ECT

Peer support pioneer and MindFreedom board president Celia Brown discusses what it means to be a 'survivor of psychiatry' and the importance of human connection, and human rights in mental healthcare.

The #FDAStopTheShockDevice petition has received over 2,200 signatures and 800+ comments. A more thorough analysis of those comments is forthcoming, however, we wanted to offer a glimpse of what people shared. The sixth, seventh, and eighth most common words used in the comments submitted through the petition were "damage," "barbaric" and "torture." We must continue the fight to make sure that the FDA hears the people who will be adversely affected by the proposed rule if it becomes an order. There is still a small window of time for you to sign the petition and leave a comment to the FDA.

In a recent commentary, University of Toronto historian Edward Shorter laments the efforts of people like myself in states like Texas who have successfully put limits on shocking children in order to induce grand mal convulsions. His argument is that we who have fought against this are denying children a benevolent medical treatment. In order to understand why Shorter’s plea to use electroshock on children is so egregious, we need to know what it does to children’s brains, which means a look at the science.

Upon review of hundreds of the "informed" consent forms received from those suffering permanent cognitive impairment after receiving ECT, the overwhelming majority do not provide the patient with any form of disclosure that "brain damage is a risk that can potentially occur from ECT, whether performed properly or not."

In September of 2017, DK Law Group, LLP filed a Class Action Complaint against the manufacturers of ECT shock devices, alleging that they caused injury to patients by withholding from the FDA data relating to serious iatrogenic brain injuries resulting from ECT. The following developments have taken place since then.

I am trying to demonstrate, in a series of installments, how in the 21st century we still often fail to establish effective safeguards for the rights of people who end up in our psychiatric systems. This particular example is taking place in 2016, in Melbourne, and involves over 50 consecutive electro shock ‘treatments’ and multiple, sometimes very lengthy, periods of being tied to a bed. In this third installment, I offer my interactions with another body who is supposed to protect our rights when under the ‘care’ of psychiatrists, the Mental Health Tribunal.

I have long been concerned with the way society responds to people who come back from war. Veterans are routinely funneled into psychiatry’s grasp. Over the decades, some people who fought in wars have shared with me their experiences of being psychiatrized upon return from war. Sometimes these experiences included veterans being stripped of their second amendment rights, and a host of other constitutional, civil, and human rights violations as they began to be forced into complying with psychiatric regimens, and on several occasions this included veterans being subjected to electroshock.

Afraid of facing me in court, the state gave up entirely and a young man was freed from involuntary ECT treatment. It was a total victory. Meanwhile, the Psychiatric Industrial Complex is finding more subtle ways to inflict electrical energy upon the brains of children labeled with ADHD.

Garth Daniels, a 39-year-old Melbourne man, has been shackled for 110 days and forced to undergo ECT 94 times at three times a week against his will. Last year, his family asked me to provide a second opinion on Garth’s case. As predicted, my recommendations against continued ECT were quickly dismissed by the hospital. There are critically important issues at stake in this case.

Think of all those women who have undergone or will undergo electroshock and suffer severe losses in memory, intelligence, special skills, creativity. Women too disabled by shock to pursue promising careers. Women who suddenly die after being shocked. Electroshock is torture, and informed consent in psychiatry is a myth and a lie.

A scientific understanding of electricity’s effects on the human body has only been around since the last half of the 20th century. If this understanding of electric shock and electrical injury was had in the first part of the 20th century, electroconvulsive therapy (ECT) would likely never have been accepted by modern western medicine.

Lou Reed’s “Kill Your Sons,” about his ECT as a 17-year-old, gives voice to an event that majorly radicalized him to distrust authorities. Lou’s talents enabled his rage over his ECT to be transformed into the kind of art that deeply touched society’s outcasts and victims of illegitimate authority. But such trauma often only destroys.

Forty years after I had first been admitted to the hospital, I was ready to confront my past. So, I sent for my hospital records, and I read them. As an experienced clinician, I recognized immediately what the doctors hadn’t been able to see in 1960: my problem wasn’t ‘schizophrenia’ but PTSD, connected with incest.

One of the most amazing activist campaigns I have been involved in during my 40 years of protest for human rights in the mental health system, was the effort to stop the involuntary electroshock of Ray Sandford of Minnesota. Ray reached MindFreedom in the Fall of 2008, and an international human rights campaign began for him.

Data shows that over a third of users experience permanent memory loss and that approximately half report not receiving adequate information about the risks from their doctors.

Through all the years that I was a mental patient, my parents were excellent advocates who constantly questioned what the docs were doing, even though my own faith in psychiatry was unwavering.... Amazingly, what cured me was not some type of “treatment,” but getting away from drugs and therapy.

A major electroconvulsive therapy case that was on the eve of trial just settled to the satisfaction of the injured ECT patients and the DK Law Group, LLP. As an expert in the case I am pleased to report that this is a significant victory. The evidence secured has paved the way for more suits against ECT manufacturers that are on the way.

The December 4 "grand rounds" at the Oregon Health and Science University consisted of a presentation on what they call "Interventional Psychiatry"—an interesting euphemism for Electroshock, Transcranial Magnetic Stimulation (TMS), and the comeback street drug, Ketamine.

The importance of a remarkable new film, The Minds of Men, was underscored by otherwise inexplicable recent events surrounding government support of ECT. Without any testing or opportunity for public response, effective December 26 the FDA has approved ECT for infliction upon people with “treatment-resistant depression.”

While most of the sting is gone, even now — almost sixty years on — I can’t get through a single day without thinking about shock treatment and the state hospital. I regularly have dreams or nightmares about being lost in a strange place and someone making me feel like dirt.

In 1959, my mother suffered what people referred to as a nervous breakdown after my sister’s birth. I puzzled over why Mom never recovered, until I found Dad’s collection of medical records in my sister’s attic. How could anyone give a nursing mother with three small children so many drugs in such a short period of time?

Electric shock "treatment" is no more effective than sham ECT, in which the client is prepared and anaesthetized, but not actually shocked. When one considers the pains to which real doctors go to protect their patients from seizures, I suggest that the deliberate induction of grand mal seizures, often involuntarily, constitutes neither "a remarkable discovery" nor a "remarkable medical advance," but rather aggravated assault by a person in a position of trust.

This is the final of four installments about the bizarre, ongoing conduct of psychiatrists at Upton House, an Eastern Health psychiatric facility in Melbourne, and the collusion with their conduct by all relevant agencies. This last installment will document the failure, so far, of the State and Federal Governments to intervene in even this most extreme and blatant example of abuse of power by psychiatry. If I, as a Professor of Clinical Psychology with 40 years clinical and research experience in this field, can be so easily dismissed/ignored by the relevant systems in Victoria, what chance do the average users of mental health services and their families have of being heard in this State?

Essentially what Choy et al are seeking in their editorial is the total suppression of information concerning the harmful and often permanent effects of high voltage electric shocks to the brain, thus implying that the very large number of individuals who report more extensive and persistent damage are not worth listening to.

This is a call for action against the horror euphemistically known as “electroconvulsive therapy.” At a time when society is finally making advances against ECT, a courageous 80-year-old shock survivor, Connie Neil, has decided to go on a hunger strike to try to stop the horror that was visited on her from continuing to be visited on others.