Sunday, February 5, 2023

Tag: patient advocates

Tell PCORI What Research Funding We Really Need

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So, at this national conference, Partnership with Patients, I met a bunch of "e-patient advocates," which are civil rights fighters in all the other "medical" areas. One thing I learned at that conference was that there are many "patient" advocacy opportunities. One of them is PCORI, the "Patient" Centered Outcomes Research Institute. This is theoretically an organization that funds research that people with lived experience ask for. However, the problem is that they aren't really talking to our community and we aren't talking to them. So they did this big splashy launch about "mental health as a major focus," and they said what they had figured out that mental health needed was.

5 Things You Can Do In 5 Minutes to UnDiagnose Emotional...

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A lot of posts on this site are about the problems in mental health care. This post is about some solutions. Many of us can do small, simple things to move advocacy forward. We can all make a difference so people can learn how to handle emotional distress without using disease based approaches with chemically based "solutions." Here are 5 things you can do in the next five minutes to promote UnDiagnosing Emotional Distress.