Personal Stories

How long would I have to be off meds and stay safe and out of the hospital before my story would mean something to you and the advocates for chemical interventions?

After working in the field, I have found that the majority of people in the mental health system are not getting adequate care like I received during my first psychotic episode. I was lucky enough to have a doctor who took a nontraditional approach to schizophrenia and worked with me on coming off of medications.

I may be psychotic but I am not the next headline in the news. I am thoughtful and questioning. I am different and unique, but I am not violent and my life will never be anyone's tragedy. Would you like to stand with me?

Forty years after I had first been admitted to the hospital, I was ready to confront my past. So, I sent for my hospital records, and I read them. As an experienced clinician, I recognized immediately what the doctors hadn’t been able to see in 1960: my problem wasn’t ‘schizophrenia’ but PTSD, connected with incest.

 If I ever lose my mind again, I hope that psychiatrists in charge of my care will grant me but one wish. Please do not force me to take drugs that fill me full of fear.

Rape is to Love what Bombs are to Peace and what Behavioral Eugenics are to Mental Health. So I choose noncompliance with psychiatric force.

I’d like you to get to know me as you read this.  I think I have an important personal story to tell.  Frankly, I...

After suffering PTSD in the late 1980s, I reluctantly accepted antidepressants. In time, I had resolved the trauma, but when I tried to stop the antidepressants (Prozac, and later Zoloft), I assumed my desperate feelings and “return” of depression were an indication I had an imbalance and needed those drugs. I didn’t understand I was experiencing withdrawal. (I was never told that for most people, psychiatric medications need to be tapered.)

I am a former Lieutenant in the US Navy, and on August 30, I sent a letter to the US Senate and House Committees on Armed Services, and their respective committees on Veterans' Affairs. I titled the letter "Concerning Mental Health Treatment and Suicide in the United States Armed Forces and the Veteran Community." Here is what I wrote:

After a few weeks it became clear to me the complete lack of comprehension that I faced as a person claiming to have been cured of psychosis. Being a schizophrenic claiming to no longer suffer from schizophrenia only made me seem more schizophrenic due to the current culture of psychiatry.

I watched my son’s life change almost overnight. He developed akathisia from antidepressants, taken as prescribed for just a few weeks for garden-variety anxiety.

I recalled a brief intercourse with a lady two months earlier that went something like this: “Why don’t you want to take medication?” to which I replied, “Because I think psychiatry is a sham.” Needless to say, my response hastily resulted in a temporary though adequately lengthy loss of my autonomy.

I wanted to spare you, my son, from suffering like I did. I wanted to give you every opportunity I could. You have grown into a good man, a caring and successful man, yet you still have to fear for your life in this country. You still feel pain when you see what is happening.

We were caught in a tug of war. They wanted my voices gone. I was not going to let go of my voices, my confidants and protectors, regardless of what they did to me. We have the right to hear voices and no longer be hidden away in the attic of taboo and misunderstood experiences. The freedom to hear voices is truly a fundamental human right.

When the nurses tried to give him other medications, my father refused. They accused him of being “combative” and “uncooperative,” and they injected him with the highly toxic, incredibly dangerous, mind-bending antipsychotic HALDOL.

The pandemic lockdown last year afforded me a precious gift of time to explore my creative spirit, and that, in turn, gave me a powerful way to cope.

Here and now, I am Ativan-free and slowly tapering off Wellbutrin after 25+ years. Unable to work due to the severity of iatrogenic injury, I sometimes think of myself as a healing journeywoman. When the terrain is especially rough, I reflect on the words: "The best revenge is living a happy, healthy life." When circumstances and symptoms permit, I’m doing just that.

I am an award-winning singer/songwriter with a number one record to my credit. I also owned several small businesses and founded a 501c3 non-profit for women's health. I ate healthy, swam and cycled every day and had a very active lifestyle. This was before benzos came into my life.

I believe there's no harm in giving meds a try—it worked for me. Just be aware that they can only do so much. The rest of the journey requires some navigation and self-direction.

Watching my son be subjected to continuous harm by the drugs, how can I pretend that it's okay to maintain this abusive system of care? Who will push for accountability? As a mother, I want to share a meaningful connection with my son. I want to witness him happy, healthy and living the life he chooses.

At my job with a NAMI affiliate, I heard daily from people who looked at family members with “mental illness” as non-people, non-human, the “other.” In the office, it was no different. If NAMI had a tagline, it would be “Please be normal like us.”

I was diagnosed with schizophrenia when I was just nineteen. I am forty-three now, and I have recovered – and I use the term...

For weeks I had been trying to get released from the psychiatric ward, and none of my arguments, compliance, or attempted air of normality had made an impression on the barely-visible ward psychiatrist. I had, I was told, made a very serious suicide attempt and this was a predictor of future attempts. They would let me know when they thought I was sufficiently remorseful and stabilized to be released.

James and I started talking about how we each fell on the path as seekers. He told me that he was a reiki master. A seed was planted within me. Even though my previous meditation practice did not work out, I still had spiritual longings and wanted to try again.

Flying from Anchorage to Cleveland while suffering from life-threatening akathisia was going to be a constant push-pull between the urge to freak out and maintaining my body and psyche so as not to scare the other passengers.