Friday, June 18, 2021

Comments by slacker

Showing 2 of 2 comments.

  • Hi James,

    Thought that I would post an update. Out of desperation, I opted for ECT treatment anyway. In hindsight, I think I took your words for granted. You see, I am much younger and less wise than you are. Like most people my age, I am the living embodiment of “young and dumb”. I was not warned of any long-term side effects by my doctor. I assumed that people with long-term cognitive impairment from ECT were in the minority.

    Since then, I’ve been dealing with memory loss and PTSD from my treatment. During one of my ECT treatments, I briefly experienced what’s called anesthesia awareness. I do not remember being shocked, but I was paralyzed for a few minutes. This experience, however, was not what motivated me to cease treatment. I figured that it would help eventually, so I continued to follow my doctor’s orders.

    Later into my treatment course, I saw a boy in the ECT preop room. He couldn’t have been any older than twelve or fourteen. The nurses were trying to comfort him. He looked back at me while he was being rolled into the ECT suite. The look on his face had a profound affect on me. I had no idea that children were still subjected to ECT until I saw it for myself. I wish that I had said something.

    On another occasion, the preop nurse assigned to me tried to make me take Ativan. She claimed that I became aggressive after one of my treatments. I told her that I had no idea what she was talking about. I refused to take it until I got an explanation from my doctor. The nurse continued to argue with me until another nurse intervened. The other nurse explained that there was a mix up. The Ativan was meant for a different patient. G-d bless that nurse.

    Although I regret undergoing ECT, it helped me realize how grossly negligent HCPs can be – particularly in the psych field. I’ve filed complaints with the hospital and my state department of health, but nothing has been done. There are very few organizations that advocate on behalf of people like us. Despite mental health advocates’ effort to end the stigma, our post-treatment struggles are discredited on the basis of being mentally ill. If anything, I think these efforts have been used to further discredit our experiences.

    Slacker

  • Hi James,

    Thank you for sharing your experience here. I recently completed 36 iTBS treatments with the MagVenture MagVita. It didn’t do much for me. I’ve decided to pursue ECT treatment instead. I have nothing to lose at this point.

    Like you, I had intense bouts of confusion and derealization throughout my treatment. On one occasion, I stumbled out of the clinic and vomited. There’s no way I could’ve drove home. Fortunately, these side effects eventually subsided.

    The FDA needs to investigate adverse reactions and possible side effects further. TMS technicians should also be held to higher scrutiny. In my experience, the technicians were grossly unprofessional (even violating HIPAA). Frankly, I had no idea that most TMS technicians had so little experience in the healthcare industry. I assumed most of them were PAs or RNs. I feel like a fool.

    Slacker