Personal Stories

I have wanted to go public with my story ever since I started getting so dramatically better via holistic means, but I consistently chickened out. It wasn’t until I hopped on a plane to Boston to meet other psychiatric survivors at the Mad in America Film Festival in 2014 that I found the community and forum to do so.

I survived not because I received excellent care from the staff on the ward. On the contrary, the treatment was objectifying and cold. It’s not surprising that many end up in suicide behind locked doors. I survived because I felt, however fleetingly, my experiences mirrored by others.

My childhood was stolen by systems focused on labeling and medicating me instead of healing the effects of abuse and neglect.

Sometimes I am crazy and sometimes I need help, but that help must not be forced upon me. I need to direct my own care; I need to be listened to. ACT is a method of social control that has more to do with saving money than assisting those in need. Money is saved by turning patients' homes into hospitals.

In 1994, my nineteen-year old daughter, Cristina, was diagnosed with chronic myelogenous leukemia (CML). It was a diagnosis that came totally out of the blue and as a complete shock. Soon after she was diagnosed, it became clear that I wasn’t going to be able to sleep because of the tremendous stress, so I asked the very kind doctor who diagnosed Cristina if he could give me a prescription for something that would help me sleep. He agreed, and so began my “relationship” with Xanax. I had never taken anything like that before and didn’t know anything about it. All I knew was that as my daughter’s primary caregiver, I needed sleep in order to fight to keep her alive.

Eight years after beginning ‘treatment’ for an ‘eating disorder’, I was eating worse than ever. Yet three years after quitting that ‘treatment’, food is a pleasure, not a problem.

I have nothing good to say about the psychiatric drugs prescribed to me or about the psychiatrists that prescribed them. I did not have a condition that needed to be medicated. There was no informed consent about the severe and indefinite damage that the drugs caused me, and I did not have the appropriate help withdrawing from them.

My experience is that living in a psychosis forces your brain to "stretch" — you develop extra capacity to handle things. I was pretty much living a normal life, even working some of the time, while having all of my psychotic problems. After the psychoses faded away, I no longer needed to fight monsters, but I still had that extra capacity left. After 11 periods of psychosis, my brain has never worked as well as it does now.

I was shaking and crying as I told a stranger everything about my life, and they looked at me like I was a criminal. Like I was crazy. I started to think maybe I was.

The psychiatric patient is interesting—not your average person. She is the one who might tell you: “There is more to this reality, and I saw the proof.”

Compared to the last six years, compared to how intense the drugs are and how grueling the side-effects, my first psychosis at 17, I admit, was honestly not that bad.

It would take decades before I recognized the trauma caused by repeatedly being separated from my mom when she was hospitalized. I grieved almost exactly the way children did who had lost a parent to death. Yet it was grief without closure because my mom was not dead, just... gone.

The drugs combined with my desire to know how life worked and what made a human broke down all past social conditioning of my individual self. I realized I was God. So was everyone else and I shared with anyone who would listen, but found no one who could understand or navigate the territory. There was little internet to speak of then and no Google to find others who experienced life as I was, so I voyaged on my own as best I could.

Overall I learned a great deal during my hospital adventure. The whole experience seemed like a comedy of errors. For me the only people there who were truly out of touch with reality were staff members. All of the patients were very present, albeit in some distress. The reasons for their distress were not unreasonable.

One needs no psychiatric or counseling degree to have the common sense of displaying some good manners in a profession that claims to be all about helping people. I’m glad I did not get further involved within a field that seems to be so hypocritical and moody.

At times I dream about meeting those doctors, and telling them how wrong they were when they told me I would always be a very sick person, needing medication my whole life.

Dr. W.’s description of me, that I was agitated, insulting, uncooperative, did not match the emotions I was feeling. I felt distraught, hopeless, terrified, and desperate.

When we have a strong urge to live, it must be very difficult to understand another person’s wish to die. So far, no one has been willing or able to “go there” with me.

I was told that I had only two choices: Do not have children, or take lithium while I was pregnant—the drug that posed the least amount of birth defects, and the very medication that had killed the painter in me years ago. I refused both options and set out on my own, and luckily found a willing psychiatrist to help me taper off the meds.

It used to be that the times when Santa Claus would show up were times when I was worrying about whether or not I had the right kind of medicine. I know when I see him that he is the medicine, and that he is showing me how to live.

As the SNRI molecules sluggishly evacuated my bloodstream and I progressively regained my emotions, the gravity of what I had done descended upon me. I couldn’t believe I had actually been capable of committing several crimes over an extended period of time, without stopping to think about the risks to my wife and kids, or even myself.

Forty years after I had first been admitted to the hospital, I was ready to confront my past. So, I sent for my hospital records, and I read them. As an experienced clinician, I recognized immediately what the doctors hadn’t been able to see in 1960: my problem wasn’t ‘schizophrenia’ but PTSD, connected with incest.

At my job with a NAMI affiliate, I heard daily from people who looked at family members with “mental illness” as non-people, non-human, the “other.” In the office, it was no different. If NAMI had a tagline, it would be “Please be normal like us.”

The party would continue for a time, but an inevitable crash ensued. I left my family, was fired from my job for uncontrollably screaming at my boss, and gambled away whatever money I had left in the stock market. A debilitating depression soon began, of a magnitude I could not previously have imagined. I had lost everyone and everything in my life.

Recovery is not a bridge we cross and never return to. Rather, it is more like crossing a stream we ford by side-stepping on different stones. Not all of the stones are as sturdy as some of the others. Yes, we slip at times, only to regain our footing and forge ahead.