Thursday, July 29, 2021

Comments by sounda

Showing 1 of 1 comments.

  • Hello Malcolm,
    Thank you for sharing Abraham’s story. I was saddened to read it – he was clearly a beautiful person and son and my heart goes out to you for such a loss.

    I came across your article from halfway around the world, where I am researching the anti-psychotic medication my father was placed on a few months ago due to an acute episode of stress/mental anguish with delusions he was experiencing, due to a complicated situation in his life and the dementia he has recently begun to be impacted by.

    My father has been stable since the complicated situation was resolved, and has been requesting to stop taking his low-dose daily antipsychotic. We as a family have resisted, because he and my mother still had a big move to navigate from their family home of many years, and all health professionals and Alzheimers experts told us that this would be very stressful for him and so the mood stabilizer would be needed. We love him so much, and until very recently I’d believed that remaining on the anti-psychotic afforded him the best chance to continue to age successfully at home with mum (he is a pretty spry 89 years old).

    However, given that he has adapted very well to his new home, and based on research I have been doing and further consults with additional doctors, I now have a better understanding of the potential for harm in keeping Dad on a medication simply to try to PREVENT another incident of delusions, when we know that his previous single incident of delusion was correlated with and likely caused by the acute stress incident in his life at that time, exacerbated by COVID isolation/lack of social support for a year.

    Your story and others like yours have led me to seek a doctor to help Dad try to titrate off of his medication with a supervised plan, which will also lower the risk of a cardiac incident for Dad. We cannot guarantee success, and if it turns out that he needs the medicine in order to live his best life (at home, not in an institution) then we will have to go back to continuing it. But to continue to medicate out of fear, when my father is doing well, is to choose to be blind to evidence and anecdotes that are important in making such an important decision. Thank you for sharing Abraham’s experience and that of your family; it has played a part in helping my own family here in Canada.

    Bless you