Personal Stories

Everything was not okay, but how could I possibly explain? That I don’t belong here. That I am a phony, a fraud. That I am damaged beyond repair and unsuitable for this work. I felt it happening again: the pressure building in my chest and the tears burning my throat at the prospect of someone discovering my deepest, darkest secret. The precursor to my entire life falling apart.

I have stayed on the same daily, 10 mg dosage of Abilify for the last few years. Although I am compliant, I am not satisfied: I do not feel whole. I do not feel authentic.

I believe that my surges from the unconscious (what some might call “psychotic episodes”) contain an inner wisdom and force that has a tremendous capacity to encourage the healing of intergenerational trauma. This essay explores an energy that is especially potent and accessible during these periods of unconscious spelunking.

Being mad is liberating. Well, at least with practice and determination, because, let’s face it, being mental (with a confirmed diagnosis) is not a high status on the scale of popularity in our society, defined as it is by the standards of normality.

Here in Israel we are assigned to only one hospital according to our address — there is no freedom of choice. Why is the choice of psychiatric institution so important and urgent? Because conditions in psychiatric hospitals are often unbearable. We believe that if people have a right to choose, the worst hospitals will have to improve.

In inpatient eating disorders care, we were required to step on the scale but were not allowed to know what we weighed. We were told it was “against recovery” to know our weight; that knowing it would surely cause a devastating relapse.

It took coming off psychotropic drugs completely for me to become awake. I had the doctor I was seeing wean me off, though she didn’t want to (instead she suggested I take different drugs.) But here I am almost two years later and I am feeling all of my emotions and managing them well. I knew best what I needed, and I trusted myself. Life has shown me that I can endure many trials and tribulations without giving up, and I trust myself today to reach out for help if I need it.

The minute you sit down in the chair in a mental health professional's office, you’re no longer seen as a person. The mental health system is incapable of seeing past the solid wall of your current label. Their only cure is drugs. "First Do No Harm" are powerful words. It’s unfortunate they don’t apply to psychiatry.

When I was young I believed the world spoke to me.  Lightning split across the sky to the pulse of my thoughts.  Rings around...

I am a survivor of severe psychiatric abuse. There was a year or so in the early 1980’s when I was in and out...

In 1994, my nineteen-year old daughter, Cristina, was diagnosed with chronic myelogenous leukemia (CML). It was a diagnosis that came totally out of the blue and as a complete shock. Soon after she was diagnosed, it became clear that I wasn’t going to be able to sleep because of the tremendous stress, so I asked the very kind doctor who diagnosed Cristina if he could give me a prescription for something that would help me sleep. He agreed, and so began my “relationship” with Xanax. I had never taken anything like that before and didn’t know anything about it. All I knew was that as my daughter’s primary caregiver, I needed sleep in order to fight to keep her alive.

It should have been safe and healing for me in the hospital. Instead, it was like being at home with my stepfather: I was abused and invisible, just trying to protect myself. 

The childhood and psychiatric abuse altered my neurological, hormonal and other bodily functions and it was difficult to say which abuse left what mark. The doctors used medication to fix the changes and the taking of prescription pills became a habit. I took pills to calm me, pills to sleep, and pills to make me happy. A few months after stopping all medications, I was a bundle of nerves and I opened the cupboard for a pill. Living on autopilot as I had been doing for so long had to stop. I switched gears from absentmindedly resorting to pills, to purposefully calming myself without using drugs by breathing the way the psychologist had taught me.

I may be psychotic but I am not the next headline in the news. I am thoughtful and questioning. I am different and unique, but I am not violent and my life will never be anyone's tragedy. Would you like to stand with me?

Through all the years that I was a mental patient, my parents were excellent advocates who constantly questioned what the docs were doing, even though my own faith in psychiatry was unwavering.... Amazingly, what cured me was not some type of “treatment,” but getting away from drugs and therapy.

At the hospital, what traumatized me the most was that my freedom was in the hands of a professional who was steadfast in his conviction that I was feeling things I was not.

Peer supervision is often silent and stigmatizing instead of including necessary, robust discussions around relapse.

I have lost interest in making sense. Insofar as anti-stigma entails a reassertion of my apparently forgotten humanity via the retelling of some personal narrative in which I generalize my unique experiences toward some universal wisdom, I have lost interest in the reduction of stigma. I would much prefer it if you didn’t need me to be comprehensible.

My psychiatrist/therapist was able to give me a true understanding into what addiction and psychosis really are and how they can be treated with little or no medication. I still struggle, but I have been able to manage my symptoms with the help of ACT therapy, exercise, "forest bathing," storytelling, music and art. I am now able to feel a sense of peaceful fulfillment, and that is all anyone can really ask for.

Ironically, my post-traumatic stress disorder no longer stems from the events that led to my hospitalizations, but from the maltreatment I received within the hospitals. Now, every time I take my medication late or miss a dose, I feel the unsettling presence of dissociation creeping in, the terrifying panic of losing my mental bearings and being rehospitalized. 

I was going to leave the 'mental health' system on my terms, with all the paperwork proving them wrong. Or I was going to run for my life with an open diagnosis, hoping I would survive withdrawal. As I surveyed the landscape for any other path, there was only institutionalization. There was no template for what I had to do... so I made it up.

Imagine my excitement, the hope that relief from the sucking tar of misery that dogged too many of my days was within my reach. From that moment and for thirty years to follow, I was the willing guinea pig for any number of drugs. Nothing helped for long.

I was diagnosed with schizophrenia when I was just nineteen. I am forty-three now, and I have recovered – and I use the term...

We first came under pressure to give our developmentally disabled and autistic daughter a psychiatric drug when she was in her mid-teens. She was attending a local school for autistic children but was unable to adapt to their program, and we were urged to consult a psychiatrist. What enabled us to resist the pressure to put our daughter on drugs?

I struggle as to how to talk to you guys, and there can be no progress without communication. Today, I am attempting to begin a bridge so that you will not be afraid of me and I will not be afraid of you.