Personal Stories

Asking the psychiatrist to discontinue medication was one of our bravest moments. It went against everything doctors had told us over the past twelve months—against Rebecka’s regular psychiatrist’s vehement opposition (“You can come back when it doesn’t work.”). It went against what we heard repeatedly in the media and in pop culture. It went against what we saw in the advertisements during the evening news. And it was the turning point in Rebecka’s journey toward optimal mental health.

The problem with being a consumer is that we get consumed. I’ve been the bacon at far too many mental health picnics. Someone’s salary gets paid, someone’s program gets funded, someone’s career gets enhanced, someone gets accolades for being so altruistic and such a great savior — and me, what do I get? Exposed, laid bare, and isolated.

I survived not because I received excellent care from the staff on the ward. On the contrary, the treatment was objectifying and cold. It’s not surprising that many end up in suicide behind locked doors. I survived because I felt, however fleetingly, my experiences mirrored by others.

To be a parent of a suicidal child is to be in a terrible position, where you hold in your hands the life most valuable to you and know that any slip of your hands may end that life. In the 1970s, my suicidality was treated nonmedically and I lived. In the 2000s, my daughter Martha’s suicidality was treated medically and she died.

In inpatient eating disorders care, we were required to step on the scale but were not allowed to know what we weighed. We were told it was “against recovery” to know our weight; that knowing it would surely cause a devastating relapse.

I still believe I was Anne Frank in my past life, and nothing is wrong with such a belief. I am no longer Buddha, though, because they crashed my spiritual awakening when it was happening. But I go on. I deserve to be happy. I have a family to think of, I want to contribute to society on some level. I want to live. They won’t crash me. Or so I hope.

I began to have transient moments where I would feel oddly disconnected from my environment or wake up and feel like I was coming out of my skin. I did not know it at the time, but I was experiencing interdose benzodiazepine withdrawal and it would end up leading me down a path of polypharmacy.

I am a psychiatric survivor of over thirty-six years. Since my nervous breakdown in 1978, I have undergone multitudinous experiences ranging from the subtly humiliating to the horrifically debilitating at the hands of incompetent psychiatrists and psychopharmacologists who, in the name of medicine, did more harm than good.

We were caught in a tug of war. They wanted my voices gone. I was not going to let go of my voices, my confidants and protectors, regardless of what they did to me. We have the right to hear voices and no longer be hidden away in the attic of taboo and misunderstood experiences. The freedom to hear voices is truly a fundamental human right.

When the psychiatrist prescribed me Zoloft, he did not warn me that it could cause a manic episode. So my second hospitalization was a disaster. A mental hospital is like a deranged dystopian high school. The upstairs was chaotic, dangerous, and violent. Sometimes people were yelling and throwing things. But these weren’t the most harmful moments.

I've never been so proud of such a display of civil disobedience. These heretofore robots, pumped with power sedatives, still possessed human emotions and had, overnight, found a voice to express their discontent. The riots would continue for several more nights and the ward became a chaotic jungle.

In 1994, my nineteen-year old daughter, Cristina, was diagnosed with chronic myelogenous leukemia (CML). It was a diagnosis that came totally out of the blue and as a complete shock. Soon after she was diagnosed, it became clear that I wasn’t going to be able to sleep because of the tremendous stress, so I asked the very kind doctor who diagnosed Cristina if he could give me a prescription for something that would help me sleep. He agreed, and so began my “relationship” with Xanax. I had never taken anything like that before and didn’t know anything about it. All I knew was that as my daughter’s primary caregiver, I needed sleep in order to fight to keep her alive.

Many have asked: “Why doesn’t my doctor/provider know what is happening to me?” Benzodiazepine tolerance and withdrawal are not new. So, why isn’t it simple to diagnose and treat? As both a health care provider and a withdrawal sufferer, I’d like to offer an inside and outside perspective on this question.

My life flashed before my eyes as my entire medical history over the last decade was rewritten from having a genetic brain disease to being a victim of a medical scam. It was bittersweet, for I realized that I was not sick and dying, but I had been robbed of so many years of my life due to the psychiatrist’s lies. Now I am suing my former psychiatrist for damages.

I am so thankful that my brain healed from the damage caused by psychiatric medications. Most importantly, finding my purpose in life and living an authentic life helped to ground me and prevent further psychosis. Psychosis is the psyche’s cry for transformation and healing. When one listens to the call, one is brought from darkness to light.

And so I embarked on the darkest journey of my life, one for which neither I nor my husband were prepared. I soon found out that there was no one who could help us. The psychiatrists, even the more sympathetic ones, were not making sense to me. I was coming from the business world and I was not used to accepting superficial answers. They could not tell me what was wrong with Helia and why this had happened to her. They could not answer my challenging questions about the scientific research in the field.

The minute you sit down in the chair in a mental health professional's office, you’re no longer seen as a person. The mental health system is incapable of seeing past the solid wall of your current label. Their only cure is drugs. "First Do No Harm" are powerful words. It’s unfortunate they don’t apply to psychiatry.

Only two hours after we got home, Dan fearlessly told me of the suicide plan that he'd devised while in the hospital. He had all that time to think about it while nobody was listening. He'd lost his dignity, his identity and his place in society. He had lost the will to live.

I believe now that fifteen years is more than a fair try. Fifteen years of getting treatment without returning to function is actually insanity. I should have given up after year two. Instead of trusting my intuition and insight, I pushed it down and down... until it finally fought its way back to the surface.

Six months ago, I was just starting in a position called "Treatment Team Coordinator" at a secure residential treatment facility. In my home state,...

Somehow, something I had said in this “secret” Facebook group had been made known. And now, at almost midnight, a cop was banging at the door of the lady who had been keeping me safe in a secret place. How did a “secret” Facebook conversation bring the cops to an address I didn’t have to perform a suicide prevention “welfare check”? Here’s what their “safe” meant to my safety.

If the drugs I am prescribed did not benefit me overall, believe me, I would no more take them willingly than I would swallow rat poison. I went through many attempts to wean myself, but invariably the loss of my ability to do art brought me to the place where I went back on them. I remain on them and I want to remain on them.

Dating someone when you have a history of “schizophrenia” is very hard. I figured that if people left me for something as common as depression, anyone hearing my story of psychosis would give me an immediate boot. My initial efforts were awkward and lacked discretion — into each date I’d burst, willing to commit for an eternity with unconditional love.

I lost almost four years of my life, and I’ve not a doubt that it was due to those “life-saving” pills. To that end, they did work. At a time when I was doubled-over with depression, those four prescriptions kept me alive. But then they killed me slowly and brought me back as a stranger.

This is not how the mental health system should treat "psychotic" people. Mental health providers should treat them with compassion, empathy, respect, love and understanding. With a circle of loving and understanding people surrounding a person in crisis, I have no doubt that most "psychosis" would normalize in time.