Monday, October 25, 2021

Comments by notadumbld

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  • Thank you this well-written article. I wish your wife continued health.

    I was seen by two neurologists and told them that my face hurt all the time and I didn’t know why. After an MRI, I was given the diagnosis of Persistent Idiopathic Facial Pain; in other words, your face hurts all the time and we don’t know why. Frustrating, but at least they don’t treat my pain as imaginary, and have prescribed anti-seizure meds in an effort to control the pain. So things are slightly better, but I’d rather they continue to search for a cause instead of throwing drugs at me.

    But my worst case of medical ignorance was with my orthopedist, whom I was seeing after a slight motor vehicle accident. Part way through physical therapy for what he considered a trapezius injury, I started having more and more difficulty moving my left shoulder up and to the back. At my 2nd follow-up, I gave him this information and tried to demonstrate but was stopped. He said there was nothing wrong with my shoulder, just the trapezius, and he prescribed more PT. At my third follow-up, I again tried to tell him that I continued to have severe pain with my shoulder and the range of motion and decreased since the last exam. He told me that I was a “nice lady” but there was nothing wrong with my shoulder, and that it was just my fibromyalgia. Bull-pucky! A second opinion and MRI showed Adhesive Capsulitis – a frozen shoulder. If he had listed at the send exam, the focus of the PT could have been changed, potentially saving me from many additional weeks of PT.