Your staff people told my staff people that you want us to “find our fit into the nonprofit ecosystem.” We do have a fit. WE know our role. Have you seen our infographic? We know our role, in the ecosystem. Our role is to bring people data-driven knowledge to balance harm vs benefit. But people are so resistant to doing effective, honest, sensitive, science-based work.
Dear Funder, You say you want to work on health equity but can you walk the talk? Do you care about hearing the actual community? Do you REALLY want people-power, data-driven, knowledge-based, accurate info to balance harm vs benefit? Or do you just want to keep your status quo? So few people even CARE about balancing harm vs. benefit. Here is nice blog on Funder Fragility.
Dear Funder, So many people are idealogues, and dogmatic. They view mental health treatment as 100% beneficial and refuse to examine the science of what works and what doesn’t work. They view this with religious fervor. They refuse to talk to the people we serve, those who have been harmed by the behavioral health system. And by many counts, it is over half of the people out there. If you look at NNT vs. NNH studies, Long Term Outcome studies, and public views studies, we are speaking for at least HALF of the people who experience the behavioral health sector.
Dear Funder, The people that are harmed, over half of people with behavioral health labels, they need different services, supports, and advocacy than people that benefit from the existing “treatments.” We know our role — why can you not see that it is a valid role? When we speak for over HALF of people who experience behavioral health treatment?
Dear Funder, Why do you force us to collaborate with NAMI or MHA or our local mental health center? Why should we put ourselves underneath someone else who only tells one side of the story? You know how hard it is to collaborate when there is no “mission alignment”? Why would we want to mix our accurate story with their inaccurate facts and science? Why should their “one side of their story” be better than our “both sides of the story”? When you refuse to look at medical harm, you are just like a gambling addict — you are only willing to look at the wins.
Where do YOU fit in the ecosystem? Clearly in Box #2. Clearly. And you’re not even interested in hearing the rest of the story. Or are you? Do you really want to help people with behavioral health issues?
- How about you book another phone meeting? There have been so many one-and-dones, “yeah, we heard you out, now go away.” Follow up your phone call with a meeting invite, a consultation payment, an invite to the rest of your project.
- How about you do some science-based community engagement?
- How about you attend some medical-harm-aware conferences? iNAPs, ISEPP, Alternatives, Health 2.0, Stanford MedX, PeerPocalyse, HealthFuturism, NYAPRS, are just a tiny list to start with. We are presenting at the Colorado Shared Risk and Protective Factor conference.
- How about you learn about what the recovery movement is, does, and why we are important?
- How about you learn why disease model advocates are DIFFERENT than medical-harm-aware advocates?
- How about you confront your own dogma and ideology?
- How about you acknowledge that you don’t even know what you don’t know?
- How about you acknowledge the reality of medical harm?
- How about you look at long-term outcomes studies and overall system level effectiveness studies?
Please balance harm vs. benefit, don’t keep covering your ears and eyes and trying to pretend that HALF of your constituents do not exist.
Dear Funder, Don’t be fragile. Move beyond your blind spots. When we tell our story, it matters. Don’t keep pushing this situation under the rug. Don’t use personal attacks against me to discredit my words. Don’t use my angry tone to discredit me — how about “I’ll be more polite when you stop killing my friends.” It’s time to respect the facts. It’s time to honor people who devote their lives to telling the truth. Look at the science and data and outcomes in behavioral health. Don’t let the disease mongers keep pulling the wool over your eyes. Get WOKE. Get WOKE!
Mad in America hosts blogs by a diverse group of writers. These posts are designed to serve as a public forum for a discussion—broadly speaking—of psychiatry and its treatments. The opinions expressed are the writers’ own.