Wednesday, August 12, 2020

Comments by lwarberg

Showing 2 of 2 comments.

  • Thank you for sharing your story “Someone else”.
    I will order the book and research “brain zaps”. I appreciate your kind words.
    My son was hospitalized this past week ( it was his idea ) and prescribed the same meds as when he was 11.
    He was released Friday (his 22nd birthday) and told me he had a confession to make. “Mom,I spit out the medication after they gave it to me, just like in “One Flew Over the Cuckoo’s Nest”, he said. “I am not going through withdrawals like I did 14 months ago from the Benzos”. I will ask him about the “brain zap” symptoms…

  • Exhibiting extreme behavior early in life my son was not “officially diagnosed” with Juvenile Onset Bipolar Disorder until he was 11. And like Mr Earley I finally succumbed to the pressure from everyone (school and medical professionals) to drug my child with adult psychiatric medications.
    My son is/was highly intelligent reading at a 6th grade level in second grade, understanding complex 12th grade math problems in 5th grade but his behavior was out of control.He was labeled Emotionally handicapped and placed in Special Ed classrooms. For years I took him to every specialist, therapist,any professional I thought could help us. Although the multitude of psychiatrists who observed my son did not want to diagnose him with a severe mental illness at 6 years he was prescribed Zoloft,at 7 years he was prescribed Depakote,at 9 years Zyprexa. The list goes on and on. I was desperate to help him but what were the drugs never tested on children doing for his growing brain?
    He could not complete high school,cannot attend college or even look for or hold down a job. Just getting through any given day is a challenge.
    A year ago he decided to stop all his medication. He eats well, exercises and takes supplements. But his brain is still on fire. Although he has his own apartment he can rarely stay there suffering from extreme paranoia. Two nights ago he baker acted himself as he felt he wanted to harm himself and others. Now he waits in a lock up refusing medication. He called me last night and excitedly shared his thoughts for over an hour.He will be 22 years old on Friday.
    Before he was born I was a known photographer I lovingly documented my son since birth including the mania and I recently published our story; with my son’s permission.
    I resisted sharing it for years as I did not want to do anything further that could harm my son.
    Your comment on how you feel Mr Earley writes about mental illness in his family to further his popularity struck me as unfair. Mr Earley like myself has continued to do what he knows best to write in hopes he can bring these complex, controversial issues to light. Mr Earley believes medication helps the mentally ill and his son. I am not convinced and greatly appreciate alternative research and points of view.
    Knowing I took a risk of being misunderstood I still shared our story because I feel those with personal experience need to be the voice to promote change. We all want to end suffering and stigma for the mentally ill.
    Knowing what I know now I do not agree that pharmaceuticals should be forced on growing brains. I used to think there was a “magic” pill for my son but I am afraid his brain was damaged (especially by antipsychotics) and I blame myself for succumbing to the pressure that pharmaceuticals were our only route to mental health.

    I cannot make these choices for my son any longer and would never refuse to help him if he no longer wants to be a guinea pig for Big Pharma.