Study 329: The Data Wars Cross the Rubicon
It can be difficult to pinpoint transitions. The Rubicon that led from a Medical Republic to a Pharmaceutical Empire was crossed in 1962 with the passage of the Amendments to the Food and Drugs Act. This act put in place an apparatus of controlled trials, prescription-only status and disease indications that laid the basis for a global pharmaceutical hegemony, although the drift to Empire could still have been stopped at this point.
The Great Turning
When I first heard of the proposed “Helping Families in Mental Health Crisis Act of 2013” (H.R. 3717)”, I felt relieved and thought “maybe somebody has finally got it!” However, as I read and processed the words I realized just how much Tim Murphy didn’t get it. Is this mental health system broke? Yes it is. Can it be fixed? Yes it can. But we must do it collectively and with the experience and voices of those with true lived experiences including their families and allies. I stand with millions of others who have shown through our resiliency that our movement is real, has saved lives and most of all we have people that can give voice to what really needs to be changed within the system. If only people will listen.
Study 329: Conflicts of Interest
The BMJ states that it takes on average eight weeks from submission of an article to publication. The review process for Restoring Study 329 took a year, with a three-month review process involving six reviewers to begin with, and then a further four reviews in a four-month process, leading to a provisional acceptance in March that was withdrawn.
So You Say You Want a Revolution?
It's commonplace to hear that we need a big change—a revolution, if you will—to make "the system" recovery-oriented, to replace the tired old over-emphasis on a biological model and to replace it with a new more hopeful standard of care. I know—I have used all these catchwords myself for the past several years.
Chapter Twenty-Two: To the Hospital on the Hill
Bright, white light pours into my eyes, which have opened themselves slowly. I clench them closed again, hoping to push the light out. For...
Slices of Pies: A Dialogue with Ronald Pies
For those of you who haven't read it, I published a blog post called, 'Too Much Pies,' on Mad in America on Wednesday, April 10th. The post included an invitation to psychiatrist Ronald Pies (who caught the interest of many when he wrote a letter to the New York Times about psychiatric diagnosis) to a real dialogue, not limited by number of words, frequency of reply or professional licensure. I copied the letter directly to Mr. Pies, not knowing if he would reply. On Thursday, April 11th I received a direct reply that Mr. Pies has authorized me to repost here. I am also including my response to him.
Female Peer Specialists Paid Less than Males, Study Finds
In a recent national study by The College for Behavioral Health Leadership, female peer specialists made an average of $2 less than their male counterparts at $14.70 per hour compared to $16.76, respectively. For those of us who don’t live in New York, the gender pay gap is something that affects our lives whether or not we realize it.
New Research Project to be Funded by the Foundation for Excellence in Mental Health...
Over the last 30 years Dr. Martin Harrow, Ph.D., has collected data from over 1000 interviews with people who have lived experience with mental illness. His research has been the basis for a number of papers delineating the effect of medications on those he interviewed. Further analysis of the data will answer several questions that provide the basis for a better understand of the long term effects of anti-psychotics on the treatment of schizophrenia.
What it Means to be a Human, With all the Beauty and Complexity That...
If not every week, then very often, we receive requests from people not living in Sweden asking if it would be possible to come to the Family Care Foundation and take part in our shared work. I often day-dream that I have a list of different places in different countries where it was obvious that the main task for the organization and everyone involved was to meet those we call clients and their families in a relational and dialogical way, where it was NOT important at all to define people in terms of diagnosis and where it was NO big deal to support people to get off medication. Where the big deal was about something else: to try to create a safe place and to make sense of experiences and to try to share the very hard things with each other.
“Multigenerational Poverty”
The practice of medicine in our country is being swallowed whole by a snake. The snake started with the poor, the black, the brown; the already disenfranchised of the deep south and inner cities many years ago. It was an easy sell to the better-off taxpayers. Who wants to give up money to take care of poor people?
Mad In America Forums and Other Updates
Today we are launching discussion forums on Mad in America. We intend for these forums to serve three broad purposes. 1) Furthering discussion of the issues raised here. 2) Sharing personal experiences with psychiatric drugs, and 3) Providing a platform for personal networking and activism.
Youth Violence is a Family Therapy Issue
Family therapists view violent young people in the context of the wider social systems of which they are a part. This typically means the youth’s parents, but it can also include grandparents, teachers, or even friends. Framing youth violence in terms of the social context or family system--rather than as a psychological problem of the individual-- is the most effective way of putting an end to the violent behavior.
How Competing in the Olympics is Like Mental Health Recovery
I competed in the 1996 Olympics in Judo. I also achieved complete mental health recovery from 12 psychiatric diagnoses and 29 psychiatric medication. I've also now mostly recovered from a traumatic brain injury, which probably was exacerbated by a lifetime of contact sports, ten years of psych meds before I learned about mental health recovery, and seven shock treatments, that are totally ineffective at promoting mental health recovery.
Pain’s Promise, and the Problem with Pills
Equating pain with promise may sound strange, and even uncaring, to all who experience it — especially to a significant, chronic degree. To clarify, I am not minimizing the horror that pain is for millions of people, and the need to provide compassionate care for those whose pain negatively affects their lives. But I firmly believe that for almost all of us, pain is a mechanism that exists for many reasons — it is not something we should necessarily attempt to extinguish without first giving adequate consideration to the messages that it may be sending. Doing so not only further jeopardizes our well-being. It may also prevent us from realizing a richer, more meaningful, grateful course than we ever imagined.
How Can We Spread the News?
Ever since I read Mad in America and later Anatomy of an Epidemic by Robert Whitaker, I have been wondering how to spread this knowledge to the masses and how to do this in a way that will make a difference to as many people as possible.
On “Schizophrenia”
The first time I heard someone labeled schizophrenic I was about 10 years old. A man was talking to himself and appeared to be house-less and perhaps on drugs. My mom, a very good teacher and explainer of things to me, said, “That man is schizophrenic. That means he can't tell the difference between what's inside of himself and what's outside.” In retrospect this seems like a relatively sophisticated and sensitive explanation; Falling in love, hearing music that enters our heart, having children/giving birth, connecting powerfully with another person in a meeting of the minds, feeling empathy, deeply caring about something, experiencing oneness with nature, are all examples of times when the line between inner and outer reality is blurred.
Luscious Lipids
Since the 1950’s, we’ve been told that eating fat makes you fat and that avoiding traditional fats (i.e. butter, animal meats, lard, eggs) in lieu of industrialized, man-made fat substitutes is highly recommended. Why did we agree to disavow several millennia of instinctive eating in favor of a high carb and sugar diet, deficient in this staple?
Backsliding in the Bay State
The drumbeat for more "Risk Management" just gets louder. And nowhere is this so alarmingly evident as a new policy proposed by the Massachusetts Department of Mental Health (DMH) in November 2012.
“You Can’t Go Home Again: New York’s Medicaid Health Homes”
Shortly after I posted a two-part blog on this site back in February about New York’s just-approved Medicaid Health Homes, I got this crazy,...
I Got a Break from Reality for Christmas!
The more we worry about the separation from reality, the more scared we get and the more separated we get. This month I found out about another trap. When you can see the beauty and spirituality and mystery and magic of what is going on, it's tempting to do things to make it last longer and help yourself get further into it, like skip sleep or skip meals or use drugs. I had to fight those temptations often through this month, and still am, to be honest, because there is so much of this process that was not just scary, but glorious and giganticly interdimensional and impactful.
Hiding the Evidence of Society’s Side Effects
What better way to keep people who have been dehumanized due to repeated traumatic experiences, and marginalized and stigmatized due their emotional distress, quiet and invisible than to do it legally and medically? Is there no better place to hide people who, when visible, are proof of social and psychiatric failure than in locked institutions? I have worked with many such individuals in the LA County Jail, and the locked inpatient wards, and in each case the institution’s process — although in compliance with legal and medical protocols — seemed to conspire to keep the individual powerless, medicated, isolated and confused.
Chapter Five: Filling the Void
When I returned to boarding school in the fall of my junior year, I brought with me not just duffel bags of clothes, athletic...
Dr. Pies Still Spinning
Racially motivated invective and abuse are directed against people purely and simply on the basis of their skin color. Anti-psychiatry invective and abuse, however, are based on the activities of psychiatrists. For the past several decades, psychiatrists have been telling their clients, and the general public, and journalists, that virtually all significant problems of thinking, feeling, and/or behaving are caused by chemical imbalances in the brain. They have stated clearly and unambiguously that these putative imbalances constitute "real illnesses, just like diabetes," and that the imbalances are corrected by psychiatric drugs. So when we mental illness "deniers" point out that the various problems of thinking, feeling, and/or behaving listed in the DSM are not real illnesses, we are actually using the term illness in the same sense as is entailed in psychiatry's scandalously deceptive assertion.
Robin Williams or Patch Adams? Watch a Brief Message from David Oaks to the...
You may watch a little eight-minute video message, below, that I sent this past Sunday, October 12, 2014, especially created to be shown during the gala dinner for the Mad In America International Film Festival. The festival brought together many movies that challenge the mental health industry. I wish I could have been there physically because this certainly was one of the main Mad Culture events of the season and many activists, film makers, and other creative folks were in attendance.
Has the FDA Abandoned Its Off-Label Promotion Ban?
On Tuesday, the FDA entered into a settlement agreement in Amarin Pharma v. U.S. Food & Drug Administration, allowing Amarin to promote a prescription drug for off-label use, so long as its promotion is truthful and non-misleading. The Amarin Settlement seems to be an abandonment by the federal government of protecting the public from off-label prescriptions. But these settlement were just the cost of doing business for the drug companies, while they continue rake in huge profits from the continued off-label prescribing of drugs, which does not diminish after the settlements. Of course, anything that is false or misleading is still grounds for charges, but that is a far harder case to make. I think the ban against off-label promotion is dead for all practical purposes.