Friday, June 5, 2020

Comments by Savanna

Showing 1 of 1 comments.

  • I agree with Nancy and I hope this doesn’t hinder any future discussions about the possibility of permanent damage. If it can be discussed about in relation to crystal meth or antipsychotics or even cocaine I don’t understand the resistance to it being explored with SSRIs.

    And can I just make a parallel with what’s going on with Propecia sufferers because some of them have symptoms which are very very similar to protracted withdrawal and a doctor came out last year in mainstream news to say that he suspects the damage “might be permanent” and the chance of recovery “less likely the longer they have these side effects” and the Propecia community aren’t vilifying him they’re glad to hear someone finally acknowledge it.

    There is obviously a overlap with SSRIs and anti psychotics in relation to symptoms and withdrawal so it isn’t far fetched to assume that some of this damage might be permanent as it is with APs. At least one study I know of showed stunted growth for kids on SSRIs, so for those of us who are dealing with this and took medication from teens up until our twenties who years after the drug are seeing little improvement in our symptoms how can we be assured a recovery? What about all the people battling PSSD years later or who now have drug induced medical conditions? Some are getting better, some are not.

    I am baffled at how much no one wants to approach this issue. When I first decided to taper I also read the horror stories and I was terrified, should the horror of withdrawal have been hidden to spare peoples feelings? Had I know what the result would be in getting off medication I’m not sure I would have done it but by then I was already struggling badly with what I thought were side effects (now I think most of was just medication damage) and was willing to risk it in hope of getting my life back.

    I find the issue of permanent damage has become a dirty ban worthy word in some circles, it’s like no one want to talk about it and are willing to marginalize those that do. As if it isn’t natural to speculate that, as with the use of other drugs/substances, for certain people a point is reached when a lot of damage done isn’t reversible. I find discussing this possibility preferable to just acting like people still having problems after taper don’t exist or just have some kind of “anxiety” issue. I think that for accountability and the purposes of getting of full, accurate picture of exactly what these drugs can do and have done and for those of us still struggling without any recognition of the damage that’s been done to us, this issue of permanent damage needs to be fully explored. I don’t find this article scary, it was scary when I finally tapered off these drugs only to find myself practically disabled and with little improvement month after month year after year.

    And it’s very invalidating for people who’ve already been treated like collateral damage to then have this repeated by a refusal to discuss this issue.