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Stephen is replying to Zoe’s comment immediately above his, not to you, Lila.
and they call us “crazy!”
Reminds me of an episode of Grey’s Anatomy where a death row prisoner scheduled for execution in 4 days is brought in because he was stabbed. He has a brain bleed and they do surgery, but his intercranial pressure keeps rising and they want to go back in, but he refuses. He wants them to let him die and donate his organs to the boy in the PICU dying of liver failure (he’s a perfect match). They insist on intervening as soon as he loses consciousness.
The first one I remember was the postal worker, hence the phrase “going postal.”
Puppies are “cute.” Kittens are “cute.” Rainbows and unicorns are “cute.” Existential matters? Not so much.
And I agree that you should consider stepping away from the keyboard until you are no longer tired and livid. The “troll” did not personally attack you as you did him. I hope the site moderators are reading all this. Him saying “It sounds like you have a lot to live for…” is not a personal attack. You calling him “a vile and disgusting human being,” however, certainly is.
“Cute and all” sounds pretty insulting. Do you mean to be so abrasive in your responses?
I agree wholeheartedly. We need to reclaim our rights of personal freedom from the ENTIRE medical establishment. I used to be a case manager for families who had a child with developmental disabilities, but I had a few adults living independently as well. One of them had high blood pressure but stopped taking the pills his doctor prescribed for it because of side effects he found intolerable. The independent living assistance agency threatened to drop him from services. He didn’t care; he knew his rights, and was quite assertive in saying so. They relented, but sent a nurse out to explain all the dire possible health consequences, documenting it to cover their liability. She did not change his mind, and they grudgingly accepted his choice. This was years ago- I have no doubt that the same situation today would result in a medical kidnapping (in the case of adults, should it be “medical abduction?”) as the law has changed making it easier for them to strip the rights of those labelled “gravely disabled.”
I am not home-bound like your elderly friend, but I share his fear/concern. My wife and I have a very clear understanding that if any life-threatening event happens to me in public, she is to whisk me away before any first responders can arrive on the scene.
I am with you about avoiding hospitals, but I went to the ER a few months ago (was losing sight, not something I could treat at home). Not only did they expect me to sign a carte blanche Consent for Treatment, they wanted me to sign it electronically before they even printed it out! No way. I do not sign those without altering them, crossing out the word “treatment” and replacing it with “diagnosis.” The whole notion of informed consent seems to have gone the way of privacy: people don’t insist on it anymore, they just sign it away without even reading the fine print. Seems people have forgotten the time-honored wisdom “never sign anything until you’ve read it twice.” They’ve also discarded the phrase “none of your business.” Those “assessments” that ask about my emotional state? None of your business. That’s the only answer they get. It’s the flipside of informed consent- informed refusal, which should also be our civil right.
Catholic-run hospital systems now own 60% of the hospital beds in the US, and it’s been in the news a lot regarding women’s reproductive health, but not much has been brought to light about how this will effect end-of-life care. With the baby boomers aging, though, it’s bound to become an issue. Everyone has a stake in this, you are right about that. I hope people wake up and realize that.
Wow, Stephen, I never knew that their prohibition of suicide was to prevent people trying to prove their devotion by martyrdom! You learn something new every day. Thanks for sharing that!
Suicide should definitely be a civil right! It is the ultimate body autonomy. Whose life is it? Whose body is it? None but your own. Nobody else can know what makes anyone’s life worth living; that is entirely personal. Nobody else can know what personal values drive any personal decisions. People like to say “you only live once,” but I know that to be untrue for me. I do not just believe in reincarnation, no more that I believe in rocks or clouds- it is simply a reality, something I have experienced many times before. I remember past lives, and I remember what it is like to die. There is the sense that you are dissolving, and if you cling to this life, this ego-self, there can be fear and existential suffering. If, however, you can hold fast to the reality of universal connection, the understanding that we are each a unique expression of All-That-Is, surrendering one’s ego-self is freeing. For death is not dissolving into nothing; it is dissolving into everything. That is my truth, because that has been my experience.
My grandparents avoided doctors like the plague. They both insisted that they wanted to die naturally, at home in their own bed. I watched as their health declined, each of them in turn got coerced into a medical facility (with my grandmother it was a hospital; with my grandfather, a nursing home) and neither had what anyone would consider a “good death.” I made myself the promise that I would not travel that same road. I have my eye on my “canaries in the coal mine” that will let me know when to get out before it is too late. Of course I have my advance directives, my DNR, but I know that I can’t put much faith in them being respected, especially with the proliferation of Catholic-run hospitals (and they make it near impossible to find out whether a hospital is subject to the bishops’ directives). When my body can no longer do the things that make life worthwhile to me, I will have no qualms about ending it rather than endure the existential (and physical) suffering. Those that really know and love me know me well enough to understand this, and though my dying will cause grief, that eventuality is inescapable- everyone will die, and those left behind by them will grieve the loss. Loving me means letting go, means not wanting to let me linger in suffering when living becomes nothing but existing in suffering and misery. I never won an attendance award in school; I’m not looking to win one in life either.
Let me provide a glaring example: I was seeing a psychiatrist through my HMO, because I was off work due to an emotional trauma and the disability insurance that came with the job would not kick in without an MD’s signature. He seemed okay, did not seem to play the usual crap. We got along well enough; he was signing off for me every couple of months, which was all I required of him. Then, he became unavailable. I had to see whatever psychiatrist was covering for him, and they would only sign off for a 2-week period. When asked when he would return, they always said “in a week or two.” Now, it took a huge toll on me trying to recover my equilibrium whilst having to report my “symptoms” to a brand new face every time I turned around. I got exasperated about the situation and gave them my 2 cents on it all in a conversation with the doc who was 2nd-in-charge (vice chair? whatever the title) of the psychiatry dept. And he blurted, “you gotta give the guy a break; he’s depressed!” speaking about my original doc. I confronted him big-time. Asked him how he determined that disclosing that private information about his colleague to me, said colleague’s patient, was in my best interest. Asked him whether he had a release signed by my doc allowing his personal, confidential health info to be revealed to me. He could only stammer.
I just love you, madmom! I don’t even know you, but reading all your comments has earned you a special place in my heart. I hope your daughter is healing.
I would not go to any GP that “asks every patient, every time.” To me, that’s a clear sign that they are a dangerous quack. And my only response to questions of that nature is always “none of your business.”
Exactly! Journalism used to be about truth. There were ethics about things like confirming an account from reliable sources rather than speculating, and also about following leads until you got to the nitty-gritty truth, not pulling your punches or avoiding the tough questions. I was reading Ronan Farrow’s article in the New Yorker titled My Father, Woody Allen, and the Danger of Questions Unasked the other day. Here’s the link: (https://www.hollywoodreporter.com/news/my-father-woody-allen-danger-892572). He discusses how journalists are told by their editors not to ask, not to pursue certain stories. He’s talking about sexual abuse and assaults, but the same thing is going on regarding the psych drugs’ role in all these killings. I remember in the late 80s and early 90s when ACT UP began outing gay politicians in order to get policy changes and funding for AIDS research. We need more courageous journalists like Robert who are willing to “out” these dangerous drugs as the real killers that forced the hands of the people in the mugshots.
I would hardly call the pittance SSDI provides “financial security,” as the amount doesn’t even keep up with cost of living increases. Perhaps that was the point uprising was trying to make.
Yes! And I have always felt a need for more sleep in the winter, less in the summer. And pre-industrialization, summer was when the work at hand required he most energy: out in the sunshine, harvesting, building, canning, tasks that were pretty draining. But in the winter, the tasks were more like quilting and sewing, and weaving blankets or rugs.
Applause- a standing ovation, in fact.
if you listen very carefully to the wording, it always says something equivocal, like “X is thought to be caused by… ” and “drug Y is believed to do such-and-so…”
They’re telling you it’s a fairy tale, if you listen closely- because they have to.
You do realize that Christianity is just as violent as Islam, don’t you? (go read the old testament if you have any doubts about that) And yet, the acts of terrorism committed by Christian extremists are rarely labeled as acts of terrorism and are never chalked up to Christianity’s inherent violence, as a stain on all Christians. There’s plenty of denial about holy books to go ’round.
This was supposed to be a reply to the first comment, by the way.
Ramming commenters into submission, eh?
Or is your hostile tone off-putting, and people are refusing to engage with you because you are being a bully?
Reminds me of the old adage “politics makes strange bedfellows.”
Cannabis was the thing that got me through Effexor withdrawal. It is a miracle plant, especially if you grow it with intention.
Thank you, Danielle, for investigating this, and introducing us to Jim, Steve and Rich. It’s horrific what passes for medical science!
One request, though: Please don’t use the term “committed suicide.” Jim was not a criminal; he committed no crime. Say he ended his life, say he chose to die, say he killed himself, but please don’t use criminal terminology for the act he took. It’s demeaning. Words matter. Thank you.
No hell intended, just an invitation to reflected on the meaning in the words. it is an entirely different message to say “choose to be” vs. saying “are.” When it comes to inherent traits, the choice we make is whether we will acknowledge and accept them- in ourselves as well as others.
So everyone’s sexual identity is a choice, eh? When, exactly, did you choose to be hetero?
You never mentioned in this piece whether you yourself have ever taken MDMA. In my spiritual tradition, substances (usually natural/herbal, sometimes chemical) can be used to journey and gain very deep insights and connections, personal as well as universal. But one cannot be a guide on another’s journey unless they themselves have been down that road. Personally, I cannot even fathom handing that level of trust over to someone in a medical-paradigm context. This is spiritual work.
Bonnie (and Julia),
I’m very glad to see another post from you. I was surprised to see you are allowing comments considering how you’ve been bashed so unfairly here before. I am very glad that parents have your studies to turn to when they are being pressured by school to intervene on an active child. Thank you for doing the work that you do. And thank you for not leaving MiA.
Corinna, please name the foundation. People should know when they donate to “charity” what their money is being spent on.
If samruck2 would stop reinforcing the medical model by using the word “symptoms,” I’d agree too. But words matter- and that word places the natural reactions to trauma right back into the category of disease/disorder.
Exactly! He’s dipping his spoon into the same bowl of alphabet soup, just coming up with MDMA instead of SSRI- just because it’s a different chemical doesn’t at all challenge the biological paradigm, it reinforces it.
They are doing this in response to several recent live posts that showed the person killing themselves. I guarantee it is a CYA (cover your ass) move so they don’t get sued. And I’m sure it will have all the effects we fear.
Julia, I agree whole-heartedly with what you say here:
Everyone can be a burden at times, regardless of DSM diagnosis. I hope that if someone told me that a certain aspect of my behavior was causing someone else pain, I would be able to respond honestly and with a desire to solve that problem. I understand that it’s painful and that people with a background as psychiatric victims are defensive about this. But denying that aspects of your trauma-induced behavior causes others very real pain is not going to help anyone.
I’d like to add, though, that there are (at least) 2 sides to every pattern/dynamic, and many of us have been scapegoated as The Family Problem, the “identified patient” whose perspective is completely disregarded, or worse yet, twisted to confirm the pathology narrative. Most every psychiatrized person I’ve met has greater sensitivity to the fucked-up family dynamics they are caught up in. We get “caught acting crazy” but nobody ever seems to catch the crazy-making behaviors of those around us to which we are reacting. This website is our safe space, our haven from that crap.
Please understand that I am making generalizations here; not talking your family or mine, but rather, the shit that tends to happen to us.
Thanks Emily, for receiving my comment as helpful, the way it was intended. I have no idea why it seems to have incensed bradford, but I’m glad you did not feel slighted or attacked. Maybe you feel my heart coming through because I am solidly in your corner.
I think the reason you are getting so many replies that echo the same message about labels and dysfunction and telling you not to define yourself with the label psychiatry slapped on you is evident right there in your title, and heartily reinforced in your very first sentence.
Perhaps if you had started the piece with something more akin to: My intention with this essay is to make the case that maybe having a fear of abandonment isn’t a bad thing that needs to be overcome and then proceeded to literally question the basis of the label, as such:
I’d like to ask you – who gets to decide how much fear of abandonment is excessive? Who gets to decide whether it is my fear of abandonment harming relationships, or whether it is our society’s counter-dependence/fear of those who are too attached/dependent? Who gets to decide which person’s fear of abandonment needs to be overcome and which person’s fear of abandonment is helpful and okay? Would you agree that the answers to these questions would all vary according to cultural context and personal preferences/values?
before naming the label, folks would not misunderstand your position.
I think you confused your message from the outset by giving their label such deference as to place it front-and-center. I think you unintentionally misrepresented yourself a bit. People are responding in a way that challenges why you chose to give the label such power, because the words you chose do reinforce the label.
(this perspective comes from the writer in me.)
I am dealing with the realities of being someone whose pain tolerance differs markedly from most others’. I have a very high tolerance to physical pain. Sensations that would register as quite painful for most people don’t hit me as “pain” until the problem is severe. For instance, I’d been having headaches that I thought were migraines, very light-sensitive and would go away after lying down a couple of hours. I avoid docs whenever possible, but had to go in when I started to notice a change in vision. My eye pressure was over 400% above normal that day and was only beginning to feel “pain” so I run the risk of missing pain cues that would alert your average person that something is terribly wrong. (Consequently, I am now blind in one eye.)
My sensitivity to existential pain, though, is on the other extreme. It makes me different; it does not make me disordered. It does, however, make it difficult to feel at all understood by those who seem to experience pain “normally.”
Many thoughts on your article, Emily. First off, thanks for putting yourself out there. That’s very brave, especially in light of how your young life has handed you experience after experience that naturally produces a greater sensitivity to abandonment, and greater pain than everyone else seems to feel within that universal experience of existential loneliness. Life dealt me that kind of hand too, so I get it.
“Abnormal” is such a powerful toxin, and anybody trying to sell anything (a product, an ideology, a lifestyle) uses it as a tool of control. Get people to feel that they are lacking, and you create a need. Narrow the definition of “normal,” and you create that need in more of the population. Did you know that before psychologists got involved, advertising was basically just product info? Psychologists introduced the idea of creating an emotional need for the product by making people feel inferior without it.
The only way to take the teeth out of “abnormal” is to not assign the power to define what your normal is, but keep a firm hold on that power for yourself, the power to self-define. I read the other day that the official definition of high blood pressure is tightening. 120/80, once the definition of normal, is now on the border. Same thing with the blood glucose number a few years ago, when overnight 140 became borderline. You must ask yourself: who gets to define your borders? Who has the authority to decide whether you are “normal” or not, and in what respects? Will you give that power to a doctor? a professor? a researcher? an ad firm? I choose not to.
One more thank you, and that’s for referencing “people of size.” I learned long ago that language matters, words matter. I watched the gay community reclaim words of hate, thereby depleting their power to inflict harm. My body has a substantial layer of fat. Yup. And most people are put off by that, romantically. But I do not have to agree with them that I am unattractive. Whatever put-downs were leveled at me in my formative years did enough damage at the time. I do not need to continue the abuse by agreeing with those destructive messages. Neither do you. Even if nobody else in the world (including myself 30 years ago) appreciates the ample flesh on my upper arm that sways when I wave at someone, I do. Is it the defined bicep I find so sexy on women like Michelle Obama? Hell no. But it is always a pillow if I need to nap on a long drive, for instance. It is a part of me that I can love for what it is, rather than be ashamed of for what it’s not. I invite you to try on those lenses in your own life. Flip the script and be the author.
So I tried to read the article, but you have to buy a membership. Here is a different article, same topic, free:
Is there a possibility of offering the courses to non-professionals without a fee and only charge for the CEU credits? The info on psych drug withdrawal seems an especially important topic to reach as many of the folks who are suffering and have no other support as you can. Keep in mind that many folks have to taper themselves down without any medical support because they can’t risk the very real possibility that their prescriber could freak out and strip their liberties, and that those who have been compromised the most by the drugs are often on fixed income at the poverty level (disability payments) and cannot afford to pay.
This is the “medical model” of education! Every single suggestion makes the assumption that the child’s anxiety is inappropriate and unwarranted! When there is a bedrock assumption that school is a beneficial place where kids can safely learn, you pathologize the child
Even if they get the concept, Steve, there’s still going to be the question of whether the data is trustworthy. Most folks are intimidated by math as simple as fractions, percents, probability. Statistics is math that’s way too complicated for most people to understand, and people just don’t trust what they can’t grasp. Research is suspect.
I think it’s a matter of trust. People trust what they know, what they can observe for themselves or hear second-hand. But aggregate data is too many steps removed, and is subject to so many levels of manipulation there’s no integrity in it. From the outset of a study, the researchers are seeking a particular outcome and make choices that are most likely to yield the desired result. Who do we recruit to participate, and how do we access them? Is there a control group? Are they truly a control group, or are they cold-turkeyed off a drug right before “testing” another? Do effects get reported as stated by the participants, or interpreted (as in suicidality being watered down to “emotional lability”)? And then there are the definitions, and whether the researchers’ idea of a good outcome, of “treatment success” looks remotely like what the participant would consider to be successful. And that’s before we even venture into statistical manipulations! Wasn’t it Mark Twain that said, “there’s Lies, Damned Lies, and Statistics?” Most people find math as basic as fractions and percentages intimidating- don’t ask them to trust advanced statistics! Personal stories are always going to have more of an impact. Research is dry; stories are juicy. Research is elitist; stories are accessible, people can relate to them, can empathize with them, can trust them. Not so with stats. A voice spouting stats is never going to ring as true as the voice of experience.
There was a blog post here quite some time ago- the guy was so flatlined emotionally from his anti-depressant that he found himself frequenting a website that was ultra-violent videos because they actually provoked an emotion in him. He had to go that extreme to feel anything. And there was a discussion section at the website- he found out he was not the only one. And the discussion at the end of the blog post about it, the MiA discussion, had a lot more people echoing that truth: their anti-depressant was an anti-feeling pill. So yeah, what you are experiencing is normal, FeelingD.
Thank you so much for sharing that experience! You are so much better off having escaped that cult, and that marriage, before you got in too deep.
Self-acceptance, why does that seem like such a radical concept to people? Maybe because it doesn’t create the ripeness for control that guilt and shame do. I’m reminded of the father of advertising (John Watson, I wanna say, but attribution is not my strong suit), a psychologist who changed ads from merely product information to a story that creates an emotional need for the product based on the fear of rejection and inadequacy. Create the problem so you can sell them the solution. Ah, but if you refuse to buy into the idea that you have a problem that needs solving, they gotta find another mark.
And by the way, you did not create the 9/11 massacre when you were six any more than I created the Jonestown massacre when I was seven! How absurd! Reading that, it felt like a tactic for assessing how fully you’d been hooked, and who she needed to bully more thoroughly.
Aaron, Wow what a horrible trauma! Thanks for speaking out and warning others. May you someday, somehow get justice.
I ran out of Reply buttons, so this is in response to kindredspirit:
Boy are you right about other fields of medicine, especially end-of-life care! Things are only going to get worse with that as now 60% of the hospital beds are in Catholic-doctrine run hospitals, meaning that no matter what the patient’s values, it’s the Bishop’s Directives that dictate care! Forget expecting an advance directive to be honored at these places- they honor that about as much as they honor a woman’s reproductive rights (read: not at all).
Just as I chose not to entrust a hospital with birth, I will not entrust an institution with my death either. Once my body gives out and life is no longer a joy but a burden, I have no intention of suffering and waiting and depending on professionals to dispense mercy. I will die where and how I choose, comfortably.
Hi Steve and kindredspirit,
After the first baby was born almost 10 lbs., a successfully medication-free birth, my OB moved and I found myself with a new doctor. Throughout the pregnancy, he kept seeming to find one bogus reason or another to suggest a cesarean. And when I made it clear that I was not going to let him do that, he started making threats, and I fired him on the spot. I was 30 weeks along, and decided right then and there that I would rather have an unassisted birth than have him involved AT ALL. The husband went to the library and got books on homebirth that had resources at the back- where to buy birthing kits, how to find midwives, etc. and that was how I found my midwife. She was perfect, very well-trained, and had an OB back-up in place just-in-case. But the most important thing was my body trusted her. This was 30+ years ago, so “birth rape” was not a term, though it was not at all a rare phenomenon, and it was not a risk I was willing to take. Nobody is ever going to bully me into siding with their “expertise” over my body’s own wisdom. Not ever. The second baby was almost as big as the first, and I had not one stitch- no birth trauma whatsoever.
I first encountered the term when I was pregnant with my first child, and researching the way that childbirth has been medicalised. Iatrogenic injury is why the US has such a dismal record on childbirth outcomes, business as usual involves many unnecessary interventions (electronic fetal monitoring, labor induction, epidurals) which almost invariably lead to the ultimate intervention: major abdominal surgery. I couldn’t find a midwife to homebirth the first time ’round, but I managed to avoid most of these by refusing the initial unnecessary intervention- an IV line. When I got pregnant the second time, I was even more determined to have a positive, trauma-free birth. I found the perfect midwife, and was tended by her OB nurse friend for the hour it took her to get to my home (she was out of town at a wedding when labor hit strong). It was perfect, and I’m a huge homebirth advocate.
Witches, by the way, have not been eradicated. You’re speaking with one. Wiccan training involves accessing and using altered states of consciousness, and is very pertinent to this topic of discussion. Thanks for bringing it up, Fiachra!
Many of the experiences that psych would label, are indeed essential on that spiritual path. How an individual experiences themselves in the midst of it is very much influenced by the paradigm they look to for clarity. Look to the toxic paradigm of psychiatry and you will be told that these experiences are something to be feared, shunned, fixed. Witches and Shamans will tell you that these same experiences are meaningful, useful, a step towards greater awareness. Hearing a voice others can’t? Depending on the message and the context, you might have just become aware of a spirit guide- perhaps an ancestor, or “guardian angel” (in quotes because Judeo-Christian concepts are not my paradigm, though to many, this explanation would make sense) or totem animal. Witches train to master abilities like scrying: gazing into a focal object to see into the past, to see into the future, or to see into the present moment somewhere far away. What some would call dancing on the edge of madness, we call walking between the worlds. But it starts with self-awareness, and self-discipline: recognizing and owning your energy; containing it; directing it; learning to erect a shield, an energy barrier that keeps unwanted energies out. One of the most important aspects of Wiccan training is discernment: not every spirit that wants access has beneficial intentions, for instance. Many people seeking training are just learning how to open themselves to altered states, but for those who arrive already adept at that skill, the first thing I address is psychic self-defense so that they can be empowered to safely travel those realms.
Thank you, Bonnie, for your work, and for literally “putting your money where your mouth is!”
I was singing along to the radio the other day and a song came on that reminded me of you: An Innocent
Man by Billy Joel. Broken trust is very hard to repair, no matter who broke it, and how you’ve gone about doing that is really the only way to go.
Btw, Julie, just wanted to say I always enjoy reading your comments. With all the dust-up in the comments lately, I’m feeling appreciative and vocal about it!
Well that really depends on the nature of the handouts, and who is receiving them, doesn’t it? Corporate welfare is doled out on a Maybe- if we give huge tax breaks to rich corporations, then maybe they will use the funds to create new jobs. Very little oversight, very few hoops to jump through if you’re a corporation with your hand out; no Nanny State for you, it’s just assumed you’ll do the right thing. But if you are an individual who is truly in need, there must be something wrong with you, some moral failing that gives us the right to dictate how you spend “our” money. It all sources back to the Calvinist work ethic, that god reward$ people who are good and punishe$ those who are not. Wealth is seen as proof of morality through this fucked-up lens. How many times I have wished I were born Scandinavian!
Tina, once again, Thank You! What you do is invaluable.
As I was reading this, it occurred to me that this sense of being entitled to control others springs not only from fear that an ‘other’ might not control themselves, but also from this mindset that “if I pay for it, I own it.” I see parallels to food stamps, and “welfare” here in the US. If we had the mindset that supports a basic universal income for all citizens, if a basic standard of living (including decent health care) were the right of every citizen, that would strip away that particular rationale for subjugation. Thoughts?
Since psychiatrists love to tout the explanation that “mental illnesses” are just like physical illnesses, I challenged mine about this notion of “symptom reduction” being a good thing this way:
Okay, so somebody says they are having chest pains. You do NOT tell them to take painkillers for the rest of their life and if the pain is deadened, (i.e. “symptom reduction”) then treatment goals have been met and they are a-ok. You investigate the SOURCE of the pain, because you recognize it is an indicator that something is wrong and needs to be addressed; whereas if you just send them off with a drug to numb the pain, the underlying cause is going to get worse, and the heart attack that could have been prevented may well kill them.
You are one of the people whose words have been the most valuable and meaningful here. If you do jump ship, I will sorely miss you. Please consider leaving a “forwarding address?”
I come here and I read, and you and Alex, Steve McCrea, and oldhead and madmom and acidpop and humanbeing and kindred spirit (and others) make me feel less alone.
The thought of any of you being driven from this home has me crying right now,
Thank you so much for explaining that! I must admit to being intrigued and have thought about visiting your site, but was very reluctant to do so for the terminology used here. Additional info changes the picture, so please re-post the link?
I intend to write my own story here on MiA, but I don’t carve out the time required to do so, and life has been throwing a lot of challenges at my family these last few months that have me feeling spent, so I don’t know when it will be complete and cohesive enough to present. But I will say this for now: I am on a similar journey (there are way more people in my house than there are bodies). But my experience is very like, and very unlike, that of folks who claim the label DID or MPD. I, too, have tried to connect with others with whom I could find community, but I don’t fit and the needs a community might meet for me go unmet. Reading the psych terminology very much puts me off (it is self-preservation to tune out) and I find myself unable to trust those who seem comfortable using those terms, and so, unable to connect. If you are inclined to ditch that vocabulary, I encourage you to do so. Would make you/your story more approachable.
I have found it liberating to self-define, and refuse to cede that to doctors, therapists, screenwriters, even other Mad folk. I don’t need to wear their shades to see myself, and can’t really be seen by anyone looking through those lenses. My hope for your wife (and more importantly, for her girls) is that they can separate the truth of who they are from the “self/s” others have imposed on them.
Ok, I feel like we’ve “met” each other a bit, now I’d like to come visit on your turf 🙂
but they certainly expect the poor patients to buy into their delusion of biological genesis of all their issues, and of course they insist on the buy-in about the drugs, don’t they? The height of arrogance!
Sometimes I sit with things awhile to have a better understanding of my reactions before speaking. Uprising’s characterization of your comments didn’t feel on-spot to me, but in the middle of that feeling sat some sort of grain-of-truth, so I clicked on your name and went back and read the entirety of your comments, and I think I get it now. I do not see what uprising sees. Please hear that. I understand that you are here expressing your thoughts and feelings relating to this healing journey you are taking with your wife, you’re being real about it, about how hard it’s been. Please know there is room for that. Sometimes the way you express yourself might cast shadows that resemble those that hurt us, and that’s what I heard in uprising’s comment. Reading the exchange, the phrase nothing about us without us kept resounding for me. You use the psychobabble terminology (system, alters, host) even though you’ve expressed clearly that your wife’s girls just wanna be referred to as girls, and even though you’ve expressed clear discomfort of your own using them- one of your comments had “gag” right alongside ‘alters’- so why do you use those terms? To me, it feels disrespectful to do so when the psych terminology doesn’t really seem to sit well with either you or her/them. I find myself wondering how your wife would present herselves, and how different it might be hearing about the journey from their perspective.
A few points:
1. Science only acknowledges as real those things that can be observed and measured. It is rarely acknowledged that this is a fundamental limitation on its authority to deem anything not real. Germs existed before we had microscopes to observe them, radiation existed before geiger counters, etc. Some people are very sensitive, and can detect things others cannot. How many people out there felt an awareness about the US gov’t spying on us all and got labeled paranoid or worse before Edward Snowden’s revelations confirmed their knowledge? Have you ever considered the possibility that their perception is based on more information than yours? That they may be sensitive to things that you are unable to perceive?
I can sense energy fields/auras around people, and put full faith in my ability to discern certain things about an individual based on their energy. Someone with bad energy is not trustworthy in my world. Period.I have often made this determination upon a greeting handshake, without even a word exchanged. I do not talk myself out of following my intuition, and cannot be swayed by rational arguments. I am more sensitive than most people; that is my truth.
2. Children often express their knowing with the best vocabulary they have, which is often symbolic. Let’s revisit the example of the child who says they were placed with their family by aliens. Perhaps they were adopted, and though it’s been kept strictly confidential the child feels the truth. Or perhaps the child, though natural-born, does not at all fit in with their family, is a shy quiet bookworm in a family of rambunctious jocks, and aliens is the explanation they have found for this situation and why they feel so different/out-of-place. There are kids who realize they are gay from very early, and others who feel a pervasive sense of “otherness” long before they understand why. I was one of those kids, though gay is just one facet of my “otherness.” Take them literally and you not only miss a precious opportunity for deep understanding, but you damage their trust in their own intuition.
Rev. Dr. Epperson wrote in a previous essay here on MiA about a young woman in the hospital who would not interact with anyone, but would only lay under her bed and claim to be a fish. A young man decided to be with her “where she’s at” and laid under the other bed, facing her, and only said “glub glub” and this went on for a bit, until the woman felt safe enough to share with him (a fellow fish) the atrocious thing she witnessed that made her so distrustful of humanity that she decided to be a fish. By entering her aquarium, he was able to help her build a sense of trust in some humans again, and she was able to heal. Your approach would not.
There are also folks like me, whose melatonin system is outta whack somehow. I do not say this because of anything a Dr put together. I recognized a seasonal pattern to my life- winters were way hard emotionally, I had low energy, craved sleep and carbs. I was a journal-er, so it was easy to go back and read and confirm. And I happened to read an article about this very phenomenon happening in northern latitude regions. The theory was that sunlight taken in through the eyes triggers a waking response in the brain, signaling us to slack off the melatonin production because dawn is breaking and it’s time to get up. If there’s not enough sun to trigger this response, the melatonin production doesn’t slack off enough. The solution is very bright full-spectrum light, which you can switch on and read your morning paper by, or a dawn simulator that wakes you up with light, soft at first and gradually full intensity. Light therapy worked for me! This is the one and only brain chemical imbalance that I claim, but I do claim it because it rings true in my center, that place of wisdom that knows what’s what. And it makes total sense because my eyes have always been very photo-sensitive; ever since I was a kid I squinted.
Ya know, Ditto for me. But you said it way better than I would’ve.
I watched the whole thing, and it’s not easy, especially the last 2 episodes. But it is very worthwhile, and I am very grateful they portrayed everything the way they did. In that way, it was like watching Schindler’s List: bearing witness. It is not supposed to be easy, or comfortable.
I felt a kinship with Hannah, and with Skye, and somewhat with Clay and Tony. Hannah made several attempts to hang on to living. Each time a door closed, she tried to find a window. She tried the old adage that to have a friend you have to be a friend, continuing to have compassion for the closeted girl even after the girl spread more slut rumors about her. How many times can a vulnerable person get kicked in the gut before they stop trying to get on their feet again? She finds herself trapped in her parents’ disappointment when her mother refuses her offer of restitution for the bank deposit she lost, blocking her only avenue of making things better. Hannah’s last effort (school counselor) caused exponential harm to her situation, so where to turn? I was glad they depicted that there are real risks to turning to the official “helpers.” Jessica sums it up great when Clay asks if she needs to see somebody, “Who? Did you listen to the last tape? Do you know what happens to girls who try to get help?”
I can’t help but wonder whether Hannah might have noticed the support the adult members of the poetry club were poised to offer if she had encountered the librarian before the school counselor. Even though she had attended the club only briefly, Hannah definitely made an impression. “We’ve missed you at the group- Linda even wrote a poem about it” felt like the possibility of a lifeline, but Hannah was already too battered, too betrayed to feel the possibility there for understanding, support, love. She had no trust left after the counselor’s victim-blaming misogynist assumptions over-wrote her story before she could even tell it. She had already experienced the catharsis that recording the tapes brought, and writing might have “bled off” enough of the toxic emotions of the moment to get her through the rest of high school. It was that feeling of catharsis that gave her the glimmer of hope to attempt to keep living. If she had entrusted that spark of hope to the Lindas in her world instead of the Official Helper, she might have had a chance.
Throughout the series, we see Clay being torn up by Hannah’s pain as he goes through the ordeals with her via the tapes. One of the best scenes, that conveys the best support, is toward the end, when Clay reaches out to Skye and asks if they can hang out sometime, like now. She asks if he’s okay, and their exchange is perfect: “No. Is that alright?” And Skye replies that yeah, that’s alright. That’s the message we all need when we are Not Okay: it’s alright that you’re not okay, I will be with you as you are.
Here’s a fine HIIPA story for you, Steven. The last time I interacted with psychiatry was about a dozen years ago, give or take, but HIIPA was in effect at the time:
I’d gotten the call that one of my parents was dying, and made the trek back to my hometown, where deathbed admissions were made and family skeletons tumbled from the closet, confirming memories I’d had of incest. They ended up slipping into a coma but woke after a few weeks. The whole experience shook me to the core, and the standard 3-day bereavement leave was nowhere near enough time off work to integrate everything that happened. Even though I had been working with an MFT for awhile, the insurance required an MD to sign off on the time off. Kaiser assigned a psychiatrist that seemed to be sufficient, but after a couple of appointments with him, he suddenly became unavailable (but they always assured he’d be back in a week or two), and no matter which psych-du-jour it was that was filling in for him would only write me a 2-week extension. Having to address my situation with a new person every 2 weeks made healing impossible, and when I got fed up and demanded to be assigned to a doctor who was actually there to do the job, his boss got exasperated with me and said “Cut the guy some slack, he’s depressed!” This was the guy just beneath the head of the department, and REALLY should have known better! I lit into him: Did DR. Depressed give you written permission to disclose that to one of HIS PATIENTS?! I rather doubt that. And you don’t even know me! You have no idea how that info will be received by me, or what I might do with it. I’d call that reckless disregard for his emotional well-being AND mine!” The next call I got was from the dep’t head, who gladly signed off on the 8 months’ leave that an independent eval suggested. I was too twisted up by it all to follow through on my intention of reporting him to the AMA, APA, medical licensing board, etc.
I’m not good at attributing quotes, so I’m not sure who said this, but it was something like:
“if you see me struggle, and want to help me, no. But if you see that your struggle and mine are bound together, we should join forces.”
Whatever the exact wording was, the message speaks to the fact that too many “helpers” are on an ego trip that makes them think they are better, smarter, more evolved than those poor unfortunate souls they are “helping.” This mindset puts everyone on an equal footing, instead of one-up, one-down. You should find the quote, and put it in your lecture.
Way more boys get diagnosed with autism, specially, but overall I think it is women getting MH-labeled more than men. It really depends on the label.
Personally, I just find it appalling that it is anyone other than the PATIENT making their OWN life-and-death decisions based on their OWN values, regardless of which way that pendulum swings. That anybody would ever feel so entitled to impose their own ethical values on another’s Most Fundamental Choice (to live or to die) just offends me to the core!
I am very different from the mainstream, in many fundamental ways, and I never want anybody assuming anything about what it is I want. They’d almost always get it wrong. If you assume I’d want mustard on my sandwich or peppers on my pizza, I live with a temporary condition of discomfort: I go without a meal, I get hungry, maybe grumpy. No big deal in the long run. But if you assume that I’d want to fight through terrible pain/trauma/debilitation and keep on living, you’d be Dead Wrong, but I’d be the one stuck with the consequences. If you assume I’d be okay sacrificing my ability to sing in order to keep on breathing (or breathing via machine, for even one minute), you’d be Dead Wrong. If you assume I’d accept a transfusion of someone else’s blood in my veins for any reason, you’d be Dead Wrong.
Now, turn the tables: think about how you would feel if I were an MD and felt entitled to decide YOUR care based upon MY personal values. Really sit with that scenario.
Yes, there are hippies, and yes, there are shamans. Why do you seem so shocked by that?
How about responding like this “questions that are not related to the presenting issue (sprained knee, sinus infection, whatever has brought you to the Dr.) are none of your business, and won’t be answered.”
To me, the scary thing about all these Catholic hospital buys (6 in 10 hospital beds in the US!) is the fact that the healthcare you will receive can go directly against your own values because it is the Bishops’ Directives making the choices. There’s lots of talk about sex (contraception, abortion) but what about death? Advance directives don’t mean shit to the bishops making your decisions once you are in their beds.
Sharing LSD stories? I only have one, but it’s a good one. Was 1990-ish and I was at my favorite dance club with friends. I knew it was coming on when the neon flamingo hanging on the wall started dancing too! We went back to my house, laughter sitting on the porch roof, hilarity when somebody came with pizza dough they had dumpster-dived and we played with it like pulling taffy. Very good times. At some point though I decide that it’s time to get some sleep. I lay down and close my eyes but sleep will not come, so I gaze out the window and the street light captures my attention- so beautiful, the rainbow halo effect that surrounds the glowing source. And the motion of the bugs around it is mesmerizing, and they get bigger, become butterflies, and one especially gets bigger and more majestic in its winged beauty as it flies away from the light. I am transfixed, even as I watch it changing, growing darker and larger the closer it gets. It is the grim reaper by the time it approaches the window, and it taps on the glass with the tip of its scythe. And I laugh, wag my finger and say something to the effect of “go back to the light, you silly butterfly!” It made me laugh, and I shifted into this dual-perspective place where I was able to have the experience and be in it, but also aware of it being a chemically-induced thing, and thinking observational thoughts. And I think I might have been coming down a bit by then because sleep came maybe an hour after. I really enjoyed it, all of it. Next time I would have better snacks around (we had potato chips and cream soda), and art supplies on hand, tactile stuff and colors and glue. When the cream soda spilled up on the roof, I remember tracing patterns in it with my fingers, watching the light play off the wetness.
For me, there is important transformative work in those places, that is best done when I have something I can destroy and then create from. I didn’t know that at the time. I was 20-something; I thought I was just taking drugs. Now I know there’s no such thing.
I don’t have any answers for you, Robert, wish I did. But I couldn’t have the only response to your plea be a scam pitch (why do those keep popping up here?!) and just wanted to say stuff you already know, I’m sure: you are not alone, so many of us doing better but not doing okay enough. I feel you. Me too. And anybody who wants you to shell out $300/mo on supplements through them, that screams of exploitation of your vulnerable state and desire to heal, and I find that repugnant. I wish you healing, with plenty of discernment along the way, same wish I have for me.
Alex- I did as you suggested and emailed Hana asking her to forward my info to you, but have not heard anything back. I, too, value my privacy, and don’t have any contact info that’s for public consumption I could just post here. But it has taken me quite awhile to take this step of reaching out to you, time to ride the seesaw of need vs. risk (heart-trust being the fulcrum it balances upon), and then once decided, time to gather my courage to actually express that need. And now that I’ve done so I’m eager-bordering-anxious to get on with the process and communicate directly with you.
I’m wondering whether it would get a quicker response if I hit the “Report comment” button for this comment, just to get the attention of any MiA moderator with the ability to help me with this? They can reply to this comment and let me know to email my info to them, perhaps be on the lookout for it.
how do I do that, email you through MiA? I feel like that should be obvious, but in this moment, it’s not.
Alex, can I please reach out to you to converse privately? You’ve put your heart energy out often here in these pages, and I feel a level of trust and understanding with you. I am very vulnerable and do not trust easily, but I need to trust someone and my heart feels you are trustworthy enough to take the risk.
How can I contact whomever chose/implemented these site format changes? The comment flow is totally confusing, and the tagline off-putting, and I find myself not accessing the site nearly as often as I used to, and I’d like to provide that feedback. Guidance please?
Wow! Is that all in the court transcript? Because it seems like there ought to be some way to appeal this. It’s just so Wrong. Have you contacted Tina Minkowitz (one of the authors here)? She has a law degree- I just have empathy.
Please post a link; facilitate more clicks, likes, comments.
I only know the you I’ve read on here, Julie, and a post or two on your own blog site. That being said, I like you and would be proud to call you my friend.
This is such an excellent, concise comment, Someone Else, sums it up perfectly.
Yes! Yes! Yes!
I think the Bard said it best, so I’ll just quote him:
There are more things in heaven and earth than are dreamt of in your philosophy.
That’s the first time anyone’s asked me that! Lavender is my color- I experience my personal aura field that way, and unless I am experiencing distress that changes it, that is the color others (who can sense these energy fields) perceive my aura as well. Sage is my favorite smudge for clearing and aligning energy, the scent of burning white sage is always significant for me in dreams– it feels like an ancestral connection, a way of my own ancestors getting my attention, the ancestors who were herbalist/shamans. So I guess LavenderSage represents the me I can stand in when I am healthy, balanced, confidently walking my path. LavenderSage is she who I am and yet aspire to be, me without the clutter of ego-struggles and pity parties.
Thank you for not resting on your laurels, for feeling the need to protect other children beyond your own. You could be preventing so many lifetimes of regret. Please keep speaking out!
I wish there had been someone there at the time that she would have allowed to “interview” her about it! I wanted to hear all about it! But from the very beginning she was not apt to entertain others’ curiosity, not a people-pleaser type, so there was no pumping her for info! She was invested in a shared memory, and once she realized I could not give her that, the experience was over for her– kaput!– despite my piqued curiosity. “Move along, nothing more to see here…” became her position.
Oh, I’ve never felt punished by this hard life. Frankly, no child could do anything to deserve what I endured. I got sent to a Baptist private school in 3rd grade to avoid being bussed across town when desegregation was imposed. I was being raised by racists grandparents at the time, racial tensions were high and they said they feared for my safety. Hellfire and brimstone, and the God described in the Bible, always felt incongruous with anything I experienced as divine. I find my spiritual connection in the heart of nature, the awe I feel in the presence of the ocean, the greensong heartbeat of the forests. I’ve no use for an adolescent “God” who keeps score.
No, I was just making a karma joke. See, I’m the kind of person who, when I feel “thumped” by the Universe, will do a u-turn and pick up the hitch-hiking hippie couple with the rambunctious dog. And when the couple was unable to reach the family member they were heading to stay with and said we could drop them off just anywhere in Berkeley, same “thump” says they’d be in mortal danger if we did that, and we took them home and put them up in our spare bedroom for the night. Sent them on their way in the morning, well-fed. I just mean I’ve answered the call so many times, I’ve banked a lot of good credit, I can afford to deduct some of the interest! 🙂
Thank you! I have many stories that I rarely tell because they are likely to be judged as weird or impossible. I cherish those memories and only share them when I feel safe to do so. I’ve been letting some of them trickle out here, because I feel connections here, I feel received and honored by particular folks here (hugs to Alex, for instance), and as I do so I feel a surging desire to share more. Pacing myself is a good thing, I have to remind myself, because it feels so good to be my authentic self. I have much to offer, but also much to learn and digest from these kindred spirits, and am trying to leave space in me to do both, if that makes sense.
Getting vulnerable here: I think it also made me cry because I had never realized there were old souls here for that purpose– helpers to those of us who took the heat this time ’round. It hit me hard that I need those helpers in my life; this past year-ish has been particularly hard. I am open and ready to receive that kind of support in my life. I’ve certainly racked up the karma points to deserve it!
Another past-life story, this one from my daughter.
When she was about 2 or 3 years old, she was trying to get me to recollect an incident she remembered very vividly. It was a visit to the state fair and she described seeing livestock and riding rides, and insisted that we had gone to the fair with my brother when she was a baby. I wracked my brain trying to think of a time that this might even have been possible, because there had been very little contact with my brother, who lived far away. He had stayed with us when she was a baby, but only for a month or two, and it wasn’t during the summer when fairs take place. She was getting pretty frustrated with me for not recalling it, and I apologized to her “I’m sorry, C, but mommy just doesn’t remember that.” And then her exasperated reply: “Not when I was C! When I was a baby before.” And then it dawned on me, and I asked “Before you were C? Did you have a different name before? (she nods hard, like I’m finally understanding) I bet you had a different mommy then too, maybe that’s why I don’t remember?” And she says “Oh! Yeah! That’s why you don’t remember it. You weren’t there.” And now she had me so freakin’ curious! I wanted to know more! But once she realized that there was no way I was gonna remember she completely dismissed me and went back to playing with her toys.
Thank you, Kjetil, for an awesome article! The thoughts you enumerated rang true for me, as well. All except one, and it made me cry:
Sometimes mature souls come back in relatively easy lives in order to be helpers for the souls who take the hard ones.
I am one of those old souls, lived countless lives. I remember several past lives, some in great detail and some just vague snippets of memories and whiffs of who I was in that time. I have encountered people I knew before, and shared a mutual sense of recognition. Sometimes those shared experiences help clarify the knowledge of who I was but what is more helpful is when I gain an understanding of the why, the purpose of that lifetime. I can tell you that past life traumas carry over, and it is important to understand when something in the here/now is triggering past life issues. I know, for instance, that my complete intolerance for what I call “intentional mis-understanding” (someone twisting my words and using them against me for their own agenda) stems from my death as a lawyer in the French Revolution. I was beheaded by the very people I had been advocating for, and the betrayal I experienced still stings to this day when I am in a situation that evokes those feelings. I know I am still working on healing his wounds.
But the reason your words made me cry was that although I have known and accepted that I’ve chosen hard lives, I don’t think I ever realized that I could choose this: Sometimes mature souls come back in relatively easy lives in order to be helpers for the souls who take the hard ones. I’ve never considered that, never felt permission to approach a lifetime in that way. That insight was such a profound gift, Kjetil. Thank you.
I *do* actually! But not as much as when I was younger, when I was much more open just in general than I am now. Before I learned to shield and discern, I would sometimes feel “overtaken” (maybe not the right word, a little too strong a word, but close) by the experience. And my life was not what it is now, not so many petty details constraining me to this consensual reality. But I still channel very easily when reading Tarot, as I’ve trained my psyche that that’s the appropriate environment to flow free in that way (not unlike the way our bodies are primed to open and release when we sit on the potty, all the cues are there). I also do get messages from ancestors, and they tend to be very insistent until the message is delivered. I am one of those old souls, and definitely chose a service path for this lifetime, and not an easy one. But I truly have no regrets about that. It’s not a lifetime of ease that puts one in the shaman’s cave, dancing the energy between the worlds. I heed the call; I deliver the messages. I’ve never feared doing so in this lifetime.
Okay, I will.
I grew up in the way back, LOL, before cell phones and GPS and whatnot. When I was 14, living with my mother and younger siblings, my sister got sick and spiked a dangerously high fever. Picture of poverty: living very rural in a house with running water and electric but no phone and no neighbors near enough help. Tylenol didn’t touch it, and what ice we had on hand went very quickly. I could see by the look in my mother’s eyes that she was very scared (this from a woman who is very hard to shake) and I knew it was getting dire. I have no idea to this day what came over me, but I rushed into the kitchen, grabbed several large onions and gave them a quick rough-chop, not even bothering to peel the skins. Found a plastic bag and dumped them in, brought it back to the couch where my sister was laid out, my mother cooling her head as much as possible with wet cloths. I got very directive: “Quick now! Get those shoes and socks off her and get her feet in the onions! Get that fire outta the child’s head!” Her fever was 104? 105 by that time, and she was very close to febrile seizure. But, miraculously?, those onions did the trick– pulled that fever right out of her head, and down into her feet, the onions sweated and limp, her feet afire but her forehead cooled almost immediately once her feet were smothered in onions. After the danger had passed and we had a moment to reflect, my mother told me she heard her grandmother’s voice telling her through me what to do when I got all directive with the onions. They tell me I met her once, as an infant, but I have no recollection of her whatsoever.
That’s one story. I’ll leave others, one per comment per your request so as not to extend into “read more…” territory 🙂
What the hell is “deemed consent”?
Your daughter is so lucky you are smart, and looking out for her. She could have ended up on the road to becoming one of these kids:
I absolutely love the way you put things oldhead! So relatable, so true!
Thanks, Liz, for providing that link. Blew me away too. I think we need to make all the legislators read it.
Yup. I too have stories from my MSW training that made me really hope these folks don’t get the credentials that will allow them to harm the vulnerable people desperate for help. And horror stories of my own as a client. And then I had my perfect therapy support, Catherine. 17 years she was the person I could tell anything, show everything, without being pathologized. But she closed her practice last year, and I told her when she did that there wouldn’t be a next one so keep the referrals. It took me years to really trust her and be completely vulnerable. Years of her proving consistently that she was worthy of hearing the stories at the core of the damage, of her letting me read my file whenever I asked, years of dwelling in her unconditional positive regard for me 2 hours a week, is the path it took to get to where the healing could begin. Because my trust had been so very damaged, first by my family and the family doctor, then by teachers and classmates and religion, then by men, and then by the “mental health” system.
You’ve hit the nail on the head right there, madmom. They’ve got the monopoly. There are some caring and competent therapists out there, but they either get paid by you out-of-pocket, or they assign you a billing code (i.e. dx) in order to get paid through the system. Some check out of the economics of it completely by offering a sliding scale or barter, but they are such rare gems to find. And the support they can offer doing that tends to be inadequate to meet the needs of people who are actively in crisis. We have to divert the funding streams away from what harms, and find a way to channel it to those who do the real healing, or to improving the conditions in our society that are intolerable and drive us mad.
Thank you! I was thinking the same thing about that phrase “While medication may have role to play in alleviation of symptoms of inattention and hyperactivity”
Why do so many of the articles I read here, that are otherwise hopeful, include concession language about the drugs? Why do the authors feel the need to give the drugs a nod at all? I really don’t understand this.
There is a really excellent book I read awhile back: You Can Heal Your Life by Louise Hay. She lists many physical ailments/symptoms along with attitudes and personal outlooks they seem correlated with. Often (though not always) when I am experiencing something physically, and look it up, the corresponding attitude rings true. When that’s the case, changing my attitude/outlook often clears up the issue significantly. Sometimes pain and ailments are happening for you, not just to you.
No, it likely won’t change prescribing habits on the whole anytime soon. But hopefully it can be used by parents and advocates who are aware enough to challenge the system, evidence to point to that supports their valid refusal of such drugs.
About loss of boundaries, taking on others’ energies: I experienced this as a side effect (somebody suggest a better term- oldhead? Frank? help me out here) of the drug Effexor. I basically could not maintain energy shields that, as an energy empath, I rely on. Without that drug in my system, energy maintenance was something I kind of just did throughout the day without really thinking about it. But under influence of Effexor, I constantly felt misunderstood by and in conflict with the people in my life. I did not recognize that my ability to shield had been compromised to the point of not being able to distinguish my own emotions and energies from those of people around me. It was only after withdrawal (vertigo from hell!) that I came to understand what I had been experiencing.
When I have a lot to say on a subject, I sometimes mull it over for a bit before expressing myself. I do have a lot of thoughts on the topic of forgiveness. Alex mentioned something about people having different internal definitions of words, and I know for me the visceral reaction to “forgive” has changed (somewhat, but it really depends on the context). Children are taught very early to rotely offer apologies they don’t mean– you can almost hear an echo of “say you’re sorry!” right now, I bet. Even as a kid, I thought that was a crock, and refused to accept bogus apologies. It’s either sincere, or it’s an insult, frankly. So my first concept of forgiveness sprung from that, and was something I wanted no part in. Later down the line, I encountered a different concept of forgiveness. It goes something like this: Somebody has wronged you, and this act has created emotional baggage. You can carry it around with you, dwelling on it, essentially dragging it around with you, or you can drop it off in their corner and let the consequences be theirs. But here’s the catch- you have to walk away and not look back to check and see how the consequences play out for them; you have to quit being emotionally invested in any particular outcome. For me, that still feels like relinquishing my claim on some justice for the one wronged. The wronged deserve justice! So, yeah, if that is what forgiveness is, it’s still not my cup of tea. Accountability is.
So here’s how I define accountability: you must account for your actions and your intentions, up to the limits of your ability. So in these instances where folks committed crimes because they were placed on an Rx that created a situation beyond their control, in my view they should not be held to account for that. Behaving better in that situation was beyond their ability. Each person is operating out of their own set of resources and challenges, which fluctuate for everyone but more so for some of us. I will not be held to account for what is beyond my ability, and I cannot hold others to account for what is beyond theirs. And often, the more you know, the picture of the situation changes. So add Understanding to the list next to Accountability.
I have a personal example. About a month before I turned 12, I found myself living in a new family: my mother, her boyfriend of 3 years, and my younger half-siblings (brother, sister). How this came about is a different tale for a different time. These were not his children, but he was Dad to them and shortly to me as well, a welcome change for me since I had never bonded with my own father. Picture family life: county fair, swap meets, demolition derby (nosebleed seats but who cares?!), backyard garden and BBQs. Then one night, a few months before my 13th birthday, my mother walks into my bedroom late at night to find her boyfriend naked in my bed and touching me. I remember her turning on the light, and then almost immediately turning it off and walking out of the room. He followed her, grabbing clothes on the way out and trying to say something to her, I don’t know what. Memory of that night gets hazy after that flash of light, but I remember very well up to that point. Nothing in his demeanor had been predatory. No, he was being like a trusted friend, a confidante, a mentor. He expressed interest in my life, my friendships; he listened. He was being very open, very real, no canned adult responses. We were talking about school, boys. He asked if there was anything I wanted to know about guys, about sex. He said that in a family, mothers teach sons and fathers teach daughters. That made sense to me. I didn’t even question it. (I would come to understand why decades later in a conversation with my aunt, who confirmed a pattern of intergenerational incest in my father’s family, and disclosed that I had been molested as an infant by his parents. Again, another tale for another time.) My mother grilled me the next day about what had happened and I told her what he had said. She twisted things into some weird Freudian knot, pathologizing my reaction of trusting him. Something along the lines of “If he’s like a father to you, you must be really fucked up to want to fuck your own father.” Her story was that I seduced him. She was awful to me, psychologically cruel and physically abusive, for the next to years, until I escaped the situation. But an interesting thing happened when I was 14: my mother’s parents drove out to visit. They didn’t stay long, and she had not one good thing to say about me to them, but their visit stirred memories in her that she had long buried and I became her confidante. Horrible, horrible memories of things her father had done to her, her sister, her brothers. She told of being raped at age 4, and being blamed, and how the beating that followed almost killed her. And that story of hers changed the picture of my story, of why she reacted the way she did. Having the context did not change how wrong she was in treating me the way she did, but it explained the why of it, and that made it easier to bear. Given her history, she could not fathom that it could be his fault. The man was never to blame, the woman/girl always was. And somehow, she had never challenged that. She was operating out of her own trauma, creating trauma for me. But having the fuller picture helped me understand the limits of her accountability for reacting that way.