“My Sister Made Her End-of-life Wishes Clear. Then Dementia Took Hold”


For STAT, Judith Graham tells the story of her sister who had always strongly opposed aggressive life-sustaining measures for herself until she developed dementia. “It seemed she had entered a different dimension of human experience — the world of dementia, where a different set of rules applied. But how were those of us who lived outside that dimension supposed to follow her? How were we to know what she was really feeling, what she really wanted, in her altered state?”

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