they injected him with the highly toxic, incredibly dangerous, mind-bending antipsychotic HALDOL.
Imagine my excitement, the hope that relief from the sucking tar of misery that dogged too many of my days was within my reach. From that moment and for thirty years to follow, I was the willing guinea pig for any number of drugs. Nothing helped for long.
The problem with being a consumer is that we get consumed. I’ve been the bacon at far too many mental health picnics. Someone’s salary gets paid, someone’s program gets funded, someone’s career gets enhanced, someone gets accolades for being so altruistic and such a great savior — and me, what do I get? Exposed, laid bare, and isolated.
I have wanted to go public with my story ever since I started getting so dramatically better via holistic means, but I consistently chickened out. It wasn’t until I hopped on a plane to Boston to meet other psychiatric survivors at the Mad in America Film Festival in 2014 that I found the community and forum to do so.
Without doubt, Extended Leave profoundly curtails one's freedoms and rights, and the threshold for what is deemed “unacceptable” behaviour is invariably lowered. My only crime was being offensive towards an ACT team member. It seems that the goal I am now reduced to fighting for is merely the right to be rude in my own home.
I’ve seen people put more research into how to cook a turkey at Christmas time than previous psychiatrists did for my health. From the DSM to the prescription pad, if it wasn’t there, it didn’t exist. It’s a very cut-and-dry, mix-and-match method to modern medicine that has harmed millions of people, and it nearly killed me.
“You need to realise that what we see and hear in our madness might be very real!” I tell the psychiatrist. “It isn’t just delusions, hallucinations or nonexistent voices! What if it is indeed all real? And magic does exist?”
What I have learned is that benzos don’t discriminate. They don’t care that you have a master’s degree or that you are a good person in the community or that you were just doing what the doctors told you to do and you were woefully ignorant and misinformed of their dangers.
Only two hours after we got home, Dan fearlessly told me of the suicide plan that he'd devised while in the hospital. He had all that time to think about it while nobody was listening. He'd lost his dignity, his identity and his place in society. He had lost the will to live.
After working in the field, I have found that the majority of people in the mental health system are not getting adequate care like I received during my first psychotic episode. I was lucky enough to have a doctor who took a nontraditional approach to schizophrenia and worked with me on coming off of medications.
I was desperate to get off the medication. I wanted to be in control of myself again; independent and capable. The label of Bipolar Disorder made me feel like I was seen as a crazy person who did not fit into society. I wanted my dignity back!
I have grown a lot through my experiences, and would not have made the changes I have made, nor be the person I am today, had my madness not returned a second time. It returned because I did not pay enough attention to the wake-up call the first time around.
Self-acceptance is a very human experience, and a necessary one in the pursuit of personal happiness. In my experience, the mental health field does an abysmal job of addressing this truth.
Suddenly I had an insight into why my dad decided to end his life in 1976. I learned that, like me, he was on antidepressant medication. It seems highly likely that his illness could have been entirely caused by side effects of medication, just like it was with me.
I wanted to spare you, my son, from suffering like I did. I wanted to give you every opportunity I could. You have grown into a good man, a caring and successful man, yet you still have to fear for your life in this country. You still feel pain when you see what is happening.
I am a former Lieutenant in the US Navy, and on August 30, I sent a letter to the US Senate and House Committees on Armed Services, and their respective committees on Veterans' Affairs. I titled the letter "Concerning Mental Health Treatment and Suicide in the United States Armed Forces and the Veteran Community." Here is what I wrote:
While our daughter was growing up, my ex-wife treated our daughter’s body like a temple. She was the only kid among her friends not allowed to drink soda or cow’s milk as they might negatively affect her health. But Prozac for mild anxiety? Sure, no problem. I was honestly and genuinely shocked.
I believe now that fifteen years is more than a fair try. Fifteen years of getting treatment without returning to function is actually insanity. I should have given up after year two. Instead of trusting my intuition and insight, I pushed it down and down... until it finally fought its way back to the surface.
I have been here at Western State Hospital for almost five years. While I’ve been told that I’ve met all the criteria for a conditional release, the hospital won’t grant me this because I can’t prove that I won’t be dangerous in the future. Can anyone prove this? Even convicts don’t have to prove they’re ‘safe’ before they are freed.
“Won’t they know I’m lying?” I asked. “Won’t they know I’m an impostor?” “No,” he said, “not at all. You can tell them you’re suffering from delusions and they’ll believe it almost without question. It doesn’t matter if you don’t have any history of psychiatric illness or hospitalization, just make up some nonsense about hearing voices and they’ll swallow the whole thing hook, line and sinker.”
I am an award-winning singer/songwriter with a number one record to my credit. I also owned several small businesses and founded a 501c3 non-profit for women's health. I ate healthy, swam and cycled every day and had a very active lifestyle. This was before benzos came into my life. Since withdrawing from benzodiazepines five months ago, I still cannot play one of my own compositions all the way through without a mistake.
I lost almost four years of my life, and I’ve not a doubt that it was due to those “life-saving” pills. To that end, they did work. At a time when I was doubled-over with depression, those four prescriptions kept me alive. But then they killed me slowly and brought me back as a stranger.