Initiatives

The Lived Experience Research Network Issue Briefs series promotes change through multiple perspectives. We recently launched our inaugural Fall 2013 edition of the LERN Issue Briefs series. These two-page briefs highlight issues of importance in the behavioral health and disabilities fields.

It is possible to heal, and at the same time healing also means restoring the part of oneself that can face violence and disobey to protect what is most sacred. I am that sacred, and so are you.

The recent furore surrounding publication of the new DSM has provided a much-needed opportunity to discuss and debate crucial issues about how we make sense of, and respond to, experiences of madness and distress. Many psychiatrists, psychologists and other mental health professionals have expressed their dismay about the dominance and inadequacy of a biomedical model of mental illness. Whilst we share these concerns, welcome these debates and support colleagues that are willing to take a stand, The Hearing Voices Network believes that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system.

For three days in December, I was fortunate enough to attend the Hearing Voices Facilitator Training held in Portland, OR. This training expanded my understanding of the voice hearing experience and equipped me with a number of tools to use in facilitating hearing voices support groups. Grounded in a feeling of community, the training was dynamic, emotionally therapeutic, and educational all at the same time – a crystal clear example of how support groups themselves might manifest in the lives of their members.

On December 29, 2015, the FDA proposed reclassifying ECT, essentially approving of its routine clinical use. I submitted a statement to FDA, explaining why the FDA should ban ECT until it goes through rigorous testing. I urge others to respond quickly to the FDA’s call for comments.

If not every week, then very often, we receive requests from people not living in Sweden asking if it would be possible to come to the Family Care Foundation and take part in our shared work. I often day-dream that I have a list of different places in different countries where it was obvious that the main task for the organization and everyone involved was to meet those we call clients and their families in a relational and dialogical way, where it was NOT important at all to define people in terms of diagnosis and where it was NO big deal to support people to get off medication. Where the big deal was about something else: to try to create a safe place and to make sense of experiences and to try to share the very hard things with each other.

An international group of researchers from multiple disciplines has published a historical, qualitative, and quantitative investigation into voice-hearing in women. The interdisciplinary project, freely available from Frontiers in Psychiatry, explores how sexism, exploitation, and oppression bear on women’s’ experiences of hearing voices.

A new pro-recovery manualized intervention – called the REFOCUS intervention – has been developed and will now be evaluated in a multisite randomized control trials. The strengths-based intervention, which focuses on promoting relationships, is outlined in the latest issue of the British Journal of Psychiatry.

I lived through forced ECT from 2005-2006 at the Institute of Living in Hartford, Connecticut. My experience with ECT was the impetus for me to become involved in the antipsychiatry and Mad Pride movements, although I am not entirely opposed to voluntary mental health treatment. The following is the comment I submitted to the FDA on its proposal to down-classify the ECT shock device.