Friday, March 22, 2019

Comments by Michael_C

Showing 8 of 8 comments.

  • You’re right, “it’s all they have”… For the most part. NAMI, in no way has led any of my constituents to drugs. The doctors have. My chapter of NAMI has always pushed other alternative treatments actually. So maybe it’s just where you live where there are no other options, but drugs. Here is the SF Bay Area, there are plenty of other options to consider.

  • Well here’s something to rebound. Wouldn’t the pharmaceutical companies want to sell more drugs? If it caused people to die 25 years earlier, then they would, from a monetary perspective, want to correct that so they can keep people on drugs for longer. I believe, and I am making an educated assumption, but I believe that one of the main reasons people with mental illness have a lower life span statistically is largely due to the high suicide rate among the group.

    In my NAMI chapter, everyone leading groups or classes, to some degree has mental illness, which allows many people to relate easier to the subject as those leading have been through a similar struggle as you, the consumer. Of course, I wouldn’t want to be told by a healthy group of people, that my perspective is invalidated because I’m sick with a disease. It’s a very very tough spot to be in, because honestly, not even the medical field can agree on what mental illness is.. How can parents who haven’t gone to 8 years of medical school be any more adept to know what their child is going through. We are all just trying to fight this together, but the real killer is ignorance. I don’t mind people shedding light on NAMI’s corrupted ways. It will only foster more awareness, which is always a good thing, but from my experience, my NAMI chapter has always been helpful and never pushy, especially when is comes to discussing various medications, which has never happened in any groups I’ve attended.

  • I too am on very low doses of medication. According to my psychiatrists, I’m ‘lucky’ in that way. I ascribe it to my effort, personally, but still, out of all of them, he is willing to help me reach sub-“therapeutic” level of medication, which has worked and continues to work for me. The chapter of NAMI that I work for is in the Bay Area, and, yes, during some of the classes, people “read” through the binder’s information, but people are free to accept or reject the info. I’m no dummy and when I hear something out of place, I know it. The class I have taken is for the Peer to Peer program, which I have spent the last year doing with great success for my Peer Pal. I consider NAMI, just like any other company. Look at Chevron… Polluting the planet, but still people need gas, right?! I feel like NAMI fills the void for questioning parents and possibly some individuals who suffer from some degree from mental anguish. You can use their services, or find another gas station.

  • I completely disagree with you. How could one, as an organization aimed at assisting people with mental illness, in good faith, tell one of their consumers to go against/ignore the recommendations of a profession medical doctor….? It would make no sense for NAMI to say anything BUT to listen to doctors. In any case, NAMI’s main motivation is to assist people with conditions like mine. Not to treat them like a doctor would. This is why NAMI has always been forward with alternative approaches to help with various conditions that millions of people suffer from. Have you ever been to a NAMI meeting? People go off their meds all the time, with mixed success. NAMI has never pushed drugs on anyone from my experience.

  • I created an account just to comment on this article. I have been affiliated with NAMI in some fashion for 7 years. I can assure you that I have NEVER been told which drugs to take and / or that drugs are the complete answer. In fact, I have never been told anything from NAMI about particular drugs at all. No information pamphlets on drugs… No classes on them, etc. Most of the classes and informational seminars are on subjects outside of chemical treatment. Such as meditation or CBT. Any number of other ways to treat the illnesses people suffer from. NAMI has been a great resource to my family and to me (a consumer) and aside from helping me come to terms with an illness and encouraging that I listen to recommendations by a psychiatrist, NAMI has done nothing to sell me or feed me drug information. Would like to hear your comment to this. I hope this sheds light on NAMI from an inside perspective.