Initiatives

In partnership with the California Association of Mental Health Peer-Run Organizations (CAMHPRO), Live & Learn, Inc. conducted a survey on the impact of stakeholder advocacy on decisions affecting public mental health systems in California. The objective was to pilot an approach to help CAMHPRO evaluate the impact of consumer advocacy in the state and to document the activities that advocates engage in (e.g., legislative testimony, demonstrations, campaigns).

Chelsea Roff is the Founder and Director of Eat Breathe Thrive (EBT), a non-profit with an inspired mission to bring yoga, mindfulness, and community support to people struggling with negative body image and disordered eating. I reached out to Chelsea to learn more about her life and organization, which she writes, “…is like AA for people with food and body image issues, plus yoga and meditation.” Chelsea shared her journey from life as a patient to yogi, author, and innovative community organizer. With her permission, you can find this interview below.

To create his theory of relativity, Einstein had to see things differently. He used imagination and empathy to come to know a new 'reality' of existence. In this essay, we delve deeply into the nature of human experiences that lead to public concern and discover ourselves in a whole new realm.

This week Live & Learn launched a research study on the experience of people labeled with mental disorders who have tried to stop taking psychiatric medications. This project -- the Psychiatric Medication Discontinuation/Reduction (PMDR) Study -- aims to understand the process of coming off psychiatric medications in order to better support those who choose to do so. The study seeks to answer the question: What helps people stop their psychiatric medications? What gets in the way of stopping?

When Doug Turkington, a UK psychiatrist, first announced to his colleagues that he wanted to help people with psychotic experiences by talking to them, he was told by some that this would just make them worse, and by others that this would be a risk to his own mental health, and would probably cause him to become psychotic! Fortunately, he didn’t believe either group, and in the following decades he went on to be a leading researcher and educator about talking to people within the method called CBT for psychosis.

If not every week, then very often, we receive requests from people not living in Sweden asking if it would be possible to come to the Family Care Foundation and take part in our shared work. I often day-dream that I have a list of different places in different countries where it was obvious that the main task for the organization and everyone involved was to meet those we call clients and their families in a relational and dialogical way, where it was NOT important at all to define people in terms of diagnosis and where it was NO big deal to support people to get off medication. Where the big deal was about something else: to try to create a safe place and to make sense of experiences and to try to share the very hard things with each other.

Dr. Raymond Armstrong and I are currently working together to push Texas lawmakers to adopt restrictions on the prescription of benzodiazepines and sleep drugs. We feel fortunate to be able to draw from the experience of the benzo movement in Massachusetts, and we are grateful for the information that long time advocates like Geraldine Burns have provided us.

It is time to create an entirely voluntary psychiatric system. International conscience is clear. The singling out of people with psychosocial disabilities is not worthy of a free society. There are better, safer ways to address legitimate public needs.

For five years, I and others worked to create a residential healing community in Brookline, Vermont, where people could recover from debilitating and traumatic life experiences, which often lead to addiction and mental health challenges, without the use of psychotropic medications. We welcomed our first six seekers to a yearlong, therapeutic and farm-based, day program last September, and we now can report on what we have learned during this time.

Everyone in the world is either touched by their own mental health issues or have had a family member affected. What if they directed their buying power to an organization that would use the profits to fund exciting mental health & recovery projects both in the developing world and in their own countries; projects that would be ethical, non-coercive, personal recovery-based, and were aimed at creating recovery communities? What if they could buy products, crafts, services, art, music, books from people who had experienced mental health issues, enabling them to set up their own businesses or buy from social co-operatives that enabled distressed people to work and earn a living wage?

Journalist Emma Reynolds profiles Amanda Waegeli, Ron Coleman, Nathan Grixli and Lyn Mahboub about their experiences coming to the Hearing Voices Network (HVN). HVN was established 10 years ago in Australia and provided a support group that encouraged people to listen to their voices rather than trying to block them out. The group now operates in 25 countries.

I don't usually talk about this much because it's still somewhat traumatizing. I don't really do advocacy around shock treatment because it still triggers too much stuff. But this is a modern day advanced story of medical harms and misinformation, and you should comment on the FDA ruling.

Garth Daniels, a 39-year-old Melbourne man, has been shackled for 110 days and forced to undergo ECT 94 times at three times a week against his will. Last year, his family asked me to provide a second opinion on Garth’s case. As predicted, my recommendations against continued ECT were quickly dismissed by the hospital. There are critically important issues at stake in this case.

On February 24th, 2016 Bill HD4554 - An Act relative to benzodiazepines and non-benzodiazepine hypnotics was filed by Representative Paul McMurtry in the Massachusetts State House. The bill received 47 co-sponsors during the seven-day open period in which legislators can co-sponsor. This is an impressive and promising turnout.

Researchers from Durham University's Hearing the Voice project are attending the Edinburgh International Book Festival through August as part of a study, asking both...

Please join us in demanding that the FDA stop the shock device from being down-classified to a Class II device. We have until March 28th, 2016.

I lived through forced ECT from 2005-2006 at the Institute of Living in Hartford, Connecticut. My experience with ECT was the impetus for me to become involved in the antipsychiatry and Mad Pride movements, although I am not entirely opposed to voluntary mental health treatment. The following is the comment I submitted to the FDA on its proposal to down-classify the ECT shock device.

As part of the effort to stop the down-classification of the shock device, on March 24, 2016, people who are psychiatric survivors, shock survivors, allies, and MindFreedom International members sent a 47-page public complaint to the FDA Ombudsman Office and Medical Devices Ombudsman concerning the FDA's attempts at down-classifying the shock device. Here are some excerpts. Please sign the petition and add your support to our growing strength!

For persons with psychosocial disabilities, one of the most fundamental rights laid out in the CRPD is the right to equal recognition before the law and legal capacity (Article 12). Our latest Position Paper focuses on Article 12 of the CRPD.

The primary factor protecting psychiatry’s unwarranted power and authority is that it is perceived as shielding society from folks who are believed to be dangerous. It would seem, then, that one logical step toward reducing society’s trust in biological psychiatry would be to reveal the evidence of a significant correlation between the use of prescribed psychoactive drugs and the commission of violent acts against oneself or others.

On Saturday morning, Susan Inman, writing for HuffPost Canada, published “What You’re not Hearing About the Hearing Voices Movement.” In it, she criticizes HVM for “failing to differentiate between the needs of people who actually have psychotic disorders and those who don't.” On Sunday the Bay Area Hearing Voices Network published an open letter in response, writing: “Ms. Inman has profoundly mischaracterized hearing voices networks (HVNs) and also demonstrates a troubling lack of understanding of the empirical literature on psychosis, optimal psychosocial intervention and recovery.”

Many people now using psychiatric drugs have been convinced or forced to use them while being treated in the mental health system. A good number of people are eager to stop using these drugs, but are often discouraged by others from doing so. Many psychiatric survivors believe that they can never stop using these drugs because they were told they would need to use them the rest of their lives. We hope the Sunrise Center will become a catalyst for a movement of people creating places for people who want to stop using psychiatric drugs.

Why, despite the fact that the vast majority of people diagnosed with a mental illness have suffered from some form of childhood trauma, is it still so difficult to talk about? Why, despite the enormous amount of research about the impact of trauma on the brain and subsequent effect on behaviour, does there seem to be such an extraordinary refusal for the implication of this research to change attitudes towards those who are mentally ill? Why, when our program and others like it have shown people can heal from the effects of trauma, are so many people left with the self-blame and the feeling they will never get better that my colleague writes about below?

Various instruments of the United Nations have commented on forced treatment, or involuntary confinement, or both (for details, see Burstow, 2015a), and a number of truly critical additions to international law have materialized. Arguably, the most significant of these is the Convention on the Rights of Persons with Disabilities. What makes it so significant? For one thing, it is because this landmark convention puts forward nothing less than a total ban on both involuntary treatment and the involuntary confinement of people who have broken no laws.

What do we owe to shock survivors when they die? We owe them what we owe everyone who underwent an atrocity that is ongoing, that is being visited on others daily—doing something about that atrocity. Given that shock is anything but a legitimate medical procedure, it is minimally a moment to renew our commitment and our pledge to both bring an end to this treatment and to build a world where brain-damaging people in the name of help would be unthinkable.