Initiatives

ServiceNet, a mental health and human service agency in western Massachusetts, received a three year, two million dollar grant to launch a program designed to support young adults who have recently experienced their first episode of psychosis. The Prevention and Recovery Early Psychosis (PREP) program is funded by the Massachusetts department of mental health and is designed to treat psychosis as a symptom, not an illness, resulting from other illnesses, substance abuse, trauma, or extreme stress.

I don't usually talk about this much because it's still somewhat traumatizing. I don't really do advocacy around shock treatment because it still triggers too much stuff. But this is a modern day advanced story of medical harms and misinformation, and you should comment on the FDA ruling.

Everyone in the world is either touched by their own mental health issues or have had a family member affected. What if they directed their buying power to an organization that would use the profits to fund exciting mental health & recovery projects both in the developing world and in their own countries; projects that would be ethical, non-coercive, personal recovery-based, and were aimed at creating recovery communities? What if they could buy products, crafts, services, art, music, books from people who had experienced mental health issues, enabling them to set up their own businesses or buy from social co-operatives that enabled distressed people to work and earn a living wage?

In partnership with the California Association of Mental Health Peer-Run Organizations (CAMHPRO), Live & Learn, Inc. conducted a survey on the impact of stakeholder advocacy on decisions affecting public mental health systems in California. The objective was to pilot an approach to help CAMHPRO evaluate the impact of consumer advocacy in the state and to document the activities that advocates engage in (e.g., legislative testimony, demonstrations, campaigns).

The Open Dialogue approach is a model of mental health care that involves a consistent family and social network approach. All healthcare staff receive training in family therapy and related psychological skills. October 2015 sees the completion of the first wave of Peer-supported Open Dialogue (POD) training for National Health Service (NHS) staff in the UK, paving the way for the establishment of pilot POD teams in the NHS and a large-scale evaluation.

The conventional Western classification systems of health conditions are based on flawed science shaped by reductionist, hierarchical, and profit-driven ideologies. THEN wants to create a new paradigm built upon principles drawn from systems science, the life course perspective, developmental neurobiology, and other evidence-informed studies.

Journalist Emma Reynolds profiles Amanda Waegeli, Ron Coleman, Nathan Grixli and Lyn Mahboub about their experiences coming to the Hearing Voices Network (HVN). HVN was established 10 years ago in Australia and provided a support group that encouraged people to listen to their voices rather than trying to block them out. The group now operates in 25 countries.

When Wilda White recovered from a manic episode triggered by her ADHD medication, she had lost her relationship, her home, and her dream job as a public interest lawyer. She reached a turning point when, she told Seven Days newspaper, "in the course of trying to figure out what had happened to me, I went on the website Mad in America.” Through the site, she connected with a job listing from Vermont Psychiatric Survivors, a non-profit dedicated to empowering and protecting the rights of people labeled “mentally ill.” She is now their executive director.

Rethinking Psychiatry is an independent, grassroots group in Portland, Oregon that advocates for a paradigm shift in mental health care. On January 20, we hosted a film and discussion by activist and artist Barbara Ford. The subject was “Despair and Resilience: How to Face this Mess We’re in Without Giving Up.” Ford also showed film called Joanna Macy and the Great Turning, featuring philosopher, writer, and activist Joanna Macy.

Massachusetts Bill HD 4554 needs to gain sufficient state representative support by Tuesday, March 1, 2016. This bill will put restrictions on the prescribing of benzodiazepines and non-benzodiazepine sleep aids, and will require that all patients be informed of the potential dangers of these drugs, specifically the dangers of long-term use.

The primary factor protecting psychiatry’s unwarranted power and authority is that it is perceived as shielding society from folks who are believed to be dangerous. It would seem, then, that one logical step toward reducing society’s trust in biological psychiatry would be to reveal the evidence of a significant correlation between the use of prescribed psychoactive drugs and the commission of violent acts against oneself or others.

Various instruments of the United Nations have commented on forced treatment, or involuntary confinement, or both (for details, see Burstow, 2015a), and a number of truly critical additions to international law have materialized. Arguably, the most significant of these is the Convention on the Rights of Persons with Disabilities. What makes it so significant? For one thing, it is because this landmark convention puts forward nothing less than a total ban on both involuntary treatment and the involuntary confinement of people who have broken no laws.

If not every week, then very often, we receive requests from people not living in Sweden asking if it would be possible to come to the Family Care Foundation and take part in our shared work. I often day-dream that I have a list of different places in different countries where it was obvious that the main task for the organization and everyone involved was to meet those we call clients and their families in a relational and dialogical way, where it was NOT important at all to define people in terms of diagnosis and where it was NO big deal to support people to get off medication. Where the big deal was about something else: to try to create a safe place and to make sense of experiences and to try to share the very hard things with each other.

This week Live & Learn launched a research study on the experience of people labeled with mental disorders who have tried to stop taking psychiatric medications. This project -- the Psychiatric Medication Discontinuation/Reduction (PMDR) Study -- aims to understand the process of coming off psychiatric medications in order to better support those who choose to do so. The study seeks to answer the question: What helps people stop their psychiatric medications? What gets in the way of stopping?

On December 29, 2015, the FDA proposed reclassifying ECT, essentially approving of its routine clinical use. I submitted a statement to FDA, explaining why the FDA should ban ECT until it goes through rigorous testing. I urge others to respond quickly to the FDA’s call for comments.

Garth Daniels, a 39-year-old Melbourne man, has been shackled for 110 days and forced to undergo ECT 94 times at three times a week against his will. Last year, his family asked me to provide a second opinion on Garth’s case. As predicted, my recommendations against continued ECT were quickly dismissed by the hospital. There are critically important issues at stake in this case.

Work on the May 16 International Day of Protest Against Shock Treatment is moving right along. This spontaneously-organized, grassroots effort now includes 21 cities in 16 states, plus two each in Canada and the United Kingdom. There will also be demonstrations in Ireland, New Zealand, and Uruguay. We CAN win, and you CAN be a leader.

It is time to create an entirely voluntary psychiatric system. International conscience is clear. The singling out of people with psychosocial disabilities is not worthy of a free society. There are better, safer ways to address legitimate public needs.

Hearing Voices Network self-help groups are an important resource for coping with voice hearing, study finds.

The Massachusetts Benzo Bill H4062: Informed consent for benzodiazepines and non-benzodiazepine hypnotics was just scheduled to be heard by the Joint Committee on Mental Health and Substance Abuse on Monday, April 4th. Less than a week away! The committee will decide whether the bill moves forward to the house and senate, goes to study, or is denied.

On February 24th, 2016 Bill HD4554 - An Act relative to benzodiazepines and non-benzodiazepine hypnotics was filed by Representative Paul McMurtry in the Massachusetts State House. The bill received 47 co-sponsors during the seven-day open period in which legislators can co-sponsor. This is an impressive and promising turnout.

Please join us in demanding that the FDA stop the shock device from being down-classified to a Class II device. We have until March 28th, 2016.

Rethinking Psychiatry is proud to continue the work that began in 2010 in Portland, and we look forward to many more years of challenging the dominant paradigm in mental health and providing new perspectives and solutions.

Dr. Raymond Armstrong and I are currently working together to push Texas lawmakers to adopt restrictions on the prescription of benzodiazepines and sleep drugs. We feel fortunate to be able to draw from the experience of the benzo movement in Massachusetts, and we are grateful for the information that long time advocates like Geraldine Burns have provided us.

The Open Dialogue psychiatric treatment approach is associated with reduced utilization of mental and general health services for Danish youth.