The Persecution of Heretics
Behind the apparent Biblical Authority of the Clinical Trial Literature in medicine lies an Inquisitional-like apparatus run by company PR agencies and agencies whose job it is to manage the perception of science - linking in academics - aimed at silencing dissent and ensuring that prescribing doctors continue to prescribe. It focusses most clearly on anyone who suggests that a brand-name drug might have significant adverse events.
The Problems of Non-Consensual Reality
In a couple of weeks, I may see some of you at the MIA Film Festival. I am honored to be on a panel called “Re-Thinking Psychiatry” with two esteemed colleagues. In advance of the festival, I decided to write about what has been most central in my own “re-thinking”: my basic understanding of psychosis - when a person does not share consensual reality. It has been a fundamental re-think: how do we define it? how do we understand it? when do we intervene? how do we intervene?
Not Another Brick in The Wall
When searching for answers related to mental health, at times it can feel as if one is looking for a door in a brick wall. The task can become even more difficult when a family or individual embraces a diagnosis that seems to define one’s identity permanently.
It Gets Better: Neuropsych Doctor Confirms Psych Drug Iatrogenesis, PTSD, Brain Injury
To those who are still suffering, it gets better. Indeed, I do not consider myself ill anymore. I consider myself HEALING, which is a vibrant state of movement and change. My limitations do not mean that I am sick. Learning to make boundaries for my well-being has been one of the healthiest things I’ve learned to do. Deeply respecting the needs of this body/temple is one of the most wonderful achievements of WELLNESS.
Global Warming and the Mad Movement: Can You Help?
Everyone and every group working for mental health justice ought to make fighting global warming a priority right now. Of course, the whole disability movement, and in fact all sentient beings should be concerned about climate crisis, but those of us working for human rights and more choices for mental wellness have special reasons to make this planetary catastrophe a unifying theme for all of us.
Pharma-funded Research
Racism refers to prejudice or discrimination against another person, or group, based solely on race or skin color. But medical journals that insist on independent statistical analyses of pharma-conducted research are basing this policy decision on the fact that, in a compellingly large proportion of cases in the past, the statistical analyses of pharma-funded research was flawed. And, by an extraordinary coincidence, was always flawed in a direction favorable to the company.
How to Spread the News, Part 2
One of the suggestions in the comments from my last post has really got my imagination going. Chaya Grossberg suggested that we can all edit Wikipedia entries. I went in and got surprised at how easy this was. Then I checked the hit rates on Wikipedia to see how big an impact this could have, and I was totally amazed.
Detecting the True ‘Culture’ of Indian Health Service Mental Health Programs
I worked as an IHS psychologist from 2000 to 2004 and personally witnessed disturbing practices all around me at that time. I’ll likely hark back to encounters with those IHS dysfunctions from time to time on this blog, but I want to make an important point right away with respect to understanding at least some of them: Follow the money.
Turning Distress into Joy, Part IV: Gratitude
John Foppes had been born with no arms, among a number of other serious congenital abnormalities. Doctors questioned whether he would survive at all. In his deeply motivating book, “What’s Your Excuse? Making the Most Out of What You Have,” John describes his life of growing up with no arms into one of full independence, and his feelings of stigmatization and isolation even in the midst of support from others. In the depths of his struggle, John also notes evident gratitude in what most perceived as a very unfair situation.
Doctor Munchausen: Hear no, See no – What?
Doctors in the 1950s and 1960s made psychiatric diagnoses on orphaned children that led to treatment with antipsychotic drugs, and one of the drivers of this seemed to be that the Church got more money from the State as a result. The doctors, of course, also got paid. This feels like a seriously corrupt nexus operating with near impunity on the basis that no one is going to be bothered to investigate the fate of some orphans.
Our Movement Needs an Alternative to the “Alternatives” Conference
A few weeks ago I saw for the first time the powerful movie “12 Years A Slave,” based on the memoir by Solomon Northup, a free black man in the 1840’s who was kidnapped and sold into slavery. It is a hard film to experience. But as I watched the scenes of unending brutality and humiliation, somehow I felt calm and almost comforted. I identified with the men and women who were treated as animals and property, to be abused and tortured just as I was as a child. But I knew that eventually the atrocity in the movie ended, and slavery was abolished.
Why “Stabilizing” People is Entirely the Wrong Idea
If human beings were meant to be entirely stable entities, then “stabilizing” them would be an entirely good thing; a target for mental health treatment that all could agree on. But it’s way more complex than that: healthy humans are constantly moving and changing. They have a complex mix of stability and instability that is hard to pin down. All this relates to one of my favorite subjects, the intersection of creativity and madness.
Psychosis and Dissociation, Part 2: On Diagnosis, and Beyond
Recently I wrote an article on MIA entitled Trauma, Psychosis, and Dissociation. Several people responded privately with some very thought-provoking questions that I would like to explore and possibly answer to some extent here. Dedicated readers of the MIA website are all too familiar with the myriad problems that exist with diagnoses in general, the stereotypical (and often untrue) assumptions associated with these various categories, and their lack of scientific validity or reliability. First, though, I want to state that my area of experience and research is with trauma, psychosis, and dissociation . . .
Second Generation Neuroleptics and Acute Kidney Injury in Older Adults
There is this enormous reluctance among psychiatrists, even those who clearly have begun to see the light, to take a clear, unambiguous stand against harmful interventions. So often, they settle for the old face-saving caveat – "use caution." But how can one use caution in prescribing a drug for an age group in which it has been shown to lack effectiveness and has a very high incidence of serious adverse effects? Surely the cautious approach would be not to use these drugs at all, especially since it's virtually impossible to predict which individuals will suffer adverse outcomes, including death.
WHOMHP!
An Imaginary Conversation Between a World Health Organization Mental Health Provider and an Indigenous Scientist
How Can We Spread the News?
Ever since I read Mad in America and later Anatomy of an Epidemic by Robert Whitaker, I have been wondering how to spread this knowledge to the masses and how to do this in a way that will make a difference to as many people as possible.
Social Justice and the Benzodiazepine Death Camp
Anne Hull and Dana Priest, of the Washington Post, received a Pulitzer prize for breaking the story of the horrid conditions at Walter Reed Army Medical Center where men were “afloat on a river of painkillers and antipsychotic drugs” Each morning, they were expected to rise at dawn for formation, though most of them were snowed under by benzodiazepines, opiates, alcohol – anything that would push Iraq and the pain away. A year later I too would be snowed under and would fight an invisible war of my own. It wasn’t until months later, deep in withdrawal tolerance that I realized my slide into disability was caused by the drugs.
Pierce v. Pemiscot Hospital: Federal Judge Takes a Psychiatric Inmate’s Rights Seriously
On June 13, 2014, United States District Court Judge Carol E. Jackson issued a Memorandum and Order decision holding that a former psychiatric inmate was allowed to bring federal civil rights claims under 42 U.S.C. §1983 against hospital personnel when the hospital continued to hold her against her will after authorization had expired. In her Memorandum and Order decision, Judge Jackson took Ms. Pierce's rights seriously and, reading through it, one gets a sense that the court was offended by the cavalier attitude of hospital personnel towards their patients' rights. It is clear that if the Court's ruling is upheld, it can result in dramatic improvement in the way people are treated in Missouri psychiatric hospitals.
Turning Distress into Joy, Part III: Helping Others
Research on volunteering has long found that those who help others have better physical health and psychological adjustment. And it’s not just that healthy individuals seek out ways to help others more; it is that in helping others that we reap the benefits of better well-being, too. Not only do we feel better but, for youth especially, there is a decrease in risk-taking behaviors, and more prosocial actions, especially with those outside of their family. But why is this the case?
Who Is Isaiah Rider???
Our children are not safe. Not because of terrorists, but because it is becoming dangerous to advocate for their medical care without fear of losing them. A new charge, "Medical Child Abuse,” is now used by hospitals to remove inconvenient parents from the role of advocating for their children.
From Burning Man to Bellevue Hospital
Every year around this time my thoughts turn to my friends participating in Burning Man. Burning Man is founded on these 10 principles. Stories I have heard over the years have often made me wonder when and how society condones public displays of madness. Stories from burners have often reminded me of some of my own emotional crises, and I wonder about expeditioning to places where what would be called madness by a psychiatrist may be completely normal, acceptable, and encouraged.
The Law’s Flaw
Tom Burns, M.D., Psychiatrist and Professor of Social Psychiatry at Oxford, recently said of Assisted Outpatient Treatment (AOT) that “compulsion added to otherwise decent care makes no difference.” This was no easy conclusion for Burns, who for twenty years “argued ardently” for Community Treatment Orders (CTO’s), which are described as the British version of California’s newly passed AOT laws. "I worked for more than 20 years to get the CTO law passed," he said. "I thought such laws were going to make a difference, but they don't."
Dr. Pies Still Spinning
Racially motivated invective and abuse are directed against people purely and simply on the basis of their skin color. Anti-psychiatry invective and abuse, however, are based on the activities of psychiatrists. For the past several decades, psychiatrists have been telling their clients, and the general public, and journalists, that virtually all significant problems of thinking, feeling, and/or behaving are caused by chemical imbalances in the brain. They have stated clearly and unambiguously that these putative imbalances constitute "real illnesses, just like diabetes," and that the imbalances are corrected by psychiatric drugs. So when we mental illness "deniers" point out that the various problems of thinking, feeling, and/or behaving listed in the DSM are not real illnesses, we are actually using the term illness in the same sense as is entailed in psychiatry's scandalously deceptive assertion.
Patient Centred-Care Doesn’t Go Far Enough: We Need Patient-Perspective Care
A growing appreciation of the importance of involving people in their own health care has seen the development of initiatives such as “patient-centred care.” Patient-centred care has been defined as “providing care that is respectful of and responsive to individual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions.” While this definition seems reasonable enough, it appears to be very difficult to translate into practice; particularly in the area of mental health.
Creating Alternatives to the Medical Model
Last year I visited the United States on a Winston Churchill Travelling Fellowship to explore ‘alternative routes to mental health recovery’ and to visit a range of peer-led, alternatives to the medical model, with the aim of using the knowledge gained to help develop alternatives in the UK. Looking back, all the organisations and services I visited came about because groups of people in the US decided they wanted something different to conventional mental health services, and then decided to work to make that dream a reality.