Blogs

Essays by a diverse group of writers, in the United States and abroad, engaged in rethinking psychiatry. (The directory of personal stories can be found here, and initiatives here).

Living in One of R. D. Laing’s Post-Kingsley Hall Households

51
Kingsley Hall was the first of Laing’s household communities that served as a place where you could live through madness until you could get it together and live independently. It was conceived as an “asylum” from forms of treatment — psychiatric or otherwise — that many were convinced were not helpful, and even contributed to their difficulties. By the time I arrived in London in 1973 to study with Laing there were four or five such places. Getting in wasn’t easy.

Mis- (and Dis-) Information about UN Disability Convention

11
The November 5 hearing on the UN Convention on the Rights of Persons with Disabilities in the Senate Committee on Foreign Relations reached new heights of absurdity and opens new ground for concern. It may be worse for us to ratify with the reservations, understandings and declarations (RUDs) being proposed, and with the legislative record that is being created for the specific purpose of rejecting any application of the treaty's standards to US law than not to ratify at all. All the proponents of CRPD ratification who are allowed a voice in these discussions are in agreement that the US ratification is aimed ONLY at giving the US greater influence over other countries and over the development of customary international law, and NOT at improving the enjoyment of human rights by persons with disabilities in the US itself.

What Are You Doing, WHO?

2
On 25 October 2013, the World Health Organization issued a press release promoting guidelines produced by the Patient-Reported Outcomes Safety Event Reporting (PROSPER) Consortium. The consortium aimed to “to improve [drug] safety reporting by better incorporating the perspective of the patient” with the aim of the guidance produced “to ensure that the patient ‘voice’ and perspective feed appropriately into collection of safety data.” Rather than 'quietly protecting the health of every person on this planet, every day' it seems clear that WHO is quietly protecting the interests of pharmaceutical companies and their advisors on planet 'profit from patients', every day.

What Are You Doing WHO?

2
The World Health Organisation was established in 1945 to provide leadership on global health matters. According to its Director General Dr Margaret Chan, it...

Is Emotional Distress Criminal?

16
On October 1st the Connecticut State Legislature’s reactionary response to the tragedy at Sandy Hook Elementary school went into effect. Public Act No. 13-3 requires all people that voluntarily admit to a hospital for mental health reasons (not solely for drug or alcohol treatment) have their names placed in a database administered by the Department of Mental Health and Addiction Services - for the purpose of automatic suspension of Second Amendment rights.

Navigating the Space Between Brilliance and Madness: A Counter-Narrative of Psychic Diversity

2
It was an awesome experience to give a TEDx Talk at my old school, because, frankly, it was an acknowledgement by an elite institution that I've done something in my life worth listening to. I hope you appreciate my talk and share it with others. So many people who are affected by the mental health system in North America today have no idea how much the rise of the DSM and biopsychiatry has to do with the Reagan era and neoliberal economic policies that reshaped the whole language and culture of mental health. It's like a bulldozed neighborhood with shiny new buildings, after a while people forget how they got there and they just seem "normal."

A Stranger in a Strange Land (Pt. 1)

9
Many months ago I wrote a guest piece on Mad In America entitled, “Corrections Officers, Not Clinicians.” And since that time I have walked away from that job because of the irreconcilable conflicts between its mission and my own heart. I have become convinced that, as an institution, the public mental health system of the United States is a disaster. There are always individuals within any system who are doing noble, beautiful things - For me, one part of my path toward healing included the connection I made with a therapist - But that doesn’t absolve us of the responsibility to confront institutional norms that are oppressive and dehumanizing.

GlaxoSmithKline’s Journey to Transparency

GSK's continued failure to provide true transparency flies in the face of what the overwhelming majority of people signing consent forms probably intend - which is to make their data available for scrutiny by independent experts. If those who participate in trials thought some remote risk of a breach of privacy were being used to prevent disclosure of details that would save someone else's life - but threaten GSK's profits - most of us would likely be horrified.

P.S. Sometimes I still Hurt Myself… P.P.S. So do you…

30
Whenever I write or speak publicly, I feel compelled to frame cutting, burning and hitting myself as something I used to do. I don’t actually outright say I’ve stopped, but I use the past tense and thus I suspect most hear it as implied. Somehow, the pressure to appear outwardly ‘all better’ in that way still seems big. Self-injury (of that type) ranks pretty high up there on an awful lot of people’s scary meters. Just saying you are someone who has ever done that sort of thing seems disconcerting enough for most.

I Wonder if There is Some Axis II Going on Here? Further Thoughts on...

29
This blog was prompted by an invitation to do a guest post on the site of one of my favorite bloggers, 1 Boring Old Man. This is my response to the notion that there are certain conditions - Schizophrenia among them - that correspond more directly to biomedical conditions

Schizophrenia Becomes Psychosis Susceptibility Syndrome

65
Anoiksis (the Dutch association of and for people with a psychotic vulnerability) has introduced a new name for the disease schizophrenia: Psychosis Susceptibility Syndrome (PSS). Together with the old name, its attached prejudices, misleading significance and stigma can be thrown overboard.

Pick Up a Pen, I Dare You

18
When I pick up a pen, I put down my fear. Sorry, they don't both fit into my hand at once. Meditation teachers often say the hardest part is getting to the cushion. The hardest part of writing is probably picking up the pen. So, pick up a pen, I dare you. Write even if you think no one will read it, even if you don't want anyone to read it.

Bogus Journal Articles Distract From the Real Problem in Academic Medicine

The buzz in academic publishing right now is the story about how several hundred open access journals accepted a fake research paper. Of much more concern is that there are top-tier medical journals which have published clinical trials, that were read by thousands of people, that influenced clinical decisions, that we now know were bogus, but have never been retracted.

“Tuff” Love: A Public Safety Alternative

5
It is no mystery why everyone at the McNair Discovery Learning Center is alive today. Antoinette Tuff was respectful, responsive and kind to a man with a gun. She shared her own difficulties and offered her own humanity. This kind of “Tuff Love” involves real risk, but not more risk. It reaches across vast expanses of human confusion and distress - not to manage, control or subdue - but to attempt connection and offer a lifeline back to humanity. It is the public safety work of the future.

Photo ID Cards for “Mental Patients” Now a Reality

115
In Butte County, California, Law Enforcement and NAMI have recently partnered to provide identification cards for people in the mental health system. The cards reveal the person's psychiatric diagnosis and current medication prescriptions. This White Card project may be well-intentioned, but it makes me very uncomfortable. I believe it is a form of psychiatric profiling that could be adopted by law enforcement around the United States.

DSM-5’s “Speculative” 2002 Diagnostic System Based On Expected Gene Findings

6
According to a leading group of psychiatric genetic researchers, writing in 1999, “From the perspective of psychiatric genetics, the Human Genome Project is an immense factory producing and refining the tools we will need to discover the genes that cause mental illness.” A 2002 “speculative outline” by a group helping to revise the DSM envisioned a future DSM-5 practice of classifying disorders on the basis of "the patient’s genotype, identifying symptom- or disease-related genes, resiliency genes, and genes related to therapeutic responses and side effects to specific psychotropic drugs.” A dozen or so years ago, at least some of the DSM-5 architects believed that genes would at long last be identified and would be integrated into the next version of the DSM. As we know, this did not happen.

Elimination of Bias, Not Disclosure of Bias, Must be the Standard

14
Disclosure is an insufficient strategy for mitigating bias because bias does not result from the concealment of financial ties but from their effects. Even worse, social psychologists have demonstrated that when individuals disclose a competing interest, they give even more biased advice.

It’s NOT all in Your Head

37
Over 100 million people in the US suffer from chronic pain – defined as pain lasting longer than 12 weeks. Up to 80% of those sufferers are women, many of whom report having been repeatedly brushed off or referred out by medical doctors who could find no discrete medical cause for the symptoms they reported. Some patients report an even harsher finding by their doctors: “To the best of my ability to determine, your pain is not medical in origin. I believe you need to be evaluated by a psychiatrist or psychologist who is qualified in psychosomatic issues.”

R.D. Laing & Anti-Psychopathology: The Myth of Mental Illness Redux

57
Twenty-five years after R.D. Laing’s death, are we more humane and compassionate in our treatment of those at our mercy? It is difficult to say. But one thing that we cannot deny, our culture has become even more “medicalized” than at any time in history. The medical metaphor that Laing found more or less acceptable when explaining what he thought therapy is, has become increasingly literal. More and more, anything that pains us is a condition that can be treated.

A Caregiver’s Story- And How I Became an Addict

21
In 1994, my nineteen-year old daughter, Cristina, was diagnosed with chronic myelogenous leukemia (CML). It was a diagnosis that came totally out of the blue and as a complete shock. Soon after she was diagnosed, it became clear that I wasn’t going to be able to sleep because of the tremendous stress, so I asked the very kind doctor who diagnosed Cristina if he could give me a prescription for something that would help me sleep. He agreed, and so began my “relationship” with Xanax. I had never taken anything like that before and didn’t know anything about it. All I knew was that as my daughter’s primary caregiver, I needed sleep in order to fight to keep her alive.

Teens and Psych Drugs

6
At the end of an hour long discussion with Holyoke High School students in Holyoke, MA, I was grasping quarter page slips of folded paper as it they were sheets of gold. On these slips of paper were questions the students asked me, as well as their answers to my questions, “What can you do to make yourself feel happier as an alternative to psychiatric drugs?” and “How do you get through hard times?” They included love, eating, snuggling, my boyfriend, my girlfriend, green tea, good friends, drawing, playing guitar, a new book, flowers, fluffy things (pandas), writing, music, talking to friends, not isolating myself and sex novels.

The Unbearable Heaviness of Psychiatric Drug Withdrawal

27
Last week Matt Samet posted about a setback he’s recently had. Setbacks for me remain routine and normal. They are part of the excruciatingly non-linear process of recovery.

How to Parent a Dead Child

23
Being the parent of a dead child is hard. Being the parent of a child who died from suicide may be even harder. I love my son and am proud of him and work to make sure that his having lived makes the world a better place.

Twin Studies and the “Nonreplication Curse” in Psychiatric Molecular Genetic Research

28
Psychiatric molecular genetic research has failed to discover genes that underlie the major psychiatric disorders, the existence of which twin and adoption studies are assumed to have established. "Genome-wide complex trait analysis" (GCTA) was developed a few years ago as a means of solving what researchers call the "missing heritability" problem. One researcher believed that the new GCTA method would “drive a stake through the heart of” criticism of behavioral genetic theories and methods, and would finally put criticism of twin studies “to rest.” The opposite scenario appears to be playing out, however, as leading behavioral genetic and psychiatric genetic researchers struggle to prevent some recent negative GCTA findings and the obvious false assumptions underlying twin research from driving a stake through the heart of twin studies themselves.

The Shameful Story that Runs and Runs: A Review of The Bitterest Pills

21
If the blimp that is psychiatric treatment were a passenger aircraft, the authorities would have grounded it many years ago, but still it continues to inflict harm on countless thousands of people. I read Joanna Moncrieff's latest book with a growing sense of anger and shame. The roots of drug treatment in psychiatry are thoroughly rotten. They sustain the decaying trunk of psychiatric theory and practice through misrepresentations and untruths; it is snake oil peddled by quackery.