Editorās Note: Mad in the UK and Mad in America are jointly publishing this four-part series on neurodiversity. The series was edited by Mad in the UK editors, and authored by John Cromby and Lucy JohnstoneĀ (with part three written by an anonymous contributor). The series is being archivedĀ here.
This is the fourth and final part of our blog series on neurodiversity. Part 1 outlined the history of the neurodiversity movement, along with some of its implications, limitations and contradictions. In Part 2, we suggested that the rapid rise in the diagnoses most commonly associated with neurodiversity, ADHD and ASD, can be understood as consequences of neoliberalismāboth in terms of the specific behaviours thus described, and their subsequent commodification and marketisation. Part 3 then showed the very damaging effects that the concept of neurodivergence and associated diagnoses can have in clinical practice, including limiting therapeutic work to the affirmation of identities.
In Part 4, we will examine the implications of the various strands of the neurodiversity movement for the medical paradigm of distressāthe narrative that, from the point of view of Mad in the World, has failed, and needs to be replaced. To what extent does the concept of neurodiversity offer a new, inclusive, non-pathologising way forward, as some (including the founder of the movement, Judy Singer) intended? This will include addressing claims from one strand of the neurodiversity movement, that critiques of the kind often hosted by Mad in the World are āreactionary and outdatedā, and based on extreme right-wing, supremacist, and ableist positions.
We remind readers that we wholeheartedly respect and uphold peopleās personal right to describe their difficulties and differences in any way they find helpful (although we argue that clinicians do have a duty to use concepts that are in conventional terms evidence-based). While our stance toward neurodiversity and associated concepts remains critical, none of what follows either limits or changes that personal right, or imposes alternatives.
Neurodiversity and psychiatric diagnosis
As we have seen, the relationship between the medical/diagnostic paradigm and the neurodiversity paradigm is confusing and contradictory. The term neurodiversity itself, as originally put forward by Judy Singer, was intended to embrace everyone and thus de-pathologise our natural individual variations. In this sense, āneurodivergenceā does not necessarily imply any kind of disorder, disease or disabilityāonly ādifferenceā of some kind.
Within this, some parts of the neurodiversity movement take an uncritical or neutral perspective on the validity of psychiatric diagnoses such asābut not limited toāASD and ADHD, backed up by unsubstantiated claims about biological and genetic causal factors.
Others who describe themselves as neurodivergent see these terms as indicating identities: the kind of person you are, not the kind of ādisorderā you have, and as such, exempt from the critiques directed towards other psychiatric labels. These essentially arbitrary decisions are supported by some researchers in both critical psychology and disability studies, even while they dispute pathologisation and discrimination in general.
Even more concerning is the potential for this trend to be exported to non-Western cultures, as has happened with the diagnostic model under the much-criticised Movement for Global Mental Health. This appears to be a real, although currently not widespread, possibility, as discussed here. For example, this video from India encourages people to celebrate āNeurodiversity Pride Dayā, and there is a newly established Centre for Neurodiversity Studies near Delhi. We have no space to discuss these developments at length so want to clearly state that, in our view, they raise serious questions and concerns.
Running alongside these developments is the argument that those who are diagnosed as, or who identify with, ASD, ADHD or AuDHD are disabled, even if not disordered or diseased, and have a right to appropriate supports and adjustments.
All of this combines to create one of the central contradictions of the neurodiversity movementāthat the core creeds of non-pathologising and acceptance have in practice contributed to a massive increase in diagnostic labelling.
We will now attempt to unpick some of the issues this creates, with a particular emphasis on their relationship to the diagnostic model of distress. We consider the consequences of diagnosis as a form of social identity; of neurodivergence as a form of disability; and of self-diagnosis.
The consequences of ādiagnosis as identity.ā
The re-framing of diagnosis as identity in some parts of the neurodiversity movement leads to an insistence on identity-first languageāan āautistic personā rather than āa person with autism.ā Confusingly, this is often accompanied by a desire to acquire an official diagnosis, even if the person does not see autism or ADHD as a ādisorderā, because this is the gateway to the adjustments that are said to be necessary for a neurodivergent person to live in a neurotypical world.
This hunt for medical confirmation tends to be accompanied by a consumerist perspective on healthcare which sees the acquisition of the desired diagnosis as a right, not an expert opinion that may or may not be deemed applicable in a given case. The consequences for assessment and therapy were described in Part 3.
At the same time, the frequent conflation of label-as-disorder with label-as-identity reinforces the belief that an official diagnosis is more or less irrelevant to whether or not you actually are an autistic person or an āADHD-erā. If this is just who you are, then only you can know whether the concept fits. So, non-specialist conferring of these identities by TikTok, or by a mysterious process of recognising your āneurokinā, is as valid, if not more so, than a professional opinion. This conviction, as we saw, can lead to much determined āshopping aroundā for a professional willing to confirm your belief.
The conflation of ādisorderā with āidentityā is helped by the fact that, despite long lists of criteria, psychiatric diagnoses such as ASD and ADHD are ultimately based on subjective judgements (by the clinician) about subjective experiences (of the client), rather than on biomarkersābecause there are none. As a result, there is no easy or definitive way of resisting the expansion of the number of people said to be neurodivergent.
This conflation has other undesirable consequences, some of which we have already discussed. A label which has the authority of a medical diagnosis, and is at the same time experienced as a kind of valued identity, is extraordinary powerfulāmore so than diagnostic labels such as bipolar, major depression and so on. At least in theory, recovery from medical conditionsāif that is how they are understoodāis possible. But you cannot ārecoverā from an identity, or from being a certain kind of person. The implications for therapeutic intervention were discussed in the previous blog. If āsymptomsā are at the same time an expression of your āauthentic selfā, then change is not only impossible but undesirable, and any suggestion to the contrary is likely to be viewed or felt as offensive, oppressive, or worse.
Perhaps the most unexpectedāand from our perspective, regrettableāconsequence of the conflation of label-as-medical-condition with label-as-identity is the reframing and reclaiming of some of the most contested and stigmatising psychiatric diagnoses through identity-first language. For example, some who claim to be on the progressive frontline of the neurodiversity movement are arguing that we should once again start talking about āschizophrenicsā. The reasoning is that, from a neurodiversity perspective, āschizophreniaā does not refer either to the symptoms of an illness, or to reactions to toxic circumstances and life events. Instead, it describes a specific āneurominorityā, a particular kind of person. Just as there are autistic persons, so there are schizophrenic ones whose experiences of distress are actually ā…a natural way for schizophrenic persons to develop and perhaps respond to their environmentā.
This implies that the construct of āschizophreniaā is, contrary to decades of critique and the admissions of DSM committee members themselves, a reliable and valid way of categorising a certain group of people. At the same time, it reproduces the damaging myth that ‘schizophrenia’ describes a permanent, lifelong way of experiencing the world. The same is true of attempts to reframe other diagnostic labels as āidentitiesāāincluding the most contentious, āborderline personality disorderā which, it is suggested, can be ādestigmatisedā through āneuroqueer feminismā.
This is likely to have a range of unhelpful consequences. First, obscuring the connections between peopleās experiences and their relationships and environments (by emphasising instead a supposedly ānaturalā developmental trajectory) will invalidate some of the ways that people (including Mad in the World contributors) attribute meaning to their distress. Second, this emphasis on ānatural developmentā increases the risk that people in impoverished and marginalised communities, or with histories of trauma, will have their difficulties attributed to biology or genetics rather than toxic circumstances. Third, there is a risk of reviving prejudicial stereotypes that high rates of diagnosis among ethnic minorities, poor people and women are reflective of a constitutional susceptibility to madness, rather than the result of greater abuse, exploitation, hardship and discrimination. In all these ways, psychiatric notions of distress are reinforced, at the expense of social, biographical and environmental explanations.
Veteran campaigners against unscientific and pejorative psychiatric labels that were once seen as āthe heartland of psychiatryā will be horrified at the attempt to reclaim terms such as āschizophrenicā (a term forbidden by most media guidelines) under the guise of progressive neurodiversity politics.
The consequences of āneurodivergence as disabilityā
As we saw in Part 1, the neurodiversity movement aligns with the social model of disability. This model proposes that while impairment is an individual and (sometimes) medical matter, disability only arises when individual impairments encounter disabling environments. Thus, someone who finds it hard to walk because of damage to their muscles, is disabled only to the extent that transport, buildings and so on are inaccessible to people who use wheelchairs. Disability, then, is not simply located in the individual, but emerges from failures to accommodate the needs of those who are not part of the non-disabled majority.
From the start, disabled feminists such as Jenny Morris and Susan Wendell had concerns about the model. They suggested that it reproduces a masculine stereotype of strength and independence, ignores illness, and in considering only the body-environment interaction it excludes the actual, fleshy, physical body. More recently, prominent disability scholar Tom Shakespeare argued that the model has become increasingly rigidly applied over the years, and has now outlived its usefulness. Nevertheless, it remains important and influential.
As we have seen, many people who identify as neurodivergent want a formal diagnosis in order to secure adjustments (at school, at college, in work). Some of them self-identify as disabled, a category whichālike neurodivergence itselfāis extremely heterogenous. Disabilities can impact such embodied functions as mobility, dexterity or sensory ability. Some people have āinvisibleā disabilities, or disabilities that fluctuate and change, while others are permanently unable to walk or physically care for themselves, and will be disabled in almost any imaginable environment. Disabilities can be transient, static, relapsing or progressive; can arise singly or in conjunction with other health-related events; and can affect both physical and mental functioning.
This heterogeneity makes it difficult to generalise. Nevertheless, it does seem that there are ways in which neurodiversity may differ from many other categories of disability. Should awkwardness in social situations or difficulty prioritising daily tasks, for example, count as ādisabilityā in the same sense as using a wheelchair, recovering from a stroke, or perhaps having extreme mood swings?
These questions arise because, as we have seen, the definition of neurodivergence relies wholly on social norms. The social model locates impairment in the body, and any consequent disability is a result of the bodyās encounter with the environment. But for the great majority of instances of neurodivergenceānotably, people given diagnoses of ASD or ADHDāthere is no identifiable bodily impairment. Rather, diagnosis largely focuses upon self-reports, so can only be based on social norms.
In one sense this is nothing new: there have never been consistent biological correlates for these and other psychiatric conditions. But historically, they have been seen primarily as medical illnesses or disorders. As instances of neurodivergence, however, they are primarily disabilitiesāalbeit also differences, not disorders. These shifts, from disorder to disability to difference, further accentuate the reliance upon social norms because, along the way, even the expectation that bodily impairment must be present seems to disappear.
For example, Part 3 of this blog series described competent, socially-skilled people acquiring diagnoses such as ASD, despite diagnostic criteria that specify marked functional impairment, on the basis that their ability to āmaskā entirely conceals their impaired functioning. This illustrates how, rather than just applying the social model of disability, neurodiversity modifies it by, effectively, making impairment optional. What is more, this is likely to be the case even when other versions of the social model are used. So the negative consequences of excluding the physical body, identified by feminist critics of the social model, seem to apply with even greater force to neurodiversity.
Another complication is the ever-present risk of displaying āableismā by, for example, implying that embodied limitations that are said to be associated with neurodivergence are a sign of inferiority to a āneurotypicalā person. But this runs alongside the message that neurodivergence may, at the same time, mean that people are disabled and therefore need special treatment. After all, as we noted in Part 1, the āDā that ends both ADHD and ASD stands for ādisorder.ā This complication highlights a fundamental contrast between the neurodiversity movement and other social movements which Tom Shakespeare summarised very succinctly:
āIt is harder to celebrate disability than it is to celebrate Blackness, or Gay Pride, or being a woman. āDisability prideā is problematic, because disability is difficult to recuperate as a concept, as it refers either to limitation and incapacity, or else to oppression and exclusion, or else to bothā.
This dilemma becomes particularly apparent in relation to those people with severe and/or profound intellectual disabilities who are also described as having autism. This group is disabled by any accepted standard. Do we acknowledge this, and thus accept that in some cases, the āneurodivergence as individual differenceā model doesnāt fit? Or do we deny it, and as a result, run the risk of failing to meet the very real support needs of these people and their carers?
The picture is blurred still further by psychologist and neurodiversity researcher Steven Kappās proposal that the movement should expand to include people with chronic illnesses such as multiple sclerosis, sensory impairments such as blindness, and the effects of epilepsy or head injury. The proposal is based on the fact that they, like other diagnoses already deemed part of the movement, ā[diverge[ from the dominant societal standards of ānormalā neurocognitive functioningā.
Few would deny that these are serious difficulties, but it is far from clear that they belong in the same category as those who struggle with the vast range of daily difficulties now subsumed under the categories of neurodivergence, ASD and ADHD. It seems entirely possible that the primary benefit of including these conditions as instances of neurodivergence would not be to the individuals affected (not least because, once conceived as neurodivergence, peopleās difficulties might be reframed as expressions of their intrinsic natures, and so not suitable for intervention). Instead, the main benefit would be to the neurodiversity movement itself, which would gain credibility, strength and influence by allying itself with these groups.
Rather like its perspective on diagnosis, the neurodiversity perspective on disability is confused and confusing. On the one hand, we have complaints from teachers and lecturers that large proportions of their students now require adjustments ranging from extra time for assignments, to software that automatically performs core academic skills such as sentence composition, essay structuring and so on, on the basis of neurodivergence. On the other hand, the narrative that autism associated with severe intellectual disabilities is just another way of being human is, according to some clinicians and parents, limiting support and resources for those most in need. Both outcomes are problematic.
The consequences of self-diagnosis
In the face of long waiting lists, there is a growing trend for people to āself-diagnoseā, often after having Googled their complaints or watched a TikTok video. This is often claimed to be ājust as validā as an official diagnosis, with one advocate of this practice asserting that:
āWe can be trusted to know ourselves, do our research, and self-diagnose with a full understanding of the weight of what it means to be autisticā.
To be clear, however, describing this as self-diagnosis is actually a misuse of language because:
āāDiagnosisā is a conclusion that follows a medical examination by a qualified professional. Lay people mayĀ apply psychiatric labelsĀ to their experience before or even in the absence of any professional consultation, but those labels have no formal standingā.
As this author says, a better term would be āself-identificationā with a certain set of criteriaāwhich may, of course, offer reassurance, if only initially.
Once again, there is a profound confusion between, and ambivalence about, whether neurodivergence and autism are seen as disorder/medical condition, or as identity. Clearly, using the language of ādiagnosisā for both purposes does not help. There are, in fact, many non-medical terms that have emerged as ways of grouping together people who have similar experiences of the worldāāhighly sensitive person/HSPā is one, as are astrological signs, or personality types such as extrovert, āINTJā or empath. In the childhoods of the ā60s, ā70s and ā80s, young people āfound their tribeā by identifying as hippies, mods, Goths, emos, or punks.
Many people have found these and similar terms helpful, whether or not they are scientifically-based. However, the social power of medicine and psychiatry means that they just do not carry the same authority as a diagnosis. It may be for this reason that the term ādiagnosisā is preferred by many in the neurodiversity movement, even while its conventional meanings of illness/disorder are often denied.
ĀĀĀĀFrom a professional point of view, good practice would suggest that we respect, but do not necessarily agree with, self-diagnosis: but as illustrated in the previous blog, it is increasingly hard to resist the demand that self-diagnosis should automatically be seen as qualifying you to receive a formal diagnosis if that is what you want.
The neurodiversity paradigm as ācollective liberationā
We now turn to an emerging aspect of the neurodiversity movement which in some ways is directly opposed to many other uses of the concept of neurodiversity (although, as we will see, not to psychiatry). Even whilst claiming to be critical of them, this strand of the movement has a particularly cosy relationship with psychiatryās diagnostic categories. Below, we will situate this aspect of the movement more broadly. First, we will primarily illustrate it through the writing of UK philosophy lecturer Robert Chapman, who self-describes as āproudly neurodivergent and disabledā. Chapmanās 2023 book Empire of Normality is being hailed in some quarters as āan instant seminal textā, and its ideas lauded by some commentators and academics, and by those service user/survivor groups that Chapman supports (broadly speaking, ones that wish to retain a role for the diagnostic model of distress). Chapmanās influential supporters include senior US psychiatrist Dr Awais Aftab, a tenacious defender of psychiatry and a long-standing opponent of MIAās work such as its exposure of the flawed STAR*D antidepressant trials.
A prominent theme of Chapmanās writing is that work of the kind represented by many contributors to MIA and MITUK is part of a āreactionary and outdatedā movement that needs to be jettisoned in favour of the ācollective liberationā promised by āa more radical politics of neurodiversity.āĀ According to Chapman, the loose grouping of āwhite, wealthy, able-bodiedā contemporary critics who are challenging the diagnostic paradigm represent a regressive, potentially sinister movement with alt right and even white supremacist links. The effectāindeed, perhaps the aimāof their work is said to be to entrench oppressive norms and systems, to the disadvantage of the disabled, in order to maintain their own power and influence. Chapmanās own invention, āneurodivergent Marxismā, is proposed instead as the truly radical way forward.
Chapmanās arguments in the book and related articles are complex and often confusing, but can be summarised as follows:
āAnti-psychiatryā (which for Chapman includes a great many past and present critics of psychiatry, whether or not they describe themselves this way) is allegedly based on the premise that changing the language of diagnosis will magically dissolve the problems of psychiatry. As a consequence, it fails to make any link with wider social/political contexts; it denies the reality of people’s distress; and it is driven by and reproduces extreme right-wing ideologies and the oppression of marginalised people. The main current perpetrators of these reprehensible attitudes and practices are frequently named as the UK Critical Psychiatry Network, and specifically Joanna Moncrieff; James Davies; Sami Timimi; Lucy Johnstone; Peter Kinderman; and Mad in America, āa popular online publication closely aligned with critical psychiatry leadersā.
This depiction is so far from the truth that frequent misrepresentations are needed to lend it even a veneer of plausibility. Chapmanās main strategy is to claim, repeatedly and falsely, that these critics are all āSzasziansāāi.e. blind adherents to the right-wing libertarian values and politics of US psychiatrist Thomas Szasz, whose work is described as positioning the āmentally illā as malingerers who have invented their distress, are not deserving of welfare support, and so on.1 This core theme frequently appears in its bluntest form in social media accusations by Chapman and allies, who are honing āSzaszianā into a term of abuse.
As part of this strategy, Chapman misquotes work by critics. For example, in an article published in revised form2 in the journal Philosophy, Psychiatry and Psychology (for which Dr Aftab is an editor) Chapman refers to the UK Critical Psychiatry Network website as follows:
āThe Critical Psychiatry Network began in the UK in 1999ā¦.. By 2019, Middleton and Moncrieff, the then co-chairs of the network, were able to describe critical psychiatry as a global āmovementā based on Szaszās philosophy (Middleton and Moncrieff, 2019)ā.
However, the Middleton and Moncrieff paper that Chapman cites actually says the opposite:
āThe Critical Psychiatry Network (CPN) started in the UK but now extends globally. It accommodates a wide range of opinions rather than claiming to speak with a single voiceā.
There are other misrepresentations and distortions of this kind in Chapmanās work. Further on, the same article claims:
āAlthough different criticals target different groups, the marginalization of relevant groups ā¦ is a feature of the critical theoretical position, not a bugā¦ Szaszian assumptions ā¦ [are] epistemically harmful for people who deviate from abled, sexed, racialised, and gendered normsā.
And the preprint of Chapmanās article, still available online, states:
āPerhaps some criticals would be happy to commit to reinforcing oppression of some minorities in order to potentially liberate some mentally distressed people (but) Szaszās reactionary politics areā¦ reproduced in contemporary critical psychiatryā.
The article supplies āevidenceā for this allegedly pleasurable targeting of oppressed minority groups in the form of serious and extensive misrepresentation of the work of Lucy Johnstone, James Davies, Joanna Moncrieff, Sami Timimi and others.
One of the more puzzling aspects of this strand of neurodiversity is the overlap of its arguments with those who are being dismissed and derided. For instance, Chapman makes claims about āSzaszianism becoming mainstream in the UK through the PTMFā. Yet the PTMF (the Power Threat Meaning Framework: a conceptual alternative to psychiatric diagnosis which has received widespread recognition) neither discusses Szasz nor endorses his politics. The PTMF does, however, pre-empt many of Chapmanās own criticisms of capitalism, and is based on the entirely non-Szaszian argument that peopleās very real distress must be understood and addressed within its social and political circumstances. The difference is that neither the PTMF, nor the extensive work of the āanti-psychiatristsā, see the answer in what one UK critic has called the āneurofication of everyday lifeā.
The influence of identity politics on the neurodiversity movement makes the determination to impose upon UK critics an identity, which they have explicitly rejected, somewhat paradoxical. But it makes sense once we realise that Chapman is actually making a moral judgement that loosely follows this conceptual form:
All who reject mental-distress-as-illness are āanti-psychiatryā so must be āSzaszianā.Ā All Szaszians are bad: probably eugenicist, certainly ableist, perhaps even fascist. As such they are unworthy of respect, so genuine engagement with them and their work is unnecessary.
This moralising underpins Chapmanās recent blog for Dr Awais Aftabās Substack account, which claims that UK critic Dr James Davies, author of the books Cracked and Sedated, is a leading figure in a āwar on disabled peopleāādespite his having been an activist for the rights of those disabled by psychiatric interventions for over a decade. Chapman makes strenuous attempts to justify this libel, even managing to bring in a reference to Hitler (on the basis of a favourable review of one of Daviesā books in a UK newspaper which is ānotorious for having supported Hitler in the 1930sā). Davies is accused of ācollaborat[ing] with Conservative MP Danny Krugerā¦ [who] is on the furthest right end of the Conservative party and has even been recently described asĀ āthe dangerous saviour of British nationalismāā.
The much less dramatic truth is that Davies and colleagues have been involved with an All-Party Group of UK Members of Parliament: APPG. By definition, APPGs include politicians from across the political spectrum who come together to address particular issues of concern to allāin this case, the need for action on the social determinants of mental health problems, and for support for those disabled by psychiatric interventions. So an important victory for non-partisan politics has been distorted by Chapman into a personal attackāto the benefit of no one, especially not those most in need of the proposed social interventions and disability support. And, tellingly, Aftab used his āmoderatorā powers as blog owner to block any comments that corrected these lies.
Perhaps more seriously, a recent review by one of us (JC) shows how Chapmanās book Empire of Normality omits important elements of historical context; makes far-reaching assertions on the basis of little or no evidence; and presents, as though they were definitive, historical analyses that are contradicted by other, well-regarded histories. As the review asks:
āWhy do Empire of Normalityās arguments seem to require distortions of the evidence? Do Empire of Normalityās flaws suggest a fundamental weakness in the neurodiversity position? Are Chapmanās misrepresentations calculated and deliberate, or careless and accidental?ā
One example of this poor scholarship will suffice. Chapmanās book attempts to blame āanti-psychiatryā for the adverse social consequences (homelessness, drug use and rising rates of incarceration) that, in the USA, coincided with the closure of large asylums and hospitals from the early 1960s onwards. Empire of Normality concludes its brief account of the closures by claiming that:
āSzaszian ideology turned out to be useful for the ruling class rather than helping to resist the dominant systemā.
In fact, so-called anti-psychiatrists had little or no influence over the process of deinstitutionalisation, whichānotwithstanding the shortcomings of some of the alternative ācareā providedāwas welcomed across the political spectrum as heralding more enlightened treatment. A more convincing account is given by historian Michael Staub, who showed how in the mid-1980s, when President Reaganās neoliberal economic policies caused USA homelessness to surge, āanti-psychiatryā was strategically blamed. Ironically, Chapmanās version of history uncritically reproduces a baseless myth concocted by President Reaganās advisers in the mid-1980sāa myth designed to conceal the harmful impacts of neoliberal policy decisions.
For a more thorough account of Chapmanās book and its claims, we refer readers to the review. They may then wish to judge how successfully the book fulfils Chapmanās aim of showing that:
āā¦some forms of (wealthy, white, able-bodied) resistance to the increased pathologisation of brain/mind may be driven partly by a need to preserve the white supremacist framing of white brains/minds as superior and pure’.
Strikingly, Chapman omits any mention of survivors and former users of psychiatric services from the malign group of Szaszians. This is very strange because thousands of them worldwide, including those who host and write for Mad in the World affiliates, not only reject psychiatric notions of distress as illness but are allies of and contributors to āanti-psychiatryā (as defined by Chapman). They are also leaders of change in their own right. Presumably, acknowledging their existence would spoil Chapmanās image of a group consisting solely of āprivilegedā professionals who depict service users as āgullible victimsā¦ who have been tricked into believing they are ill by the āmythsā or āliesā invented by psychiatry or pharmaceutical companiesā. To the contrary, we suggest that survivors of psychiatry are very capable of making up their own minds about how to understand their distress, and of avoiding anyone who views them in this patronising way.
To be clear, UK critics do not endorse the kind of identity politics that uses attributions such as āreactionaryā or āwhite, wealthy, able-bodiedā both to sidestep, and to substitute for, actual arguments and evidence. In any case, members of the loose group of UK criticsānot all of whom are white, and none of whom are particularly wealthy (some, in fact, are from disadvantaged or working-class backgrounds)ālive with disabilities including severe arthritis, Parkinsonās and an inoperable brain tumour. We mention this not to reduce the discussion to the personal level, but to highlight the cheap weaponisation of (presumed) privilege upon which Chapmanās arguments depend. This tendency reaches a peak on Chapmanās X (Twitter) account:
10.8.22 They are mostly posh liberals who donāt understand what words like āableistā mean. Some seem to think itās a word lefties made up to smear them, or that it should only be used to describe people who are openly eugenicist, rather than it being the core of their ideology.
31.7.22 Iām pointing out that the CPN [Critical Psychiatry Network] and certain members have been platforming and legitimising far right conspiracy theorists for years, inviting them to give talks to universities, etc.. Now weāre seeing the effects of that. And far right trolls harass whoever points it out.
27.3.23 Despite their differences I think Szaszian and fascist responses to mental health share an underlying fantasy of the world where mentally ill or disabled people no longer exist. One seeks to literally eradicate us while another seeks to eradicate all concepts that recognise us.
In todayās neoliberal universities, personal brands and academic careers are largely determined by competition. Currently, as the psychiatric narrative falters, new market opportunities are opening up, and brands with radical packagingālike āneurodivergent Marxismāāmay achieve considerable market penetration, even if the actual product is more of the same. But if the new brand still validates psychiatric diagnoses or illness assumptions, like Chapmanās does, its overall effect will be to sustain existing power relations. Neurodivergent Marxism is an example of commodified and recuperated rebellion, naively upholding the very mystification that neoliberalism encourages.
How important is this new strand of neurodiversity activism?
Transparent distortions and personal attacks such as those described above are typically best ignored. We have given them space in this blog only because they seem to be gaining traction: as we said, Chapman is not alone in promoting these critiques and other voices have begun echoing these misleading messages.
Unsurprisingly, this includes Aftab (15.4.23 ā@DrRJChapman brilliantly revealsā¦ the neo-Szaszian nature of a lot of contemporary UK ācriticalā discourseā). Similarly, UK philosophy lecturer Alastair Morgan published a paper (again in Philosophy, Psychiatry and Psychology) claiming that āThe PTMF unfolds a broadly Szaszian critique of the concept of mental illnessā. A researcher, Nunez de Prado-Gordillo, also picks up the theme and cites Lucy Johnstone, Peter Kinderman, Joanna Moncrieff and John Read in support of his statement that there has been āa resurgence of Szaszāsā¦longstanding criticisms against the medicalization of mental distress. A primary example are so-called ācritical psychiatryā views which have gained increasing popularity in recent yearsā. And Micha Frazer-Carrollās 2023 book Mad World warns about the entirely fictional danger posed by professionals who āfollow in the tradition of the right-wing anti-psychiatrist Thomas Szaszā and dictate āhow Mad/Mentally Ill people must understand themselvesā.
This is a curious inversion of the real situation, in which it is psychiatry that routinely imposes its understandings on people. The āanti-psychiatristsā and related groups like āA disorder 4 everyoneā fully support peopleās right to make their own choices of understanding, including medical ones. The real problem is that most people are not offered this choice.
As Robert Whitaker, founder of Mad in the World, frequently states: the psychiatric narrative has failed. And today, it is not necessary to have read Szasz to work this out. Studying subjects as varied as sociology, criminology, history, anthropology, literature, trauma studies or developmental systems biology might well lead you to the same conclusion, as might the work of Szaszās (left wing) contemporaries Laing, Foucault and Goffmanānot to mention the lived experience of receiving psychiatric interventions. In fact, questioning the notion of distress as brain disease or mental illness dates back at least to the beginning of modern psychiatry. Likewise, non-medical understandings of distress (e.g. as spirit possession, mystic visions, the consequence of trauma or a sign of misalignment with family or community) were prevalent long before Szasz began writing. And in any case, as UK critics have frequently clarified, interest in Szaszās ideas in no way implies acceptance of his extremist politics.
Todayās UK āanti-psychiatristsā have, naturally, done their very best to conceal their extreme right-wing political convictions by working in the public sector for decades and campaigning for better mental health care and a fairer, more inclusive and equal society, often in the face of considerable opposition and threats to their careers. But perhaps this is just another form of āmaskingā? We leave that for readers to decide.
Drawing all of this together, it appears that we are seeing a growing backlash just as the hegemony of the diagnostic model is crumbling. Mad in the Worldās readers are very familiar with admissions from within the heart of the psychiatric establishment such as āthere is no reason to believe that DSM-5 is safe or scientifically soundā; and that current diagnostic systems are ātotally wrong, an absolute scientific nightmareā. This, surely, is a critical moment in the history of psychiatry.
In this moment, Judy Singerās original vision of the neurodiversity movementāwhich was clear that it is āpolitics not scienceāthe name of a social justice movement, not a diagnosisāādid have some potential to replace pathologisation with something more inclusive. However, in any moment of crisis there are those with an interest in the status quo. And so along came this contemporary version of neurodiversity, now retooled as an updated version of the failed medical paradigmāalbeit one given a sheen of fake radicalism by identity politics.
By this means the individualisation of distress is being embedded ever more deeply, as social media spreads this version of the gospel of neurodiversity far beyond the clinic walls. As one commentator says, the concept āhas been bastardised, twisted and pulled back under the psychiatric umbrella in order to harm and oppress everyoneāwhen it was meant to protect everyoneā.
Neurodiversity has been warmly welcomed by psychiatric establishment voices like Aftab, by institutions such as the main UK political parties, and by big businesses, government departments and health services: all responses that clearly demonstrate the limitations of the challenge that the movement presents. We explore this issue further in our final section.
Neoliberalism, neurodiversity and psychiatric diagnosis
In this section we return to an issue we introduced in Part 2 of this blog series: the largely unacknowledged ways in which the neurodiversity movement reflects, embodies or enacts neoliberal precepts and characteristics.
The concept of neurodiversity gains credibility through the prefix āneuro-ā. At the same time, associating diversity with the brain in this way individualises and de-contextualises personal, social, material and political circumstances even more effectively than the medical model in psychiatry. What is more, the promotion and valorisation of neuro-identities, like all identity politics, deflects attention from inequitable social structures and associated practices, such as psychiatry, that sustain neoliberalism. Instead, we are encouraged to believe that distress is driven primarily by faulty brains (misunderstood as mostly-closed systems rather than massively-open ones). And dressing all of this up in the language of self-determination and consumer rights emphasises another core preoccupation of neoliberalism: individual choice. Conceived in these ways, neurodiversity further divides us into competing minority groups, shattering solidarity by individualising and depoliticising shared human struggles.
The prominence within the neurodiversity movement of the two āsuper-labelsā of ASD and ADHD further entrenches these problems, particularly when they are said to describe a kind of person rather than a condition. In psychiatry, perhaps the nearest parallel is āpersonality disorderā, which also confers an enduring judgement not just on what you feel or do but upon who or what you are. Ironically, some of those most opposed to labels like āborderline personality disorderā are also loudest in calling for recognition of ASD and ADHD as alternatives. The implications might be less damningāas we have seen, neurodivergent labels can be experienced as empowering and liberatoryābut many of the disadvantages are the same.
In any case, a closer look at some of the characteristics that attract these labels clearly reveals their deeply embedded neoliberal assumptions. In particular, as Tony Attwood (a āworld authority on Aspergerāsā)Ā observes, people so diagnosed are āusually renowned for being direct, speaking their mind and being honest and determined and having a strong sense of social justiceā.
Illustrating this, one article on an influential website describes a core feature of āautismā with the quote:
āI do have a strong sense of justice and fairness. If I find a cause that resonates with me, I will pursue a solution with a level of singular focus and passion beyond what could be expected from most neurotypical people and will fight for what is right with every ounce of who I am…. I also have a strong sense of whatās right and wrong, and this sense tends to guide me throughout my lifeā.
The same revealing article, which lists the āTop 10 Thingsā about being ASD (all of them said to be recognisable by āanyone on the spectrumā) also quotes someone expressing the view that:
āI donāt pay much attention to many of the things that seem so important to neurotypical people. I donāt care if youāre fat, skinny, rich, or poor. I donāt care what kind of car you drive or the house you live in. If I like you, I like you because youāre kind and you make me feel happy. I wonāt judge you by the outfit you wear or the job you have. I donāt care if youāre having a bad hair day, or if Iām your only friend. In fact, chances are I wonāt even notice these things. Social expectations are unimportant to me, so I wonāt judge you, just as I hope you wonāt judge meā.
We sincerely admire this personās independence of mind. The writer has found a way to jettison all the core neoliberal messages and values to do with appearance, possessions, competitiveness, achievement and status comparisons. We just wish that these attitudes were celebrated as the norm, rather than having to be filed under āneurodivergentā, while the āneurotypicalā world carries on unchallenged. Instead, these experiences require de-contextualising and individualising, so that our newly re-defined suffering can be sold back to us along with commodified solutionsāpsychiatric drugs, private clinics, self-help books and all the rest of it. And when these failāas seems inevitable, since they are not addressing root causesāthere will always be another such solution round the corner.
In the topsy-turvy, ruthlessly competitive, individualised and individualising world of neoliberalism, values such as kindness, co-operation and fairness are sufficiently at odds with dominant social norms that they can be reframed as symptoms of a ādisorderā. This is profoundly depressing but not surprising. If there was one term to summarise the antithesis of neoliberalism, it is social justice: no wonder it has to be pathologized. Meanwhile, relentless self-surveillance is on the way to achieving diagnostic, disability or neurodivergent status for all of usāand many are already queuing up to embrace it voluntarily.
Conclusion
In closing, we would like to repeat that many people have welcomed the neurodiversity paradigm in good faith. We understand their appreciation of its potential, at least as first conceived, for de-pathologisation and the acceptance of difference. These things are sorely needed in our conflict-ridden world.
We also agree with many of the changes the paradigm advocates, such as education and work environments that accommodate different learning styles and preferences. We just donāt think these changes need to be justified by claims of neurodivergence, with all the ensuing problems weāve discussed. What is good for those identified as neurodivergent will very often be good for everyone.
To understand how the positive potentials of neurodiversity have turned sour, we have suggested in these blogs that the development and use of the concept of neurodiversity have been profoundly shaped by the forces of neoliberalism. This has ultimately sabotaged the movementās benign intentions, just as its founder Judy Singer repeatedly warned. This is why we do not want to see this concept uncritically extended to non-Western cultures, where it could replicate and reinforce the damage already done by exporting the diagnostic model. In the words of James Davies, the neurodiversity movement āhasnāt led to spontaneous collective organising against systemic causes, as some promised, but to a gradual devolution into āme-ismā, siloed identity politics, despondency and pessimism. We need more action not labelsā.
Additionally, and of particular relevance to MIA/MITUK readers, a minority strand within the neurodiversity movement has cynically weaponised the concept in order to discredit the significant aims and achievements of contemporary UK critics of psychiatry. While many who describe themselves as neurodivergent have a genuine wish to de-pathologise, this vocal minorityāeagerly supported by allies in psychiatryāhas mounted a sustained campaign to smear and distort the work of many of the individuals, both professionals and former/current users of services, who are at the heart of Mad in the Worldās efforts.
There is a deep irony here, since the most prominent promoters of the neurodiversity movement see themselves as left-leaning challengers of the status quo, championing the causes of marginalised groups. To the contrary, we have shown that they risk replacing existing forms of oppression with new āneuroā versions, which decontextualise and individualise peopleās struggles just as effectively as psychiatry always has done. Despite claims to the contrary, āneurotypesā are just another way of saying ādiagnostic categoriesā; ādifferently wired brainsā is the new āchemical imbalanceā. The last thing we need is a new term which, just like āmental illnessā, obscures and mystifies the links between abuse, exploitation and oppression and their all-too-real human consequences.
Important test questions are: Who is making money from this? Whose power is being reinforced? And what are we not addressing while this is distracting us? Neurodiversity, a term designed to promote acceptance, has become powerfully divisive. The belief that the world is divided into two fundamentally different types of person, with one doomed to misunderstand and oppress the other, is as destructive as any other binary. āCollective liberationā will not be achieved through re-introducing the principles underpinning diagnostic practice.
We do not expect everyone to agree with this analysis, but we do believe that it is of central and urgent importance for Mad in the World to be aware that the neurodiversity paradigm may be a Trojan horse.
Bibliography
Chapman, R. (2019). Neurodiversity Theory and Its Discontents: Autism, Schizophrenia, and the Social Model of Disability. In S. Tekin & R. Bluhm (Eds.), The Bloomsbury Companion to Philosophy of Psychiatry (pp. 371-389). London: Bloomsbury.
Chapman, R. (2022) A critique of critical psychiatry. Preprint
Chapman, R. (2023a) A critique of critical psychiatry. Philosophy, Psychiatry, & Psychology, 30, 2, 103-119
Chapman, R. (2023b). Empire of Normality: neurodiversity and capitalism. London: Pluto Press.
Fisher, M. (2009). Capitalist Realism. Ropley: Zero Books.
Frazer-Carroll, M. (2023). Mad World: the politics of mental health. London: Pluto Press.
Johnson, M. L. (2021). Neuroqueer Feminism: Turning with Tenderness toward Borderline Personality Disorder. Signs: Journal of Women in Culture and Society, 46(3), 635-662.
Johnstone, L. & Boyle, M., with Cromby, J., Dillon, J., Harper, D., Kinderman, P., . . . Read, J. (2018). The Power Threat Meaning Framework: Towards the identification of patterns in emotional distress, unusual experiences and troubled or troubling behaviour, as an alternative to functional psychiatric diagnosis. . Leicester: British Psychological Society.
Kapp, S. (2020). Introduction. In S. Kapp (Ed.), Autistic Community and the Neurodiversity Movement: Stories from the Frontline (pp. 1-19). Singapore: Palgrave Macmillan.
Middleton, H., & Moncrieff, J. (2019). Critical psychiatry: a brief overview. BJPsych Advances, 25(1), 47-54.
Morgan, A (2023) Power, Threat, Meaning Framework: A Philosophical Critique. Philosophy, Psychiatry, & Psychology, 30, 1, pp. 53-67
Morris, J. (1991). Pride Against Prejudice. London: Women’s Press.
NĆŗƱez de Prado-Gordillo, M (2024) Broken wills and ill beliefs: Szaszianism, expressivism,
and the doubly value-laden nature of mental disorder. Synthese 203:24
Runswick-Cole, K. (2014). āāUsā and āthemā? The limits and possibilities of a politics of neurodiversity in neoliberal times. Disability & Society, 29(7), 1117-1129.
Scull, A. T. (1979). Museums of Madness: The social organisation of insanity in 19th century England. London: Allen Lane.
Shakespeare, T. (2010). The Social Model of Disability. In L. Davis (Ed.), The Disability Studies Reader (pp. 266-273). New York: Routledge.
Staub, M. (2011). Madness Is Civilisation: when the diagnosis was social, 1948-1980. Chicago: University of Chicago Press.
Walker, N. (2021). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. California: Autonomous Press.
Wendell, S. (1996). The Rejected Body: feminist philosophical reflections on disability. London: Routledge.
Thank you for this series. I have just now jumped inā¦
I have a high achiever acquaintance with a long psychiatric history. She is now considering pursuing a diagnosis on the autism spectrum, even though she may have to use her own funds to do so.
I..was taken aback. My psychiatric labels have always been more of a hindrance than a help. I currently navigate the mental health system as a sort of stealth survivor. Play the hand youāre dealt, etc.
Iāve become rather frightened of the diversity concept. It seems to be more oppression of even more peopleā¦
And the idea that enslaving more people in psychiatry is a good idea even progressiveā¦
Is frightening at best. I think perhaps at this stage of neoliberal capitalism psychiatry is the state religion and opioid of the masses. Neurodiversity opens up new markets and strengthens the power of the state acting through the mental health system.
Report comment
Chapman knows nothing about Marxism. He is spreading an extreme version of New Left identity politics. This is militant libralism, not Marxism.
Report comment
Spot on as usual John
Report comment
Iām an artist and musician. Times are tough for many creators, and it seems to be getting worse. But not for the art dealers, the art collectors, the record companies, the movie studios, the streaming services and so on who are still making a killing off of the works of art that they contributed absolutely nothing toward creating.
Artists have been trying to get a fair share of the profits of their own creations and are being ignored, which is seriously breaking many of our brains.
This is precisely where weāre at with the mental healthcare system.
In the absence of truly effective healthcare, many patients are doing whatever they can to survive, such as exploring concepts such as neurodiversity. And yet, it seems we are farther than ever to finding anything close to being a consensus on what ails many of us, because the professionals with the multiple degrees and practices and research positions seem to be too busy competing with each other over who gets to be the final arbiter of what are and what are not valid methods and concepts, to take seriously what we have to say about our experiences or what we think and feel about them.
It is seriously breaking many of our brains.
Report comment
The Anti-Neurodiversity lobby is logically the opposite of what? I’d appreciate an article going into nothing but that. Funnily enough I know this attorney in the US who writes such material all the time. She loves academics and courted lots of them on the Autasic podcast. Funny that.
You will find a curious silence from the community of people who know what’s really going on here. They just wont bother to respond. I am up late and need to sleep. So yes it’s very sophisticated but it is still one big assault on whatever you all decide Neurodiversity and Neurodiversity Movement mean.
QUOTE Additionally, and of particular relevance to MIA/MITUK readers, a minority strand within the neurodiversity movement has cynically weaponised the concept in order to discredit the significant aims and achievements of contemporary UK critics of psychiatry. While many who describe themselves as neurodivergent have a genuine wish to de-pathologise, this vocal minorityāeagerly supported by allies in psychiatryāhas mounted a sustained campaign to smear and distort the work of many of the individuals, both professionals and former/current users of services, who are at the heart of Mad in the Worldās efforts.
Ah, you mean people argued with you all? I can decode online statements from a certain lobby rather well these days. Also the perpetual use of a metaphor and projection term The Neurodiversity Movement. Oh you mean people who share certain opinions. That’s not a cult with capes and rituals you know?
So….what next? Only the intellectual upper elite know that only their opinions on the term autism are real and mean anything, especially those who are not actually Neurodiverse? (Maturity and clarity you see?). This being due to a magnificent capacity to construct conceptual structures like this in order to complicatedly wrestle simple things?
Note I used the term assault above? Not argument. You even attack someone’s book.
Assault.
Thank you.
Report comment
Having an option on a book and publishing it is called a review. Its a tradition as old as publishing. Marx did a lot of this, he was scathing about Ricardo and other economists. Mind you, I think Marx was nuerodiverse, like me he has Moody Cow Disorder.
Report comment
They attacked someone’s book as a vehicle to put over their beliefs.
It was not an objective review.
Report comment
The author of that book had been attacking them and misrepresenting their views. It is shown in this article.
Report comment
I appreciate the points of view. Not much was said about the abilities that some of these ādiagnosesā afford. I have just as much āabilitationā as ādisabilityā with a ābipolar 1ā diagnosis. Itās not all suffering, especially when I work on augmenting the benefits. There are good traits and challenging traits. I prefer to focus on whatās within my circle of influence.
Report comment
I thought I’d read that Mae West had said that she liked just two kinds of men – those with muscles and those without muscles, and maybe she did, too, but tonight’s googling informed me that she’d insisted:
“I only like two kinds of men, domestic and imported.”
It’s been said, too, of course, that there are two types of people in this world – those who divide humanity into two types and those who don’t.
But those who don’t may as yet be the “enlightened” few, who may types eschew and mankind view as Socrates did, too, as one great pew, grouped twice, perhaps, in two:
Those within the Cave who have not yet seen the Light?
Those who have been painfully forced or dragged out of the Cave and stagger about, blinded by the Light until they grow accustomed to it?
Those who have then returned to the Cave, heeding our univsrsal urge to help one another as best we know how, but who, now unaccustomed ot the darkness, stagger about as seeming fools, and are considered, as Socrates himself was, a threat to the established order, and persecuted by the authorities, among others?
Those who have returned to the Cave and who have learned to navigate both darkness and light, helping enlighten others, as Socrates’s own invisible daemons perhaps once did him, and as he perhaps now does us?
https://www.ted.com/talks/elizabeth_gilbert_your_elusive_creative_genius?subtitle=en
Them and us?
Good guys and bad guys?
Saints and sinners?
The righteous and the unrighteous?
The sick and the well?
The whole and the broken?
The vile, vicious, wicked evil and the noble virtuous?
The neurotic and the not neurotic at all, at all?
Normal folks and psychos, psychopaths and sociopaths?
Narcissists and those devoid of all ego?
Those with mental illnesses or disorders or personality illnesses or disorders and the, er, totally normal.
The neurodivergent and the neurotypical?
Those on that particular spectrum and those not on that spectrum, or even on any spectrum, at all, at all, at all.
Perhaps the Buddha was so genuinely misunderstood by influential teachers that folk chose to study as Buddhists rather than learning to emerge as buddhas?
Perhaps Jesus was so genuinely misunderstood by such influencers as Saul/Paul and the Emperor Constantine (of the First Council of Nicaea) that folks were persuaded to judge as Christians (or Judeo-Paulines) rather than to awaken as christs?
Perhaps the Hippies’ false dawn of peace and universal love was derailed by sex and drugs?
Perhaps we are all nowadays beginning to see through all sorts of them-and-us-isms and are rapidly learning to turn them into wasms?
Perhaps humankind is like a field of sunflowers which, having witnessed early bloomers, is now about to blossom en masse?
Perhaps the seismic shifts we are seeing on the surface of this planet are mirrored in matters meteorological, political, social, psychic and physical – in humans and in other creatures?
If this is so, and the final stage of a global awakening or evolution to a higher consciousness, to Consciousness, itself, is underway, then perhaps “from each according to her/his ability to each according to her/his needā may soon come to be accepted as such a norm that we may no longer struggle with issues surrounding helping those with actual intellectual/cognitive deficits, be they age-related (the very young or old) or otherwise – simply because doing what is truly in everyone’s best interests becomes so clear and so obvious and so natural for us – all?
Perhaps this may only come about when we no longer see ourselves and one another as mere mortals and realize that we constitute a single embryonic organism, but now, thanks to modern technology, with a primitive notochord, neuro-endocrine system and circulatory system, and the means not just to dampen ancient inflammatory reactions, but to prevent them?
In the meantime, I can only applaud the brilliant and painstaking work of these two authors and thank them most sincerely for their inspiring insights, discipline and dedication.
Tom.
https://www.youtube.com/watch?v=Qyclqo_AV2M
https://www.youtube.com/watch?v=3e8xSISlPJs
Report comment
Well said Tom, well said!
Report comment
Test.
Report comment
Thanks to the authors for these important and necessary essays. Neurodiversity “movement” was an obvious scam from its beginning but it is still surprising how far it came and how extreme its ideas has become. It is not even a halfway coherent ideology, more like a cross between a marketing campaign and a marginal political movement. Its ideologues are mediocre and what they came up with is superficial and childish. Their re-definition of Thomas Szasz as a ‘fascist’ is especially funny. Szasz is a libertarian and libertarianism belongs to the main stream of American politics. he is really an honest and unabashed centrist. chapman and others should study some history and understand that political ideas don’t just show up in people’s heads but they are always based on concrete historical realities. what these ideologues do is the absolute opposite of what an ‘academic’ is supposed to do but still, they all work for famous universities and write on prestigious publications. these are venal opportunists who would do anything to further their own career and earn a little bit of more money. it is almost a shame that other people have to critique them so thoroughly and carefully as the authors of these essays have done. because their “ideas” wouldn’t be taken seriously if they didn’t serve the interest of the ruling class.
Report comment
The definition of scam is: a dishonest plan meant to deceive and defraud people out of their money.
The term Neurodiversity was not invented by any one trying to make a buck, and even the authors of this series acknowledge this. To say neurodiversity āwas an obvious scam from its beginningā is blatantly false.
Furthermore, the authors of this series are not independent researchers or journalists without any self interest. They are people who have worked within the mental healthcare system for many years, and their conclusions thus far, perhaps not so coincidentally, align with their own personal and professional interests.
I am not accusing them of being scammers. But from my perspective as someone who ISNāT part of the mental healthcare system but as someone who was harmed by it, what Iām seeing play out is that those at the top of the system are working mighty hard to maintain the status quo by trying to de-legitimize any threats to their positions as gatekeepers, rather than doing whatever it takes to overhaul the mental healthcare system and make it anywhere close to as effective and safe as it claims.
To those of us who were seriously harmed by the mental healthcare systemās promises, it sure looks a hell of a lot like a scam.
Report comment
Mark, can you conceive of any “overhaul of the mental healthcare system” that might possibly render it acceptable, please?
I for one, cannot – not as long any such system retains the kind of power it now wields as a coercive arm of the state – of any state or states which legitimize the the denial of law-abiding citizens of their every supposed human right, up to and including life, itself – if by “life” one means the free enjoyment of one’s own state/s of consciousness unsullied by forcible drugging with psychotropic neurotoxins – of any heretic daring to defy the state-religion hegemony which coercive psychopharmacology has become.
A core belief of that Cartesian religion is that we think, therefore we are., that we ARE our minds (and not psyches) – our perceptions, thoughts and emotions – that we are not all equal, and that we each have but one, finite human lifetime to live.
With enormous respect and with great gratitude for beautifully expressed and very well reasoned opinions, and with VERY best wishes,
Tom (once detained and drugged for 82 days for holding his opinions).
Report comment
No, I cannot. I used the word overhaul for lack of a more appropriate word.
I’ll be honest with you, when Mad In America first showed up it gave me hope. But after seeing all the experts fight over who gets to be the final authority on which terms and methodologies get used for the benefit of us patients, whilst keeping us all firmly seated at the kids’ table is killing that hope.
Thank you.
Report comment
Mark, in what way do the conclusions of the authors “align with their own personal and professional interests” and “maintain the status quo by trying to de-legitimize any threats to their positions as gatekeepers”?
Report comment
Joanna, you donāt get to be an official part of the mental healthcare system without being fairlvery compliant with it. Since the mental healthcare system has failed so many people so badly, anyone who helps maintain that system bears at least part of the responsibility of those failures.
When billionaires say theyāre working tirelessly to eliminate poverty and homelessness, do you believe them, or laugh at their hubris and lack of self awareness?
This series and other āexpertā criticisms of ADHD, autism and other psychological concepts represented by the term neurodiversity are not meant for the benefit of those of us who need help, itās for their own benefit. Because they have jobs and titles, they are not about to do anything to jeopardize them, just like the billionaires.
Report comment
Mark, thank you for your reply. I understand what you mean, but as PsychSurvivor has pointed out, the authors are actually well-known critics of mainstream psychiatry and of the mental health care system. I don’t think that it is fair to assume that such critics don’t deserve to be taken seriously.
I think that the essays are useful for people who need help, e.g. by pointing out that there is no evidence for the claim that people diagnosed with autism or ADHD are biologically and irredeemably different from other people.
At the same time I disagree with what the authors are saying in part 2 – that “almost no one feels they āfit inā” in today’s societies and that “no one feels accepted”. There are some people who find it much more difficult to fit in and to be accepted compared to others – it is not true that we are all in a similar situation and face similar problems.
Report comment
Hello Joanna. I think the point you raised below is important:
“There are some people who find it much more difficult to fit in and to be accepted compared to others ā it is not true that we are all in a similar situation and face similar problems.”
there are a few different ways to look at this issue. you can say some people are worse off and others are better, some are marginalized and others are accepted. that statement would be ‘true’ in a superficial sense but it would also miss the point. the differences between those two groups are superficial because the rules determining who will belong to which are the same for everyone. and you can go from one to the other whether you want it or not. people who suffer in more obvious and severe ways are not suffering because of their absolute and irreconcilable differences from the rest of society. they are not ‘special’. in today’s society no one really fits in because the basic conditions of daily life are inhuman. some are just more lucky or able to tolerate the intolerable than the others but the reality encompasses everyone. thinking the cause of your pain is your ‘uniqueness’ or your ‘specialness’ is just a fantasy. in our world, no one is special and no one is irreplaceable. I know some fantasies are helpful and necessary which could be the case for any oppressed person. if you are deemed ‘mad’ than it would help you to see some unique virtue in not being sane. but a fantasy has to be abandoned when it becomes a hindrance.
Report comment
Hello Ahmet, thanks a lot for your comment. I find your comments very interesting and thought-provoking, including the one where you wrote that “most people’s daily existence is extremely rigid and standardized” (this is very true in my opinion).
However, I have to tell you that there are really some people who find it much more difficult to “fit in” than others. In my case this is something I have experienced since my childhood. I don’t know anyone else with similar experiences. E.g. at school I was the only girl who did not have any friends. I felt so often rejected by my peers, even at the uni. And there were always some people who were openly hostile.
Both at school and the uni some teachers/lecturers actually pointed out to me that I was different from my peers. One teacher even bizarrely claimed that “there was an aura around me which repulsed other people”. I have not made any friends at school, at the uni or in my workplace. I learnt to expect rejection. Only in recent years I have gained more confidence, but I am now already in my 40s. I find it much easier to talk to people online and this is how I met my only real friend.
I don’t know any other person like me, any other person who is so isolated. I am not mentioning it to complain about my life (I actually feel quite happy), but simply to explain to you that there are people like me, even if there are very few of them.
When you say that “in today’s society no one really fits in because the basic conditions of daily life are inhuman”, I have to disagree with you. There are many people who have real friends and/or who seem to be in happy relationships. And it is not true that we are all struggling in inhuman conditions. In Europe and North America there are quite many people who have decent middle-class jobs and enjoy a high living standard. Class divisions are very real.
I also have to disagree with you when you say that “in our world, no one is special and no one is irreplaceable.” We are irreplaceable to people who truly value us and some of us also have unique knowledge and skills.
I would also add that some people are independent thinkers with a unique perspective. Not everyone is just “another brick in the wall” with a standardized life and standardized thoughts. To take my own example, my life is definitely not about going to work, buying things, indulging a few mind-numbing “pleasures” and occasionally going on holiday. It is about much deeper things.
Report comment
Ahmet, let me also share some thoughts on this quote from Ginny Russell’s book “The Rise of Autism: Risk and Resistance in the Age of Diagnosis”. Russell talked to some “autistic” women and this is how she describes them: most of them were “high-achieving”, “outwardly perceived as successful” and “most of those who gave their relationship status were in long-term relationships.”
I felt quite uneasy while reading this quote. These women – in spite of their “autism” diagnosis – are excellent at “fitting in”, unlike me. Otherwise they would not be so successful and in long-term relationships. Of course they are convinced that they don’t “fit in”, but they don’t understand what it REALLY means “not to fit in”. In my case I am not “outwardly successful” despite having a PhD and my attempts to “be in a relationship” brought me much more pain than joy.
Report comment
āthinking the cause of your pain is your āuniquenessā or your āspecialnessā is just a fantasy.ā
You do not know this. Nobody does. To say you know is just as much a fantasy.
More to the point: it MISSES the point. By a mile. Your basic assumption being that people are saying they are autistic or neurodiverse simply to tickle their egos.
Am I tickling my ego when I say I am colour blind? No, I am identifying a very real disability that prevents me from doing some things and from even having certain jobs.
But in other ways, colour-blindness is not a disability but a strength:
Hidden Talents of the Color Blind: https://youtu.be/9NrmH039ffI?si=tBbkx-Lj0G8ZZjbg
āScientific studies have shown that colourblind humans can break camouflage better as well. There are even reports from the military that colourblind people are especially effective as snipers.ā
Bet you didnāt know that.
This is what people who identify as being neurodiverse are simply trying to do, they are trying to make sense of why they struggle in world that is at best, is less than accommodating to their weaknesses, and at worst outright rejects them.
Itās not about feeling special or unique. Itās about claiming their strengths and finding their place.
Report comment
Mark, I agree with you. I certainly don’t need a fantasy about my “uniqueness” or “specialness” in order to feel better. I am not even saying that I am autistic, neurodiverse or neurodivergent. I just know that since my childhood I have been very often perceived as different from my peers and frequently rejected. And some “friendly” people were pointing out (in a hurtful way) that I was different from my peers. These people noticed something very real.
I know that even my way of talking annoys some people. I know that when someone accepts me as I am, I feel grateful. It’s not true that we are all struggling with similar problems.
Report comment
Hey Joanna.
Hereās a question that nobody is asking: why WOULDNāT humanity have some people who are different enough that they struggle to fit in?
After all, we are a relatively new species that is still evolving, and some of our greatest evolutionary leaps were psychological and cultural. So why all this resistance to the idea that variations in humans continue to pop up? Because it could upset a lot of apple carts?
If only we could ask the Neanderthals what they thought of the weird new kids on the block. š
Report comment
Mark, this is an excellent question. I think that the resistance comes partially from the fact that we are not talking here about a difference which is visible in an obvious way or which can be measured. Such a difference can be easily denied.
Moreover, people who don’t have such a problem may find it very difficult to understand it. As always, people can be completely unaware of the problems faced by a minority. What I keep noticing is that many people assume that everyone is like them, e.g. that everyone has a job, friends or a spouse. Admitting to being “different” in a stigmatized way demands a lot of courage.
Report comment
Mark, I also have to admit that I can’t understand why people who think that “we all find it difficult to fit in” forget about all those individuals who were cruelly singled out and persecuted by their groups or communities only because they were different and alone. Now such people face less hostility, but may be completely isolated in their communities.
Report comment
I also donāt understand it Joanna. Maybe they still think science and/or the mental healthcare system will eventually solve the problem of being human, so they feel confident attacking anything that has the slightest whiff of pseudoscience to it.
But as psychologist Bruce Levine, frequent contributor to MIA, wrote:
ā(George) Carlin was a far better therapist for critical thinkers than are the vast majority of my mental health professional colleagues… I know many mental health professionals who espouse hope but who are broken and compliant with any and all authorities. In contrast, I know anti-authoritarians who, like Carlin, express hopelessness but who are unbroken and resist illegitimate authorities.ā
Report comment
hello joanna; you made a comparison between yourself and some women who identified as “autistic” described in a book. I agree, it is a little ridiculous to think you have a severe disadvantage when you are a successful and well adjusted person, in objective terms. but nevertheless those women probably do feel alienated, awkward and alone despite their accomplishments. how can we say they are wrong to feel so? we might say that their feelings do not match their ‘objective’ reality, which is measured by their societal relationships. if they have a stable job and a family then shouldn’t they feel accepted instead of alienated? at that point, you could reach a few different conclusions; you could say those women are deluded, they feel things which are not real; you could also say they are not actually feeling that way but they are lying to gain sympathy. but you can also take them at their word; but then what is the reason for the incongruence between their lives and emotions? I think any person who are deemed ‘mad’ at some point in their lives can answer that question very clearly; those emotions come from sensing a world which is less visible, less obvious but still real. in fact it is the same world which all the others live in. those emotions which seem like coming out of the ether are actually legitimate for the wider reality of society. even if you are personally wealthy and have a loving family, the wider society is still mostly alienated, cold and vicious.you can’t help but feel that because those rules are ‘universal’. even if you are an exception, in a way the rules still apply. you can only be an exception, as you yourself were described by your teachers and peers as an ‘aberration’. by the rules which determine the fate of every member of the society. it sounds contradictory and weird but this is how things actually are. so those ‘successful’ but somehow still ‘unhappy’ women can count themselves as ‘exceptions’ and you can do the same, maybe with more justification because you probably suffered more. but is that a good way to look at the issue? a marginalized person can see himself as a special case, and in a sense he is special but how? is that person really ‘special’ because he is different and maybe better than the rest despite appearances? but this would just be inverting the way ‘successful’ people see the failures. a marginalized, long suffering and ‘mad’ person is a symbol, a lens and a picture that expresses the reality of society and human life in a warped and dense way; in a language which is hard to decipher because it tries to tell too much in too few words. the apparent differences between a ‘mad’ and ‘sane’ person are on closer inspection show that they belong to the same contradictory whole. the society has deep contradictions, it is in war with itself and that is the reason some people turn on themselves and carry that war into their own souls. every person is both a member and a mirror of the world. no one person is ‘special’ or unique; only the world as a whole is ‘unique’. but if you think about it, that term is not necessary at all and you don’t have to believe that you’re special just to value yourself.
Report comment
Mark, thank you for this truly thought-provoking quote!
Report comment
Ahmet, many thanks for your reply to my comments. Of course there are many people who don’t feel happy in today’s alienated, cold and vicious societies. But there is an objective difference between someone who has a successful career and someone who does not. Or between a person who has a loving partner/spouse and a person who does not.
So many people assume that everyone is like them. As an example, a newspaper article I have recently read claimed that people who have mental health issues should exercise with their friends. Well-intentioned people who write such articles don’t even realize that not everyone has friends with whom s/he could exercise.
A person in a long-term relationship can feel alone, but unless the relationship is unhappy or abusive, the person is objectively in a better situation than someone who wants or wanted to be in such a relationship, but has never experienced it or experienced only abusive or unhappy relationships. People who assume that it is easy to find a partner will never understand those who don’t find it easy.
I think that in general many people – especially people who are privileged in various ways (economically etc.) – tend to take lots of things for granted. They don’t realize that many other people struggle with problems they don’t have and don’t have loving spouses, loyal friends or their own houses with gardens.
The cold, vicious and alienated society is really cruel for those who are poor and isolated. A person with a high income is much more protected from societal cruelty than other people. A person with a loving spouse does not have to struggle alone and can count on his/her spouse’s support.
To return to my personal story, I continue to believe that there is a very real difference between people who are often seen as “aberrations” by others and the rest of the society. Moreover, people who are perceived as “strange”/”abnormal” can be hurt in various ways by the “normal” ones who don’t understand them and often find them pathetic or annoying.
I am not saying that I have suffered more than people who have not so frequently experienced rejection. I am saying that I have experienced something they would find difficult to imagine. And in a sense I actually do feel superior to people who reject those who are different and look down on them.
I don’t have to believe that I am “special”/”unique” to value myself. Ahmet, I value myself mainly for how I treat other people and for my mental strength and resilience. I am only saying – again – that it is not true that we are all in a similar situation.
There are people who *objectively* find it very difficult to fit in. And especially if they are poor and isolated, their situation can be very difficult. A well-off married person with plenty of friends and a great career is objectively extremely privileged compared to such people, even if s/he often feels unhappy.
Report comment
The authors are actually well-known critics of mainstream psychiatry and the current mental health system. As a MH system survivor myself I have found their ideas liberating and more truly supportive of psych service user/survivor rights. What I have read of some the advocates of neurodiversity is manufactured complaints about the authors founded on false representations and personal attacks. I donāt know what it is motivated by as the authors have stressed again and again their support for people with different needs, but they reasonably question where this neurodiversity idea is leading. We are all neurodiverse and should all be treated as such. Proliferating diagnoses and differences between groups is not necessarily liberatory or revolutionary, just because you slap the label Marxist on it.
Report comment
I must restate that I am not taking sides, I am asking questions.
While the authors may indeed have been critics of mainstream psychiatry and the mental healthcare system, they were/are nevertheless still part of it and have had to have been compliant with it to a certain degree to maintain their professional status.
The term neurodiversity began in the community as a grassroots way of helping some members of the community whose needs were not being met by the mainstream mental healthcare system. While the authors have written their report in such a way as to appear to be fair and balanced, I see no evidence theyāve spoken at length to any members of the community that use the term neurodiverse, nor to any therapists who report success using the concept. So far theyāve talked about only one book to represent the community and the concept, a controversial book that apparently uses inflammatory political language. I am not an experienced researcher, so please correct me if I am wrong to think that hardly counts as extensive, balanced research.
In the 20+ years Iāve been aware of the term neurodiversity, until this past month I never once heard it being described as āa scamā, a ātool for the neoliberal status quoā, or any of the other accusations that it is misleading, dangerous or divisive.
Why now? Why all this resistance, and why so suddenly? Is it because mainstream psychiatryās days as the top dog in the mental healthcare system are numbered, and everyone else is manoeuvring to be the next top dog? Is it because a strong grassroots community with their own ideas about mental healthcare are an obstacle to that end?
Like I said, Iām just asking questions because I have little trust in most of the people with letters in front of or after their names who have benefited in any way from the mental healthcare system as it stands now.
Report comment
Hey Mark,
I agree that the authors are working in āthe systemā I donāt agree that makes their opinions and ideas invalid.
But I understand your suspicion.
I do think the authors stated multiple times in this series their support for people with ānon-typicalā experiences and their need for support, recognition etc, but the authors have just questioned whether the label āneurodivergentā is useful or accurate. (Apologies to the authors for any misreading here).
As a psych survivor, I am concerned that neurodiversity advocates reify the diagnosis, whilst Mad activists and survivors have spent decades trying to shake the hold of (arbitrary) diagnoses that create stigma, pessimism and that overshadow the social factors that cause or contribute to psychological struggles – preventing real action to address social change.
It is a live debate I think as we struggle to see how one diagnosis can be desirable and give a kind of status where others are stigmatised and harmful.
Advocates of neurodiversity ideas find the label validating and helpful – I understand this – But I donāt know why we should need any label to feel valued and worthwhile. And where does that leave people without the label? Feeling unvalued? Then you get the disability olympics and it all get silly.
Report comment
PsychSurvivor, I agree with you to a very large extent. I would only add that labels such as “neurodivergent” or “autistic” can mean a lot to people who have been often rejected, mocked, bullied or patronized only because they seem strange or annoying to many “typical” people.
Report comment
Did anyone watch the Olympics last week? What did you think of the skateboarding? Pretty cool new addition eh?
Would you be surprised to hear that many skateboarders were unhappy that our sport became a medal event? Fact is, we were doing just fine without the influence of mainstream entities like judges, coaches and major sports officials, because we were setting our own unwritten rules and building our own DIY ramps and skatespots.
Many of us also worked hard in our communities to lobby our local governments to reverse unjust laws that made skateboarding illegal, and then we pressured our cities to build public skateparks that are free the way baseball diamonds and playgrounds always were.
Once our groundwork set the stage for skateboarding to explode in popularity, the Olympics ā which for years had been losing viewers for their stale old sports ā came calling with hat in hand. But once they grabbed the reins, they predictably stopped asking those of us whose work had gotten the sport that far what we thought.
This is exactly how I feel about the concept of neurodiversity. It was always meant to fill a sorely missing gap in the mental healthcare system and in mainstream attitudes towards people who struggled to get by in society. But when the concept of neurodiversity recently broke through into the mainstream, weāre suddenly seeing push-back, including a lot of nonsense āfake newsā about its supposed and unverified dangers.
So I donāt care whether the authors of this series are supposedly anti-psychiatry. The fact they have written almost nothing here about what the people who identify as neurodiverse think, or what the therapists who counsel or diagnose them think is a huge red flag to me.
Report comment
Mark, authors actually quote “neurodiverse” people in the part 2 https://www.madinamerica.com/2024/07/part-2-are-we-all-neurodivergent-nowadays/ .
Report comment
Hi again Mark, I donāt think anyone is proposing that those who identify as neurodiverse donāt have a right to call themselves what they want or to be fully accepted and supported, or that the sense of community and recognition that comes from the movement is a not a good thing. I donāt think this article denigrates these people in any way. There are plenty of articles that represent the views of neurodiversity and most people read more than one article.
The concept of neurodiversity has been fully embraced by psychiatry and mental health industry which is why people who are critical of the psych industry are asking questions about the wider implications of this. This does not mean that they are criticising people who identify as neurodiverse, they are questioning the industry around it.
As Joanna says, it is important for people who have been put down and abused for who they are to feel good about themselves. But what is the benefit of more children ādiagnosedā as autistic and put on meds while their brains are still forming? When we donāt know the long term effects of those meds and we have no biological test for autism? What if a child gets told theyāre autistic and thinks that is all they are or has reduced options in life because of what people have told them they can and can’t do? As a psych survivor I know how harmful it can be to be given a diagnosis at a young age and told this is your life, only to find out decades later that story was a lie based on dodgy science and that the meds you were taking were causing a lot of your problems.
As a movement for recognition and community, the neurodiversity movement is a great and positive thing – it is wonderful to see people who felt excluded feel proud of who they are (I do community support work and know the positive effect it has had) – but it is the expansion of it into medical and pharmaceutical fields that needs to be questioned in my opinion.
Ps I love your story about skateboarding and the olympics – it is a brilliant analogy for the rights of those outside the mainstream. More power to you!
Report comment
I commend the authors for this intellectually and morally prescient series. I suspect the authors went into this project knowing their thesis would a bit of an unpopular narrative; challenging conventional professional narratives on the one hand, and the cultural narratives of people identifying autistic or neuro-divergent on the other hand? Generally speaking, that seems to me to be one of the better positions from which to make a āsubstantiveā contribution.
Nearly two years ago I heard a long radio podcast with the author of the book “Unmasking Autism”. I only listened to Devin Price because the podcast was dedicated to politics and letters. Prior to the podcast my understanding of autism ran somewhat parallel to the movie Rain Man; which is to say uninformed. But after listening to Devin Price for an hour, I was utterly convinced I was an undiagnosed autistic (at 64!). I was literally in tears after this podcast, for a whole host of reasons, not least of which āsuddenlyā explained why my childhood was such a shit show of abuse and psychiatric betrayal (as I wrote in my own MIA personal story in April of 2021).
After a few weeks of deep processing Dr. Priceās podcast āand bookā, I slowly came around to several (most!) of the insights and critical frameworks the authors of this series so beautifully laid out.
I suspect I couldāve procured an official autistic diagnosis rather easily, and I considered doing so for a couple weeks if for no other reason to see if it was easy and simplistic as I imagined the process to be. The fact that I didnāt āget oneā is beside the point: the emotional flood from a myriad of decontextualized explanations provided by the criteria laid out by Devin Price, save dozens of (his) iffy ancillary attributions, was, I suspect, the very same effect most everyone feels when they are presented with ātheir traits of autism or neurodiversityā.
In the end I decided there was no way in hell that I was going to subject myself to an autism diagnosis from an institution that so recklessly and gratuitously (i.e., self-interest) wracked my childhood with āerroneousā psychiatric labels (diagnosis), save has proven itself to be utterly intellectually and morally obtuse in the half century since! Maybe my ābrainā works slightly differently than the average Joe or Susie? God knows most people have always confounded me, especially the people now referred to as neurotypicals! (though I have loved many and have been loved by plenty of āthe so called neurotypicalsā) Wellā¦ this may be an ideal time and an āideal societyā to be a neurotypical person (as is believed to be independently distinguishable by way of āisolatedā singularities of valuation, etc.). But this too will passā¦like every other power grouping-narrative of people has throughout historyā¦
Report comment
I agree with you completely. it is a rare thing you did, breaking the spell of that story on yourself because that requires looking into your own feelings and criticizing the meanings you derived from them. it is hard to see yourself subject to impersonal, external forces when the whole culture tells everyone they are special. the people who came up with identity politics were very clever because it makes sense emotional sense instead of political sense. it provides a single answer to your past, your personality and your suffering. it is simple and fulfilling like a movie. of course human life is nothing like a movie, in life there are no simple answers to personal questions, everything is complex and overdetermined.
Report comment
ahmet,
I found your comments most intriguing and hope you may be able to elaborate a little, at least, on some or all of them, please?
(Me, I happen to think Life is very like a play or a movie, but a good one, and no doubt viewed by the gods, and by all of us, one day: “What we do in life echoes in eternity…” {Gladiator}; āWhat we do now, echoes in eternityā – Marcus Aurelius; and “We will be known forever by the tracks that we leave,” Dakota; āOnce youāre a parent, youāre the ghost of your childrenās futureā {āInterstellarā}.
https://en.wikipedia.org/wiki/The_gods_(theatrical)#:~:text=The%20gods%20(UK%20English)%2C,such%20as%20the%20upper%20balconies.
https://en.wikipedia.org/wiki/Twelve_Olympians
Very, very numerous Hollywood movies{“Serpico,” based on a true story, is very typical, the hero early on becoming utterly isolated, but so, too, are “The Patriot,” “Gladiator,” “The Lord of the Rings,” and almost all Clint Eastwood’s westerns, in many of which it seems to me that the hero may be a ghost, or a man who, more than ost of us, realizes that eh is an embodied {immortal} ghost…} and other movies, too {“Kesari” is one beauty that springs to mind, “A Little Chaos” another} follow a hero’s, and increasingly, nowadays, heroine’s journey plot which, whether or not inspired by Socrates’s Cave Analogy as told by Plato, mirrors it.
I donāt believe either Plato or Socrates differentiated human beings into any such categories as good and evil, mad and sane or neurodiverse and neurotypical.
I dreamed or read that Socrates said something like
āWho knows what is right will do what is right.ā If he didnāt, perhaps he should have?
I donāt know if he believed we are washed in the River Lethe {as in ālethargicā} between incarnations, so that only the merest traces of our greatest lessons from past lives linger, but I believe he understood that we all seek The Good, and all equally wish to share the fruits of our travails, searches, journeys, labors, understandings and insights with one another.
I doubt Socrates {or Jesus} would disagree with Mary Wollestonecraft Shelley when she wrote:
āNo man chooses evil because it is evil; he only mistakes it for happiness, the good he seeks.ā
I knew a girl who I believe visited Paris the summer after graduating high school. There, in that city of ghosts, she may have begun some kind of abrupt spiritual awakening/emergency, exhausting herself as she visited art gallery after art gallery and museum after museum. Rather than being offered any kind of spiritual counseling, at all, I believe, she was drugged and repeatedly hospitalized over the following thirty years,
Maybe 15-20 years into that “treatment” I once asked her if she believed in “God.”
“I asked Daddy that once,” she replied, “and he said, ‘I don’t know about all that stuff, but one thing I DO know: I was MEANT to meet your mother!'”
Her dad, an exceptionally sweet and humble man and very brilliant man who owned a newspaper and whose employees, I believe, adored him, was smart enough, I assume, to realize that if you changed the trajectory of a single photon in this universe/big bang, then you changed everything…
How he reckoned this was compatible with remaining an Irish Roman Catholic, OR with subjecting his daughter to psychopharmacologists and their drugs I do not know…
One Sunday morning, when her dad, having lost his wife ?a few years previously in a car accident, was getting ready to go out to Mass, he called on his daughter and got no reply. He found that she had hanged herself.
Like in the movies, I believe that absolutely NOTHING in life is gratuitous, ahmet – down to the fall of a small bird, the number of hairs on a human head, the conception of any embryo, the meetings of any lovers.
āAre not two small birds sold for a very small piece of money? And yet not one of the birds falls to the earth without your Father knowing it. God knows how many hairs you have on your head. So do not be afraid. You are more important than many small birds.ā – Jesus of Nazareth, reportedly.
āThe snow falls, each flake in its appropriate spot.ā
Oscar Wilde, I believe, said that everything is about sex except sex, which is about power.
Oddly, in Socrates’s entire Cave analogy, I believe there is no reference to sex or to romance, and yet, and yet, and yet…
I think William Shakespeare would agree with his Hamlet {āThereās a divinity which shapes our ends, Rough-hew them how we willā} that nothing in all human life is gratuitousā¦.and agree that itās like the movies, too:
“All the worldās a stage,
And all the men and women merely players;
They have their exits and their entrances;
And one man in his time plays many parts…” – Jaques, in Shakespeare’s “As You Like It.”
āTomorrow, and tomorrow, and tomorrow,
Creeps in this petty pace from day to day
To the last syllable of recorded time,
And all our yesterdays have lighted fools
The way to dusty death. Out, out, brief candle!
Lifeās but a walking shadow, a poor player
That struts and frets his hour upon the stage
And then is heard no more: it is a tale
Told by an idiot, full of sound and fury,
Signifying nothing.” – Macbeth, in Shakespeare’s “Macbeth.”)
ahmet, I think you have important stuff to explain to us about how we are programmed by our cultures/societies, and I do hope you may do so, please.
Many thanks.
Tom.
Report comment
I was talking more about the typical hollywood flick. In such a movie there is conflict but the source of the conflict is obvious, it is just that the hero of the story needs to make the right decision. everything hinges on one thing. In life all serious problems have multiple roots and you still have to try to solve them but that often creates more problems. blaming all your problems on being “autistic” is a very tempting simplification. the simplification becomes transparent when you try to define the term because it means different things to everyone. this is similar to the way a successful marketing campaign usually works: your need for ‘freedom’ can be satisfied by purchasing a new car. of course in reality, you lack of ‘freedom’ results from your relationships to other people. but that reality is very hard to correct and is likely to generate conflict. and what is ‘freedom’ anyway? it is a word which can mean almost anything; freedom to own the fruits of your labor or the ‘freedom’ to own other people. these sorts of ‘words’ can be used and are used to obfuscate the real roots of many issues. today’s dominant world view dictates that all human beings are ‘special’ which means the roots of their suffering have to be found at some sort of ‘uniqueness’. this is the exact opposite of most people’s daily existence which is extremely rigid and standardized. this world view is a very powerful spell which is constantly reproduced by the whole culture, movies, songs and daily banal interactions.
Report comment
Ahmet, I want to thank you very much and very sincerely for two more superb essays, and to say that I fully agree and fully disagree, and fully hope that from that paradox we may extract a deeper and more meaningful and utilitarian truth – or two.
Can you hold the diametrically competing narrative in your mind for a mom, I wonder, please?
Comfort and joy!
Tom.
Report comment
Dear Kevin Smith,
Thank you!
Both your names, first and last, left and right, intrigue me.
“Welcome, O life! I go to encounter for the millionth time the reality of experience and to forge in the smithy of my soul the uncreated conscience of my race.”
– James Joyce, “A Portrait of the Artist as a Young Man.”
I cannot imagine how your brains (left and right, and forever in flux) could possibly NOT work at the very least slightly differently from the brains of the average Joe or Susie, quite apart from the fact that the average, itself, may not ever exist, much as no one might actually lie bang, dead-centre of the middle of any spectrum, supposed or real, of behavior pattern, temperament, personality or even true, actual, real, organic and objectively verifiable, identifiable and measurable neural (or neurological) disorder.
In my ultra-wise and percipient (yeah, Irish) mother’s eyes, her son Thomas could do no wrong.
(Ultimately, I believe, we none of us can, for we none of us can “spoil some vast, eternal Plan.”
https://youtu.be/RBHZFYpQ6nc?si=WH7DD6o6YzVBdNsT )
Indeed, to my three sisters’ mixed feelings, tongue in cheek or not, Vera/Mom regularly observed that “They are all out of step except my son, Thomas!”
That said, Vera occasionally commented that so and so was “a bit gauche.”
If “gauche” indicates to the left side of a spectrum’s midpoint in a way “sinister” does not, and if Rainman occupied a place or places to that far left, then perhaps you and I have tended to be less to the right of him than most of the general public, and, no doubt, my wise mom knew this, too, but knew better than to…?
However, Kevin,
1. Apart, perhaps, from a possible line between the utterly, lifelong nonverbal and the rest of us, who can attempt to draw any other line through that supposed spectrum, even at a “mid-point?” (But who can fail to celebrate an evolution from “disorder” to “syndrome,” to o spectrum, too?)
2. Was not our (teenaged) Elizabeth right in observing that “The general public was a mistake!”?
3. And that oxygen is a hallucinogen?
4. And in declaring (without frothing at the mouth) on hearing me mouth the term “personality disorder:”
“WHAT?! PersonALity it disorder?! Ya can’t have a personALity disorder! Your personALity – that’s, like, who you ARE! That’s, like. THEE rudest thing – EH-VUR!”?
5. “Lenders, c’est Les autres!”
6. “The only reason we have all come to this planet, taking on human form, is to help other. What the others have come here for, who knows.”
7. Think YOU’RE weird? Please do some research on your Irish namesake, Saint Kevin of Glendalough.
https://holyhermits.com.au/events/holy-hermit-kevin-of-glendalough
https://en.m.wikipedia.org/wiki/Kevin_of_Glendalough
Elsewhere, one reads of his reportedly throwing himself naked into a bed of stinging nettles to punish/purify himself having been distressed by his manly reaction to the fleeting sight of a fair young maiden passing by ..and of his reportedly standing neck deep daily for hours in the frigid waters of the lake as he prayed and did penance for his….humanity, perhaps, and for his fellow creatures, one supposes.
Perhaps we might all be more gauche AND more sinister were it not for the interventions and the pious, pure prayers of that noble, humble Kevin? I actually say this very, very sincerely, by the way.
Respectfully and, no doubt, autistically yours, and with thanks to both Kevin’s and to MIA, Tom.
Report comment
Thank you ahmet! You summed up more succinctly and effectively what I had hoped to convey through my personal experience.
Report comment
Plenty of food for serious thought Tom! And Kudos to the Joyce quote-as comparative, for the world could desperately benefit from more literary references and fewer psychiatric references! And your point about our brains right and left hemispheres being “forever in flux”, is, effectively, the thesis of Iain McGilchrist’s new-and imo brilliant book, “The Matter With Things”. Though I am far from finished reading, I can’t help but wonder if the influence of the brains right hemisphere might either be more developed or otherwise in better or different communication with the left hemisphere of people so called neuro-diverse? (on the premise of an evolutionary paradigm, and not as a socio-political construct measured through scientism)?
As for average Joe and Susie’s brain,, that was a thinly veiled dig that we live in a time of supposed unparalleled individualism, and yet, the mere hint of being one, all but begs a psychiatric or neuro-developmental moniker-however otherwise people seem okay with that!
Report comment
Kevin, thanks a million.
Having listened to Jill scores of times, I believe she is very much mistaken.
You?
https://www.ted.com/talks/jill_bolte_taylor_my_stroke_of_insight?subtitle=en
https://shrinkrapradio.com/147-nirvana-and-the-brain/
Report comment
Mark, or anyone, if you are there, at about Minutes 3-7 of the following, and again about Minute 17, if you have not already, you may enjoy Howard Schubiner’s take first on us and the Neanderthals, and then on the power of love to heal:
https://youtu.be/rYz_ApWYeg0
And, while the emphasis here may be on chronic pain, obviously all Howard speaks of is relevant to āsin,ā or to the notions of āSinfulness,ā and, nowadays āMental Disorder,ā as well as to, as Howard, I believe, points out in ?all his Net interviews, ādepression,ā anxiety, chronic fatigue and insomnia – way more often than not.
Much love
Happy healings!
Tom.
Report comment
Tom, many thanks for the link to this video!
Report comment
Aw, thanks for the thanks, Joanna – you are so much more than welcome!
And thanks for reminding me how fortunate I have been to have been able – mostly while at my (manual) work – to have been able to listen to scores of Howard’s many different interviews over and over and over again!
If you have not already viewed it, too, you may like to hear Howard at Minute 37:59 of this one,
https://www.youtube.com/watch?v=qINdA6E14Sk ,
not so much joke or admit as explain that, actually,
“I mean I often say that I’m basically a faith healer: I get people to belIEVE that they’re not broken! I get people to belIEVE that they’re not damaged, and then they heal – faith healing!”
I believe that this is our future as a species. And I believe that it might be said to be the essence of all “spiritual healing,” and that we can every single one of us do it for one another, to a greater or lesser extent depending on our own states of consciousness, just as every great spiritual teaching has always taught.
I suspect Jesus of Nazareth actually did live, and try to teach and to heal and to suggest that
“Such things you can do, AND greater, too!”
– and that he was right about that – with and without the mri’s!
I see physical and emotional healings (notably of conditions like fibromyalgia) as often being by-products, as it were of coming to “spiritual awakenings,” very much as I believe Carl Jung may well have done:
‘Examples
Jung
A gold-coloured Cetonia aurata
Jung tells the following story as an example of a synchronistic event in his 1960 book Synchronicity:
By way of example, I shall mention an incident from my own observation. A young woman I was treating had, at a critical moment, a dream in which she was given a golden scarab. While she was telling me this dream I sat with my back to the closed window. Suddenly I heard a noise behind me, like a gentle tapping. I turned round and saw a flying insect knocking against the window pane from outside. I opened the window and caught the creature in the air as it flew in. It was the nearest analogy to a golden scarab that one finds in our latitudes, a scarabaeid beetle, the common rose-chafer (Cetonia aurata), which contrary to its usual habits had evidently felt an urge to get into a dark room at this particular moment.
It was an extraordinarily difficult case to treat, and up to the time of the dream little or no progress had been made. I should explain that the main reason for this was my patient’s animus, which was steeped in Cartesian philosophy and clung so rigidly to its own idea of reality that the efforts of three doctorsāI was the thirdāhad not been able to weaken it. Evidently something quite irrational was needed which was beyond my powers to produce. The dream alone was enough to disturb ever so slightly the rationalistic attitude of my patient. But when the “scarab” came flying in through the window in actual fact, her natural being could burst through the armor of her animus possession and the process of transformation could at last begin to move.[58]
After describing some examples, Jung wrote: “When coincidences pile up in this way, one cannot help being impressed by themāfor the greater the number of terms in such a series, or the more unusual its character, the more improbable it becomes.”[12]:ā91ā’
From https://en.wikipedia.org/wiki/Synchronicity
Joanna, you may be said to share the noblest female name with the most anomalous or “neurodivergent” or extraordinary or eccentric woman in recorded human history,
http://www.maidofheaven.com/joanofarc_chesterton_quote.asp
and I thank you again for your graciousness and for those sacrifices which brought you here!
Sincerely,
Tom.
“I am not afraid…I was born to do this!” – Jeanne d’Arc.
Report comment