Recovery/Empowerment

About a year ago, my partner Ron Coleman said to me "let's have a recovery camp." I said "what’s one of those?" and he said "I'm not sure, but let's invent it." And so, from June 7^th to 12^th 2015, we created a community of recovery for a week. The next step is to create communities of recovery around the world — not just as temporary camps, but long-lasting oases within our communities.

For too long we have considered mental well-being to be about the five, ten, fifteen, or twenty percent of us that gets a psychiatric label each year. But really, if you look around at out world for a moment, you can easily see that to be alive, to be human, to exist, one must have support and healing. Festivals like this one give a glimpse of what the world can be like and I recommend this experience for envisioning a future mental health system or any futuristic vision of change.

Much of what we term “madness” is, in fact, the awakening of the "Self" to its own Wholeness/Divinity. We are born totally pure. Throughout our lives we are subject to projections, flung at us from a multitude of directions: from Mom and Dad, from schools, religious institutions, the media, and the medical model. We are all buried, to some degree, under projections, and interesting symptoms emerge: nightmares, stress and anxiety, fear, flashbacks, and so on. These are not "Madness," but symptoms of health; of a "Self" attempting to break free from lies.

The Western Mass Recovery Learning Community (along with the five other RLCs across the state of Massachusetts) remains in jeopardy of a 50% slash to our budget that would go into effect July 1, 2015 should it come to pass. As noted in my previous post (Peer Supports Under Siege), the proposed reduction was introduced by Governor Charlie Baker in early March. However, there are many hoops to jump through and so we’ll remain in budget limbo for some time to come while the House and Senate draw up their own recommendations and then everyone comes together to make a final call.

Soteria-Alaska, a program modeled after the highly effective Soteria developed in the 1970s by the late Loren Mosher, M.D., opened its doors in 2009. It is also impossible to convey the actual simplicity which in fact is the crowning jewel of the Soteria approach. A conservative review of the effectiveness of the Soteria approach revealed that it is at least as effective as traditional hospital-based treatment — without the use of antipsychotic medication as the primary treatment. Considering that people treated in the conventional way die on average 25 years younger than the general population, this is a substantial finding.

 

We need all of our voices to come together to challenge that sort of power in order to have any sort of hope at all. To the best of my knowledge, the majority of people who hang around these ‘Mad in America’ parts are particularly interested in prioritizing, promoting, and creating access to (true) alternatives, including those built upon peer-to-peer supports. But, whenever one of us falls, it becomes that much easier to knock the next one down. We need more examples to point to, not less; more places to reference and say, “If they can do it, why can’t we?”; more places to call upon and say, “If you don’t believe us, how about them… or them… or them?”

As I have various discussions about mental health and disability on the internet, I am disturbed at how many people continue to use the terms “high functioning” and “low functioning” when referring to people with psychiatric or other disabilities. I have heard people refer to their family members as “low functioning.” I have seen these terms used by advocates to bully and discredit other advocates who critique calls for increased levels of involuntary treatment as “high functioning” individuals who don’t know what they’re talking about.

This is the first of a series of excerpts from Cracked Open, a book whose unintentional beginning came after I became addicted to Ativan in 2010. After a year of following my doctor’s orders for daily use to treat insomnia, my body began to fall apart. My story is much like the stories I’ve read on MIA.

Robert Whitaker extended one of his core arguments from Anatomy of an Epidemic in a blog post last week. His argument revolves around the claim that psychiatric drugs are the principal cause of increasing psychiatric disability, as measured by U.S. social security disability claims. But does this really explain the rise in recipients of these SSI & SSDI benefits?

I have had doubts about the current medication oriented approach to psychiatry for some time. I clearly see that medications can help some folks ease their burden and support a process of recovery. Sadly, far too often medications create problems and even limit recovery. Perhaps the greatest drawback of psychiatric medications is that we lose sight that we have to do more: more assessment, more treatment, more education, more encouragement. Medication currently forms the central and pivotal focus of psychiatric hospitalization in this country. This needs to change.

-"I could not have written those six words 30 years ago, when panic episodes, anxiety disorders and Tourette's syndrome clouded my view," writes Jonathan Friesen.

One of the most amazing activist campaigns I have been involved in during my 40 years of protest for human rights in the mental health system, was the effort to stop the involuntary electroshock of Ray Sandford of Minnesota. Ray reached MindFreedom in the Fall of 2008, and an international human rights campaign began for him.

Many of us spend a lifetime avoiding our emotional pain, and it does become more and more toxic as long as we keep it buried. It will literally make us ill, physically and mentally, as Bessel Van talks about in the book, The Body Keeps Score. The little quip, "What you resist, persists" has proven very true in my life. The only way out of that trap is to stop avoiding and learn in whatever way makes sense to us as individuals to feel once again and to embrace and absorb and therefore transform the pain of our lives. This is how I am healing.

-A radio show from inside a Buenos Aires psychiatric hospital.

Fifteen years ago this month we were sitting together in the basement of Peter’s house. We had felt a sense of despair at the widespread misinformation and atrocious stereotypes that were dominating media coverage of mental health at the time. We felt that our profession had a responsibility to challenge these stereotypes, and that as psychologists we had something unique to contribute. That was the time when research into the psychology of psychosis was beginning to burgeon, and many of our findings challenged not only the stereotypes but – perhaps more significantly - much ‘accepted wisdom’ within mental health services as well.

PsyBlog reviews a recent study that found people who feel depressed are more effective and efficient than others at certain types of activities. "The researchers...

In my last two posts, Back in the Dark House Again: The Recurrent Nature of Clinical Depression and Am I Having a Breakdown or Breakthrough? Further Reflections on a Depressive Relapse, I have shared my recent relapse into depression. Although it has been tough, when I wake up each morning I am grateful for one thing — I am not suicidal. Others are not as fortunate.

In my previous blog, “Back in the Dark House Again: The Recurrent Nature of Clinical Depression,” I reported on my recent relapse into depression that began this summer. As I have comtemplated the seriousness of my episode, the question has arisen, “Am I having a nervous breakdown?” Although I couldn't see it, there was a reason for hope — for a breakdown can be a precursor to a breakthrough.

Eighteen years ago, in the fall of 1996, I plunged into a major depression that almost killed me. Over the next eighteen years I took what I had learned in my healing and put together a mental health recovery program which I taught through my books, support groups and long distance telephone coaching. In the process, I counseled many people who were in the same desperate straights that I had been in. I shared with them what I had learned through my ordeal---that if you set the intention to heal, reach out for support, and use a combination of mutually supportive therapies to treat your symptoms, you will make it through this. And in the cases where people used these strategies and hung there, they eventually were able, like myself, to emerge from the hell of depression.

With less than three weeks to go before the start of Alternatives 2014, I feel inspired to write about why the Alternatives conference is important to the c/s/x movement for social justice and why we at the National Mental Health Consumers’ Self-Help Clearinghouse feel honored to organize this year’s conference.

Recently I wrote an article on MIA entitled Trauma, Psychosis, and Dissociation. Several people responded privately with some very thought-provoking questions that I would like to explore and possibly answer to some extent here. Dedicated readers of the MIA website are all too familiar with the myriad problems that exist with diagnoses in general, the stereotypical (and often untrue) assumptions associated with these various categories, and their lack of scientific validity or reliability. First, though, I want to state that my area of experience and research is with trauma, psychosis, and dissociation . . .

Daniel Helman had a psychotic episode at age 20, but has been off all psychiatric medications since 2006 and is now 44. In Schizophrenia...

I am a very optimistic psychologist, but with reason. For 25 years I've been working with people who have had psychological problems in every conceivable area. Many psychologists have problems with burnout, especially early in their careers. For me, this has been very different. By using the treatment techniques that I do, I feel anti-burned out. It is so gratifying to see people get out of their serious problems, that I look forward to every day of clinical work.

The first time I tried to write about peer support—that emerging form of “service delivery” in which one person in recovery from what is described in the field as a “serious mental illness” offers support to another person who is in distress or struggling with a mental health condition—was in 1994. The manuscript was summarily rejected from an academic journal as representing what one of the reviewers described as “unsubstantiated rot.” That same article was eventually published 5 years later, and used by the President’s New Freedom Commission on Mental Health to support its recommendation that peer supports be implemented across the country. Now, more than a decade later and as peer support arrives at something of a crossroads, both of these reactions remain instructive.