Wednesday, October 23, 2019

Comments by Niki

Showing 14 of 14 comments.

  • Please stop taking SSRI’s if you are pregnant. They will harm your baby. Why haven’t you stopped? It doesn’t matter what the doctors think. Your condition sounds serious and it sounds like they don’t know. Have you had bloodwork done? If for some reason you can’t stop taking Prozac, you should have biweekly electrolytes. Pregnant women will often have a 5 point drop in sodium levels and Prozac causes SIADH. Neonates have been found severely hyponatremic, born to women taking SSRIs in late pregnancy. This is not as well known as it should be. SSRIs are NOT safe in pregnancy (Category C & D). Weighing the risks against the benefits is simple: Mothers never want to harm their babies. Mothers always want a healthy baby. Why doctors don’t explain ALL the risks to pregnant mothers is highly negligent.

  • As a mother whose only child was permanently brain damaged with a Rx for Escitalopram, I would like to add that small clinical trials have consistently shown that 30% of patients prescribed an SSRI develop hyponatremia, across all age groups, even in middle aged men, not just in the elderly. Female sex, low body weight (including children), premenopausal, age are added risk factors.
    3 SSRIs were shown to cause hyponatremia in 100% of patients aged 62 and older. Independent of medical conditions or drug interactions.
    There were 811 case reports of severe SSRI induced hyponatremia between 1966 and 1999. Since then nobody has bothered to count the case reports.
    Symptoms of severe hyponatremia can be be mistaken for mental illness. It’s how my daughter was triaged in error to the psychiatric assessment unit when the ER physician missed her critically low sodium level.
    As psychiatric peer reviewed journals claim that SSRIs have “no life threatening adverse effects”, they weren’t alarmed when her sodium level returned to 135, 12 hours later (4 times too quickly). They sent her home to develop ODS, 5 days later. ODS is a complication of severe hyponatremia and is also life threatening. It left my 19 year old daughter permanently brain damaged.
    She was underweight at the time and malnutrition is a risk factor. She had been ill with undetected hyponatremia for months and had lost weight. So much that a negligent psychiatrist diagnosed her with an eating disorder (!) and prescribed her a 1500 calorie a day meal plan, basically a starvation diet.
    In 2015, 2 Indian researchers published clinical trials and stated, “There is no explanation for why SSRi induced hyponatremia has received so little attention. They recommend close monitoring guidelines. As far as I know, their study has only been cited a few times and few have paid any attention.
    Critical care journals and Internal Medicine have published a great deal about SIADH and SSRI induced hyponatremia. Psychiatry almost nothing. Likely because psychiatrists don’t treat their patients when they become critically ill.
    Hyponatremia and ODS are very under-reported. It can take up to a month for an MRI to show ODS which complicates the clinical picture. In Lucie’s case, she was admitted to a psychiatric unit a 2nd time when she developed brain damage as that was believed to be mental illness too.
    The treating psychiatrist didn’t understand that she had developed SIADH and needed all her psychiatric medications discontinued. SIADH can reoccur 70% of the time. It was a miracle she wasn’t found unresponsive in her bed as her sodium levels weren’t monitored there either.
    How psychiatrists don’t know that every class of psychiatric medication causes SIADH, is beyond unbelievable.

  • I would also like to point out on the topic of informed consent:

    Psychiatrists do not warn their patients that all psychiatric drugs can cause severe hyponatremia and a complication of severe hyponatremia; the osmotic demyelination syndrome.

    My daughter was prescribed Citalopram without my knowledge when she was 19 years old. She repeatedly developed cerebral oedema and dropped out of college. She was left struggling and lost weight. The prescribing psychiatrist (who self described as suffering from bipolar disorder) diagnosed her with bipoloar and an eating disorder and prescribed her a 1500 calorie a day meal plan (basically a starvation diet). She was referred to an Eating Disorder Program and seen by the director who diagnosed her with 8 psychiatric conditions when she was very seriously ill. She complained of nausea and vomiting. He described her binging and purging! She told him she was too ill to leave the house. Agoraphobia. Attempting to follow the psychiatrists orders. Obsessive Compulsive Disorder ….

    The internists listened to the psychiatrists, not Lucie or us. They also left her struggling believing she was mentally ill, eating disordered …

    Finally she was found delirious rolling around in the puddles late at night with severe hyponatremic delirium. On admission to hospital, a psych consult was called for (again). The ER physician missed her sodium level of 124 and sent her to the psychiatric unit with severe hyponatremia and cerebral oedema. Her sodium levels were left unmonitored in PAU. As she was so malnourished, she developed a complication (osmotic demyelination syndrome) which can occur in malnourished patients. It develops 4-5 days later with fluid shifts in the brain. Instead of sending Lucie to ICU for desmopressin the PAU pychiatrists discharged her home to suffer ODS 4 days later.

    Lucie was not over-corrected in hospital. Her sodium level auto-corrected, meaning SSRI’s not only cause severe hyponatremia, they directly cause ODS due to extreme fluctuations in sodium levels. There are hundreds of case reports of this. However, peer reviewed journals still claim that SSRI’s have no serious adverse effects despite many studies showing approx 32 -40% of patients !!! (all ages, NOT just the elderly) develop hyponatremia on SSRI’s. One study showed that 100% of patients over 62 years of age develop hyponatremia on 3 SSRI’s. Described as “a rare side effect sometimes seen in the elderly”.
    Even neonates born to women taking SSRI’s late in pregnancy have been found with severe hyponatremia. How many develop ODS and permanent brain damage which is never diagnosed?
    Phototherapy enhances serotogenic effect!

    Lucie was seen by over a dozen psychiatrists that fall and NONE recognized the potentially fatal side effects of their drugs. Likely because their peer reviewed journals deny that hyponatremia is a serious adverse effect (!)(despite this being well known in all fields of medicine).

    SSRI’s are “the tx of choice” because of their “favourable side effect profile”. This is how they are described compared to older drugs in hundreds of thousands of peer reviewed articles. No mention of a COMMON and life threatening side effect that occurs in approx 40% of patients!!! Unbelievable.

    Lucie was permanently brain damaged when she was 19. She was admitted to a psych ward when she developed ODS as she went mad with despair. On the unit, they discovered her brain damage with Montreal Cognition tests but concealed all of this from me and Lucie’s Dad. They refused to allow her to be seen by neurology as I requested because she suffered brain damage due to medical negligence.
    She was drugged against her will for 2 months without sodium monitoring. A miracle she wasn’t found unresponsive in her bed (another hyponatremic episode).

    She was mis-diagnosed as mentally ill for the rest of her life (personality disordered) and the psychiatrists refused to investigate for brain damage. I discovered all this in her records when she died, age 24. She was my only child. my sunshine.

  • A therapist poisoned my relationship with my daughter based on false allegations (my daughter’s boyfriend said I made an advance which was completely false. He made the whole thing up.) and poisoned our formerly healthy and close relationship. My daughter was sick at the time and needed my help. My daughter believed I was a bad parent because the therapist told her I made a boundary transgression. She told her to set boundaries and limits with me. My daughter was left without anyone to support her as she closed her file shortly afterwards. How therapeutic is that? My daughter ended up in the psych ward due to medical negligence by an emergency physician. He missed her low sodium level and she was sent to the psych ward with delirium. The psychiatrists didn’t understand that she had cerebral edema and needed to be in critical care. She suffered permanent brain damage as a result. My daughter really needed my help and support but didn’t want it anymore. It was devastating for both of us. Completely devastating. Psychiatrists brain damaged my beautiful young daughter. Then killed her 5 years later. Even with a Representation Agreement I couldn’t help her. They disregarded all my attempts to advocate for her. Psychiatrists are like vermin, a plague or virus.

  • “Basically the medical profession has no place in dealing with emotional states, except to rule out neurological and other physical disturbances.” Yes! However, psychiatric consults are made WITHOUT ruling out neurological and other physical disturbances. A neurologist is rarely consulted and the patient is shuffled over to psychiatry, diagnosed and drugged. Psychiatric diagnosis ignore memory loss, cognitive decline and other obvious signs of neurological damage. The focus is not on etiology and the psychiatrist is not trained to diagnose or treat neurological damage. So, yes I agree wholeheartedly “psychiatry is a non-profession”.

  • The anti-psychiatry movement is the only way forward. Psychiatry needs to be exposed for what it is, public awareness must be raised and people must learn to protect their children and their elderly parents from victimization. “Mental health awareness campaigns” need to be stopped (and other means of targeting victims). Mental health programs need to be removed from schools, colleges and universities. Psychiatrists should not be considered legitimate authorities on mental health issues. Governments should be lobbied so funding is cut for in-house psychiatry. Psychiatrists should not be viewed as authorities on mental health nor consulted or given any legitimacy. Funds should be re-allocatied to other disciplines like neurology and psychology with a focus on unbiased research as psychiatry’s entire database is illegitimate.

  • I whole heartedly agree with you. First do no harm IS the main issue with psychiatry. No psychotropic drug is safe or effective and “treatment” without informed consent is a human rights violation. The use of electroshock therapy in 2017 is truly barbaric. Patient confidentiality is abused and used as a means of isolating a “patient” from their family, friends and social supports and as a cover for their abusive practices, literally to screen psychiatrists from malpractice suits. Committal and extended leave orders are also human rights violations that have no place in medicine. Psychiatry is really a plague on society that needs to be wiped from the face of the earth.

  • Psychiatry has been torturing, disabling and killing people for centuries. Perhaps the most barbaric practices have been abandonned (shoving icepicks through the eye socket into the brain, insulin shock therapy, pulling teeth and excising vital organs etc etc…) however more victims than ever are targeted, maimed and killed today than ever before in human history. At Children’s Hospital in Vancouver, BC there is now a psychiatric unit for 0-5 years olds and 1 in 4 nursing home residents is given a neuroleptic despite black box warnings (fondly called “the 5 o’clock OUT”). The chemical imbalance theory of mental illness has been repeatedly disproven by research but every day, neurotoxic “medications” are given by psychiatrists to their “patients” without informed consent. There is no hope for a reform of psychiatric practice because the number one agenda of psychiatry is to expand its turf and increase drug sales by any and all means. So the only way forward is through the anti-psychiatry movement, the goal of which should be the complete eradication of psychiatry from the face of the earth.

  • I would love to host a parent support group in my home..
    I am a perinatal nurse and lactation consultant with a 22 year old daughter who has had her life destroyed by a combination of lack of Eating Disorder services in the Lower Mainland /harmful mental health services and providers.
    I have come to understand first hand the harm that psychiatrizing / drugging young people
    can have and how powerless we (as parents) become to stop it once they become of legal age.
    Do clinicians have any idea of the harm they cause when they blindly recite “we cannot speak with you due to patient confidentiality”? (when no-one has requested that anything be kept confidential). Isn’t it a right as opposed to an obligation? And does patient confidentiality mean that agencies no longer have any transparency?
    I would love to meet with other parents and concerned individuals with the goal of empowering families with loved ones who have had their rights violated and been harmed by psychiatry and uneducated mental health clinicians in the Lower Mainland..

  • Dr. Epperson,
    Thank you for your insightful article.
    There is a new program for young people that is modelled a little bit after “Healing Homes” in Sweden..
    They teach young people with “mental illnesses” life skills, mindfulness training and have various groups to help them get back on their feet to go back to school/work. It’s a nice brand new home in East Van..called Renfrew House and the kids stay for 3-6 months. The mental health workers are really very nice and caring people.
    But unfortunately the entire program is undermined by the house psychiatrist who has all the kids on depot injections of Abilify…dommage! As they are so sedated they can’t fully participate in the program!

  • Hi Bpdtransformation,

    Thank you so much for taking the time to read about my daughter and for your suggestion. For sure I will email you about this..
    I’m hoping that my daughter’s psychiatrist will lower the dose of Abilify and the clonazapam he has her on so she can get out of bed and stay up long enough to attend something helpful like this. One thing he said today.. that we could have regular meetings so at least he’s open to talking to us (me and her Dad) which is something.
    I find the psychiatrists spend so little time with their patients and practically none with parents so we are hoping that this will give us further opportunity to discuss reducing the amount of medication she’s on..eventually.

    Thanks again!

  • I regret ever having asked that my bright well adjusted 16 year old daughter see a counsellor. . she (the counsellor0 was ok but there was also a psychiatrist
    on the team and she soon had my daughter on an SSRI..she made a very determined suicide attempt one month after being put on this drug and has never been the same since. Soon after she was diagnosed with Bi-Polar and given SSRI’s and mood stabilizers that made her very unwell. (once on the psych ward, the psychiatrist said she had no signs of this illness or any other mental health illness but continued to give her Seroquel…to help her sleep.
    She was an involuntary patient on this psych ward where they did successfully weight restore her (80 %)
    after she had lost 30 lbs due to an eating disorder but gave her Seroquel and other sedating drugs as well.
    Many other negative experiences with the mental health system finally led to her being sectioned under the BC Mental Health Act again and made an involuntary patient in Psychiatry where she was again drugged with anti-psychotics (this time a depot injection of Ability that she is supposed to continue for a year!!!) for having had a brief reactive psychosis that lasted 2 days. She is now out of the Psych ward on extended leave. Her Dad and I met with the psychiatrist and her mental health team to ask to have her weaned off the Abiflify as she is not schizophrenic and she has a family history of cardiovascular disease and diabetes on both my and her dad’s side of the family. She also has a hormone imbalance (increased prolactin levels, amenorrhea leading to infertility and osteoporosis…) that is exacerbated by Ability. (It also causes increased prolactin levels & amenorrhea leading to infertility and osteoporosis. Plus she lost bone mineral density during her years struggling with the eating disorder which will also contribute towards…osteoporosis. We tried to ask to have her weaned off the anti-psychotic Ability so she could take advantage of the wonderful program she is in but the psychiatrist was categorical about keeping her on these depot injections. It just isn’t right for someone who has only has a brief reactive psychosis that resolved on it’s own. Now she is so sedated and feels so unwell physically (covered in cystic acne since the injection started working) plus +++ sedated that she can’t participate in the program…there are groups and outings and re-training to get ready to go back to school / work. It’s really hard to see her like this:
    Her pupils dilated, the blank look, monotone voice, one word answers, and of course the cystic acne.
    Finally, we thought wow! here’s a great forward thinking, common sense program where they house 6 kids in a nice residential area and teach them life skills and get them back on their feet but psychiatry has to undermine it. I felt like saying to the psy “Don’t you have to be conscious though to participate in your group?” but hey when your daughter can be re-called at any time to the psych ward and drugged without her consent with whatever drugs they choose, you don’t talk like that…actually you keep your mouth shut and PRAY that your daughter won’t be the one who develops the EPS syndrome or other disfiguring and disabling side effects and that despite all her risk factors..that she’ll be lucky and not end up permanently disabled or with a fracture or diabetes.
    Shouldn’t every newly diagnosed psychosis have a chance to recover without the use of a neuroleptic? And why make her stay on it for a whole year? Doesn’t that just increase the chance of triggering a psychosis when they stop it? It’s so difficult these extended leave agreements..our representation agreement was totally ignored both while she was in hospital and now that she’s out. She has no rights and I have no right to advocate on her behalf. It’s sad for such a young woman (she’s just turning 22) to be in this kind of predicament…Niki in Vancouver, BC Canada