Friday, June 18, 2021

Research Studies Recruiting Participants

International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants

The purpose of this study is to understand the experience of coming off antidepressants so we can inform UK health services (and other health services around the world) what sort of services need to be provided. This is your opportunity to share your experience of coming off these medications and what you have learned in the process to help others going through similar experiences.

The research team consists of Dr Mark Horowitz and Professor Joanna Moncrieff (University College London), Professor John Read (University of East London) and Dr Ed White (independent researcher). Two of us (MH and EW) have experience of coming off antidepressants. This project has received no funding from any commercial or other organisation.

Taking part in the study involves answering an anonymous survey about your experiences whilst using a peer support group to help you withdraw from your antidepressant medication. You can complete the survey online. It takes approximately 30-45 minutes. Not all questions will be relevant to everyone, so the time taken will be different for each person. There is also an option to contact the researchers via an email address to volunteer to be further interviewed or to send through details of your tapering schedule.

For more information and to participate, click here.

Study on Psychosocial Disability Advocacy and Global Mental Health

Mad in America News Editor and Doctoral Candidate Justin Karter is recruiting participants for a qualitative study of psychosocial disability advocacy in the context of the Movement for Global Mental Health (MGMH). The results of this study can be used to inform strategies for mental health researchers, practitioners, and activists for the inclusion of people with lived experience. Additionally, the results may be useful in developing policy recommendations for moving the MGMH toward a rights-based approach.
Participants will be paid $30 USD for their participation in the interview. The payment will be distributed via PayPal within 48 hours of the interview. Payment is not contingent upon completing the entire study.
Criteria for participation are as follows:
– Fluent English speaker
– Identify as psychosocially disabled
– Involvement in individual advocacy efforts and/or organizations related to mental health policy
– There will be no exclusion based on age (as long as over 18 years), gender, race, or ethnicity
To participate, please complete this short form: https://forms.gle/nbRn1rhyTQeoZp6S8

Lancet Psychiatry Commission on the Psychoses in a Global Context: Request for Participatory &/or User-led research, Commentaries & Reports

The Lancet Commission on the Psychoses in a Global Context consists of a group of researchers, policymakers, clinicians, family members and service users convened to produce a comprehensive knowledge synthesis and vision for future research and development focused on psychosis. As part of the overall Commission, the lived experience/psychosocial disabilities involvement workgroup will be conducting a systematic review of studies and reports focused on psychosis that have utilized participatory methods (spanning user/survivor-led research, co-production, participatory action research and so on). While we will conduct traditional searches of the academic literatures, due to the variety of terms used internationally and variations in reporting of methods or lived experience/stakeholder involvement, we are seeking self-submissions of relevant work in the following categories:

  • Peer-reviewed research studies of any kind (autoethnographic qualitative, quantitative, etc.) led or co-led by researchers who identify as service users/persons with psychosocial disability/lived experience;
  • Peer-reviewed research studies of any kind (qualitative, quantitative, mixed methods) that have included an explicit service user/psychosocial disability and/or family participation component;
  • Doctoral dissertations or theses that would otherwise meet the above criteria and have not (yet) been published;
  • Commentaries specifically focused on psychosis (language, subjective experience, service reform, innovation, human rights, etc.) and that are led or co-produced by authors with personal experience of psychosis, whether they appear in academic or non-academic venues;
  • Self-nominated studies or evaluations using participatory methodologies that have not been published in a peer-reviewed academic journal (ie ‘grey literature’ texts) but that include some description of methodology (who the sample is, what methods were used, how data was analyzed).
  • Note that submissions can be in any language – we are actively working on developing translated versions of the flyer and survey: please contact us to request a copy in another language.

Have something to submit? Click or copy the following URL: https://usf.az1.qualtrics.com/jfe/form/SV_5ptxGnxIayEZhsy

Questions? : contact us at [email protected]gmail.com

University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients

Principal Investigator Morgan Shields, PhD, is looking for adults (18+ years) who are former patients of inpatient psychiatric care within the last five (5) years to fill out an online questionnaire.

The purpose of this study is to gain a better understanding of former patients’ experiences with inpatient psychiatric care. The hope is that results from this study will inform programs and policies to improve the quality of care in these settings.

The questionnaire will take approximately 20 minutes to complete and at the end, you can enter a lottery for one of ten $20 gift cards. 

Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder” 

Doctoral student researcher Colleen DeJoseph from Sofia University is looking to recruit adult participants who feel that they have been misdiagnosed with a mental disorder as a result of having an anomalous spiritual or religious experience. Six participants who are not currently taking psychiatric medication are needed to partake in an interview, of a minimum of 60 minutes, to discuss their anomalous spiritual/religious experience as well as their experience with the psychiatric system and its treatment. Interviews will be conducted through Zoom or Skype. Participants will receive a $30 Amazon gift card for their participation. If you have any questions and are interested in participating in the study, please email researcher at: [email protected]

CALL FOR PAPERS: Psychology, psychiatry and related disciplines as narrative arts rather than natural sciences 

Ethical Human Psychology and Psychiatry (EHPP) invites papers for a special issue based on a thought experiment in which psychology, psychiatry, and related disciplines exist within a narrative arts paradigm rather than natural sciences. In such a universe, these helping fields no longer would struggle to join physics, chemistry and especially biology for their legitimacy and therefore would not have attached themselves to medicine. 

We seek papers that describe actual work being done now by practicing professionals but without the medical terminology and practices that currently encase their efforts. Additionally, we invite descriptions of work that might be done that reject medicalizing human distress. Research in these areas is also welcome. We hope this issue will comprise a call for action. Submissions that focus on specific ways to dismantle current systems and create non-medical approaches to helping are especially sought. 

We seek papers from a wide range of professionals providing assistance to persons impacted by violence, trauma, and social injustice.  Though we encourage a range of topics related to the issue’s core theme, suggested sample content areas include:

  • Use of language to construct non-medicalized practices 
  • How common factors research supports re-alignment of helper/helped relationships and improves outcomes 
  • Practices that minimize power differentials between “helper” and “helped”
  • Conceptualizing and instituting collective and community approaches to health
  • Re-visioning ethics in professional fields assisting people experiencing psychological/emotional difficulties

For instructions for submitting papers, please visit: https://www.springerpub.com/ethical-human-psychology-and-psychiatry.html

Jacqueline Sparks, Editor, EHPP    •     Laurence Simon, Editorial Board Member, EHPP

Have you experienced cyberbullying and symptoms of psychosis? Are you 16+ years old?

Researchers at the University of Manchester are looking for people who have had experiences of cyberbullying and psychosis e.g. hearing voices, seeing things that other people cannot or feeling paranoid. You do not need a diagnosis to participate in this study.

If you feel that you meet these criteria, you can complete the short survey here or share your experience on Twitter using the hashtag #cyberbullpsychosis. Regular tweets are posted through the research account @psychosis_cb. If you decide to tweet with the hashtag, they are interested in your experience, what impact cyberbullying may have had on you and what you did to cope during this experience.

They will not ask for any personal identifiable information, and your responses will be kept anonymous. If you would like more information about the study, please read the participant information sheet here. Equally, if you would like to contact the research team directly to ask questions, please email [email protected].

Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?

Student researcher Amanda Toni at Southern Connecticut State University is looking to recruit adult participants who have previously received a diagnosis of Bipolar Disorder and have chosen, for whatever reason, to discontinue prescribed psychiatric meds and have been off prescribed psych meds for at least one year.

10 participants are needed to engage in a one-to-one, 1-hour, face-to-face interview to discuss their decision for stopping medication, and support and strategies that were useful. Participants receive a $20 Visa Gift Card at its completion. Interviews will take place face to face in New Haven, CT, or if unable to get to New Haven, please discuss with researcher. Please email researcher at: [email protected]

HOPEnDialogue International Survey

This is a survey for all services developing/practicing Open Dialogue worldwide to describe their organizational characteristics. The results of the survey will help us to determine the extent of Open Dialogue service development internationally and will inform the selection of the OD services which will be involved in the HOPEnDialogue study.

It will be possible to complete the survey between January and April 2020.

Spiritual Emergency and ESP Research

A new research project at The University of Adelaide, Australia is seeking people who have experienced a spiritual emergency for an investigation into psychic phenomena.

To participate you will need a computer or laptop with internet connection and a quiet space where you can work uninterrupted for approximately 35 minutes. Participation will include responding to a few questionnaires about spirituality, unusual experiences and paranormal beliefs. This will be followed by a 10 minute creative visualisation audio track (you will need to wear headphones for this), a simple number generator task and a picture recognition task.

If you are interested in participating, please contact Monika at the University of Adelaide for an access code. https://researchers.adelaide.edu.au/profile/monica.goretzki

Benzodiazepine/anti-anxiety/sleeping medication questionnaire

Researchers at Australia’s Deakin University, School of Psychology, are investigating barriers long-term “benzo” users face when asked to reduce or stop their medication. The findings will be used to inform healthcare practitioners of more client-centred approaches to deprescribing benzos/z-drugs, to reduce the potential harms associated with abrupt discontinuation.

Seeking adults over 18 years who are prescribed and regularly take a benzodiazepine or z-drug (e.g. Valium, Serepax, Paxam, Imovane). This study involves a series of questionnaires to be completed over a six-month period. They will involve questions about your demographics, benzodiazepine use and importantly, your experiences with taking them. It will also ask a few questions about your psychological & physical health. The results of this project will inform prescribers of more patient-centred approaches to prescribing these medications. More info and access to the survey here.

University of Manchester study on psychological processes in psychosis

Take part in a research study exploring the role of psychological processes in psychotic experiences. We are looking for people who have had experiences of psychosis, like feeling suspicious or paranoid, hearing voices or seeing things that other people cannot.

You will be asked to complete several online questionnaires that will help us to understand the processes that influence the development of these experiences. The information you provide will be anonymous, meaning that no one can identify you from the information you give us.

If you would like to take part, please follow this link to the online survey. For more information, please contact the researchers: Amy Degnan or Charlotte Humphrey (Trainee Clinical Psychologists)

WHO QualityRights Survey

The WHO Quality Rights initiative is working to improve access to quality mental health services globally and to promote the human rights of people with mental health conditions and psychosocial, intellectual, and cognitive disabilities. As part of this initiative we are developing a good practice guidance document which will present information on community-based mental health services that promote human rights and the recovery approach.

We are conducting a survey to identify people-centered services that operate without coercion and that respond to people’s needs by promoting autonomy, inclusion in the community, and the involvement of people with lived experience at all levels of decision-making. This should include services that support people experiencing acute crises but that do not resort to force, coercion, involuntary admission and treatment or the use of seclusion and restraints. 

By completing the questionnaire, you will have the opportunity to submit up to five mental health services that you believe should be considered as a good practice. By participating, you can contribute to shaping the future of mental health services.

Anybody who is involved in providing a service, has experience of using a service, or knows of a service is welcome to complete the questionnaire.

For responses IN ENGLISH: Here

For responses IN SPANISH: Here

For responses IN FRENCH: Here

For responses IN PORTUGUESE: Here

MOMS (Movement of Mothers/others Standing Up Together) and Rethinking Psychiatry Survey

Survey Link: https://www.surveymonkey.com/r/SC2QMN6

MOMS (Movement of Mothers/others Standing up Together) and Rethinking Psychiatry advocate for person-centered, comprehensive solutions. The people most impacted by the mental health system must have a critical, influential, ongoing say in the design and decision-making process. These solutions must center on the voices of individuals impacted, and organizations made up of people with lived experience. We believe that this is a vital part of long-term recovery.

If you have experienced involuntary hospitalization, we want to hear about your experiences. This is why we are conducting this survey – to give a voice to those who have been directly impacted by involuntary hospitalization. We will be using a summary of the survey results in our work to advocate for alternatives to hospitalization.  

In 2018, the educational site Mad in America did a survey of approximately 500 people throughout the nation about their prior experience with psychiatric hospitalization.

With permission from Robert Whitaker of Mad in America, we are using the same survey, tailored to WA and OR.

This survey is anonymous and confidential. As MIA did, we will publish the summary of our results and may share comments anonymously. If you do not want your comment shared please tell us that in the comments.

If you have any questions, please e-mail us at [email protected].