Benzodiazepines

After long-term use, most people are going to have serious symptoms when stopping SSRIs. Many people are going to have transient, mild to moderate difficulty and some are going to end up falling down the akathisia rabbit hole. That is a long, difficult drop.

I am still trying to reconcile what these chemicals are capable of, how the urge can morph into an action, how we maybe just don’t understand suicide all that well. For me, the suffering was so intense it was too painful to stay alive. I understand how my friends felt in their last moments.

Long-term benzodiazepine use shown to effect cognitive function during current use and for years after drug discontinuation.

Medically-induced harm—affecting tens of millions of people worldwide—has taken the field decades to take seriously.

A large study of the population in Taiwan reveals that long-term use of benzodiazepine drugs, commonly prescribed for anxiety, significantly increases the risk for brain, colorectal, and lung cancers. The research, published open-access in the journal Medicine, also identifies the types of benzodiazepines that carry the greatest cancer risk.

Oddly enough, it had occurred to me over this past year as I’ve been writing these essays for Mad in America that maybe I was “too healthy” to speak to the withdrawal experience with authenticity, to have street cred. It’s now a moot point. I write this not to scare people, but to present a reality. This reality has been difficult to accept, but the fact remains that my nervous system is more sensitive than before and might always be so, at least to some degree.

Pictures are worth a thousand words. So I’ve chosen pictures to distill the mountain of mental health research I’ve examined over the last eight years. Three infographics summarize research on psychiatric drugs, and one asserts why I think Integrative Mental Health is the best path available for mental health recovery.

One size fits all does not work. It is not possible to use the same tapering schedule for all patients who wish to stop with a certain drug. Therefore we had to come up with a flexible solution that was both practical and allowed doctors and patients to make the choice they deemed appropriate.

Dr. Raymond Armstrong and I are currently working together to push Texas lawmakers to adopt restrictions on the prescription of benzodiazepines and sleep drugs. We feel fortunate to be able to draw from the experience of the benzo movement in Massachusetts, and we are grateful for the information that long time advocates like Geraldine Burns have provided us.

The hearing for Bill H4062: Informed Consent for Benzodiazepines and Non-benzodiazepine Hypnotics took place on Monday – in the middle of an April snowstorm! The discussion clarified some important points in the legislation and gave survivors an opportunity to tell their stories. I was so proud to be there and witness the courage, camaraderie, resilience, advocacy, and vulnerability of fellow survivors. This legislation is our chance to be heard. As one survivor said, through tears, to the committee, “Do not let my suffering be in vain. I beg you to pass this bill.”

I have given up on psychiatry as a system capable of “being there” for people who are dealing with life and death issues. Psychiatry as a system of care lacks validity. Every day — unfortunately — we learn of new examples proving this statement. But here's the good news: every day we meet people who show us that the predictions of psychiatry are not true; that there are “cures,” that it is possible to reduce or withdraw psychiatric drugs.

Can withdrawal from psychiatric drugging be so terrible as to leave you with Post-Traumatic Stress Disorder (PTSD) — to somehow rearrange your psyche for the worse even once time and hard work have undone the damage caused by the chemicals? To so profoundly alter your core self that you acquire a new diagnosis meriting special considerations or further treatment in order to resume a normal life again? If the real definition of insanity is “repeating the same mistake over and over and expecting a different result,” then embracing a psychiatric diagnosis of PTSD as a result of psychiatric damage would surely make you “insane”.

I remember the feeling, one of not exactly isolation but otherness. A sense that not only did I not fit in many places where I used to, but also that I lacked the energy to even try — to, like an actor, wear the skin of the old me for an hour or even a few minutes so that others would not feel uncomfortable in my quivering and clearly perturbed presence.

My doctor insisted that my symptoms could not be associated with withdrawal – they had to be symptoms of an underlying condition. I have since learned from legitimate sources that protracted withdrawal syndrome from benzodiazepines can intensify long before it abates, with some symptoms lasting for years.

It’s stunning what a quarter milligram of a benzodiazepine can do to the body. I’ve been detoxing off a high dose of benzodiazepines since September of 2011. The first few months were a failure. But this past May, I found my expert and thought I had the formula. Things were going well for detoxing off a substance many deem more addictive that heroin. That is, I realized, until they weren’t.

Many have asked: “Why doesn’t my doctor/provider know what is happening to me?” Benzodiazepine tolerance and withdrawal are not new. So, why isn’t it simple to diagnose and treat? As both a health care provider and a withdrawal sufferer, I’d like to offer an inside and outside perspective on this question.

It is the deadly cocktail of benzodiazepines and opiates that is most responsible for the rising rate of opiate overdose deaths... and benzos may actually be THE decisive deadly component in the lethal drug combination. Yes, fentanyl and propofol can be dangerous drugs, but to focus the main attention in this crisis on these rarely used drugs is deliberately misleading...This minimizes the critical role of benzos and rather conveniently lets certain institutions and their leaders off the hook as the main suspects in such a vast number of cases that should be labeled as crimes of negligent homicide.

Researchers examine how rapid discontinuation can mimic the relapse of mental health symptoms and confound psychiatric drug studies.

New guidelines recommend deprescribing benzodiazepine receptor agonists for adults.

It is hard to believe that a year has gone past since I posted Playing the Odds: Antidepressant Withdrawal and the Problem of Informed Consent. The feedback I received underscored the more controversial aspects of SSRI toxicity.  Common themes concerned the abrupt onset of new symptoms 3 to 12 months after stopping the drug, reinstatement of the drug failing to help withdrawal related symptoms, the possibility that withdrawal-related symptoms can persist indefinitely and concerns about using benzodiazepines to help with tardive akathisia.

A new special issue brings together articles exploring the harmful effects of simultaneous multiple medication use.

"My studies in this area lead me to a very uncomfortable conclusion: Our citizens would be far better off if we removed all the psychotropic drugs from the market, as doctors are unable to handle them. It is inescapable that their availability creates more harm than good." - Peter Gøtzsche, MD; Co-founder of the Cochrane Collaboration

H. 3594 would require pharmacists to distribute pamphlets containing information on benzodiazepine misuse and abuse, risk of dependency and addiction, handling and addiction treatment resources. This would be a major legislative response to the prescribing patterns for these drugs today.

Confronting existential anxiety through “Basal Exposure Therapy” shows promising results in people withdrawing from psychotropic drugs.

If a person in mid-life is feeling anxious, or depressed, or can't sleep? No problem. No need to figure out the source of these concerns. No need to work towards solutions in the old time-honored way of our ancestors. Today, psychiatrists have pills. Pop a benzo! And by the way, you'll have a 40% increased risk of Alzheimer's Disease in your late sixties.