Wednesday, November 20, 2019

Comments by Jane42

Showing 5 of 5 comments.

  • Awesome work, Russel!! This information is so important for people to understand. Unless you’re trained in electrical theory it’s hard for the average person to grasp what ” a small dose ” of electricity actually does to the brain does to the brain and body. It’s so easy for people to be convinced by psychiatry’s claims.

    Distilling this info gives people some facts to counter their misinformation.

    Thank you for writing this!

  • Thank you for this work you’re doing— it has given me so much hope even though I will never have my day in court as the statute of limitations ran out almost a decade ago and my medical records were destroyed long before that.

    When I received ECT in 2001, I was given information about potentially serious side effects which I completely forgot after one or two treatments, and was only given abbreviated consent after stating that I give my doctor permission to perform electroshock and follow basic aftercare protocol.

    At the same time, doctors and support staff endlessly downplayed the risk of ECT.

    Kind of like a, “yeah were legally required to tell you about the bad stuff but don’t worry, type of thing.”

    At one point my shock doctor even told me it was safer than riding in a car before a treatment!

    This created a false sense of security and led me to continue damaging my brain.

    When I experienced severe brain damage from ECT I tried getting help from my doctors which was repeatedly denied.

    They kept telling me “ECT doesn’t do that,” even though they originally acknowledged the occasional, rare case of brain damage but they made no effort to order testing to see if I was one of those rare few with lasting damage.

    Eventually, I was able to get testing for another reason, and even with documentation showing chronic encephalopathy, no working memory and slowed processing, I still can’t get a single doctor to acknowledge that ECT is the cause— This includes a neurologist and dementia specialist!

    “ECT doesn’t do that,” belief seems to have infiltrated every branch of medicine and this experience still seems to be the norm for shock survivors looking for help.

    One day I hope to walk into a doctors office and get acknowledgment at the very least and help at most instead of gaslighting, These lawsuits and voluntary disclaimers seem to bring survivors closer to this.

    My question:

    Will these changes lead to 1. Doctors forced to disclose risks without downplaying them, 2. Doctors required to take claims of injury seriously and order appropriate testing and rehabilitative support should test show abnormalities or will this just give them another layer of protection from liability and they can keep dismissing us until we give up or statute of limitations run out?

    Thank you again.

    Jane

  • Thank you for writing this Mr. Weitz.

    Support for shock survivors is 70 years overdue.

    Dear psychiatric reform movement– ECT doesn’t have to be abolished to provide support to those injured by it.

    I have been incredibly disheartened by the anti-psychiatry and psychiatric reform movements’ willingness to write about the dangers and abuses of ECT, but not have a shred actionable advice or resources for those newly disabled by ECT.

    People are dying!

    I help admin a shock survivors support group and newly injured woman who joined this summer committed suicide. She was so terrified at what had happened to her mind and was trapped in an abusive family situation by disability. I can still hear the fear in her voice from our the last conversation.

    I couldn’t help her. I had no resources to provide, and as someone damaged by ECT myself was limited in what emotional support I could. Her young daughter will never know her mother thanks to ECT and incorrectly treated postpartum. She didn’t choose this treatment. Her doctor refused to give her any other help her if she stopped.

    Those of us injured by often become suicidal, some of us make attempts, others like the woman I mentioned, follow through. I myself spent almost a decade wanting to die and probably would have committed suicide had I not gotten cognitive testing that proved I wasn’t imaging or fabricating brain damage. The battle doesn’t stop there. Few people will attribute it to ECT. I seem normal so I get no breaks for my slip-ups, and getting a job has been a nightmare. I am ostracized and irrelevant to the rest of the world as a woman with brain damage.

    ECT has been legal for 70 years and what has been done for survivors? WE NEED HELP NOW! Shock survivors are doing what we can to help others but we are sorely limited in what we can do– most of us need help ourselves.

  • I often see people calling psychiatrist evil as a way to make sense of their appalling behavior. There are some out there that are, but in my experience, it’s a toxic combination of, bad education, arrogance, and bias that leads to horrible patient outcomes they often remain oblivious to.

    Many psychiatrists (and doctors) I have encountered blindly trust their education, and rarely ever have a working knowledge about the mind or body despite studying them for years. They are not trained to think but memorize facts and apply treatments following a certain protocol in a way that is profitable.

    I had very nice doctors whose treatments robbed me of 15 years of life and mental abilities via drugs and ECT and had I continued with their recommendations, I’d be dead. They were intelligent men who could not put together my real troubles or the side effects their cures caused and they were threatened by anything to the contrary.