Went on Prozac in my early twenties for mild depression and binge eating. Stayed on it because each time I tapered off I became depressed again. Twenty five years later Im now in my late forties and had to quit because of tinnitus. I read a lot about seretonin and tinnitus, and I was on 80mg for many many years so I m guessing it was the cause. It seemed it may be the high dosage causing it. I tapered as gradually as I could but there are no smaller increments than a 20mg jump at a time so it can never be THAT gradual. Im reliant on NHS, in the Uk because I am very poor; they do not believe in ‘protracted withdrawal syndrome’ and think I simply now have new psychiatric issues. They think it is a coincidence that I suddenly have all these new symptoms… and won’t listen. The tinnitus is still just as loud two years after trying that damn Setraline. I get no sympathy from the psy department because they say I should now be on anti depressents AND anti anxiety/pschotics. Despite the fact I never had ANY anxiety ever before, ocd or anything! It isnt even in the family! I so wish Dr Peter Breggin were my psychiatrist!!! I had no idea that when I quit SSRI’s that I’d be in for this roller coaster ride from hell, I expected to go back to how I was. No one tells you. It created the most severe and disabling tic based OCD, other forms of OCD, anxiety, panic attacks, paranoia, phobias, and it keeps deteriorating. My adrenals are exhausted and I now have fibromyaligia and chronic fatigue, and am hyper sensitive to sounds to the point that everything is painful. I cannot even watch a movie without the sound off and subtitles on, the sound effects jar my nerves and hurt my ears too much and I start violently tic ing. I cannot go out because I cannot stand the stimuli, and I used to be an artist but I cannot touch pens because of the OCD so it has stolen everything from me. I have been suicidally depressed because of how disabling it is, for two long years now. I fight it of course. I have people who love me so I won’t do that. But it is utterly horrific. It has been two and a half YEARS now since I quit Prozac and my life is an unbearable nightmare. Ive tried all the ‘therapies’… CBT, hypnosis, counselling, etc; they didnt help at all. I even went on Setraline (another SSRI) at the GP’s recommendation, but the tinnitus DOUBLED in volume and never went back down!!! The Psy dept are not listening, and there is nothing I can do but wait and hope that it hasnt become permenant. I read about so many people for whom it has… and it fills me with the deepest dread you cannot imagine. What can I do??? I can’t bear this much longer. By the way, so you know: I dont smoke or drink, or do drugs; I eat a healthy wholesome and natural diet, no MSG no additives, nothing highly processed, no sugar etc. I take plenty of omega 3’s, good vitamin and minerals, eve primrose oil, B complex and so on. I have tried all nutritional approaches and had no effect so far. Ive been under a herbalist for a year, an adrenal and nervine mix, but feel nothing is helping. I tried alsorts… everything I could find online. The OCD has become so extreme that I have no life now. I mean NO life. I wish there was something… I have reached out and begged half the internet, everyone I think may listen. I get a lot of sympathetic replies, which is nice, but no one can think of anything I haven’t already tried. I don’t think I’ll make it.