Saturday, December 3, 2022

Comments by feeling_hopeless

Showing 5 of 5 comments.

  • Went on Prozac in my early twenties for mild depression and binge eating. Stayed on it because each time I tapered off I became depressed again. Twenty five years later Im now in my late forties and had to quit because of tinnitus. I read a lot about seretonin and tinnitus, and I was on 80mg for many many years so I m guessing it was the cause. It seemed it may be the high dosage causing it.

    I tapered as gradually as I could but there are no smaller increments than a 20mg jump at a time so it can never be THAT gradual. Im reliant on NHS, in the Uk because I am very poor; they do not believe in ‘protracted withdrawal syndrome’ and think I simply now have new psychiatric issues. They think it is a coincidence that I suddenly have all these new symptoms… and won’t listen. The tinnitus is still just as loud two years after trying that damn Setraline.

    I get no sympathy from the psy department because they say I should now be on anti depressents AND anti anxiety/pschotics. Despite the fact I never had ANY anxiety ever before, ocd or anything! It isnt even in the family! I so wish Dr Peter Breggin were my psychiatrist!!!

    I had no idea that when I quit SSRI’s that I’d be in for this roller coaster ride from hell, I expected to go back to how I was. No one tells you. It created the most severe and disabling tic based OCD, other forms of OCD, anxiety, panic attacks, paranoia, phobias, and it keeps deteriorating. My adrenals are exhausted and I now have fibromyaligia and chronic fatigue, and am hyper sensitive to sounds to the point that everything is painful. I cannot even watch a movie without the sound off and subtitles on, the sound effects jar my nerves and hurt my ears too much and I start violently tic ing. I cannot go out because I cannot stand the stimuli, and I used to be an artist but I cannot touch pens because of the OCD so it has stolen everything from me. I have been suicidally depressed because of how disabling it is, for two long years now. I fight it of course. I have people who love me so I won’t do that. But it is utterly horrific.

    It has been two and a half YEARS now since I quit Prozac and my life is an unbearable nightmare.
    Ive tried all the ‘therapies’… CBT, hypnosis, counselling, etc; they didnt help at all. I even went on Setraline (another SSRI) at the GP’s recommendation, but the tinnitus DOUBLED in volume and never went back down!!! The Psy dept are not listening, and there is nothing I can do but wait and hope that it hasnt become permenant. I read about so many people for whom it has… and it fills me with the deepest dread you cannot imagine. What can I do??? I can’t bear this much longer.

    By the way, so you know: I dont smoke or drink, or do drugs; I eat a healthy wholesome and natural diet, no MSG no additives, nothing highly processed, no sugar etc. I take plenty of omega 3’s, good vitamin and minerals, eve primrose oil, B complex and so on. I have tried all nutritional approaches and had no effect so far. Ive been under a herbalist for a year, an adrenal and nervine mix, but feel nothing is helping. I tried alsorts… everything I could find online. The OCD has become so extreme that I have no life now. I mean NO life. I wish there was something… I have reached out and begged half the internet, everyone I think may listen. I get a lot of sympathetic replies, which is nice, but no one can think of anything I haven’t already tried. I don’t think I’ll make it.

  • Thanks Humanbeing,
    That website it where I first learned about the syndrome. And I know that other site too. 🙂 I am in the U.K by the way, hadn’t thought to mention that. Yes I would have quite a search on my hands if I had money for psychiatrists! But I’d need a lotto win just to get that far! (I could afford maybe one hour every three months… if I really scraped my pennies together). Besides, the government would never sanction these practitioners on the NHS in a million years! I wrote to a college of psychiatry last year, the reply labeled these people as ‘maverick quacks practising psuedo science’… This is what we are up against… Sadly

  • I wanted to add, that all this time Ive been pestering the hell out out of NHS to get me to see a Psychiatrist. Went to GP, hospital A&E (suicidal, on three occasions), and kept being sent for counselling and CBT. I told them explicitly about the withdrawals and how I need an expert to keep an eye on me and talk me through this hard time, but they will not listen. Two and a half years now of pushing and nagging, cannot get to see a psychiatrist no matter what!!

    If I hadnt had the constant support from one friend I wouldn’t be here now.
    I made it very clear to the GP, the psy dept, etc. I wrote a detailed and powerful letter right to the top, explaining what Im going through and why, and begging for the right help. Guess what? More CBT… I even tried the newspapers and my MP, they dont want to know either. this is not acceptable at all. How many people kill themselves because they are not given the help they need? If I had money I’d have been able to go privately and search out a psychiatrist that understands about this withdrawal issue. But since Im poor… most of us end up losing the battle. I just hope I DO get past this… or I’ll be another one of those invisible statistics too.

  • After twenty five years on Prozac I had no choice but to wean off, due to the side effect of tinnitus and severed hyperacusis. I was afraid that it was the Prozac causing it, too high a dosage for too long, so I quit. I tapered off slowly and went into a living hell that words cannot describe. It has been two and a half years now, and there is no sign of improvement yet. I was living in hope that it is just a matter of time before I get well… now after reading this article I am feeling very very afraid.

    There is a chance I won’t recover. After quitting the drug I now have severe OCD/tic based; severe anxiety, panic attacks, phobia, insomnia, and physical symptoms such as fibromyalgia, exhaustion, tendonitis, etc. The OCD alone is so resistant, nothing has worked. I live in a nightmare that seems to have no end. I was suicidally depressed for the last 18 months because the ocd is driving me so crazy. I cant sleep as music stuck in a loop 24 hrs a day, instrusive thoughts, cant’ touch anything, cant have visitors, cant visit anyone… the list is very long.

    There is nothing I can do but wait and hope that maybe, just maybe I’ll be on the lucky ones that recovers. One woman on you tube documents how it took her six years… but she is well now. If I dont recover I will end up taking my life eventually. I love life, I want to live… but Im tormented all day, all night, year after year. And I cant bear it. Tried so much therapy… everything. Even the damn hyperacusis wont let up. Have to wear ear plugs if I leave the flat because every sound is so painful.