Friday, July 1, 2022

Comments by lu

Showing 10 of 10 comments.

  • “I had politely declined medical care, and did not sign HIPPA forms. “. I’m sorry this has happened to you. I am fighting a similar battle in retaliation for complaints i filed. What I learned is that HIPAA is not so much about privacy, it is about sharing information electronically, and it doesn’t matter whether you sign the form. There are state and federal laws that are much more concerning, and these laws allow sharing information if a person has been diagnosed with a “SMI” — a serious mental illness. Public law 99.319 “PROTECTION AND ADVOCACY SYSTEMS” cited as “Protection and Advocacy for Mentally 111 Individuals Act of 1986″ – or PAIMI, which provides funding to disability rights agencies in states. The privacy rights of health records for persons labeled by the “system” are being grossly misused. This is not protection and advocacy, it is a gift to the drug companies and others who want to coverup crimes by controlling individuals under the guise of “coordinating care”, which can mean “coordinating fraud”. Good luck.

  • I wonder if there might be another factor at play during the years this study looks at – and that is the advent of smart phones and social media, which has created profound changes in how people connect (or not) authentically with each other.

  • Kalina, thank you for sharing. You concluded your story with an observation that is similar to what I, too, learned the hard way:
    “Now, fifteen years after my emotional distress began and seven years after psychiatry first medicalized it, I feel hope.”

    I try not to feel hopeless as I see psychiatry continuing to lose its mind and heart in favor of the brain. The medicalization of emotional distress by psychiatry, with the support of government research dollars seems to be accelerating.

    The latest newsletter from NIMH appeared in my inbox this morning – with yet another discouraging conclusion about the direction and audacity of psychiatry – it’s all biology. We can soon look forward to more ‘care’ through more jolts and tweaks of electricity to our neural circuits, or arms-length chemical concoctions to ‘rebalance’ our brains.

    In contrast to the conclusion of your story, NIMH says this about their goals in psychiatry:
    “The [imaging] work is in keeping with NIMH’s efforts to foster research aimed at developing a circuit-based understanding of brain function and psychiatric disorders; Etkin points out that this work shows how the therapeutic effects of psychosocial treatments for brain disorders are, like medication and brain stimulation techniques, grounded in biology.”

    But I continue to hope because of the voice of you and others on this site.

  • This is the introduction to a QIO complaint I filed today, September 2, 2016:


    “Patient was denied effective treatment for her condition, Dissociative Identity Disorder (DID) by Partners Health Care and its affiliates, MGH and McLean Hospital. This complaint expresses concerns with the quality of care that were not addressed in Patient’s previous QIO complaint filed with MassPro on October 4, 2013.

    “More specifically, Patient’s access to appropriate, effective care was conditioned on her participation in medically unnecessary treatment programs. (The alternate, unnecessary treatment programs offered to Patient – for diagnoses she does not have – are reimbursed by Medicare at a higher rate than her principle diagnosis of DID.)

    “Based upon Provider’s assurances, Patient agreed to hospitalization at McLean’s dedicated Dissociative Disorders and Trauma Unit in the belief that she would be connected with specialists who treat her condition. She received no such treatment.

    “At McLean Patient was up-coded to emergency status based on falsified information entered into the record. Although arrangements for this ‘emergency’ admission were made based on a phone call in the morning, she was instructed to drive herself to the hospital at the scheduled time of 8 pm. Without her knowledge or consent, or justifiable reason, Patient was placed on a restrictive suicidal protocol and denied access to her clothing and toiletries. Without her knowledge or consent, antipsychotic medication, Seroquel, was prescribed, from which she had suffered adverse effects in the past.

    “At neither MGH nor McLean did Patient receive treatment for her primary diagnosis of DID, nor was she connected to an outpatient psychiatrist upon discharge. Instead she was referred back to MGH WEC for the same medically unnecessary treatment programs she had just refused. Patient was discharged, unsupervised, with instructions to aggressively taper her use of benzodiazepines, which led to withdrawal symptoms. Patient’s PCP was required to restore the dose to pre-hospitalization levels. Thus, from inception through discharge, the Patient was consistently misdiagnosed and mistreated.

    “Patient filed a QIO complaint to MassPro on 10/4/2013, but the investigation failed to review acts of MGH, including the improper referral to McLean. According to the closure letter, records from MGH were not reviewed. Patient’s medical records were extensively falsified at the time of the investigation of her QIO complaint. When Patient complained about the alteration of her medical records, MGH was unresponsive to Patient’s concerns and refused to offer an explanation.

    “MGH further altered Patient’s medical record while complaints to HHS OCR were under investigation. The most recent unauthorized access occurred after April 15, 2015 but before July 26, 2016. MGH has offered no explanation for the repeated unauthorized access to her private medical records, and the breach of her PHI.

    “Patient’s medical records remain unreliable, inaccurate, and full of obfuscating documentation, creating a hazard to Patient’s health.”

  • How to stop mental illness? Stop the lies.

    The “environmental conditions” that created my diagnosable mental illness had its roots in lies and coercion – coercion for me to become complicit in lies against myself.

    Now I get it.

    And no one would say I’m crazy now, unless they knew I was once labeled.
    And if they knew I was once labeled, ‘they’ will still say I’m crazy – without any factual basis – when they need to use it to dismiss their own mistakes and dysfunction.

    Stop the lies.

    Stop the coercion for me to be complicit in your lies to me. You set me up against myself. You set up the arguments in my head that I ‘reasonably’ wanted to quiet.

    You set me up: trusted parents, trusted caregivers, trusted priests, intolerant community, community of denial: “priests don’t do that.”


    There isn’t a pill that cures ‘environmental conditions.’

    Stop the lies.

    Globe, Sera is pointing out your lies.

    Listen up, Globe, and take a step toward preventing, rather than perpetuating, mental illness.

  • I was hospitalized in Massachusetts on a six day scam to bilk Medicare. While hospitalized I was put on an abrupt one-week taper from benzos that I had been slowly and successful tapering down from for years. They wanted to replace the benzos with seroquel – to treat my insomnia. I have never had a psychotic episode, and seroquel is not an appropriate treatment for insomnia – which is not a psychotic condition. Soon after discharge I went into an unsupervised episode of severe withdrawal. Thankfully my PCP returned my benzo dose to the previous level and I have successfully continued with my slow and steady taper down.

    When I filed a complaint about mistreatment my medical records were altered to cover up the Medicare fraud. Medicare denied payment for the sham hospitalization.

    I’m very much in favor of the cautious use of benzos, but not if the plan is to replace them with far worse (but more lucrative) anti-psychotic medications.

    Be careful what we wish for, and be mindful of the money trail.