I remember reading your comment months ago, but somehow I did not respond, for which I am sorry. It is awful that your Mom had to endure TD. Yes, it is not great to have it now, but I feel to have it back when your Mom had it was even harder. There was even more stigma.
I am sure she is in a much better place, now. A place where she is healthy and happy.
Hello Ann,
I have tried several times this evening to reply to your comment, so I don’t know if you will see this.
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
I’m sorry to read that you were harmed by this drug, too. I am glad that you are free of it and that you were left with almost no dyskinesia.
When you point out that I was taking over a hundred times more times than you, it leaves me without words. I’m very glad you are free of this awful drug.
Hello,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
I looked at your website and am very glad to know your organization exists. I will also spread the word about patient association. Thank you for what you do!
Hello J,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
Lamestream psychiatry is a very good description. During the number of years that I was treated at the VA, I would see many veterans, both older and younger than me. Some had fought on foreign shores and went through things during their service that the VA practitioners could not begin to understand, I’m sure. But, a nurse who had served in Vietnam – and spent years as VA patient in and out of VA psychiatric wards – told me something that she often relived in her dreams that I will never forget. I think back and wonder if she was getting the best care. It didn’t seem like it. Heart-breaking.
Hello Fiachra,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice, as I had two multiple drug-resistant infections. This has left me with neuropathy in both feet which may or not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
It is truly awful the way that veterans are treated; you are right. Many, as I did when I first sought help from the VA, have no other healthcare options. If I ran the VA and it was possible, I would only allow practitioners that had served in the military themselves. I think they would have much more respect and compassion for all veterans. Of course, it is just a dream.
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me that. This has left me with neuropathy in both feet which may or not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented.
Hello Ann,
I remember reading your comment months ago, but somehow I did not respond, for which I am sorry. It is awful that your Mom had to endure TD. Yes, it is not great to have it now, but I feel to have it back when your Mom had it was even harder. There was even more stigma.
I am sure she is in a much better place, now. A place where she is healthy and happy.
Report comment
Hello Ann,
I have tried several times this evening to reply to your comment, so I don’t know if you will see this.
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
I’m sorry to read that you were harmed by this drug, too. I am glad that you are free of it and that you were left with almost no dyskinesia.
Report comment
When you point out that I was taking over a hundred times more times than you, it leaves me without words. I’m very glad you are free of this awful drug.
Report comment
I now own a portable precision digital milligram scale, recommended in some Facebook groups.
Report comment
Removed – duplicate comment
Report comment
Hello,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
I looked at your website and am very glad to know your organization exists. I will also spread the word about patient association. Thank you for what you do!
Report comment
Hello J,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice. This has left me with neuropathy in both feet which may or may not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
Lamestream psychiatry is a very good description. During the number of years that I was treated at the VA, I would see many veterans, both older and younger than me. Some had fought on foreign shores and went through things during their service that the VA practitioners could not begin to understand, I’m sure. But, a nurse who had served in Vietnam – and spent years as VA patient in and out of VA psychiatric wards – told me something that she often relived in her dreams that I will never forget. I think back and wonder if she was getting the best care. It didn’t seem like it. Heart-breaking.
Report comment
Hello Fiachra,
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me I had no choice, as I had two multiple drug-resistant infections. This has left me with neuropathy in both feet which may or not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented, so they will understand my delay.
It is truly awful the way that veterans are treated; you are right. Many, as I did when I first sought help from the VA, have no other healthcare options. If I ran the VA and it was possible, I would only allow practitioners that had served in the military themselves. I think they would have much more respect and compassion for all veterans. Of course, it is just a dream.
Report comment
Thank you for taking the time to read my blog. Please forgive me for my tardy reply. Since I wrote the above, I have developed akathisia, for which I have improved about 80% on the beta-blocker propranolol (it was necessary for me to continue my work) and I was “floxed” by Cipro. I had no choice with the Cipro, as I had two multiple drug-resistant infections, or at least the prescribing doctor told me that. This has left me with neuropathy in both feet which may or not go away. I only explain this so you know why I haven’t responded sooner. I am going to send this reply to all who commented.
Report comment