Tag: assertive outpatient treatment
Sometimes I am crazy and sometimes I need help, but that help must not be forced upon me. I need to direct my own care; I need to be listened to. ACT is a method of social control that has more to do with saving money than assisting those in need. Money is saved by turning patients' homes into hospitals.
The proponents of compulsory outpatient treatment claim that it leads to better outcomes for the recipients, and protects society from violent acts by the "seriously mentally ill." Those claims are belied by history, science, and a critical review of the relevant research.
At my AOT hearing, in response to a question about whether I had had any problems with substance use, my counselor said that there had been “an incident with a candle.” There has never been an incident with a candle, but now it is enshrined in my permanent record, so vague and so general that it could mean anything.
There is indeed a crisis in the mental health business. The crisis derives from psychiatry's spurious and self-serving premise that all significant problems of thinking, feeling, and/or behaving are brain illnesses that are correctable by psychiatric drugs.
The Boston Globe paints a picture (in the vivid way that they so love to do) that pins the system’s decline primarily on budgetary issues, but there is more than one way for a system to be ‘broken.’ In fact, where the Globe goes most wrong in their latest piece, ‘Community Care,’ is in their failure to adequately recognize that the system has always been broken in one way or another in this country.
Organized psychiatry, committed irrevocably and wholeheartedly to drug pushing and to their corrupt and corrupting relationship with pharma, simply will not countenance the fact that their primary product is fundamentally flawed and destructive. So they hire a PR company; they fund and lobby politicians; they parrot slogans; and they encourage one another to ever-increasing heights of self-congratulation. But they will not commission a definitive study to clarify and assess the scale of this problem once and for all. And the reason for this inaction is because they know that it would be bad for business. It would "cause a lot of people to stop taking their medications."
There is an ever-narrowing bandwidth of behavior that supports the dominant narrative in our culture today. We all need to act a certain way to protect the foundational beliefs of our time – that “science” has it all figured out, that rules keep us safe, and that it’s us vs. them (insert germs, terrorists, pests, and other “enemies”). But what are the consequences of this? What is this sadness and where does it go if we bandage our consciousness with business, medication, substances, or general avoidance of our real human experience?
The media is now reporting details about the 18-year-old who shot and killed nine and wounded many others before killing himself on July 22 in Munich. My clinical and forensic experience leads to a distinction among people who murder under the influence of psychiatric drugs. Those who kill only one or two people, or close family members, often have little or no history of mental disturbance and violent tendencies. The drug itself seems like the sole cause of the violent outburst. On the other hand, most of those who commit mass violence while taking psychiatric drugs often have a long history of mental disturbance and sometimes violence. For these people, the mental health system seems to have provoked increasing violence without recognizing the danger.
The National Coalition for Mental Health Recovery is calling upon all people of like minds, who care about individuals who need mental health services, to ACT. It is urgent. Please call your representative in the House of Representatives to vigorously oppose HR 2646 on Tuesday, July 5, 2016. And, call your Senator to insist that the Senate reject any amendments or changes to mental health legislation from the House by Friday, July 8, 2016. For more information about this Call to Action, please click here.
Today, July 1, 2016, the Alaska Supreme Court issued its Opinion in In the Matter of the Hospitalization of Mark V. What strikes me the most about the case is that Mark's expressing the view that a psychiatric drug he was being required to take is poison, that it had side effects related to his sexual performance, and that it was killing him were all cited as proving Mark was delusional. As readers of this site know, these drugs can quite reasonably be characterized as poison, they do cause sexual dysfunction, and they are quite lethal to many many people, shortening lives on average by 25 years for those in the public mental health system, such as Mark.
As you read this, people with lived experience all around the country are mobilizing to educate our federal legislators about why the Helping Families in Mental Health Crisis Act (H.R. 2646) should be defeated. Education is the key. As executive director of the National Coalition for Mental Health Recovery, I am issuing a call to action. We need to ramp up our efforts before this backward piece of legislation becomes law. We need to get in touch with our legislators and their staffs, contact the media, make some noise! We need to exercise the proverbial strength in numbers. And we need all of this now!
When it’s come to those seen as wearing the crown of ‘science,’ journalists have apparently been instructed (or so I’m told) to simply act as ‘translator.’ To question becomes sacrilege, or the act of one who must be ‘crazy’ (or at least hell bent on destroying their journalistic career).
This month the candidates for President compete in our State of Oregon, so this is a very good time to ask the following question: “How do you stand on the controversy of forced outpatient mental health drugs?” This is my 40th year working as an advocate for people labeled “disabled,” and I know that the topic of involuntary psychiatry can be a little complicated for people. After all, if one of our beloved family members becomes irrationally self-destructive, we can become desperate for help. However, this is such an important topic that we need to go deeper than just a bumper-sticker answer.
In our nation's history, in the face of fear, we have often risen to achieve noble goals. Other times we have behaved tragically — for instance, interning and seizing property from Japanese Americans during World War II. Certainly, there were spies among us then. Only in hindsight did we recognize that our treatment of the larger group — who were not — was gravely mistaken. We are on the verge of witnessing such an event in our own time.
As I write this, the New York Times is asking readers to respond to the question “What should be done to prevent mass shootings?” The more responses the New York Times receives from people who understand that the answer is gun control — not misguided legislation that would only harm those it purports to help — the more they will take notice. Please write!
On November 4, the Health Subcommittee of the House Energy and Commerce (E&C) Committee marked up an amended version of the Helping Families in Mental Health Crisis Act of 2015 (H.R. 2646), introduced by Rep. Tim Murphy (R-PA) and Rep. Eddie Bernice Johnson (D-TX). However, the bill still does not reflect the voices or meet the needs of millions of Americans with lived experience of mental health conditions because the E&C Health Subcommittee failed to incorporate our recommendations.
I felt a chill go through my body when I read that the FDA has agreed to review for possible approval in early 2016 a new form of the drug Abilify that contains a microchip sensor capable of sending a message that indicates the exact time a tablet dissolves in the stomach. The message is recorded by a skin patch - along with data such as the person’s body angle and activity patterns - and, according to a press release from Proteus Digital Health, the developer of the device, “this information is recorded and relayed to patients on a mobile phone or other Bluetooth-enabled device, and only with their consent, to their physician and/or their caregivers.”
I’ve come to realize that the very good intentions of Congressman Murphy to fix an obviously not-working mental health prevention, intervention, and treatment “system” has caused him to be swarmed by a flock of flatterers flogging fraudulent “facts.” Thus, at the behest of my colleague, I wrote a letter to Congressman Murphy, who is obviously a leader for issues of mental health. My letter was delivered to him personally, and I share much of it here. The more I thought about the pickle the Congressman is in—surrounded by people either flattering him or yelling at him—the more compassion I have for him as a human trying thread his way through the siren songs.
For those of us who have been labeled by medical model psychiatry, it is frightening to watch the wolf of social prejudice being cloaked in the guise of mental health reform. The reality for many of us is that our lives and well-being have been profoundly affected – not only by the bad science and good marketing of pharmaceutical companies - but also by a wholesale refusal to listen. The result is a mental health system that many of us do not trust to operate in good faith. The Murphy bills add fuel to this fire.
One of psychiatry's most obvious vulnerabilities is the fact that various so-called antidepressant drugs induce homicidal and suicidal feelings and actions in some people, especially late adolescents and young adults. This fact is not in dispute, but psychiatry routinely downplays the risk, and insists that the benefits of these drugs outweigh any risks of actual violence that might exist.
One cannot be with other individuals without encountering their belief systems at some point. My work with individuals in locked in patient units, mental health clinics and the Los Angeles Jails has brought me into close contact with people who had diverse belief systems, some of which were cultural and life-long, others were trauma-induced or influenced by drugs and alcohol. These experiences taught me to approach belief systems without prejudice and with open receptivity to their meaning and importance to the person.
Senator Chris Murphy of Connecticut released a new ‘Murphy Bill’ this past week. It’s called the ‘Mental Health Reform Act of 2015,’ though it has yet to be assigned an official number. While many words appear in its more than 100 pages, it’s worth noting that the term ‘evidence’ (most often paired with ‘based’ to form the familiar and supposedly scientific phrase, ‘evidence-based’) appears 27 times. Never to be outdone, the almost 200-page House version (‘Helping Families in Mental Health Crisis,’ H.R. 2646) from Representative Tim Murphy uses the same word 38 times. This makes sense. Why wouldn’t anyone want anything to do with… well… just about anything…
On August 4, 2015, Senator Bill Cassidy, M. D. (R-LA), on behalf of himself and Senator Chris Murphy (D-CT), announced the Mental Health Reform Act of 2015 (S. 1945). The Cassidy bill has now been referred to the Senate, read twice and referred to the Committee on Health, Education, Labor, and Pensions. According to the Library of Congress, S. 1945’s purpose is “to make available needed psychiatric, psychological, and supportive services for individuals with mental illness and families in mental health crisis, and for other purposes.”
Representative Murphy has released the second version of the Helping Families in Mental Health Crisis Act (H.R. 2646). Few can argue that the mental health system and the current approach towards helping individuals and families in crisis are abysmal. H.R. 2646 is an effort to create increased service provisions and to enhance interventions that many professionals, family members and service users alike believe to be effective. When people are desperate and suffering they do not wish to be told "Sorry, there's nothing we can do." And so, it is understandable and even laudable that so many support the proposals laid out in H.R. 2646. But the bill is based on distorted and faulty logic that misrepresents the research and evidence base. This is highly disconcerting. And so a collective of mental health professionals, mental health advocates, and persons with lived experience came together to produce the following documents in response to H.R. 2646.
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