A global movement is calling for a change to the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), the American Psychiatric Association’s approach to assessing and diagnosing mental disorders. A new publication from the International Journal for the Advancement of Counseling reviews the emerging efforts to challenge and replace the DSM-5 framework.
Researchers led by Krista Malott specifically point to the critical limitations of DSM-5 and its diagnostic medical model. In particular, the DSM has faced increasing criticism due to its apparent insensitivity to cultural context and norms and its alleged ties to the pharmaceutical industry.
“Mental health counseling is a profoundly political experience. As asserted by the self-described decolonizing therapist, Mullan: ‘We cannot heal drinking from a poisoned river’… A multitude of stakeholders across the globe, from scholars, to practitioners, to clients receiving mental health services, are fighting to redress that poison. In spite of these efforts, the current DSM system remains entrenched, reifying the status quo and, as a consequence, failing and at times harming clientele.”
Scholars, mental health practitioners, and clients are among those calling for a system more grounded in patients’ perspectives, as current diagnostic labels are perceived to sometimes marginalize or misrepresent those diagnosed. In addition, critics argue that these labels can mask the impact of societal injustices and personal experiences, often pathologizing the individuals’ reactions to their circumstances.
Alternatives to the DSM that are more culturally affirming and less pathologizing are being explored, backed by a decolonial, intersectional epistemic framework. Despite some acknowledgment of the DSM’s utility in providing relief through diagnosis and facilitating communication between professionals, the call for a more ethical, contextual, and culturally sensitive system is gaining momentum.
First, the medical diagnostic categories may be framed as objective to assess an individual’s mental illness through the medical framework; they are, in fact, subjective to cultural norms and hence have questionable reliability and validity. Malott furthers this point by referring to an open letter written by stakeholders critiquing the medical model:
“Despite billions of dollars of research investment … psychiatric diagnoses are plagued by problems of reliability, validity, prognostic value and comorbidity. Significantly, diagnostic categories do not consistently predict response to medication or other interventions.”
Second, the framework of DSM-5’s diagnostic model tends to put a stigmatizing label on clients. Doing so disregards the clients’ and counselors’ unique experiences and healing methodologies. Authors argue that the current model undermines the contextual and socio-environmental cause of individuals’ distress and mislabels them as problematic. Authors quote fellow scholars Johnston and Rosenthal:
“The most damaging effect diagnostic labels is to obscure people’s personal meanings, conceal their stories, and sever the link between their distress and circumstances of their lives … This, in essence, is pathologizing -the assumption that because individuals exhibit certain sets of symptoms, they are themselves disordered.”
Further, because Western psychiatrists and medical professionals established DSM-V, this effect can particularly damage marginalized groups. Professionals of color have applied decolonizing concepts to mental health, urging the sector to understand the links between societal trauma and mental distress. They propose a shift away from Eurocentric norms towards approaches that resonate with the cultural contexts of patients. This has prompted calls for the DSM to be replaced with more humanistic, client-centered support.
As cultures and norms that differ from Western customs often become pathologized, authors highlight the need for decolonization in the mental health field. That is, diversifying the understanding of symptoms and treatments so that it is appropriate for each client with unique backgrounds and circumstances. Malott explains:
“A decolonizing lens strives to decenter the dominant, or Eurocentric, status quo that underlies the current mental health system (…), to relinquish power over the client and helping process, pluralize methodologies, redress injustice, and honor clients’ multiple and complex ways of being (…). Such an approach suggests, as one option, the replacement of the diagnostic system entirely and, potentially, shifts in mental health services as they are currently known to offer more humanistic and client-centered support. In this way, mental health practices would ultimately be placed ‘back in the hands of communities’ for whom we serve—the global majority.”
Lastly, the authors question the possibility of corruption with the system of DSM-5 as a significant majority of the contributors to the DSM-5 were closely tied to the pharmaceutical industry. Similarly, as insurance companies, too, only allow coverage when there has been a diagnosis, it appears this model is used to benefit businesses more than clients.
Amidst these limitations, authors call for incorporating a multiculturally-affirming framework that validates the client’s unique background, experiences, and coping strategies while alleviating the damage of labeling and stigmatizing the client. Three levels of change are suggested to achieve this.
First-order models are closely aligned with current diagnostic practices and include the International Classification of Diseases (ICD) by the World Health Organization (WHO) and the Hierarchical Taxonomy of Psychopathology (HiTOP). Both are comprehensive categorization systems for physical and mental illnesses, addressing significant shortcomings of the DSM (Diagnostic and Statistical Manual of Mental Disorders), like considering cultural influences on psychopathology and moving from discrete categories to a dimensional approach. However, despite their improvements, they continue to align with a primarily biological and medicalized perspective of mental health.
Second-order models challenge the medical model perspective, focusing on a more contextual, client-centered, and relational approach to diagnosis and treatment. Often born from dissatisfaction with the current diagnostic system, these approaches prioritize client voice and collaboration in the healing process. Examples include the Partners for Change Outcome System (PCOMS) and the International Hearing Voices Movement, which aim to honor the client’s voice, normalize experiences like voice-hearing, and advocate for egalitarian counselor-client relationships. Another alternative is the Informed Consent Model for transgender health, which abandons the pathologizing’ gender dysphoria’ diagnosis in favor of collaborative decision-making and support.
Lastly, third-order change models, such as contextual and decolonizing models, deviate widely from current practices by emphasizing addressing broader contextual issues, like power and oppression, which cause client distress.
The authors explain:
“A decolonizing approach recognizes the profound ways that colonialism and imperialism have shaped the world’s history (…). Although colonization in a traditional sense has ended, its impact are still seen today in the U.S. in contemporary issues such as redlining (and related, ongoing segregation), racial and intergenerational trauma, poverty, homelessness, police violence targeting Black Americans, and BIPOC populations experiencing internalized hatred and a sense of disconnection from their culture and traditions (…). Such imperialistic practices contribute to the worsening mental health condition for minoritized individuals and communities.”
Frameworks that explore the roots of distress in relation to historical and current oppression would protect clients from pathologizing their experience and can foster a client-counselor relationship that collaboratively identifies a coping strategy fitting for that client’s unique individual, familial and social background.
This seems particularly important as culturally normative traits are pathologized when it does not fit the western-norm. For example, high levels of interdependence, cherished in collectivist cultures, can be diagnosed and stigmatized as a dependent personality disorder.
This multidimensional shift calls for systemic changes in counselor education, counseling practices, and the operations of governing bodies. Starting with counselor education, scholars are advocating for curricular changes to foster a more critical analysis of the prevailing DSM system. In addition, they argue for educating future counselors on culturally appropriate and non-diagnostic alternatives that address the systemic impacts of colonization, racism, and oppression on people’s mental health.
Within counseling practices, there is a strong push to make organizations more welcoming to marginalized groups and to replace the traditional medical and expert model with one that recognizes the unique cultural experiences of clients. Advocates argue for creating spaces that honor clients’ cultural forms of healing and expression and for counselors to engage in personal and professional work to serve their clients better.
On a broader scale, this movement demands systemic and political actions, like decoupling mental health payment from diagnostic labeling to make services more accessible. They also call for the development of alternate models of help that don’t rely on diagnosis but focus on culturally appropriate assistance, with client input at the forefront.
Promoting scholarship in this area and ensuring public access to research findings is critical to this movement. Advocates argue that leading mental health organizations must be at the forefront of these changes, providing resources and lobbying for policy changes.
The advocates contend that this global shift towards a more decolonized, culturally affirming approach to mental health counseling will lead to more effective and socially just practices. It also recognizes that mental health counseling is deeply political, acknowledging that the existing DSM system often fails clients, especially those marginalized by the current power structure. However, with the amplification of clients’ voices and the growing calls for social justice and decolonization, change seems to be underway, and progress is in sight.
Malott, K.M., Barraclough, S. & Yee, T. Towards Decolonizing Diagnosis: a Critical Review and Suggested Alternatives. Int J Adv Counselling 45, 1–17 (2023). https://doi.org/10.1007/s10447-022-09501-0 (Link)
Even if the DSM were thrown out, you’re still left with a group of self-serving people stupid enough to think others aren’t smart enough to learn how help themselves. So why not bypass the “system” entirely?
“Normalize voice hearing”.
Who is the “normalizer’?
I am a voice hearer and it is a source of suffering to me. My suffering is not for anyone but me to “normalize”…if I choose to.
Nor is my suffering for anyone but me to “pathologize”.
The external “normalizer expert” is the coin flipside of the external “pathologizer expert”. It is the same “judge coming the healer”. I do not need any of that. I am my own expert judge and healer.
Both of these “external healer expert in you” paradigms dont have a great track record of ever listening to the actual words coming out of my mouth…to me.
The “expert normalizer” will say…
“Gosh you need help to stop you being quite so you, here let me give you a lecture on how you ought to transform your attitude”.
The “expert pathologizer” says…
“Gosh you need help to stop you being quite so you, here let me give you polypharmacy to transform your attitude”.
I am won over by neither.
Here is a better phrase…
“Folks should leave other folks alone to be who they choose to be”.
Ah, but that bins…
“experts in you”.
Expertize often masquerades as “for your own good”, that healer trope. And here it comes in through the revolving door as “the expert normalizer” of you.
Normality is indeed great. But as soon as your normal requires an “expert lecturer” in your normal, it often soon becomes insistently “their normal”, bullyingly superimposed on your rapturous countenance, like the entranced beatific gaze of a cripple throwing away a stretcher in an evangelical miraculous healing tour. Your normal does not need anyone’s miracle.
For every book that spouts miracle cures comes later chapters that demonize cripples who do not want cured or who are happy finding their own path to their own normal.
It is when any paradigms turn zealously into castigating those who do not want those paradigmal cures that “normal” becomes a vast rolled out “blueprint” that has nothing to do with your own sense of what makes “you” feel “your normal”.
Instead the latest take on blueprint normal starts to become “a lesson” preached.
And soon you are rounded up for wanting your normal to be Catholic.
Take back the language psychiatry has stolen:
Say uneasy, apprehensive or fearful instead of “anxiety”.
Say sad, despondent or grief-stricken instead of “depression”.
Say difficult person instead of “personality disorder”.
Say fluid, fluctuating or temperamental instead of “bipolar”?
Say altered state instead of “schizophrenia”.
Say well-being instead of “mental health”.
So glad you concur!
Say overwhelmed, deeply affected, or shocked instead of “traumatized”.
More thoughts on de-medicalization:
Say distraught instead of “anxiety”.
Say downhearted, discouraged or despairing instead of “depressed”.
Say changeable, unpredictable or vacillating instead of “bipolar”.
Say habitual instead of “obsessive”
Say devastated instead of ” traumatized”.
Say peace of mind instead of “mental health”.
Say worried, fretful, tense, on edge, nervous, jumpy, ill at ease instead of “anxiety disorder”.
You can say you’re justifiably disgusted, not depressed.
That’s a good one, Someone Else. Or perhaps even reasonably distressed or logically mournful.
“It also recognizes that mental health counseling is deeply political…”
Could someone please explain what “political” means in this context? It’s used a lot in this context, but I can’t find any good explanations. Thank you.
I believe it refers to the dynamic between those with power and those without power.
Thank you very much, Livingpast27.
That “mental health” counseling is political at all is exactly why it needs to be scrapped. But that will never happen from within, because those in power do not welcome losing it.
“A decolonizing lens strives to decenter the dominant, or Eurocentric, status quo…”
The mental health system isn’t just Eurocentric, it’s egocentric, meaning no matter what changes are made, the “therapist” will still be the one calling the shots.
Having over one thousand hallucinations every year, for decades, is not like an altered state, it is a tragedy. A disregard of tragedy is unnecessary.
That said, if someone only has one or two hallucinations per year and gets given a diagnosis that they feel is not useful to them then that too is a tragedy.
And if someone has a hundred hallucinations per year and does not feel that their diagnosis is useful to them, then that too is a tragedy.
And if someone gets given bad treatment that makes them sick then that is a separate added tragedy.
For some though, they might prefer their diagnosis, if they are getting over a thousand hallucinations per year, rather than think such nightmarish occurances are their “own normal” or are believably “real” monsters. Feeling ill all day for years is often not an individual’s own idea of their own normal and is often not an altered state as in an LSD brief high. When a father tries to drown his kids in a river because he thinks they are safer being away from the aliens that he has believed in for decades he is not merely in an altered state.
A child abuser who thinks their little boy is an adult up for grabs is not in an altered state. For the sake of children we need to be clear that depravity is not about an altered state. And for the sake of the very ill we need to be clear that it may not be about being in a altered state. Someone with deep sea diving bends may seem in an altered state but you do not shrug and leave them lying there. Someone with carbon monoxide poisoning may be in an altered state but you do not leave them lying there. Someone with a stroke may be in an altered state but a bystander will recognize that emergency for what it is and call an ambulance.
I do understand that in the effort to protect the maligned there is a need to describe the maligned as actually okay and not suffering from anything. This is a way to counter “expertize” that has given harmful treatment to the innocent. But in constructing any new paradigm there needs to be a tandem way of actually “listening” to those who still feel very ill, regardless of whether any “expert” is externally judging them or not.
The temptation in any new paradigm, that takes over from a pathologizing paradigm, is to say…
“Shut up and be normal”.
When America invaded Afghanistan it did its own shiny version of saying…
“Shut up and be normal”.
It did not stay “tragedy compassionate”.
In trying to clean up the mess of an old paradigm you can fail to ask all “individuals” what they feel is needed by them as “individuals specifically”. Instead a bystander’s conscience can “get rid of” the need for offering any “individually” tailored support whatsoever. Which is what some would say the DSM V did when it invaded as a shiny new paradigm. It too had a version of…
“Shut up and be normal”.
The main bugaboo is not really over the battle to describe what is deemed normal or is not deemed normal, the bugaboo is about a need to start “listening to individuals”.
The DSM is a book of false identities written by people whose false identity depends on people who identify with psychiatry’s book of false identities.
On YouTube: “The Prison of Narcissism”, from Eckhart Tolle
I like you Birdsong.
As I said before, I must leave now.
Why thank you, Diaphanous Weeping. I like you too. And please come back soon.
I sure wish I had had something like Mad In America when Psychiatry barged into my life in 1989.
They do “barge” into people’s lives, don’t they? “Live and let live” should be taught to all the so called “mental health” workers. But the importance of telling the truth should also be taught to the “mental health” workers, too.
And I do agree, MiA is providing much needed light, on very dark … and formerly secretive … industries. Plus it is healing to get one’s legitimate disgust at the scientific fraud and systemic crimes of the psych “professions” out, via writing.
I think the worst things about the DSM5 changes were taking this disclaimer out of the “bipolar” definition, “Note: Manic-like episodes that are clearly caused by somatic antidepressant treatment (e.g., medication, electroconvulsive therapy, light therapy) should not count toward a diagnosis of Bipolar I Disorder.” And I have no doubt, the psychiatrists did that in 2013, to say FU to Whitaker’s 2010 “Anatomy of an Epidemic.”
But given the fact that over 80% of the DSM stigmatized, are child abuse survivors. Not being able to actually bill to help child abuse and rape survivors honestly, really should be allowed by the DSM.
Not to mention, all DSMs neglecting to mention anticholinergic toxidrome and NIDS is a huge problem, with all the DSMs.
What is excluded from the DSMs, as it turns out, is perhaps even more important than any of the psychiatrists’ assumed to be true, but “invalid,” DSM disorder theories.
Interesting article, and I was pleased to see it mentioning the Power Threat Meaning Framework. Slightly irritated that – in common with many others – they don’t seem to have registered that it was co-authored with survivors (not just ‘psychologists in consultation with….’) and that they seem to assume the PTMF is intended only/mainly for professional use. In fact, depending on how far you want to push the arguments, the PTMF principles raise the question of the very existence of ‘mental health’ professionals and ‘mental health’ systems in the first place – and we are particularly pleased that some peer groups have found it useful without any professional input at all.
Interesting article: ” Exploring the Value of Peer Support for Mental Health”, by Nicola Davis, PhD, from Psychiatry Advisor
Interesting video: “The Freedom of Being Nobody” – Ram Dass, from After Skool by Ram Dass