Blogs

Essays by a diverse group of writers, in the United States and abroad, engaged in rethinking psychiatry. (The directory of personal stories can be found here, and initiatives here).

Tipping the Scales in Favor of Collaboration

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In caring for patients with mental illness or distress as a naturopathic physician, I am either indirectly or directly working with the conventional (allopathic)...

What is #toppmote2015 and Why Does it Matter?

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Toppmøte is Norwegian for ‘summit,’ and Toppmøte2015 is the second of two very successful seminars bringing together professionals, academics, and policymakers with citizens, voters and users of services – under the aegis of the Norwegian ‘Nasjonalt senter for erfaringskompetanse innen psykisk helse’ or “National Centre for Knowledge through Experience in Mental Health.” That’s a rather wonderful organisation, funded by the Norwegian government, which ensures that the experience of people who have used mental health services is reflected in the commissioning, design, management and evaluation of those services.

Justina Pelletier: The Debate Continues

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On April 1, 2014, Slate published an online article titled Mitochondrial Disease or Medical Child Abuse?  The article tries to explore the central question in Justina's case:  does she have mitochondrial disease or is she a victim of medical child abuse?

Why “Stabilizing” People is Entirely the Wrong Idea

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If human beings were meant to be entirely stable entities, then “stabilizing” them would be an entirely good thing; a target for mental health treatment that all could agree on. But it’s way more complex than that: healthy humans are constantly moving and changing. They have a complex mix of stability and instability that is hard to pin down. All this relates to one of my favorite subjects, the intersection of creativity and madness.

Hypermodern Hyperactives

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ADHD (or “Attention Deficit Disorder” - with or without Hyperactivity) is not among the “cutting-edge pathologies” of contemporary clinical practice, such as the addictions, eating disorders, narcissistic disorders, chronic fatigue syndrome, or fibromyalgia; however, in my view ADHD is paradigmatic of the contemporary ethos that some have described as hypermodernity. The advocates of ADHD explain to us that a hyperactive child with an attention disorder is a disturbed and often disturbing child, who does not comply with the adults’ rule, often has his own idea of development, and whose problems, unless they are treated, threaten to undermine his autonomy and self-esteem; the two supreme values of the hypermodern society.

How Competing in the Olympics is Like Mental Health Recovery

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I competed in the 1996 Olympics in Judo. I also achieved complete mental health recovery from 12 psychiatric diagnoses and 29 psychiatric medication. I've also now mostly recovered from a traumatic brain injury, which probably was exacerbated by a lifetime of contact sports, ten years of psych meds before I learned about mental health recovery, and seven shock treatments, that are totally ineffective at promoting mental health recovery.

On “Schizophrenia”

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The first time I heard someone labeled schizophrenic I was about 10 years old. A man was talking to himself and appeared to be house-less and perhaps on drugs. My mom, a very good teacher and explainer of things to me, said, “That man is schizophrenic. That means he can't tell the difference between what's inside of himself and what's outside.” In retrospect this seems like a relatively sophisticated and sensitive explanation; Falling in love, hearing music that enters our heart, having children/giving birth, connecting powerfully with another person in a meeting of the minds, feeling empathy, deeply caring about something, experiencing oneness with nature, are all examples of times when the line between inner and outer reality is blurred.

I Got a Break from Reality for Christmas!

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The more we worry about the separation from reality, the more scared we get and the more separated we get. This month I found out about another trap. When you can see the beauty and spirituality and mystery and magic of what is going on, it's tempting to do things to make it last longer and help yourself get further into it, like skip sleep or skip meals or use drugs. I had to fight those temptations often through this month, and still am, to be honest, because there is so much of this process that was not just scary, but glorious and giganticly interdimensional and impactful.

Launching Our Peer Respite Initiative

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This week we launched PeerRespite.net, a website dedicated to information and resources regarding peer respites in the U.S. As part of the initiative, recruitment is open for the 2015 Peer Respites Essential Features Survey.

It Gets Better!

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A little more than 10 years ago, when I was 29 and 2 weeks away from turning 30, I was a patient in the psychiatric system here in Copenhagen. I am a pharmacist and I specialized in neurochemistry and psychotropics throughout my studies. While I was working in the labs at The Royal Danish School of Pharmacy I was intent on getting a job as a medicinal chemist at Lundbeck – the Danish pharmaceutical company behind Celexa and Lexapro and in their own words the only company specializing solely in developing drugs for the treatment of neurological and psychiatric disorders. We were taught that psychiatric disorders were diseases just like diabetes and hypotension.

Lost in Medication

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Making even basic chemicals was beyond us for millennia. But once the process was cracked, discoveries and inventions came thick and fast. Making chemicals that could be used to treat diseases was beyond us for even longer but the pace of discovery began to pick up in the middle of the nineteenth century. The realization of what needed to be done to give a chemical a chance of becoming a medicine led to the hunt for a Magic Bullet.

Changing the World and Other Extreme Sports

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By Dani, Director at Afiya For anyone who’s unfamiliar, Afiya is the first peer-run respite in Massachusetts and it is one of only about 18 in the country. It’s no surprise, then, that people are confused about how we do things. But, it’s not just confusion. I’ve come to realize there is actual defensiveness that arises at times when we talk about what we do at the house. If I’m wearing my activist hat, this can be supremely annoying.

The Successful Creation of a Societal Delusion . . . and the Increase in...

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Ever since the revised edition of DSM III was published in 1987, the psychiatric establishment in the United States -- i.e., the American Psychiatric...

Against All Odds

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Telling people emphatically how much I am suffering at times, asking for reassurance that my dear ones love and care about me and sense my purpose, may make me unpopular with some who pride themselves on being “more together,” yet it also fosters the intimacy, closeness and trust I feel with so many. And because of it, I don't need to ask myself if anyone will care if I die. I can experience that reassurance while I'm alive, if I have the humility to ask for it, and keep asking until my soul is met with other souls who genuinely care. That experience humbles me greatly and somehow makes all of my brokenness feel like love and open heartedness.

On Creative Maladjustment and Rethinking Psychiatry

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On this day January 16 2012, we commemorate the life and work of Dr. Martin Luther King, Jr.  and as such, many thoughts are...

Why I am Going to the APA Protest in NYC on May 4, 2014

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I am one of the few lucky ones to have survived this long after being forcibly locked up in four different mental institutions over 50 years ago. I feel a responsibility to the memory of those who died and to the millions around the world who are still subjected to the inhumane, torturous "treatments" of the mental health system. With a heavy heart and fire in my voice and spirit, this is what I plan to say on May 4.

Mentally Ill or Conflict Repressed? Is Conflict a Lost Art?

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It seems I like to see people argue, or, if not to see it to read it, to be privy to it. I get off on argument; I grew up with it. I also avoid it at all costs. Yet, there is something about abuse, meanness and violent language that has always drawn me in. It could be simply because it’s familiar to me, like to many of us; it is so prevalent.

Is Psychiatry the Tea Party of Medical Science?

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When I as a European follow American politics I can’t help being amazed by the  - I believe a polite expression would be – colorful personalities in the Tea Party and how they manage to continue to be a powerful part of American politics despite making claims that as I see them reported are easily debunked. American politics does not affect me directly but when I compare psychiatry as a part of the medical science to the Tea Party there are some striking similarities.

What You Can Do TODAY About Managed Care

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Some other bloggers have been talking about managed care, and I wanted to share some action points for all of us. There are many...

Principled and Loving Support: The Greatest Gift We Can Give 

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"D" had attempted suicide a few days ago and remained in the hospital due to medical complications from the suicide attempt. I listened. I told D how much I cared and was ready to come and get D if that was what D wanted, and D could live in my guest bedroom for as long as D wanted. It’s been a few days since I made that offer – an offer I have never before made to anyone. I have clarified for myself the intent of my offer. I will soon share my intent with D, and writing this now is my effort to clarify my intentions

We Shall Overcome: Remembering Pete Seeger

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A great American passed away the other day. Ordinarily, I never indulge in such chauvinism, but how else can you describe Pete Seeger? Who else has contributed as much to the country’s emotional and spiritual well-being?

Psychiatric Survivor Entrepreneurs

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Many psychiatric survivors have created a gift economy of sorts in offering peer support, and this is by no means to criticize those offering their best guidance freely to those who desperately need it. In fact, the gift economy saved my life when it was threatened by psychiatric drugs. Yet, my entrepreneurial spirit, as chaotic and unsophisticated as it has been at times, has played a huge role in saving me from being a chronic mental patient with a chronic identity of “sick” or “failure” or “other”.

Life Lessons and Trauma Informed Care

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My first real introduction to the world of madness and “mental illness” was when I was 21 years old and I left home to start my mental health nurse training. Reflecting on my own experiences has led me to consider how the trauma of participating in the psychiatric system can affect the way we care for others.

So You Say You Want a Revolution?

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It's commonplace to hear that we need a big change—a revolution, if you will—to make "the system" recovery-oriented, to replace the tired old over-emphasis on a biological model and to replace it with a new more hopeful standard of care.  I know—I have used all these catchwords myself for the past several years.

Keynote Speech at Alternatives 2012 Conference: Remembering Our History, Thinking About our Future

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This is a transcript of my keynote speech at Alternatives 2012, which a Madness Radio listener recently transcribed.