QualityRights was launched in 2012 as the World Health Organization global initiative to promote the rights of people with psychosocial, intellectual and cognitive disabilities and to transform the way mental health services are provided in line with a recovery based approach.
The five main objectives of the QualityRights initiative are to:
- Build capacity to understand and promote human rights and recovery.
- Improve the quality of care and human rights conditions in mental health and related services.
- Create community-based and recovery-oriented services that respect and promote human rights.
- Develop a civil society movement to conduct advocacy and influence policy-making.
- Reform national policies and legislations in line with the Convention on the Rights of Persons with Disabilities (CRPD) and other international human rights standards.
These international human rights standards, and in particular the CRPD, have guided the vision of this initiative. Freedom from coercion and violence, respect for legal capacity, autonomy and liberty, community inclusion and other fundamental rights so often denied to people with psychosocial, intellectual and cognitive disabilities are central to all aspects of the QualityRights initiative.
The current focus is on capacity building for all stakeholders on these issues and the empowerment of people with psychosocial, intellectual and cognitive disabilities. In this respect we have recently published a set of training modules covering the following topics: Understanding human rights, Promoting human rights in mental health, Improving the mental health and related service environments and promoting community inclusion, Realising recovery and the right to health in mental health and related services, Protecting the right to legal capacity in mental health and related services and Creating mental health and related services free from violence, coercion and abuse. These core modules provide stakeholders with the knowledge and tools to enable them to apply the CRPD and other human rights principles in the community and in the context of mental health services.
In addition, a number of specialised training modules have been created to provide people with more in depth knowledge and skills around specific topics. The specialised training modules cover Supported decision making and advance planning, Promoting recovery in mental health and related services and Strategies to end the use of seclusion and restraint.
Both the core and the specialised training modules have been developed with a wide audience in mind, including practitioners, people with lived experience, families, care partners, Organizations of Persons with Disabilities (DPOs) and others.
Initial experiences and results of the QualityRights training with diverse stakeholders from various regions of the world are promising, with important impacts on attitudes and practices following training.
Separately we have also developed material providing guidance on Setting-up and operating a civil society organisation in mental health and related areas and putting in place effective Advocacy actions to promote human rights in mental health and related areas to support the important role that civil society has in promoting rights in services and in the community more broadly. These materials have drawn substantially upon the vast knowledge and expertise of NGOs, DPOs and people with lived experience.
To further address the knowledge and practice gap, we are at the early stages of developing guidance that will identify and describe innovative services and best practices compliant with a human rights based approach. This guidance will ultimately assist decision-makers and service providers to put in place services that are community-based and recovery-oriented, and to operate without coercion and with respect for the right to legal capacity. To date we have developed guidance for establishing individual and group peer support. There are many more innovative services and supports such as the Hearing Voices Network, Personal Ombudsperson (Sweden), Soteria houses (US and UK), Circles of support (UK), and home support services, but they remain at the margins and most policy-makers, health professionals, people using services and others are not aware of them. If implemented, these services and supports have the potential to transform the mental health system in a positive human rights and evidenced based way.
Ongoing assessment and monitoring is also key to ensuring that all services are fully compliant with human rights standards. As part of the QualityRights initiative, we have developed the QualityRights assessment toolkit which measures the degree to which services are compliant with a number of key standards linked to the CRPD. The toolkit outlines the standards which should be achieved in mental health and related services to respect human rights and promote recovery. A dedicated module which we have developed on Implementing improvement plans for service change can be used in conjunction with the other training and guidance tools to address the gaps identified as part of the assessment process.
Finally, the WHO QualityRights initiative also encompasses the WHO MindBank, an online platform which provides quick and easy access to national and international resources, strategies, policies, legislation and service standards relating to human rights, mental health, disability, development and other topics. Since its creation in 2014, MindBank has become an essential tool for supporting the work of policymakers, advocacy groups, academics and researchers. As a tool for advocacy, it allows people to identify the current situation, potential gaps in laws and policies as well as examples of innovative policies and strategies to develop effective advocacy actions and messages at the national and international level. It currently contains more than 6000 documents from 192 countries across the world.
The challenge to promote the rights of persons with psychosocial, intellectual and cognitive disabilities and to transform mental health services across the world is colossal. The QualityRights initiative seeks to provide actors everywhere with the tools that they need to become active agents for change.
Mad in America hosts blogs by a diverse group of writers. These posts are designed to serve as a public forum for a discussion—broadly speaking—of psychiatry and its treatments. The opinions expressed are the writers’ own.
Wishing you every success with this vital work.
Thank you for the valuable further-learning assets identified via the links you have provided.
TRM 123. Retired Consultant Physician.
What are psychosocial, intellectual and cognitive disabilities? Who defines what a psychosocial disability is? An intellectual disability? A cognitive disability?
What is “mental health”? Can anyone with the WHO define “mental health”?
“Psychosocial disability” is no big improvement over “mental illness”. Etc.
Of course, if “mental illness” = “psychosocial disability”, I guess that means “mental health” must = “psychosocial ability”.
Thanks Frank. I wonder if anyone at WHO would be wiling to define these terms, because they look really silly when they use terms that they can’t define.
When developing different material, terminology has been a challenging issue and after undertaking extensive consultation we have decided to use the expression “people with psychosocial, intellectual and cognitive disabilities”. We explain why we have chosen this expression as well as its meaning p.10 of the following document: http://apps.who.int/iris/bitstream/10665/254801/1/WHO-MSD-MHP-17.1-eng.pdf?ua=1
Of course, terminology can evolve as we continue to discuss with people with lived experience across the world.
“In the animal kingdom, the rule is, eat or be eaten; in the human kingdom, define or be defined.” – Thomas Szasz
Szasz was right about many things, and not just about the myth of mental illness.
I have been silent on this site. I have looked at the various contributions and they have all had interesting thoughts .
There still seems and this commentary proves it again- a divide between users and non user professionals. Whether they have lived experience is never mentioned and that creates more of a divide on this site. Is it fear based or did they just get lucky or does status play its hand even with a female based cohort?
Glad this is being thought about but meh because it is so all encompassing – the range – used is or seems overwhelming.
The best folks to be actively involved with actual power to talk the talk and monetary ability to walk the walk would be those with multilateral experiences.
Until you have been pregnant one just can’t conceive – no pun intended- how life is changed forever. We as a world community keep on looking to professionals even with the best intentions who just miss the boat because as in male Ob/Gyn cant talk the talk or walk the walk.
A movement needs folks from both sides in an equal concurrent community. Actually, from the whole spectrum.
Seneca Falls and the meeting way back before that. Check it out -African American females and others working for rights of both.
We just need to do it and folks will come like an open audition . Scary kind of very Who knowsish but look at how many stats have been found in theatre or sports. One lighted candle showing the way.
Think folks. Work together. Listen and professionals be humble. Some of you never ever would have suirvived by what we survivors have and had been done to us.
Blogs with both folks – a written conversation would be a good start.