The Today Show and ECT:
The Full Story & Informed Consent


Here I sit on a Sunday morning at my church, synagogue, temple, mosque, sacred space of inclusion – my laptop – emailing Pam Hyde, Administrator of the Federal Substance Abuse and Mental Health Services Administration (SAMHSA) in the U.S. Pam asked if the Today Show presented a balanced point of view of ECT treatment itself — pros and cons. My email to her of a few minutes ago stated “The Today Show was not balanced at all which is why we did the ‘One sided…’ press release (see below).  Our wisdom from lived experience continues to be blocked by mainstream media outlets. How can we work more effectively together so that by 2020 ‘Nothing About Us Without Us’ becomes a reality in America?” (Side note – upon 2 minutes of reflection I shortened the time line when I realized it was achievable if the administration and major agencies in the U.S. made it a priority.)

My response to Pam continued “Here’s a link to the Today Show segment, along with a transcript. They mention side-effects but give them very short shrift. The key factor is that we gave them five willing shock survivors standing by their phones to be interviewed in preparation for being on the show, and the producers only called one of them (Tom Irr) and then later called to tell him that they “probably” wouldn’t be airing the segment. But, of course, they chose to air the segment, and only interview people who were happy with their ECT experiences — one of whom is a famous author, which gives his testimony more weight. We all know that many people are happy with their experiences. That’s why most of us are not asking for a ban on ECT — just for the opportunity for truly informed consent so that people can weigh the potential benefits along with the serious risk of adverse effects.

The principle of “Nothing About Us Without Us” requires both that the story of ECT include the stories of those harmed by it, and that decisions regarding its use be made with the full participation and consent of those affected. Given the risk brain damagememory loss and, with it, years of a life; theories that the “positive effects” of ECT are in fact a side-effect of brain injury (shock) which some experience as a form of numbness or euphoria; evidence of substantial relapse following ECT , of high hospital re-admission rates, and the lack of solid scientific data regarding why ECT works at all; a fully informed person given a meaningful role  in the decision-making process might consider carefully whether it is truly the best – or even last – resort.


Press Release

For Immediate Release

National Mental Health Coalition Calls “Today Show” Electroshock Segment One-Sided

Coalition Recommends Balanced Coverage of Controversial Intervention 

WASHINGTON, DC (8/22/13) – The National Coalition for Mental Health Recovery (NCMHR) urges “The Today Show” to provide balanced coverage of the risks of electroconvulsive therapy (ECT), in which grand mal seizures are electrically induced, usually to treat severe depression.

The NCMHR is responding to a one-sided segment about ECT that “Today” ran on August 20, 2013.

“We are disappointed, especially because two NBC producers had sought out ECT survivors who could attest to the disabling effects of this controversial treatment,” says NCMHR director Lauren Spiro, who was diagnosed with chronic schizophrenia. “The producers were given contact information for five willing individuals, but chose not to include them.” The producers later called this an editorial decision.

Mental health advocates demand that potential ECT recipients be told the truth about the risk of disabling effects – including permanent memory loss and cognitive deficits – so they can make an informed choice. These risks have been confirmed by researchers such as Dr. Harold Sackeim, a well-known proponent of ECT, whose 2007 study in Neuropsychopharmacology concludes: “this study provides the first evidence in a large, prospective sample that adverse cognitive effects can persist for an extended period.”

The Food and Drug Administration (FDA) continues to classify ECT equipment in its high-risk Class III category despite pressure from ECT equipment manufacturers to re-classify it into the lower-risk Class II.

ECT survivors speak about the devastating effects of ECT. In her acclaimed book, “Doctors of Deception: What They Don’t Want You to Know About Shock Treatment,” Linda Andre wrote, “Eventually you realize that years of your life have been erased, never to return. Worse, you find that your daily memory and mental abilities aren’t what they were before.”

“The research is clear: ECT causes closed head injury, temporary euphoria, then return of depression but with enduring memory loss,” says psychiatrist and NCMHR board member Daniel Fisher, M.D., Ph.D. He noted that, while many may experience a lifting of depression, this is temporary, but the disabling effects are permanent. Also, many ECT survivors say their depression was exacerbated by the stress associated with their ECT-related cognitive disabilities.

“We recommend more media coverage of innovative, non-invasive, cost-effective mental health interventions, including ‘peer-run services’ delivered by people who have recovered from severe mental health issues,” says Spiro.


Mad in America hosts blogs by a diverse group of writers. These posts are designed to serve as a public forum for a discussion—broadly speaking—of psychiatry and its treatments. The opinions expressed are the writers’ own.

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Lauren Spiro
Lauren’s vision of social justice and mental health liberation focuses on developing our capacity for feeling deeply connected, appreciating the vast creative intelligence of the human heart and mind, and inspiring compassionate action. Her life’s mission is to embody inner peace to co-create global peace, thus she curates transformative learning experiences. She co-founded two non-profit corporations and Emotional CPR ( a public health education program that teaches people how to support others through an emotional crisis. She is a multi-media artist, a 20+ year practitioner of yoga and meditation, the first Director of the National Coalition for Mental Health Recovery, has been featured on national media, and consulted on numerous federal projects. Her memoir paints a poetic picture of her journey into madness and her pathway home. She has an M.A. in clinical/community psychology. For more information see


  1. I was given 2.5 years of ECT as ”clinically necessary treatment” in an Austin psychiatric facility which is typically the facility one goes to for ECT locally in addition to 1 other site that I know of. It was humiliating. It hurt and it was quite physically painful. I often required up to four (4) types of anesthesia to put me out and in addition to the local for the sting with the needle, my body would arch from the burn until I went out. Then when I woke up, the challenge would be not to urinate in my pants but I always did and that was also embarassing. My faithful partner would be there waiting for me on the other end of tx and hold me by my elbow and guide me out, step by step by step by step by step. It was a ”clinically necessary treatment” in my recovery because I was strewn with SI and attempts. The attempts did stop. What did begin were the long term and short term memory lapses and the forgotten years of life, of love, of family, of friends, of work… I am grateful for my for 1 friend who was loyal enough to stand by my side during this time and while my life was dark at the time, I worked my way through it with the help of NAMI Texas, of DBSA Texas later, volunteering and giving back, etc… What is interesting to me now are the many women I come into contact with who undergo regular ECT as a normal course of their monthly tx in Austin for their major depression or bipolar and I would be interested in hearing from them as well. Those were not happy times and I am the stronger for it. Thanks for your post, Lauren.

  2. Lauren,

    When I first saw this post of yours appear, yesterday, I read it and was very impressed.

    It’s a very important press release.

    I was going to offer a brief comment then, but your post disappeared, until this morning. (Maybe there was a glitch on the MIA website, or maybe you had second thoughts about posting it then? Maybe you felt it needed some editing? In any case, the web page was gone by the time I attempted to offer a comment.)

    So, I went immediately and read your preceding two MIA blog posts [“Emotional CPR as a Way of Life,” of February 12, 2013 and “eCPR (Emotional CPR): A Tool & a Process of Peacemaking” of April 4, 2013] and became even more impressed!


    I had not previously been aware of “eCPR” and NCMHR.

    Though I am principally opposed to government interference in people’s ‘mental health’ (hence, I am very, very deeply skeptical of most campaigns which hope to ‘improve’ the “mental health system”), these principles of “eCPR,” which you’re promoting actually resonate very beautifully with values that I hold dear.

    So, I visited the NCMHR website (the National Coalition for Mental Health Recovery –, where you are director, and I saw how, clearly, you and your organization are doing great work.

    Indeed, I’m inclined to say that, if anyone can help to substantially improve the ‘mental health system,’ you and your organization can.

    My only question for you, now, is this: Why do you say, in that press release (above) that you were “diagnosed with chronic schizophrenia”?

    Why not say, instead, that you were “labeled with chronic schizophrenia”?

    Of course, here I may seem as though splitting hairs (critiquing one single word in your press release!); but, to my way of thinking, saying “labeled” makes a million times more sense than saying “diagnosed” — especially, as I see that, on the NCMHR website, in your bio, we can read that you “traveled a long road from being labeled and institutionalized as a teenager with chronic schizophrenia…”

    Obviously, you have traveled well — far from that time, of having been labeled by psychiatry…

    And, “labeled” is the better (more accurate) word, I think.

    IMO, psychiatrists merely flatter themselves by presuming to “diagnose” people.



    You are doing great work… Definitely.

    So, please, do keep up that work, be well, and more power to you!



  3. I write here as someone who was given shock treatment as a child, and who has spent most of his life recovering from that and trying to take away the power of psychiatrists to do such a thing.

    I have to ask, why should the media pay any attention to us when they know our “movement,” for the most part, has been created and paid for by the system it occasionally pretends to criticize? Fifty years ago, a quarter of a million people gathered in Washington and heard, among many other inspiring speeches, Doctor King talking about his dream of equality and justice. He wasn’t taking handouts from the White Citizens’ Council. He was coming from years of making sacrifices, acting with courage, putting his life at risk. His bravery, and that of thousands of others, inspired the country and made America aware of the evil of racism in a way we had never acknowledged before.

    The civil rights movement of the Sixties was a template for the movements for liberation that came after–gays, women, disabled people, and many others, including psychiatric survivors.

    Yes, we followed that example and we had some success. But the system figured it out and offered bread and circuses, bribes and conferences, that would be controlled by people who cared about their own advancement and power and financial gain, and not the people whom they claim to represent.

    If these “leaders” really want to change anything, they should be organizing demonstrations and civil disobedience in front of shock shops, not pretending that they are so important that all they have to do is send out press releases. The media know there is nothing behind those words that are issued by groups who would instantly vanish without their funding from the system.

    Try giving up your bribes from SAMHSA, and then maybe someone will take you seriously. Right now all you represent is the system.

    • The Today Show was extremely one-sided, but that is not surprising since the media is supported and influenced by Big Pharma. My experience with ECT was horrifying, torturous, and it nearly killed me along with many of my brain cells. I, myself, am in favor of a complete BAN! I am not in favor of walking the politically safer tightrope of saying we are in favor of ECT as long as there is “informed” consent. I don’t think there is any such thing as “informed” consent when one is feeling that depressed.

  4. Wonderful article. Wonderful press release. And of course the only type of person who would ever consent to electroshock is someone who has bought into the unproven quackery based claim that their despair in life is caused by some putative “brain disease”. Forced electroshock is a very real legal threat many of us face, me included. Thankfully I have not been involved in electroshock as of yet. But the fact that this decision may be ripped away from me by forced psychiatry, is an unacceptable disgrace.

  5. I’ve been devastated by ECT. Often it was given to me involuntarily and sometimes “voluntarily” when I was so depressed I would have consented to euthanasia (strange how one can, at the same time, be competent to consent yet not competent to refuse).

    Like any physical assault would, it did “work” in the short term, in that it kind of smacked some sense into me. That improvement quickly disappeared though and I was left with severe memory loss (both short and long term), continued severe depression and an inability to concentrate.

    It is still almost impossible for me to concentrate enough to get through a magazine article and there are vast chunks of my past that are no longer available to me. It is my faint hope, though, that neuroplasticity is a valid phenomenon and that I’ll eventually recover.

    I support the continued use of ECT only with true informed consent and never, ever as involuntary treatment. If that consent were truly informed, I doubt very much that people would do it.

  6. “(ECT), in which grand mal seizures are electrically induced”

    In the interest of informed consent, why not delete the acronym ECT and have the procedure legally and medically called exactly what it is (and never reduced to an acronym): Induced Grand Mal Seizure.

    Hi, would you like an Induced Grand Mal Seizure to treat your condition?