Wednesday, October 23, 2019

Comments by Laurie

Showing 7 of 7 comments.

  • Clinical trials are underway to prove that a low dose of clonazepam corrects brain chemistry for persons with autism. I am guessing a new patented version specifically for autism will appear on the market soon, as was done with Paxil for hot flashes. The goal is long-term treatment. Benzodiazepine experts Malcolm Lader and Heather Ashton have made clear that these drugs are only effective short-term, and damaging long-term. Spread the word so that people don’t fall victim to reckless overprescribing.

  • Melissa, thank you so much for writing so powerfully about this. There are no words to describe how it feels reading it, having lived so much of it. In 2004, there wasn’t anything like Mad in America, and even though many of us supported one another via message boards, it wasn’t as empowering to be a part of as this is. I think that is a testament to people waking up.

    As a mother whose two children were preschool age when my iatrogenic nightmare began, I can relate to the loss you must feel about how this experience affects these tender years with your kids. Please know that there are others who share your experience and anger and are working to see this end. This experience must have affected my kids and it makes me feel sad to think back to those years, but we have always been very close and we remain so.

    For myself, the absolute hands down hardest aspect about this, maybe more than being deceived about medications, is the denial of our culture, including friends and family (good people), that anything really happened to me that requires attention or action. Your story absolutely shines light into my darkness and says, “this really did happen/is happening.” I am so sorry this happened to you, but I am grateful that it happened to a powerful writer and that you now write about it.

  • I just need to mention, I was given the somatization/hypochondria diagnosis for four years while medical doctors and psychiatrists bumbled around and completely overlooked the medication I was taking that caused it. I was in tolerance withdrawal from taking a low dose of Klonopin for the previous 4 years. (8 years total).

    Why on earth are the opinions of these “professionals” so well respected? Thank you, Phillip, and others, for doing the work you do. It’s depressing, but it means the world to those of us who have lived with this all alone.

  • Just wanted to share that I had a similar situation with a benzodiazepine. Please don’t underestimate the grave consequences stopping a medication can have. I’m glad I stopped, but my protracted withdrawal (ten years now) includes chronic, severe insomnia, which I didn’t have before being prescribed a “low” dose for 8 years. I am not sure I would have stopped if I knew I would NEVER EVER sleep well again. I hate big pharma as much as everyone else, but like the wretched Hotel California, we’re in it.

    I guess I will add that using a benzodiazepine to deal with protracted withdrawal of SSRI’s is probably not a good idea for the majority. I was in tolerance withdrawal (klonopin) for several years and doctors diagnosed it as somatization. I finally figured it out, they didn’t. I was dependent, so the only options were to either increase the dose repeatedly over time or quit and live with the iatrogenic insomnia. I chose the latter.

  • Jonathan and Michael,

    Thank you for saying these things. I got off of everything but Klonopin almost 9 years ago (no addiction, just 8 year iatrogenic dependence), and couldn’t get help with taper. I finally managed on my own but am left with permanent insomnia, something I never had to begin with.

    What really speaks to me here is the *crickets* you speak of when I’ve told my family and friends; it’s is what you describe. These are the people who are supposed to care about me and they have no frame of reference to understand what happened to me. I’m just some odd ball. And the insomnia, while it is a torture I quietly live with, it’s not something others will fully acknowledge because the horror of it and that doctors caused it is quite disturbing. At least, that’s what I’m guessing prevents full acknowledgement.

    In a way, I was in some ways better off ON the drugs because then I could pretend the world was an okay place. But I’m glad I’m out of that lie, anyway. The up and down side is that my two kids, who grew up watching all this, believe me. Therefore, their world view/s are not the happiest. But at least they know what’s real.

    Thank you so much for your comments.