Big Pharma Mobilizes Patients in Battle Over Data Transparency

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The U.K.’s Guardian reports on a leaked memo from the European Federation of Pharmaceutical Industries and Associations (EFPIA), a major pharma industry trade group, to directors of Roche, Merck, Pfizer, GSK, Astrazeneca, Eli Lilly, Novartis and others, that outlines a campaign to mobilize patient groups to concerns about the proposed requirement that pharma companies publicly release all data from drug trials. “Patient groups get traction because they are assumed to represent the voice of the suffering. But industry uses them to say we’re not going to get innovative medicines if the industry is deterred from investing by having to be transparent about their clinical trials,” said a representative of Health Action International, a pharma industry watchdog group.

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Kermit Cole
Kermit Cole is a licensed marriage and family therapist based in Santa Fe, New Mexico. He and his partner, Luisa Putnam, joined by their mutual interest in working with trauma and psychosis, studied Open Dialogue in Finland and Peer-supported Open Dialogue in the UK in order to practice and teach as a team. In 2011, they joined with Robert Whitaker to found the Mad in America website

3 COMMENTS

  1. Now NAMI will be forced to show its true colors. If all those studies that Robert Whitaker and others have been using to de-bunk biological psychiatry had been more carefully “controlled”, the recent NAMI convention would have just been the usual “love-in” for psych drugs.

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  2. “But industry uses them to say we’re not going to get innovative medicines if the industry is deterred from investing by having to be transparent about their clinical trials”

    Because scientists cannot discover great things if people are looking over their shoulders… or at least they can’t make them up.

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