Tag: outcomes research
A review of the literature demonstrates that coercive practices lack empirical support and violate human rights.
Dear Funder, You say you want to work on health equity but can you walk the talk? Do you care about hearing the actual community? Do you REALLY want data-driven, accurate info to balance harm vs benefit? Or do you just want to keep your status quo? Dear Funder, Don't be fragile. Move beyond your blind spots. Our people matter.
The STAR-D study is by far the largest and most expensive study of antidepressants ever conducted, and it suggests that in real life situations, people taking antidepressants do not do very well. This may be the reason why the results of the main outcome of the STAR-D study have remained buried for so long.
So, at this national conference, Partnership with Patients, I met a bunch of "e-patient advocates," which are civil rights fighters in all the other "medical" areas. One thing I learned at that conference was that there are many "patient" advocacy opportunities. One of them is PCORI, the "Patient" Centered Outcomes Research Institute. This is theoretically an organization that funds research that people with lived experience ask for. However, the problem is that they aren't really talking to our community and we aren't talking to them. So they did this big splashy launch about "mental health as a major focus," and they said what they had figured out that mental health needed was.