Tuesday, August 20, 2019

Comments by KnitGnat

Showing 1 of 1 comments.

  • I would love to see what the author would learn from an incurable degenerative condition like Ehlers-Danlos Syndrome, Trigeminal Neuralgia, or Complex Regional Pain Syndrome. The problem I have with articles like this one is that in not one place does it mention any of us. It is as if we don’t exist. We are the “other,” not worthy of consideration, as if he assumes that we are a fringe population and/or aren’t intellectually capable of reading his message. This makes it appear that he has a secret target audience in mind: “normal” people like him, which raises uncomfortable implications, as obviously, disabled people have been at the receiving end of at least one major genocidal program in the West less than a century ago. This idea that we are outliers is thus very dangerous. His concept of pain is overly simplistic: his knee pain was caused by improper gait, and could be solved simply by changing his behavior, an idea that runs parallel to his earlier opinion that Americans are causing their own stomach problems through improper diet. The thesis is clear, if not openly stated: people are responsible for their own suffering. While this may often be true in the cases of the two examples he mentioned, most statisticians would question his sample size. This came off to me as condescending ableism from the type of person who considers themselves and their friends to be “normal.” Articles like this lend credence to the epidemic of horrible advice that us sick people get from the population at large, all the time, every day of our lives. We DO exist, and when you add us all up, we’re not a “minority,” no matter how much our eugenist society may wish to see us relegated to the shadows, or, in many cases, to our graves. My EDS is caused by father’s Agent Orange poisoning in Vietnam, and it is one of the most painful conditions in existence. There are tens of thousands of others like me out there, but the government doesn’t take any responsibility for our healthcare because, like you, they feel that we don’t exist. What should I do instead of taking medication to make my pain go away, James?