Tuesday, December 10, 2019

Comments by Dawn DelMonte

Showing 15 of 15 comments.

  • Nancy,
    Thank you very much for writing this article. It is so very poignant and pertinent on so many levels it’s difficult for me to respond. Like you, I believe in the need to address this holocaust of psychiatric mal-practice from a civil rights/legal perspective. Fighting it out in the courts is very very important and necessary. I wonder if it would also be good to add grass-roots organizing (thank you Ted Chabasinski), to our arsenal of ways to support each other and simultaneously move toward the creation of a just system that would preclude a fascist corporatocracy that uses people like commodities and guinea pigs, and dismisses their value and humanity in the way you describe.

    I’m wondering if it would make sense to start in that direction by going or sending delegates to the upcoming US Social Forum Conference this summer. It’s being held in Philadelphia June 25-28, and in San Jose June 24-28th. For more on what it’s about, see https://www.ussocialforum.net/node/572. In addition to all the wonderful types of work people are already doing and have done for the “cause”, it may be a good idea to also reach out and join with with other activist organizations seeking a more just and humane system. It may be a way to provide mutual support and broaden our resources and power in this struggle. Maybe offering to do a workshop there would be worthwhile, as well.

    Though many of us are still sick, hurt, trying to recover or preoccupied with helping others to do so, maybe some can contribute in this way toward changing this sick system. I’d love to hear your thoughts about this.

  • Hi Michael,
    Bless your heart for working on and writing about this. And bless all of the people connected here who are searching, learning and teaching others how to get out of this holocaust! Like Rossa, I also have been supporting my 24 year old daughter for the last few years as she withdraws from 16 years of various psych drugs, including Abilify, Zyprexa, Effexor, Prozac. She recently had gastrointestinal surgery, the need of which may have been at least partially caused by the “side effects” of some of the drugs. Luckily we found a psychiatrist who, though he knew little about slow tapering, was willing to listen to her needs (and my instructions). He did not even know about the one compounding pharmacy which had a contract with our health plan, but when told about it he immediately started to prescribe there. And when we consulted with the one private practice psychiatrist in the area who seems truly knowledgeable about tapering, he accepted his recommendation to use a “Prozac bridge” when tapering off of Effexor seemed impossible to accomplish. (It doesn’t work for everyone, so cannot be used in every case.) And he’s gotten our health plan to authorize the many slow taper visits, and the compounding pharmacy, and has really been hanging in there for at least two of the last years. One possible attraction to tapering work for psychiatrists could be that they can definitely count on their patient’s investment in long- term treatment! She’s now on her last 2mg. of Prozac…
    I recently connected with some of the people in the SF Bay area who are working on the Soteria style sanctuary and harm reduction residential place. I’d like to be of help with it in some way if I can, though I’m still somewhat (though much less now) involved in supporting my daughter as she completes her taper.
    It is really inspiring to read your articles and to know that someone like you is interested and working in this area. Thanks again for writing and putting yourself out where you’re so needed.

  • Thank you to Cindi Fisher, for your human rights activism and to Ron Wipond for writing this excellent article about Cindi and Siddhartha.
    As I read this article, tears came to my eyes for many reasons as I recalled my own evolution – from that of a “mental health” professional who testified on behalf of the committing agency in two different states – to that of the mother of a 24 year old family member who is now slowly recovering from that same “mental health” system’s failures.
    Since I wrote the MIA Op-Ed in 2012 calling for research and training on psych drug withdrawal methods two years ago, I have been fully engrossed in helping my one family member slowly withdraw from multiple psych drugs. It has been a long, and alternately harrowing and fruitful journey. Much of the time I feel so exhausted and isolated in my efforts to help her, that I think I do not have the energy to help others recover and change the system. But reading about Cindi’s strength, determination and vision is re-energizing and inspiring. I now see that we need to address these human rights violations first by joining together in community and helping to free people to recover. We can call on our corporate controlled medical system to provide research and training forever, but will not make much headway until we do more of it ourselves or demand more from our governments. And it will lay the ground work for future research and training in psych drug withdrawal methods. The Soteria and Beyond Soteria (for those withdrawing) approaches seem the most effective methods, and I look forward to some day being able to contribute to their work. Bless all of you for your hard work and courage in this direction.

  • Michael, thank you how very much for writing your article and for the NY Times editorial link. I too am very alarmed by this latest affront to our human, second amendment and privacy rights. And thanks Duane for the Pastor Martin-Niemöller poem. I find it very telling. The statement, “If you don’t have anything to hide you don’t have anything to worry about” can also be translated to “Big Brother is watching you”.

    This part of yesterday’s article is especially revealing:

    …the White House said health insurance organizations would be extended “an express permission” to furnish to federal authorities “the limited information necessary to help keep guns out of potentially dangerous hands.”

    I wonder if that agreement had been pre-arranged between the corporate health insurance industry and this corporatist government, for their mutual benefit. Interesting that it was announced just after the ACA became effective on January 1.
    And interesting, that it takes place in the midst of our growing recognition of our government’s illegal spying on its own citizens.

  • Wow, I’ve been following this article and all the comments about it for the last couple of days. I wrote the MIA Op-Ed in December, “A Call for a National Research and Training Institute for Safe Psych Drug Withdrawal”. Shortly afterward I turned my major efforts toward providing a “Soteria-like” environment for my family member who is withdrawing from a variety of long-term psych drugs. During this time we have received great benefit from reading the Madinamerica.com, Survivingantidepressants.org and Beyondmeds.com websites, from other psych drug withdrawal survivors suggestions, and from one psychiatrist who helped my family member “bridge” over to Prozac from Effexor XR, which had her housebound and immobilized for 4 months. She is now very slowly tapering off of Prozac (5% a month or less, as needed), and next week will have surgery for the gastrointestinal malfunctioning brought on by her years of psych drug use.

    I too would like to see more research and training on withdrawal methods, the types of damage done by various psych drugs as well as the most effective reversal and repair of that damage. As I help my family member through surgery and then the remainder of her taper, I’m thinking about how I can contribute to even some of this. It would be good to find venues for doing the research that is needed. One thought I’ve had is to return to public health grad school and do a dissertation on one of these topics. Another is to just start applying for research grants. It has been suggested that I get together a literature review of the research on psych drug damage to date in order to begin. If anyone can or wants to help with this, or contribute their advice, it would be appreciated. In the meantime, I’d welcome other ideas/brainstorming about specific ways to get this needed research and training accomplished.

  • Oh yes, and she’s facing both endoscopy and colonoscopy before her surgery. Also, now trying to taper off of Effexor XR, stalled at 60 mg., I’m reading about possible adverse interactions with anesthesia. Then there are the potential problems with nutrient absorption after surgery and the likelihood that the surgery “will not solve all of her digestive problems” per the surgeon, plus other potentially disabling possibilities.

  • Robert,

    As a steering committee member of a SAMHSA 10×10 “wellness campaign”, thanks to you, I’ve had my eyes opened as to why there is almost no mention of psych drugs’ contribution to the early death the campaign says it is trying to ameliorate.

    Please keep your faith. You have no idea how many people have already been helped by you and your work, and how many more will. You and your work have already changed my life and my daughter’s, for the better.