Wednesday, November 13, 2019

Comments by James

Showing 7 of 7 comments.

  • Yes. Danielle. But you cannot discount those for whom DBS has been effective. There are similar drawbacks to cardiac surgery, pacemaker surgery, mastectomy, nasal surgery, cholecystectomy, gastric bypass and, so, we should not do these surgeries and should rant against them? Are you bipolar? Do you suffer from TRD? Is there some other condition that has ruined your life, is continuing to ruin your life that you would do anything to “cure”? Desperation is a major motive for taking big steps, like DBS, and to tell someone that, no, you cannot have this hope is ludicrous. Yes. We should be aware of the downside of DBS or any surgery. . .like my abdominal surgery: if we can’t find the place of hemorrhage of fresh arterial blood, you will die. Not may or might; will. I’m left with a life of almost constant infection in my gut–and I’m already immunologically compromised. But I’m alive. Every time you cut into a body, you open the gates to problems, you kill or distort cells and growth, you infect. I, in fact, find surgery to be barbaric, but continued dysfunction and/or death is preferable? You cannot damn it outright. That is an untenable stance. I find it objectionable. I gave up on DBS because I can’t afford $50,000. Not because of these horrors. Desperation. Individual choice.

  • Oh, bekys11, we are so helpful! No one bothered to address your need. I haven’t needed, in the not so distant past, pain to cloud my thinking. First, you don’t need personal experience? Know of anyone? If not, no problem. Talk about the wrongness of forced confinement, using Murphy’s language. Forced confinement is imprisonment, whether you are “mentally ill” or not. Does this help? It should get you going. THEN, you might note that labelling someone, whatever the label, is prejudicial and denies thought. That is, if you call someone “mental,” there is no more thought by anyone else. Also, the guidelines for diagnosing or marking someone as “mentally ill” are very broad and ambiguous. [You may use my words if you want, if that would help.]
    Helping you would be a great help for all of us, too, for we’d be focused ourselves. We might even put our names on your letter.
    As best you can…just sit down with paper/computer before you. Close your eyes. Take a deep breath. Maybe more. Slowly let it out. When you feel less cloudy and anxious begin writing. Slowly. Carefully. And then, when you’ve reached your limit, go away for a time. You choose the right length of time. Return, go through the same process, read what you’ve written. Write more ideas and thoughts. You can organize things later. What’s important is to get your thoughts down on paper/screen. There is no reason to be long-winded.

  • I think you, and Murphy, have got it all wrong. The guns are one thing. Mentally ill people are not dangerous. These wild shooting sprees are supposedly by the mentally ill but–and this is a very big BUT–if so, then their wild behavior is secondary to the drugs they are on.
    In this society, those wild shooters MUST be insane because otherwise the gov’t and society in general would have to face up to the fact that the problem is society and society’s make-up.
    Alot of nice misquotes and quotes taken out of context there, cat.
    And the following article and your conclusions show just how off topic you and your responders have gotten. Let’s get back to what this article is about: Murphy’s Bill…or would that be Murphy’s Law?

  • Thanks, Youssef, but I find this rather simplistic and momentary. I can go out and function; I do. I meet with group of writers and I’m a member of the local NFB, though not blind, and I work out. But it’s all momentary. None of this touches the underlying genetic “cause.” This article was interesting but it was damning the process despite its working for some. As DBS for TRD Bipolar I is not approved by the FDA, it is not covered by any insurance at all. Where do I go for the $50,000+? TRMS is out not only because of unanswered questions, including from NAPA and CAPA, but also because I live in Brownbackistan (Kansas) where privatization is kind and so many doctors get to “opt out.” VNS? Just because it works with MDD does not mean it is viable for TRD Bipolar I–but it certainly would help the migraines. But all of this is only one side of the equation, the causative, scientific side; there is no thought to the socio-cultural side. There is a poem of mine at http://www.thewriteroomblog.com for 4 July that captures the dilemma. So, I am, to satisfy this need, which seems to have precipitated the last 5 yrs of grief, seriously thinking of returning overseas and staying. So, no, Youseff. SNAP is just games to me; I can do all of those things. I do do all of those things. It is the infrastructure that irritates the hell out of me and makes life difficult. And my poor attitude that I did not have before RX; that I did not have before returning to the US; that is deeper than just being depressed. Thank you anyway for your kind thoughts.

  • Thank you so much for this. Finding information on side-effects and personal experiences is so very difficult. Of course, “no one” wants you to know. This, DBS, was my last resort; now it’s not even close to being a possibility. And TMS does not fit the bill: too many unanswered questions concerning what happens to the grey matter between the skull and the site of focus. So, what the hell am I to do? Cognitive Therapy is nice, as in nice to know, nice to have an intellectual experience of what’s going on; but when it comes to being in the middle of an event CBT is useless. Now? I think I will move to a town out in the middle of nowhere with no social pressures, no “infrastructure” and few people. This would also benefit my writing, which has taken a dive over the past 5 yrs, half of it spent not writing at all.