Tuesday, November 13, 2018

Comments by Ekaterina Netchitailova, PhD

Showing 100 of 105 comments. Show all.

  • Hi Chaya,
    what a great idea to teach practical skills to those who have been there and can help others! It is very very hard to come off the psychiatric drugs, and some of them are so addictive that it becomes almost impossible, especially if you depend on them to sleep. Do you have any advice for very strong natural remedy for sleep?
    I enrolled into your course, when does it start? I am glad that you launched this!

  • @survivingthesystem
    why not using the actual names wasn’t a question, it was stating the fact. Do you think I am not aware of what it brings as a problem on a daily basis? Since I published my first article on Mad in America, I am facing constant stigma, discrimination and patronizing. I get calls and messages from relatives and friends advising me to stop being so open about it, to stop writing about it, etc. I even asked once to remove my article from the site, which they did (https://www.madinamerica.com/2015/04/being-mad-is-liberating/), to ask to put it back a couple of years later.
    But hey, if no one talks openly, no one will ever know the truth and fight for the rights of the oppressed openly. How many academics are talking about their ‘mental health’? Maybe ten in total, and only if they are already in well-established positions (I am not). Others keep silent. They are moving it all to the next stage now, where mental illness is marketed as a physical illness, where it is marketed that it is ok to seek help, but where it is not okay to be ‘mentally ill’. They are silencing everyone with their new campaign of marketing actively the mental illness as any other physical illness.
    Yes, i have lots of friends in the system who are even still in the hospitals, on injections, actively reassured that something is wrong with them.
    It is the most brutal act on humanity.

  • @Oldhead,
    socialist revolution and exposing the harm of psychiatry are two totally different things. I grew up under the socialism (one of the best experiences of my life in terms of enjoying my life, while learning values, having fun at school, learning how to socialize, how to think, knowing that everyone should have the right and chance to succeed in life, caring after other people, knowing that whatever happened to you, you would still have a place in the society, be protected, have food on your table, be able to send your child to school and university). But psychiatry was still there, because the society, as whole, doesn’t understand ‘mental distress’ and why it is happening and what to do with it.

  • ah, i am not biting into anything, Oldhead!
    Scientology- i know nothing about it, indeed, but they seem to attack the core of the matter: DSM and the diagnosis system.
    There is no real coordinated system elsewhere, it is all non- coordinated ‘talk’ at this moment. And people in real life have nowhere to go, apart from the system of ‘mental health’. Psychiatry and mental health are the same thing, they just rebranded themselves and penetrated all spheres of life. Attacking psychiatry therefore, looks like attacking all doctors, which try to help and heal people. There is misunderstanding of the mind, and therefore, it is delegated into the field of ‘illness’, and the ‘attack’ should be at the level of ‘DSM and diagnoses’, while doing research on the mind and theorising that ‘cases of distress’ are a natural reaction to major events in life, stress, and current capitalistic system which makes some people poorer and unable to enjoy what should be enjoyed by each individual.

  • @Frank,
    well, you just summarized the biggest problem, and indeed, it has all moved into ‘mental health’ domain, with extremely disturbing marketing campaign happening in parallel (it is ok to be ill, it is just a physical illness). Therefore, any anti-psychiatry initiatives look like you are talking against ‘health’ in general, like you are attacking all health professionals at the same time. This is definitely happening in the UK. The psychiatry has become a system within a system.

  • an example of a survivor where I am (the UK), a girl diagnosed with schizophrenia, years on medication. She is anti-psychiatry, she can’t stand it. She stops her medication, because she knows how harmful it is, and she can’t work on it or lead any active life while on anti-psychotics. Anti-psychotic medication, however, alters something in the brain, making it addictive to it, to an extent that when one tries to stop it, it leads to medication-withdrawal psychosis. She ends up in the hospital, she is sectioned under mental health act, she knows it is wrong, but there is no other place to go, there is nothing available as an alternative. So, in the hospital, she is put back on medication, there is no choice, unless you want to stay in the hospital forever. And her journey starts all over again. But she is anti-psychiatry, she is a survivor, like many others. There are thousands of such people, and they don’t know what to do, where to turn, how to get out of the carousel unless there is a clear, real-life alternative.

  • I think that there are different groups and different survivors. Groups probably do include academics but also health-professionals, activists, journalists, etc. As to survivors, i think one needs to be very careful and make them welcome on this site, instead of trying to partonize them. Many people have been smashed for years by psychiatry, are addicted to medication which they are prescribed, are surviving within the official paradigm of ‘mental health’, and until there is an organised group which can receive the survivors in real life to help them, one has to be careful as how to address them and try to make them feel as if they aren’t in any group. Taking a clear academic stance, or becoming an activist is a different thing.

  • She was bullied on Twitter and she is a psychiatry survivor herself, I was very worried about her as a fellow human being. Bipolar disorder is a label, I agree, a label of the experience of being human.
    Anyway, she seems to be managing, with her Muslim friends helping her, so i don’t want to discuss it anymore here. When I wrote about her first time, i was hoping that some other people would support her on twitter from her bullies

  • there are too many people in the system who are ‘disabled’ by the system and therefore, while the system exists it does need peer-workers.
    To give some insight into the discussion On Szasz, Cooper and Laing, they all provided contribution into anti-psychiatry. There are plenty of psychiatrists who, also are at a loss themselves as what exactly they are doing (and I know a few). But proclaiming oneself as an anti-psychiatrist is, in practical terms, a loss of a job and professional reputation, with one recent example (from just criticizing some (!) practices within a profession, written on this site quite recently and all over the news.

  • Oldhead,
    but about which demographics are you talking about? There are real people in real life who either ask for help (so, your answer, is to turn them away?), or people who are long enough in the system and are ‘disabled’ by it. I don’t understand what is your stance in terms of offering real solutions for real life, apart from just arguing against the psychiatry?
    As to Scientology, they just released an interesting documentary which frankly speaking, says the truth about the whole ‘bogus’ psychiatry thing, so I am interested in them more and more while i am researching them and looking at what they are doing in practical terms. https://www.scientology.tv/documentaries/diagnostic-and-statistical-manual.html

  • @ Desinquisiteur
    I can’t answer directly under the thread as it finished for comments.
    To answer your question, to advance any changes within the secular field, it is a way that academically can sort this out indeed for the time being (the psychological but also sociological approach), in terms of helping real people in real life and while operating within the official ‘mental health’ ideology.

  • Well, while commenting I came to distinguishing between fight against the oppression of the psychiatry, and a fight in understanding ‘psychosis’.
    Most official religions have indeed become an oppressive apparatus in themselves, so sociologically, the fight does need to be at the level of institutions, power discourse, human rights and individual agency, and it is sociologists and philosophers who can make a difference in the discourse.
    But from a personal point of view, I am interested in psychosis. I saw god and met the devil, and no one, no one can ever convince me that it never happened. In this respect, psychiatry, even if it says it accepts ‘religious’ beliefs, actively denies them, because it gives a definition to ‘delusions’, which are in their majority, expressions of seeing something else out there.
    To be clearer: the anti-psychiatry fight is one thing, understanding psychosis is another thing, and it has to be taken out of ‘psychiatry’ for those who are oppressed within the machine.
    As how to help others, well, i am trying to do it, but the outlets of doing it in a practical way, are non-existent (where I live) if one needs to earn some money to feed one’s child and survive at the same time. As I argued in another comment, most people are actually hiding behind pseudonyms, because stigma is smashing, and so i am not sure where exactly the ‘fight’ (apart from this site, of course) is taking place and how help other in more practical ways.

  • I agree that people can agree or disagree without shaming. The main disbelief actually came from Christian people when I was saying I was ‘Jesus’ and seeing parallel reality. I already know that psychiatrists don’t believe in such things. But Christians should actually sit me down and say that: 1. You are discovering Jesus and this is what is happening, you are discovering faith, or 2. You feel close to Jesus and Jesus is in everyone, instead of agreeing that it is a mental illness. A Christian nurse told me while administering medication that ‘You aren’t Jesus, and never were.” Personally, i do find it problematic that those who say they follow any faith, are unable to actually experience faith in real life, and spiritual awakening.
    Not believing in anything is a choice which should be respected, but doesn’t help in understanding psychosis.

  • Steve, yes, I agree. It has become some sort of ‘religion’ in itself, and it uses a very powerful discourse, which is hard to fight as a whole. Therefore, the fight at a global level does need to come from those who do believe in God, and then fight at an individual level for those who actually encountered the parallel reality, and had the privilege to meet both god and the devil.
    As to being called ‘a Scientologist’, it only triggers a natural interest on my part. What Scientologists are doing exactly? And why it seems that most people are terrified of them? More I read about them, more I become curious about them, in all honesty.

  • the problem is that the society as a whole doesn’t accept any forms of madness and psychiatry acts as an institution which took on the task of regulator of all forms of ‘weirdness’ and will continue doing so, especially with its umbrella term of ‘medical regulator’, while being in reality a regulator of ‘behavior’ and ‘societal malaise’.
    In practical terms, i think that as a fight from survivors it has to come from individual groups with their individual experiences. People with autism almost won the fight because they distanced themselves from being perceived as people with ‘mental illness’, even if autism is still defined by the association of psychiatry. So, people who experienced psychosis, should also unite and change the perception of psychosis and how they are perceived in the society.

  • Oh I totally agree that the main change needs to come from within the social order, in terms of how we view things in general! Psychiatry is an institution within a very regulated system, it is not a medical system, it is an ideology, which says it is a ‘medical’ system. And it is an ideology very actively promoted by governments arguing the discourse of ‘mental illness as a physical illness’. It created a cacophony which is difficult to fight. It is not an illness and it isn’t a physical illness. It is an experience (I am talking about psychosis). In other words, the fight against psychiatry doesn’t address the main problem, and those who actually address it (arguing that mental illness is a myth) come from psychiatrists themselves. And while they were very prominent in the seventies, there aren’t that many today, because the control now is at the government level, and those who are in the profession, have to feed their families, or risk being ousted and public disgrace.
    As to survivors, i don’t see any organised effort, apart from forums where one can ‘talk’. I see only a couple of people who even talk from their first names, others are smashed under stigma, and other concerns that ‘talking openly’ about all this can involve.
    Psychosis is a term adopted which is a term utilized indeed by a medical profession, but i see it as a positive experience and thus, don’t see a problem of using the term for the time when one wants to change the perception. Offering another term is an enterprise in its own making. But in the majority of case, it is an experience when one get a glimpse of ‘other reality’, which is indeed there, but not believed because of lost of belief in the society as a whole. Religious institutions could probably play an important role in changing the perception once they accept that those who do approach this parallel reality, can indeed certify, that there is something there, and there is God.
    But there are different types of psychosis, and not all of them are about ‘spiritual awakening’, some of them are triggered by drugs, and do require an urgent help, but I also believe that with all other types of psychosis, one can’t leave the person unattended, whether the help comes from a shaman, priest or someone else, this is indeed a question. Ending up in the hospital is not the end in the world, it’s what happens in the hospital (when one gets a label of shame because it is immediately delegated into ‘physical illness’ and treated by drugs or coercive treatment) this is the problem.
    Again, the ‘fight’ of survivors is happening at the level of some anonymous speakers, who are the survivors who openly talk about their experience? One can count them by fingers, and some of them indeed do important work, such as changing perception within academia, or having an initiative about drug withdrawal. Others sit at homes, hiding, afraid to speak out. While others, through the use of medicated drugs, are now indeed incapable to work, and rely on benefits which do require an official diagnosis (what to do with these people?). Getting off anti-psychotic drugs can trigger drug-withdrawal psychosis, how to help these people? Etc, etc

  • Yes, i will contact you via your blog. I can’t possibly afford that thing you mentioned, but vitamin B12 – i’ve heard indeed that it is useful.
    I’ve seen psychotic junkies and drugs can induce psychosis, it is a very dangerous territory.
    There is a lot of criticism of psychiatry, but no alternatives in terms of an organised system, it seems. Why? Because no one wants to take the responsibility of dealing with a psychotic person without some ‘legal’ terms in place, or risking to end up in prison. So, which leads me again to conclusion that the change has to come from within somehow, more humanistic approach, no diagnoses or patronising. As a person who had psychosis, i can certify that you can’t just leave the person to their devices, a safe house is needed, or there is a risk to life of this person. What i think is needed are spiritual workers within the system, who understand psychosis.
    Psychosis is actually the main hurdle in the whole game. Because no one figured out yet how to deal with it, and it gives justification for other ‘illnesses’ and ‘diagnoses’. As long as they have ‘psychosis’ in their category (and it is the considered as the most serious mental illness officially), one can’t win any fight with psychiatry. Figure out ‘psychosis’, and then there is a chance for change. But since it is in the spiritual domain, it can be understood only by very few.

  • markusbmcake,
    I have great respect for Islam! What i meant is that when one is going through some spiritual awakening, no one should try to influence someone into ‘official’ religion unless the person has already faith and can be helped by a spiritual worker. I think that all religions provide some kind of answer, but it is all lost now within the official system of diagnoses.

  • I have to re-read my comments to see whether I mentioned anywhere that i believe i was Buddha in my past life. In my article I say I thought I was Buddha. I felt like one and told the doctor so. Yes, i do think that it was a process of spiritual awakening, however, i find it extremely wrong when someone tries to take advantage of it and turn it into an official religion of some sort. I am good where I am in terms of my faith.
    Again, my question is: if not the psychiatry, then what are the alternatives? What are the practical proposals to help people who ask for help? How to help a person in psychosis (whether we agree or not with the term). Leave the person to their own devices? What if they actually want help? If they do need a safe house? How to help these people?

  • Hi, many thanks for the links!
    I will have a look.
    I was thinking more of how to help people in real lives, especially that some people have no access to the Internet. There is a lot of criticism of psychiatry but what would be the alternatives? What would be the alternatives for people who ask for help? Soteria? How to help people to recover, how to help them to combat with stigma? How to educate them in practical ways? How to reach all those who are heavily drugged, sit at home hiding, with no desire to live? There should be a more coordinated network of survivors, because even if some of them do exist, I don’t understand how they help people in real life. Everything is isolated, in other towns, somewhere in an abstract place on the internet, while real people in real life, continue to struggle.

  • Well Jesus was referred to somewhere as a paranoid schizophrenic so Shakespeare probably still escaped the labelling because of their subconscious understanding that nothing will be left for ‘entertainment’ while they build their next generation of slaves. Lametamor, напиши мне на мой блог! http://porcupineswisdom.blogspot.co.uk там есть форма для контакта! Я тут если честно, охренела в серьёзных дискуссиях (не на этом сайте, mad in America это англо-язычное спасение) а в том что пишут в академии и политике), а ведь в вопросе псиахтатрии без чувства юмора не выедешь. Булгакову диагноз поставили?

  • Hello Julie,
    once you come into the grips of psychiatry, you encounter abuse. I believe you. My first experience was in the Netherlands, which was a reason as to why I left the country. It was where that the doctor insisted on speaking Dutch to me, while I wasn’t speaking it yet, saying that ‘we are in the Netherlands’ and his English and French were perfect, where I was given medication while I was just extremely happy, and where I was told ‘I was mad’ when I said I was Buddha. Once, when I sung in the corridor a song by Robbie Williams, I was put into isolation room for a night. My only ‘salvation’ was a Jewish psychiatrist who clearly didn’t believe in psychiatry and asked not to give me any medication when I came myself for help in search of a ‘safe’ place, but he was ignored because as they said in the hospital: ‘we don’t have space for something like that (to treat someone without any medication)’. He was a reason as to why I thought that the psychiatry could be transformed from within for a while, but of course, it has just adopted a ‘pseudo-humanist’ approach since then, positioning it in ‘mental health’ debate, while at the same time, things have become so much worse. Now, everything gets a diagnosis.
    There is nothing apart from Mad in America website to help those who try to look for alternative explanations and views. Nothing. While there is an urgent need to actively help those who suffered in a more active way, such as self-education.

  • Hi guys,
    thank you so much for the support! I shouldn’t have reacted to that disrespectful comment. I am not in the hospital to ‘argue’ my case! Well, yes, Buddhism teaches that everyone can become Buddha, that was my first stage, before I became ‘Jesus’, which led to the most traumatic hospital experience. Again, just a belief which doesn’t sit well with the psychiatrists, who don’t understand that I am just in the middle of spiritual transformation.
    I am not sure I am right or am doing a right thing, but how many of you know Sinead O’Connor, an Irish singer? There is a witch hunt on her today on Twitter and from the press due to a couple of embarrassing tweets. I had a look at her tweets when read that she had some ‘mental’ health issues in the past (including an overdose and a time in the hospital), and it might be totally a wrong guess but i think she is in the middle of ‘psychosis’ and needs understanding and some help rather than ridiculing her with all kinds of nasty comments all over the net today. Could someone else have a look? Her Twitter is https://twitter.com/magdadavitt77?lang=en
    I might be absolutely and totally wrong but as a person who had ‘psychosis’ I recognise some signs and wish that someone would be there for me, asking how I was doing rather than deleting me from friends or laughing when I said i was ‘Jesus’ on Facebook.

  • Ohwhattisthatlight, i would honestly rather argue with a psychiatrist than someone like you. What you wrote is extremely disrespectful and damaging. It showed in one go what is wrong with the system and demonstrated stigma that is much more harmful to survivors than the psychiatry.
    I don’t know where you got this idea but people in psychosis don’t want to harm other people, less alone kill anyone. It is indeed very damaging that some murderers claim the insanity. It should be abolished as a practice.
    You don’t know whether I was Buddha or Anne Frank. If I believe so, it is my belief. It doesn’t damage anyone. I went for help myself because I was in the outer reality which is beautiful but I was scared and needed a safe place. The safe place turned to be more damaging than safe. I honesty don’t know what you are doing on this site, but the psychiatrists showed me much more respect than someone like you.

  • Hi Igor,
    ah, i managed to have some kind of life only because I never took the psychiatrists seriously. And functioning on 300 ml a day on seroquel is impossible, it is a fact. I was taking it all as a laugh (a survival strategy, I guess) until very recently when I decided to start research in mental health and finally took stock of what the psychiatry is doing. My last ‘crisis’ was an eye-opener, they effectively make invalids out of people. Also, because I always knew that what I experienced in my psychosis was real, the diagnosis never mattered, especially that they debated about it for like years, by first ‘trying’ schizophrenia and then discarding it because I appeared too high-functioning for such a damaging diagnosis (their words). How can one take them seriously after that?

  • Hello Annette,
    I would be interested to learn more and take part. That’s a thing, one does need a safe place! If i am in psychosis, I do want to process it in a quiet way, not to remain in community and be terrified. But there is no way I am going back into the hospital after last time. They destroyed me in my first psychosis when treating something wonderful with massive amount of absolutely awful medication, after that it became a battle to get off it.

  • Thank you all so much for the comments!
    Yes, the overall picture is very sad, and it is extremely sad that when one actually asks for help, one ends up being mistreated and derived of human rights. As someone mentioned, they also put you on medication which is almost impossible to stop, as it can effectively induce psychosis. Very slow tempering is probably the key, i am almost there myself. It is also sad that there is no way to experience any spiritual awakening nowadays, and Jesus or Buddhas of today would indeed be inside a psychiatric hospital. I heard of open dialogue, which seems much better than the mainstream approach, I also think that something like Soteria is a way forward for those who are in need of a safe and welcoming place.

  • Omg,
    this is a witch-hunt within the psychiatry itself, eliminating any alternative views and showing us quite clearly the power-play within the domain of science. Being a supporter of an alternative network ‘hearing voices’ is wrong? Asking for the results of a research is wrong? It isn’t just about what is wrong with mainstream psychiatry, it shows what can go wrong in terms of questioning authority in such a ‘liberal’ domain as scientific research.
    Of course, doctors themselves don’t understand what they are prescribing, they say themselves upon questioning that they don’t know how the medication works precisely (anti-psychotic, for instance). But the main matter is that psychiatry as an institution maintaining the functionalist approach of the society we have nowadays just totally discredited itself with this story in terms of its capacity to conduct interesting and challenging research, demonstrating lack of creativity, empathy and ‘insight’. Shame

  • I am at a low dose of anti-psychotic (seroquel) which i don’t plan to stop for now, as indeed, i am at that stage where i enjoy magic and can work and look after my son at the same time, and be full member of the society, something i do like as i love working and other things life has to offer. In the past when i would stop medication, i could be without it for 2 years but in case of major stress, could get psychosis. So, i rather not risk full blown-up psychosis which will incapacitate me for good 2 months and will affect my son, who is my priority. I think that a good balance can be found on low dose of anti-psychotic.
    What do you mean by slow taper?

  • Hello,
    well, yes, everyone has different experiences, etc, we should respect that.
    I replied to this blog only because of reference to PhD lady, which I figured out was me, ha-ha:)
    As to this article, i heard from many people that anti-depressants are terrible with terrible withdrawal effects. Not sure i can get off seroquel myself, since it helps me to sleep and now i depend on it.

  • anyway, it was wrong to share my opinion about drugs, you are right. I shouldn’t have done it. In my case, seroquel helped, but i am not sure about its long-term effect, and as to lithium, i only shared what a friend of mine told me, but i am really not a specialist, only have personal experience with ‘mental illness’ which i believe is misunderstood. In my experience it is a beautiful thing for which I fight.

  • excuse me, but i don’t recommend drugs to anyone:) And my PhD is in philosophy:) But just so that we keep some suspicion and some paranoia thinking, how about that Russians are on board?
    Just saying:)
    (This PhD lady, well, i am not hiding beyond any identity), and if you read my article, then you would probably recognize that i am totally against categorizing people, insulting them, calling them names, and if anything think that madness is a gift from God- i have another article published on this site arguing for that.

  • Hello Alex,
    for some reason, I can’t reply to your last comment directly under:)
    Well, one day, yes, i might try to go of the meds completely. I am on such a low dose though that I decided i continue for now as it is the only thing which helps me to sleep and switch off my over-creative brain:) Otherwise, I can become too busy (with writing). I tried it last year after 5 years of nothing but it went wrong, and I ended up in the hospital, where i went by myself as was terrified and wanted help. I regret that decision now, but on the other hand, it did open my eyes on how psychiatry has changed in the past 5 years and for the worse. It can be due to the fact that NHS (medical system in the UK) is indeed facing a crisis and there is no plausible way to be a good doctor when you have 20 patients and can spend only 5 minutes with each of them in two weeks. They tried to put me on lithium, which thanks god i stopped on time, immediately after, and now, i can say, that i was ‘tricked’ into taking it. I am back on the old, proven for me, Seroquel, at a minimal dose, without seeing any psychiatrists.
    I think, apart from forced drugs, looking at people experiencing ‘magic’ as some sort of invalids, etc, etc, is also the doses they prescribe. There is no way one can lead a productive life on 300 mg of Seroquel a day. I am on 50-75 and manage to work across 3 jobs with it. But one day, i might try something different and say goodbye to meds. I also know that stress can trigger psychosis in my case, and you are right saying that we live in very stressful times, and raising my child is a priority:) Can you share a link with your film and also the book?

  • true, the true freedom is to believe in oneself and find one’s own freedom and choice about how to live. It is a pity that while this article was intended to help other people in the similar situation, some try to discourage me, which is morally wrong and insulting. I believe I found a way which allows me to stay in this society (and since, we are here, then maybe, there is a reason) while also seeing the magic and parallel world. I am also not hiding beyond any other identities and speak from my heart. But then, the hearts which are open, will hear the message. And I am not ashamed to admit that in my case modern medicine did help. If I didn’t end up that first time in the hospital, after 12 days on no-sleep, I would simply be dead.

  • that attitude towards ‘mental illness’ is similar all across the Western hemisphere. As i explain in the article I did fight with stigma or rather fear of it for long time, and decided enough is enough. In terms of medication, i have very low dose of seroquel, and it is my personal choice. I am not complying with anything and don’t have to see any psychiatrist. Last time I saw one, was my own choice, as well. I think we should accept different truths,etc, and my own truth is that i like my job, my friends, and especially my son, and living in this society while being also in communication with the divine is my choice as well. I hope you don’t feel discouraged by the fact that some people look down on you, this is wrong.

  • so that you don’t misunderstand me, i think that what is wrong is when things are forced on an individual. But it is also wrong to blame all doctors and psychiatrists. There are bad people in every profession, but there are also bad people among those who claim they are mad, and personally i am fed up of seeing the media blaming people if they commit a crime on their ‘mental illness’. It is just bad people who give a bad name to the real, good, mad people. As i try to say in the article, i believe madness is a gift from god, and one needs to hear good things he/she is trying to say. I also know that some people get ‘mad’ because of how they were treated by psychiatry, and this is totally wrong as well.

  • again, i met some good psychiatrists and also bad, and one way to go is indeed to come prepared. I want this, try this, at this dose. I also had a psychiatrist (the one i mention in the article) who agreed with me about not trying any medication when i landed up in the hospital, but we changed our opinion (together), after I started to go deeper and deeper into psychosis. If everyone had more time (and also the hospital in terms of beds), then maybe, yes, it would work. But it didn’t. And for me i find it important to be a full member of the society and still slightly mad, and change things from within.

  • well, how about i passed the stage of resistance? resistance to what? Society hasn’t yet accepted madness, and if there are individuals around who manage to stay mad and still stay in the society, then maybe it is a way to go.
    My opinion, yes, and don’t try to change it, please. As to psychiatry, the only way to change it is from within. No one will abolish it as institution any time soon, so a way to go is to change it for the better, make it human.
    There is a difference between well-thought resistance and negation of things for the sake of negation.

  • thank you for categorizing, but never mind.
    no one ever called me ‘bipolar 1’, and definitely not the doctors. It was just something which i found while reading about diagnoses and which helped me to understand why seroquel does help in my case, such as leading a productive life and avoiding the hospitals, even if with my dose, i can still end up in psychosis and need to monitor it.
    As to MIA mission, i don’t know if you noticed but i actually go against their most articles, by arguing that a dialogue with psychiatry is needed. There is massive amount of scientific research, as well as meds which do work. I am sorry but I did meet violent individuals who refused any sort of medication and would put themselves and people around them at such a risk, that i wonder what the solution indeed should be. Definitely not forced injections, but some sort of monitoring perhaps. I had to change a country of residence due to such an individual. As to lithium, honestly, i have no idea, i know that i should never take it myself. But a friend of mine has been happy on it for years, while in the past he struggled, lost his marriage and couldn’t work. Nowadays he is happily married and has a great job and tells me that lithium saved his life.
    I think there are always different sides of the story and negation of psychiatry (and any sort of medical care) and science as such is simply wrong.

  • yes, and it didn’t go well with the public:) In my first psychosis when I stayed at hotel Krasnapolsky in Amsterdam, I sat in the pose of a yogi in front of a conference room, being in perfect Buddha state. Next thing which happened, the security called the police, thinking i was a junkie:) Also, later, when I was in the hospital, the doctor had a problem with me being Buddha. So, yes, numerous technique to no avail:)

  • I don’t know:( from what i read here, things in the US are in particular terrible, a total reform is needed. They still prescribe drugs that do so much harm, while in the UK, the tendency is to avoid them, such as benzo-drugs. I think that someone, with actual experience of mental illness should come in, and then just travel around and compare different approaches in psychiatry, etc. In my case, the decision to stay on anti-psychotic (but where I decide on my own dose) is mine. No one can force it on me and no one can ever guess I am even bipolar, but after several hospitalizations I realized that it does help (medication), and after some research I discovered that I am bipolar 1, so i don’t have lows, but can get psychotic, a state i like, but i don’t want to loose touch with reality either, since i have a son, and do like my work, etc. But in psychosis, as beautiful as it can be, i do loose touch with reality. I can go way too high. Now, i experience it in low doses, but also try to lead a productive life, because i enjoy it.

  • Right ok,I hope someone else will comment on it as well! Good job you are fighting and surviving! Don’t forget there are other people in similar situation! You are also very clever and did your own research, keep at that! You might be able to help other people in similar situation after! You mentioned seroquel and that it didn’t help, if you are bipolar 2 (with mood swings during the day) you might try lithium at very law dose,you will need to monitor kidneys though and not drink too much. Lithium is good for those who have constant mood change! I don’t have it, and therefore seroquel works for me fine, but your case does prove that each of us should be treated individually

  • Can you change a psychiatrist? You need to find someone who is aware about what you experienced and advice you accordingly! Otherwise you seem to be clever enough to do your own research. I am sorry but I don’t know anything on benzo drugs but is there any advice on the net? The only advice I can give is that if you have the tendency to go high, (like me) then seroquel is the best medicine and you can adjust your own dose, but it isn’t best medication if you also go low. I hope someone else will comment and give you some hints so that you just come to your psychiatrist with a list!

  • Hello, thank you so much for sharing your experience! Benzo drugs as well as such med as respiridone should be abolished. I am sorry to hear that you had to experience this! This is what should be banned from psychiatry and yes, I am aware about the nightmare you face in the US, but things are not that different any more in other parts of the world! That’s why I wrote for this site and pray to god that a reform on mental health is going to happen, and I think you have chances with President Trump! Well, I hope so!

  • Ah, thank you so much! It was massive amount of work with me and the wonderful editor of Mad in America, Emmeline, working on it non-stop for last 4 days! We wanted something nice and positive for holiday period, especially that there are indeed good psychiatrists around who try to help, there are good cases when people do recover and lead their lives fully (me, mhh), with the help of meds, we have to be thankful to medical staff working on Christmas, and there is hope for us all!