Personal Stories

The psychiatric concept of insight rests on the assumption that the psychiatrist, designated sane, knows what’s best. But if we question that assumption and consider that the medical model of mental illness may be incorrect, then the question of which party actually possesses insight becomes less clear.

I have lost interest in making sense. Insofar as anti-stigma entails a reassertion of my apparently forgotten humanity via the retelling of some personal narrative in which I generalize my unique experiences toward some universal wisdom, I have lost interest in the reduction of stigma. I would much prefer it if you didn’t need me to be comprehensible.

Ironically, my post-traumatic stress disorder no longer stems from the events that led to my hospitalizations, but from the maltreatment I received within the hospitals. Now, every time I take my medication late or miss a dose, I feel the unsettling presence of dissociation creeping in, the terrifying panic of losing my mental bearings and being rehospitalized. 

I knew by then that there was a thief, but I tried not to rush to conclusions. I couldn’t even think of the possibility that it could be one of the staff. They go into the field in order to help people.

I was diagnosed with schizophrenia when I was just nineteen. I am forty-three now, and I have recovered – and I use the term...

There is such shame and social punishment around experiencing extreme states of mind and being given a psychiatric label that is itself profoundly isolating. This is a kind of isolation that people who are merely practicing social distancing will probably never know.

It took surviving all of the symptoms of benzodiazepine withdrawal, including derealization, gastritis, auditory hallucinations, wasting, dementia, panic attacks and profound depression, for me to come to understand that not only had I really been a cool person before all that shit, but also that nothing was wrong with me. I was smart and a little neurotic at times, but that was it. Drugs caused me to be mentally ill where I had not been before.

After working in the field, I have found that the majority of people in the mental health system are not getting adequate care like I received during my first psychotic episode. I was lucky enough to have a doctor who took a nontraditional approach to schizophrenia and worked with me on coming off of medications.

Here in Israel we are assigned to only one hospital according to our address — there is no freedom of choice. Why is the choice of psychiatric institution so important and urgent? Because conditions in psychiatric hospitals are often unbearable. We believe that if people have a right to choose, the worst hospitals will have to improve.

How long would I have to be off meds and stay safe and out of the hospital before my story would mean something to you and the advocates for chemical interventions?

Sometimes it's the simple things that keep us going, especially when the complicated ones seem so overwhelming; when there's too much chaos, too many emotions, too many possibilities and impending disasters. No one can give you a reason to live. You have to find it for yourself. Until you do, try simple things. For me, it was a turtle.

Why did I have to go on a personal investigation to finally figure out that I was having migraines?

For weeks I had been trying to get released from the psychiatric ward, and none of my arguments, compliance, or attempted air of normality had made an impression on the barely-visible ward psychiatrist. I had, I was told, made a very serious suicide attempt and this was a predictor of future attempts. They would let me know when they thought I was sufficiently remorseful and stabilized to be released.

Here and now, I am Ativan-free and slowly tapering off Wellbutrin after 25+ years. Unable to work due to the severity of iatrogenic injury, I sometimes think of myself as a healing journeywoman. When the terrain is especially rough, I reflect on the words: "The best revenge is living a happy, healthy life." When circumstances and symptoms permit, I’m doing just that.

After telling my psychotherapist about my medication-fueled suicidal ideation, he said, “You have two options. We can do this either voluntarily or involuntarily.” Aghast and shaken, but assuming everyone in the medical system had my best interests at heart, I reluctantly agreed to go to the hospital without any protest.

After 34 years, I've concluded that some psychologists/psychiatrists may genuinely want to help people, but they certainly don't have a good toolbox to do it with and, quite likely, never will.

The world calls what was "wrong" with me "bipolar." I prefer the notion that I went through a birth process to become the healer that I am today. I can't be silent because I know there are people like I was who are trapped and may not realize it yet. When they begin to see the prison bars that surround them, I want to be there for them as others were for me.

A conflict in my personal life made it possible for me to imagine the power of emotional trauma to trigger a mental health disorder—and gave me new insights about what can help heal it.

Some might wonder why I'm still stumbling in the desert when there are cars and jobs and museums downtown, but really, the turquoise dawn is in the canyons. The thing is, my people seem to need this nutrition, the rarified medicine of this particular cactus and that specific root that I haven't found anywhere else.

I wanted to believe TMS could be the thing that helped my depression and changed my life. Instead, I wound up with a new diagnosis: Epilepsy.

Free flow had characterized my creative process — and now an art practice that had come naturally since my childhood was extinguished. Not only were my reproductive capabilities shut down on psychiatric drugs, my ability to create art had been effectively disabled.

Upon my release I was dumped at a motel with no ID, no money or method of payment, and not even a cell phone to call friends or family for help. My belongings were still locked in a safe back at the hospital. Where are the real advocates for more low-income housing, and where the hell have they been for those who are incarcerated, whether it be in jails and prisons or mental facilities?

I feel my brother was harmed not only by psychiatric drugs, poor nutrition, and dehydration but also by the lack of compassion, social isolation, and dehumanization experience typical of psychiatric facilities.

The present-day mental health establishment focuses primarily on a ‘biological’ cause for despair and other so-called ‘aberrant’ mental manifestations in the world. But when we look at the news, it’s bursting with sad realities. Animals dying, people starving, rape everywhere. Climate change bringing more disasters, racist mortgage practices. Are we to grow a skin so thick that we don’t cry when we read about a government firing scud missiles on its people? How are we to process mass-murder in an elementary school? What is more aberrant: to be so hardened that we do not cry, or to cry constantly? Might the healthy response to depressing realities to become depressed? How do we create hope when so often our world seems so terrible? How much activism is enough?

Within my heart, something feels like it’s been stolen. But they tell me it’s all in my brain, a tripped-up neurocircuitry, a misguided chemical.