Initiatives

The recent furore surrounding publication of the new DSM has provided a much-needed opportunity to discuss and debate crucial issues about how we make sense of, and respond to, experiences of madness and distress. Many psychiatrists, psychologists and other mental health professionals have expressed their dismay about the dominance and inadequacy of a biomedical model of mental illness. Whilst we share these concerns, welcome these debates and support colleagues that are willing to take a stand, The Hearing Voices Network believes that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system.

The #FDAStopTheShockDevice petition has received over 2,200 signatures and 800+ comments. A more thorough analysis of those comments is forthcoming, however, we wanted to offer a glimpse of what people shared. The sixth, seventh, and eighth most common words used in the comments submitted through the petition were "damage," "barbaric" and "torture." We must continue the fight to make sure that the FDA hears the people who will be adversely affected by the proposed rule if it becomes an order. There is still a small window of time for you to sign the petition and leave a comment to the FDA.

A group of caring and concerned experts, specializing in mental health, child development, research, and parenting, have started a united movement to help families nationwide. Our effort is called Project #ForTheKids, and our goal "is to dramatically slow down the trend of over diagnosing, labeling and medicating children in the name of mental health."

Please join us in demanding that the FDA stop the shock device from being down-classified to a Class II device. We have until March 28th, 2016.

For a long time I have been interested in offering a course on CRPD (Convention on the Rights of Persons with Disabilities) to pass on my knowledge to other activists and allow more people to take up the frustrating and passionate responsibility of human rights work. Finally I have come up with a plan that is doable.

Work on the May 16 International Day of Protest Against Shock Treatment is moving right along. This spontaneously-organized, grassroots effort now includes 21 cities in 16 states, plus two each in Canada and the United Kingdom. There will also be demonstrations in Ireland, New Zealand, and Uruguay. We CAN win, and you CAN be a leader.

On Saturday morning, Susan Inman, writing for HuffPost Canada, published “What You’re not Hearing About the Hearing Voices Movement.” In it, she criticizes HVM for “failing to differentiate between the needs of people who actually have psychotic disorders and those who don't.” On Sunday the Bay Area Hearing Voices Network published an open letter in response, writing: “Ms. Inman has profoundly mischaracterized hearing voices networks (HVNs) and also demonstrates a troubling lack of understanding of the empirical literature on psychosis, optimal psychosocial intervention and recovery.”

This week Live & Learn launched a research study on the experience of people labeled with mental disorders who have tried to stop taking psychiatric medications. This project -- the Psychiatric Medication Discontinuation/Reduction (PMDR) Study -- aims to understand the process of coming off psychiatric medications in order to better support those who choose to do so. The study seeks to answer the question: What helps people stop their psychiatric medications? What gets in the way of stopping?

The Open Dialogue psychiatric treatment approach is associated with reduced utilization of mental and general health services for Danish youth.

For persons with psychosocial disabilities, one of the most fundamental rights laid out in the CRPD is the right to equal recognition before the law and legal capacity (Article 12). Our latest Position Paper focuses on Article 12 of the CRPD.

This past Thursday I attended the American Psychiatric Association's Institute for Psychiatric Services in San Francisco, and then a talk by the Bay Area Mandala Project on "Providing Loving Receptivity Can Help People in Extreme States." I would like to thank both groups for the motivation to publish this — particularly as they would seem to be at odds in the reductionist "dialogue" we so often have — but really aren't so different in my mind for reasons discussed herein: Who is not "in crisis" for questioning their identity and fit within dominant paradigms?

If people who work in mainstream biological psychiatry are willing to consider referring people in severe psychiatric crises to a program that operates under both a completely alternative philosophy and model to their own, then I see hope for our world’s mental health system. If our local psychiatric emergency room is willing to refer to a program like ours, then other psychiatric emergency rooms elsewhere in the United States and the world must be willing at least to consider doing the same. For this reason, I do not feel like Don Quixote tilting at windmills. I feel the system can change.

I recently had the great pleasure of hosting a Hearing Voices workshop with Ron Coleman and Karen Taylor. The response was overwhelmingly positive. Many people described this as one of the best trainings they had ever attended. Ron's message is inherently uplifting - after all this internationally known educator was once a mental patient given a poor prognosis. But in addition, they offered pragmatic suggestions for how to think about voices and talk to someone who is experiencing them.

The Lived Experience Research Network Issue Briefs series promotes change through multiple perspectives. We recently launched our inaugural Fall 2013 edition of the LERN Issue Briefs series. These two-page briefs highlight issues of importance in the behavioral health and disabilities fields.

Rethinking Psychiatry is an independent, grassroots group in Portland, Oregon that advocates for a paradigm shift in mental health care. On January 20, we hosted a film and discussion by activist and artist Barbara Ford. The subject was “Despair and Resilience: How to Face this Mess We’re in Without Giving Up.” Ford also showed film called Joanna Macy and the Great Turning, featuring philosopher, writer, and activist Joanna Macy.

By Dani, Director at Afiya For anyone who’s unfamiliar, Afiya is the first peer-run respite in Massachusetts and it is one of only about 18 in the country. It’s no surprise, then, that people are confused about how we do things. But, it’s not just confusion. I’ve come to realize there is actual defensiveness that arises at times when we talk about what we do at the house. If I’m wearing my activist hat, this can be supremely annoying.

European citizens from 27 different countries will soon go to the polls to elect their representatives in the European Parliament for the next five years. As an advocacy organisation, we see those elections as an opportunity to call on current and future European leaders and policymakers to bring mental health to the heart of European policies.

For the last six years we, a group of researchers, social work students, peer experts, and social professionals associated with the Amsterdam University for Applied Sciences, have been studying and facilitating the development of self-managed programs in homelessness and mental health care in the Netherlands. With our research we want to contribute to the development of new and existing programs through critical reflection. With this blog, I hope to share some of our findings, to give back to the respites from which we learned so much.

On December 29, 2015, the FDA proposed reclassifying ECT, essentially approving of its routine clinical use. I submitted a statement to FDA, explaining why the FDA should ban ECT until it goes through rigorous testing. I urge others to respond quickly to the FDA’s call for comments.

In partnership with the California Association of Mental Health Peer-Run Organizations (CAMHPRO), Live & Learn, Inc. conducted a survey on the impact of stakeholder advocacy on decisions affecting public mental health systems in California. The objective was to pilot an approach to help CAMHPRO evaluate the impact of consumer advocacy in the state and to document the activities that advocates engage in (e.g., legislative testimony, demonstrations, campaigns).

Changing the mental health and psychosocial support system in Germany requires public debate about the ways our society should help and support people in mental crisis and with chronic mental health problems. We believe the driving force behind all help and support should be humanitarianism and respect for inalienable human rights.

Rethinking Psychiatry is proud to continue the work that began in 2010 in Portland, and we look forward to many more years of challenging the dominant paradigm in mental health and providing new perspectives and solutions.

Despite the fact that no one in history, not even the omnipotent American Psychiatric Association -- which produces and profits mightily from the "Bible" of mental disorders -- has come up with a halfway good definition of "mental illness," and despite the fact that the process of creating and applying the labels of mental illness is unscientific, any of those labels can be used to deprive the person so labeled of their human rights. This is terrifying. It ought to terrify those who are so labeled and those who are not, because deprivation of human rights on totally arbitrary grounds is inhumane and immoral.

State of the Re:Union,  a public radio project that tells "the story of America, one story at a time," devotes a show to stories...

It is possible to heal, and at the same time healing also means restoring the part of oneself that can face violence and disobey to protect what is most sacred. I am that sacred, and so are you.