Wednesday, October 23, 2019

Comments by Tyler

Showing 10 of 10 comments.

  • Thanks for your kind answer. I understand your point of view concerning adhd, or rather concerning the set of symptoms you refuse to label adhd. Actually, that issue is most complex and I don’t know if I have a personal opinion on this social/medical matter. My point is that sometimes people who are labelled adhd do experience symptoms that truly are disabling. The origins of these symptoms are debatable. And so are their possible cure.

    What shouldn’t be challenged is their very existence. And here is the sore point : how to make the difference between people whose symptoms can be walked away (yes, I’m sure it can happen), and those who are suffering from PTSD or possibly from some organic disorder (and would so require particular medical and psycho-social treatments)? How ?
    Obviously I cannot debate with you about the possible overdiagnosing or misdiagnosing of children in America as I know very little about the problem. But for some of these children there is definitely a very real problem. And it has to be dealt with efficiently, otherwise drugs like ritalin and the like will fill the void -even though they can’t be a good solution. There’s no getting around it.

    I can testify that methylphenidate is a dangerous drung. For me at least, it turn out to be harmful. At the same time, before the harmful effects started showing their ugly head, concerta and ritalin introduced me to a world where things were more orderly : it was easier for me to get things done, to get organised, to dance! (motor coordination always has been one of my issue), to get up from bed feeling refreshed and not exhausted, to relate with other people more easily. But alas, this all came with too high a price. I stopped all medication. But my problem remains. So basically, on this point, we see eye to eye : the drugs don’t work (or at least for me they didn’t work.)

  • I’m glad you found a way to deal with your distractibility. I still haven’t. And it’s disabling. I can’t get organised ; I can’t drive ; I can’t do sport properly ; I can’t do so many things…You don’t need diagnosis ? Don’t need treatment ? Good for you. But it’s your life, not mine. I have been experiencing disabling symptoms. And I would be so very happy to find some relief, I’d be so very happy to have the same ability to focus, to get organised, to pay attention as most people. So please, don’t come and tell me I should be kind and shut my mouth when I hear someone denying the very existence of what I’m going through.

  • The same issue pops up again and again : ADHD simply doesn’t exist. It’s a sham. Ok, I don’t mind people holding that belief true. And I agree that the ADHD diagnosis can be misused ; and possibly widely misused. I also know first hand how ADHD treatment can turn out to have terrible side effects. Still, I’ve been blighted all of my child and adult life with symptoms that perfectly match the diagnosis of ADHD. What do I do with that Mr Corrigan ? Do I have to deny the reality of my symptoms and simply kick my own ass into getting better ? Actually, I tried. Sadly it didn’t work. I’ve also been trying psychotherapy. Unsuccessfully. Damn, if it’s not ADHD what the heck can it be ?

  • I agree that a lot of doctors are obnoxiously arrogant (NOT all of them though, let’s keep that in mind). Still, if they have a high rate of suicide as you put it in your article, it means that they don’t have it that easy and that -in a way- they are also the victims of a system noone knows how to fix.

  • Well, may be ADHD is not the right name….But surely a name is needed to understand what is to be adressed and how to deal with it ?

    I don’t know about all this alternative to diagnosis stuff. All I wonder is how to take into account the reality of the disease and how to treat better people plagued with severe adhd symptoms.

    As for doing what you said, that is “more accurately describe the problems you face why not just describe these problems, talk over what might have caused it, when things get worse and when they get better and then think about what might help”, I’ve been trying to do it for years and some symptoms just won’t go. When I got diagnosed with adhd, ritalin quickly helped me recover some “common sense” concerning time, space and organisation when nothing else had helped that way.

    So once again I wonder : how getting rid of the ADHD label is going to help improve sufferers’lives ? What solutions can be put forwards then ?

  • Thanks for your time, thanks for your answer.

    What brought about my slightly agressive comment to your original post is the repetitive denial people suffering from ADHD will encounter. Quite often they can hear that ADHD does not exist. Really ? What could this mean ? Do we fake our shortcomings ? Are we so bored that we want to waste our time in doctors’ places ? So unruly that we are ready to ruin our careers, relationships and lives just because we don’t have self-discipline ? That’s what these denials seem to imply. And that’s most upsetting. Obviously, that is not what you mean.
    Obviously that is far from the truth. I’m going through this and I can tell you that ADHD is far more complex than “lack of discipline” or “ill will”. I struggle every day with a deficient sense of time and space for instance. This is very much real and has nothing to do with “lack of will”.

    And as I said, during a few months, ritalin seemed like a miracle to me. Unfortunately that medication is dangerous and I had to give it up.

    If ADHD “does not exist” then there is a need for another name more accurately descriptive of the syndrom I suffer from as there is a need for more appropriate and efficient treatment. Until then what I could read about it seem to describe fairly well my plight, although I cannot be sure of its etiology.

    Thanks for your attention
    Tyler

  • So basically, what you say is : there’s no such thing as ADHD but some people suffer from it. That is : there are a set of symptoms (=a syndrom), but let’s be careful this cannot be called ADHD. Fair enough, give it any other name you like.

    And above all, please, tell me what can be done to alleviate its manifestation because after years of psychotherapy, nothing came close to the results I experimented with methylphenidate. Unfortunately, this was very short lived due to the toxicity of ritalin.

    If you know of a way of improving the life of people who suffer from ADHD (or from the syndrom wrongly labelled ADHD, I don’t care)please let us know.

  • ADHD is not a made up disease or syndrom. It does exist. I suffered from it most of my life, and I can tell you it’s had very concrete negative effects. It’s not only about what you do, but mainly about how you perceive and process information both from the inside and from the outside…Which eventually will lead about how you globally interact with the whole world, including yourself. And yes, methylphenidate did improve greatly my condition when I took it….But it also had some very bad side-effects that negated the good.

    I had to stop taking methylphenidate and start looking for some other ways of relief.

  • After rereading my post, I think I’ve got to add a few words. Basically, I understand very well how much legitimate anger, how much resentment can come from the sorrow of having been inflicted a lot of pain by people who should have known better or -worse- who knew perhaps quite well what they were doing. It does feel unfair not to be able to unleash one’s rage on any symbol of that obnoxious psychiatric system.

    Still as much as ire and grudges are still rankling, as much as I’m still fuming over the ignorance, bad care,neglect and outright bad faith I faced, I personaly feel I need to calm down and try to refocus my life on more positive things. It doesn’t mean I can’t act and show my disagreement with a system which is unmeasurably stronger than I am. But I wish to disentangle myself emotionally as much as possible from the harm that happened to me within that system and from the people who directly or indirectly harmed me.

    I do appreciate your website.

    Best.
    Elie

  • It’s hardly surprising for MIA to face that internal regulation issue, as it happens to almost all forums. And the talk doesn’t have to be about borderline or heated subjects to bring about insults, slights and every other thinkable form of e-bullying. I once had to fight back when confronted with e-assaults on a forum dealing with addiction, on a forum talking about depression and on a forum dealing with bodybuilding.

    It happens all the time and everywhere. Given that mental distress generates so much pain and abuse makes it even more likely for such arguments and hatred to pop up here, on a website who’s mission is partly to unveil the suffering of those who are blighted with severe mental and emotional distress. There is no easy answer, and moderation very often seems unfair; and sometimes it is.
    We’ll have to carry on doing what we’ve been doing since we were born : put up with the imperfection of this world and try to live nonetheless.

    Best
    Elie