Tuesday, February 7, 2023

Tag: mental health advocates

Tell PCORI What Research Funding We Really Need

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So, at this national conference, Partnership with Patients, I met a bunch of "e-patient advocates," which are civil rights fighters in all the other "medical" areas. One thing I learned at that conference was that there are many "patient" advocacy opportunities. One of them is PCORI, the "Patient" Centered Outcomes Research Institute. This is theoretically an organization that funds research that people with lived experience ask for. However, the problem is that they aren't really talking to our community and we aren't talking to them. So they did this big splashy launch about "mental health as a major focus," and they said what they had figured out that mental health needed was.

Five Types of Mental Health Advocates

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I've figured out there are five types of mental health advocates. We need to respect all five types of motivations and viewpoints in order to support or combat their agendas. The question for us, is how can we each of us maximize our own impact to share awareness of this situation and then impact change? The answer is that each of us has to work from our own passions and interests and talents and skills and motivations.

Are You Committed to Eliminating Labels and Medications With Emotional Distress?

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I am committed. Fully committed to creating a solution. Are you with me? I think medications and labels for people experiencing emotional distress should be almost entirely eliminated, and should not be applied first, for everyone and forever, to people experiencing extreme states. Our current mental health system is a permanent solution to a temporary problem. We need mental health exit ramps, we need human ways to help each other in crisis and through adversity, we need compassion and love and friendship in times of struggle. We need each other.

How You and I Can Take Back Translational Medicine – THIS...

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I've been hearing about translational medicine for a long time and wondering what it was. For the most part, it's a huge subsidy to...

The “I Am Not The Butcher” Speech

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On Thursday I had an interaction with a psychologist where I basically said, "I am not sure I want to attend a workshop you...