Sunday, September 27, 2020

Comments by flimjannery

Showing 9 of 9 comments.

  • Hey, Tim.

    I’m really excited to see that you took your talk from Cooper Union and turned it into such a powerful article. This is awesome.

    Through our many discussions, it had never occurred to me that you never went through a psychiatric hospital. I’m happy to see there are some people in the US who make it through their awakening without entering the system.

    I find myself writing and rewriting my responses to your story. I’m not sure what I’m trying to capture in my response. I love that you’ve captured the idea of mental illness as being a spiritual awakening very effectively. The language needed to convey these topics is challenging, if it exists at all. You articulated your experiences and interpretations impressively. Well done 🙂 I like the way you have pointed out that there should be a “reason” for these voices. I’m reminded of this quote: “Either things happen for a reason or they do not… it’s impossible to prove… so the choice is our which we want to go about our day believing… its a whole more fun to believe things happen for a reason.” I think when that “logic” can be applied to why one hears voices that progress can be made in coming to terms with them, addressing them, and maybe even benefiting from them. Like you, I can’t say I have experiences with traditional “voice hearing” but my “episodes” have always benefited my character in some way – their purpose was served. If only I’d been more fortunate to go through them in a supportive and non-judgmental environment. I was at least fortunate enough to be supported by a loving and caring family, I usually consider that the only reason I’ve made it as far as I have without being locked in permanently.

    I have been wanting/thinking/planning on writing some articles myself for a while now. I’ve wanted to write for a long time. There is always this barrier that I put up because of “public image” – hence writing here and doing standup under my pseudoname. The frustration always falls on the idea that, if you are in the mental health field, publishing about your personal experiences has professional benefits, while if you are in a different field, it can have more negative consequences. Or at least it feels that way. Eh, writing this reply becomes more uncomfortable as I write it since we know each other off-the-web. I guess I’m trying not to make any promises that I will post things publicly soon, especially under my real name, but I want you to know that seeing your story here provides me with some inspiration to start sharing my own story more publicly “sometime soon.”

  • As far as your mention of McCarthy era witch hunts – you should watch X-Men days of future past. Simple premise: mutants are born with a special gene giving them powers. They are used during WWII to help the Good guys win. After the war nobody knows what to so with them because now the “secret is out.” They face stigma and discrimination and must hide. Some find shelter and supper through Professor Xavier’s School for Gifted Young People. Then tge government develops drugs that remove your powers. And a near-war breaks out. There is the norm people vs the mutants. And the mutants are divided – half want to have peace and cooperation and be heard and understood… The other half see themselves as victims of discrimination and want to fight the norm people. It is generally accepted that the mutants would reign supreme if this happened because of their powers.

    The witch hunt as pharmaceutical solution is all too familiar. And it feels, for me, that to fight to support the side of the weak one must formally share the fact that they are “one of them.” And this face the scrutiny, ridicule, Discriminatikm, and dismissal that follows when ones considered “crazy.”

  • Hi, Sera.
    The recent articles I’ve read on Assisted Outpatient Treatment are incredibly disturbing. I also read your newsletter article to the RLC on this topic. I’ve read that over 40 states have AOT programs and that CT and MA are soon to follow suit. While some look at it as an eventuality given that it appears the deck is stacked against us, I view this as an opportunity. This may be the final battleground that we have to shift the momentum in the opposite direction. I am eager to get involved in this movement, but have significant fears about my professional image that have long kept me away from the spotlight. Then again, I’ve been performing standup comedy under the flim jannery pseudo name for a whole now… Edging and inching into the spotlight with many conflicting feelings. It is frustrating because I oppose labels and treatments but in order to ally myself with the community and movement I must represent my labels and issues. In any event, Id love to talk with you about these issues and how I can get involved. I live in Western MA. I was going to attend the Voices training this month but had work/personal issues that prevented me. Let’s talk when you have time.

    Flim

  • I’m particularly interested in helping populations that are trapped indoors against their will 24/7. I am not advocating that people be indoors 24/7, I want to help those that are stuck theres. Product for home-use are becoming available, but good ones are expensive. You can get bright blue lights, but ideally you have something that is tunable and shifts with the day. You don’t want to have to use separate lamps at different times of day. For an example of a good home-use product thats on the way, you can google Ario Living is coming out with a floor lamp. As for the drugging part, I am hoping that the lights will improve health and reduce the amount of drugs used on patients.

  • I have read a lot of reports on these issues about psychiatric medications from the perspective of a “consumer.” I have always been skeptical of them for countless reasons. And forced medication… don’t get me started.

    But here I am writing from the perspective of a research scientist, engineer, and entrepreneur. I am working on developing tunable LED lighting for buildings like nursing homes, prisons, schools, and psychiatric hospitals (locations all too similar, no?). These lights provide additional blue light in the morning and reduce the blue in the evening. Specific wavelengths of blue (around 480nm) are linked to intrinsically photosensitive retinal ganglion cells (ipRGCs) which regulate your circadian rhythms. In simplest terms – these receptors use blue light to tell your body what time of day it is, giving you cortisol in the morning and melatonin in the evening (among other effects). I am particularly interested in treating “conditions” like bipolar and schizophrenia but the technology provides benefits anyone trapped indoors for 24/7 (emphasis on the word trapped is why I include schools).

    There is published evidence in peer reviewed journals detailing the relationship between sleep and bipolar disorder and schizophrenia. And also articles linking light spectrum to sleep problems. One could argue there is a no-brainer in bringing these products to this populations. However, the road to bringing a technology to market in the healthcare industry requires, like pharmaceuticals, a long road of clinical trials and other expensive and timely research.

    These products are available now, though nobody really knows about them. I have looked into doing some studies and publishing the data which takes time and money… meanwhile more and more time goes by and people continue to suffer in buildings with health deprecating lighting while a solution exists waiting to be implemented. How would you recommend bringing these products to market? I am sincere in my hopes of helping people. I have distaste and distrust for pharmaceuticals and don’t want to come off as if I am one of them – I’m trying to provide a more natural solution. Yet – at the end of the day the universe will perceive me as an entrepreneur trying to sell a product. So how can I earn the trust of the community without having to take 7 years to do so.

  • Connecticut is CT, not CN 🙂

    I am curious – I can imagine that many people would at this and say “well, 45 states have this law, the other five will fall in line soon enough.” And by that logic. we might as well sit back and take it. But I also see an alternative scenario. It is likely that in most places, this law is passed without people really understanding what is happening. Even the language suggests it is helpful rather than harmful. So it makes me wonder – would a state like Connecticut be a good place to “take a stand” and begin fighting our way back to freedom? I grew up in CT and that’s where my first hospitalization took place. I’ve since lived in a few different places and had a few more hospitalizations. Regardless of whether I believe I am “sick” or not, one things has been consistent – I’ve never harmed anyone. I could get into a long essay about my story and the drama, etc. But I guess the point I’m getting at is this – is there a way to make a spectacle out of Connecticut and in doing so begin reversing this trend?