Tuesday, December 6, 2022

Comments by scatterbrain

Showing 7 of 7 comments.

  • Dr. Hickey thank you for your account. It’s definitely an interesting aspect of social change, that an individual cannot forthrightly state their distaste or disgust without being distanced. If Dr. Aftab was to tell us how he really feels, I think he would be at risk of being ostracized by his peers. I get a strong sense reading between the lines of his article that he sympathizes very closely with the conclusions you’ve drawn. If only more providers would be willing to understand this without having to be so buttered up or sugar-coated first.. the state of treatment might actually be salvageable into something person-centered. But with this much grandiosity, it seems like a total revision is the only way to create person-centered care as was originally imagined by the humanistic folks of the 60’s (Rogers, Gendlin, etc).

  • Dr. Deacon, I’m impressed by your response and am excited to print and read your article when I get a free chance at work tomorrow. I did check out the other issues and I am not surprised at so many people towing this grey line. On one hand, it’s good for antipsychiatry, but on the other hand, their words are meaningless without action. The words sound and feel subversive but in reality they do very little to change active practice. How much evidence has to pile up against the use of PD’s before the DSM admits they are a falsehood for good? And why can’t we just escape the DSM as a diagnostic tool? There has to be a way to maintain credibility as a field and maintain the rights to participate in insurance while also avoiding pathologization..

    I’ll be sure to let you know what I think about your article, thanks!

  • TW: institutional trauma

    I’ve never told this story although I hope to soon now that I’m back in therapy.

    While hospitalized with psychosis for over 6 months, I was catheterized without my consent for reasons that were not fully explained to me. Even though they kept saying why I needed it, I was not capable of understanding. I don’t remember what they said but I remember everything else about it, being held down, being yelled at, screaming and crying. They didn’t stop even though I asked them to. There was no gentleness. The psychiatrist was a part of administering the catheter – I understand he’s an MD but why did he need to be there? Although everything feels like a dream from that time, I’m pretty positive that actually happened.

    Maybe physical immobilization, helplessness, these key factors that make up MH treatment trauma, are more the norm than the outlier?

    As well – I’m so impressed that this study is researching the qualitative content of the speech of people experiencing psychosis. This is such a huge change from a time when providers saw this speech as random and empty.

  • Hemingway, great question!! I think the journal article that this article references is actually cutting-edge. When they discuss open-treatment, I believe they mean it as a suggestion for further research and proliferation. Overall, it seems like an amazing idea doesn’t it? As someone who used to hear voices and spent almost a year in institutional settings, I cannot even describe how “open-treatments” eventually led me to recovery. In hindsight, they also could have allowed a speedier, more effective recovery. I wish you the best on your journey with your loved one

  • Karin, what a lovely and well written article. I think this article could be a great inspiration to folks who aren’t familiar with the recovery movement and need an outline of what got us here. You mentioned that it might feel vague but here’s just another survivor saying – it all makes clear and perfect sense to me.

  • This is simply amazing.. as a current therapist who has experienced psychosis in the past and also attended one of this FEP clinics for 2 years.. I never realized so many other people in clinical recovery experienced their recovery this way, “deciding how much time to devote to psychosis.” I had a lot of moments where I had to clearly choose to retrain my brain towards reality and decide that psychosis was sort of a “waste of time.” Although I didn’t have the “choice” when I was in psychosis all the time, it’s like there were moments of clarity where I could choose. The medication made that easier in the moment, but now I have been off of antipsychotics for almost 5 years with no symptoms.

    The implications is I feel helpless communicating with clients and professionals that believe this is an “organic brain disease” and that these clients have no hope.. Although I don’t want to instill false hope, there’s clear evidence that psychosis will not persist long term in some patients (the ratio is not so clear yet). It’s proof to me that epistemology is key – how we choose to see the knowledge is actually how we choose to research it. If we keep believing as a field that it is unethical to treat psychosis without medications, we will never gather data about people like me and those mentioned in this article who did “return to reality.” All this to say that the people who had a more personal recovery are completely valid as well, and not by any means “moral failures” because they still experience psychosis. But if there is an element of choice, that needs to be honed in on and elucidated for all sorts of treatment providers.