If not every week, then very often, we receive requests from people not living in Sweden asking if it would be possible to come to the Family Care Foundation and take part in our shared work. Every time it feels hard to answer that it might be very difficult because of distance, language and money, while also knowing there are so very few alternatives to the “medical model” all around.
I often day-dream that I have a list of different places in different countries where it was obvious that the main task for the organization and everyone involved was to meet those we call clients and their families in a relational and dialogical way, where it was NOT important at all to define people in terms of diagnosis and where it was NO big deal to support people to get off medication. Where the big deal was about something else: to try to create a safe place and to make sense of experiences and to try to share the very hard things with each other.
When we started the Family Care Foundation more than 25 years ago we had lack of both professional experience and professional knowledge, but we did it anyway, since we just could not accept things the way they were. We just could not accept that young people, as they grew older were defined as “chronic patients,” and that they were told that the only way to deal with their “schizophrenia” or some other “psychosis” was to take medication and accept being patients in the system.
Maybe the lack of professional knowledge and experience was good, since we had to face things when they occurred. We had not so many predetermined ideas about either ourselves, the family homes or those we call clients and their families. We had to trust in something else; in the relationships and in each one of us. We had to do something; action became important, but also trying to “be there” with the other one. As time passed we could very much sense that the presence and the participation were essential. Not only for the one called client, but also for the family home and the professionals. We experienced that “being there” was important for all of us, and we also realized by practice the importance of recognition. It made each of us feel a bit less lonely.
In many places all over there is not this kind of knowledge and experience which seems to be most important today; rather the opposite. Maybe it is therefore that our organization seems to engage and make so many people wish to come and take part in our shared work. I don’t know for sure, but I do believe it is something very important articulated in many people´s desire and wish to be met as a human being amongst other human beings, far beyond diagnosis and medication, beyond the very individualistic and if I may say “technical” idea about what it means to be a human, with all the beauty and complexity which goes into it.
We are often asked to tell about our work and about experiences, and each time it feels important, and maybe so far it is the best thing to do. To try to engage others to dare to start something like our organization and to inspire others to believe in knowledge which has existed for thousands of years, the importance of being present and participating.
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Interview with Carina Håkansson